Prolia Side Effects (Page 6) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

REPLY

REPORT

Re: Darcy (# 2953)

I wish you well trying to confront your medicos. One wonders how much is in it for them. Your list is frightening. I had 7 shots with the last being just over 2 years ago. No lessening of my problems which involve about a third of your list but adding aching left side jaw and thigh bones all really bad when I am trying to rest.Several GPs later and I still can't get any of them to believe my problems are associated with Prolia even though I inform that that a conversation with Amgen Aust got me the agreement that yes these can be side effects but they are very rare. Really???

REPLY

Was this helpful? 4

Re: Darcy (# 2953)

That sounds awful. I had most of those symptoms except 5, 8 and 9. The vertigo was quite scary - it made me feel so old and frail. My skin issues were probably the worst of all. A dermatologist told me it was "probably allergic". Duh! It took me two years to feel as though I had mainly recovered.
I never had a basal cell carcinoma (or any other cancer) before Prolia, and none since. Mine was near the corner of my eye. My facial bones still itch a little. I still haven't regained the hair from my armpits, the site of some of the worst and longest-lasting itching. If that hair returns I'll happily shave it. The hair on my head has recovered. I was about to let myself go a dignified grey until Prolia made me feel about 108. I'm sticking with auburn and a good cut.
I got off really lightly, but I'll never forget my year of leaden limbs and misery on the sofa, without the energy or motivation to even water my dying plants. Last year I was able to take on some physically demanding work, something I couldn't have imagined in 2017 and 2018.
I, too, had only two injections. It took me ages to work out the link, something which makes me feel so stupid, as a former research librarian. But the time lag makes it so easy to forget. I thought the early skin problems were sand flies; my doctor thought it was scabies.
My new GP has done the reading. She will use Prolia only as a last resort, so I have been a worthwhile lesson. I hope the specialist who prescribed this rubbish has learned something as well. I doubt it - in his eyes these side-effects are 'rare' and quite possibly imaginary. But he did take photos, so maybe ...
But I still don't understand why the huge numbers haven't made an impact. We may be a relatively small percentage but there are an awful lot of us!

REPLY

Was this helpful? 4

Re: JenjiOz (# 2956)

Hi there, I too have had a year from hell. As I have written before I had one injection March 7/19 and it was downhill all the way. I had a severe reaction which resulted in angioedema of my face and ears, my asthma was worse to the point where I had my first 3 asthma attacks that ended going to urgent care, extreme muscle pain, my angina got worse and now I have right ventricular heart failure and a thoracic aortic aneurysm and many more adverse event that are all connected to Prolia. My doctors all recognize the connection but all they say is what a sane that this happened. I contacted lawyers and finally got two to look at my case and due to the fact that the pharma company has declared these adverse events in there monograph there’s no ability for a class action case. Then I wanted to go after the specialist but no one will touch it because I am not sick enough. So I am going to report her to the college of physicians of Ontario. For those of you who are very disabled from this poison keep fighting and don’t give up, you may get someone who will take this case.
Dawn

REPLY

Was this helpful? 4

Prolia has been a nightmare for me. I have had and am still horrible side effects from this drug. I am sure I will never be the same after tolerating 7 shots, before I realized the reason for my muscles, back, neck were in so much pain. Also, vertigo, falls for no reason other than the side effects of Prolia. the actual name of the drug is denosumab, also being marketed under the name XGEVA, given to Cancer patients, a form of chemotherapy. I was not informed, and trusted my doctor. As I said before, Prolia has been a nightmare for me. Am still on pain meds. and probably will be for the rest of my life. I hope this post helps someone to not suffer as I have. Prolia poison!

REPLY

Was this helpful? 4

Re: Sal (# 2963)

Thank you. Your friendship and sharing have been encouraging and helpful. I appreciate it so much. I bought a book called Yoga for Osteoporosis and I think it was by the man in NYC.

The fatigue issue has been keeping me from exercising. I have the Silver Sneakers program on my insurance too. I haven't been in a few years. When I get the fatigue adjusted I'll be able to start the Zumba and Bollywood dance at home.

I'm watching the documentary Heal on Netflix. I think (for me personally) working on the emotional and mental thoughts that are preventing healing. Stress chemistry affects ph, more acidic = inflammation which I don't need. Disability probably won't help with auyerveda, reiki, mental and emotional energy healing. It can't hurt to add this aspect along with the diet and exercise.

There's anger at the government, my doctor, Amgen. I don't need anymore inflammation.

I'm so tired. I don't feel like doing much of anything and that adds to the frustration. I have a list of books I want to write, submit or publish. I must heal because that will give me the strength to write the books to make people happy.

I hope I can afford the Save Our Bones Program this month.

This group has been a lifesaver for me. Knowing I'm not alone and that what I'm feeling isn't isolated.

This road is painful and long but I will regain my strength and health. Every good and positive report gives me hope and I celebrate it with you.
Everyone has my prayers for continued health and happiness.

Nikki

PS: Sorry for the long post. But I appreciate you all and this place where we can meet.

REPLY

Was this helpful? 4

I have had a very bad outbreak of psoriasis and my daughter gave me a treatment with her blue light that she ordered for her condition which is all the time for her. I have had this disease also since my Prolia treatment. I did not have it before the Prolia treatments which I no longer get, but still have problems 2 years after stopping all shots. Aching bones, hair falling out, Psoriasis, bone lumps on my body, skin irritations all over my body.

REPLY

Was this helpful? 4

Re: Lynne (# 3)

Unfortunately some side effects never leave.....Hope for your sake they do

REPLY

Was this helpful? 4

Re: Verwon (# 1)

I’ve had two injections of Prolia, six months apart. After the first injection, I had no side effects. After the second injection, I developed excruciating pain in my right groin area. It was difficult to walk and I could actually hear my hip making a “bone on bone” creaking noise, along with a “popping” noise, like the toddler toy (a stick with a plastic dome on wheels that is filled with plastic balls that that are tossed around). I ended up needing a right hip replacement. About six months after taking Prolia, I developed osteonecrosis of the jaw, first on the lower right jawbone, next on the lower left. I’ve been taking a Calcium, Magnesium, Vitamin K supplement and the osteonecrosis seems to have resolved. Before, you could see the bone where my gums seemed to have worn away. It was painful too. Now I have excruciating pain in my shoulders and they’re both making creaking and popping noises when I move, which means they’re bone on bone now. I’ve had fibromyalgia for about forty years (I’m 68), osteoporosis, and I was diagnosed with Rheumatoid Arthritis about two years ago. It’s hard to know which condition is causing all the pain. The

REPLY

Was this helpful? 4

Re: JenjiOz (# 3049)

Oh my God you poor thing. I had two shots of Protea as well 2 1/2 years ago. I had basal cell and squamous cell carcinoma on my right arm requiring Mohs surgery. A hollow on your eye must be horrifying and I think you are right that this may be the tip of the iceberg. I know that when something is odd about me my first thought now is ~ is it caused by the Prolia use? Amgen is still making this drug under another name I believe. There are enough women who have taken this drug we are we should all band together as much as we can and sue the s*** out of them collectively. Due to the various ravages of Prolia use many of us just don’t have the energy. Stay strong Jenji, eat well, be good to yourself.

REPLY

Was this helpful? 4

Re: Darcy (# 3050)

Really true a bout the lack of energy to organize and seek some kind of truthful statements concerning this drug. A great day now means being able to drag through normal tasks.

REPLY

Was this helpful? 4

As I have stated many times, it is the worst drug I have ever had. Did not know all of the horrible side effects before tolerating 7 injections. They almost killed me. Still suffering with pain that may never go away. Permanent damage to muscles and joints. Poison is what I refer to the drug Prolia! Beware and research before you take Prolia. Regret that I did not know.

REPLY

Was this helpful? 4

My wife was convinced by her rheumatologist to take Prolia. One of the worst decisions she has ever made. Prior to taking Prolia there was no problem with her electrolytes. About 2 weeks or so she had severe tingling in her, hands, feet, around her mouth. She went to the ER and they found he calcium, Phosphate and several other, chemicals needed for life had taken a dive down. She was admitted to the hospital and they raised her levels back up. After several days she went home. The ER work only lasted for 2 days and then back to the ER and admitted to the hospital a second time. Then back home and then back to the ER and admitted for a third time in a little over a week. After studying about Prolia and all the problems I asked the doctors could Prolia be the problem and they said she was in excellent health when she took the drug. And then all hell broke out. She has been home for 2 days now and she will get a blood test in the middle of next week to see if anything has changed, if she makes it that long this time. The doctors are now looking at Prolia as the cause of all the problems. I don't think there is any relief except the hospital. Recap: 3 ER visits and 3 hospital admissions in a little over 1 week.

REPLY

Was this helpful? 4

Re: Judy (# 3069)

If only we had been warned about the likelihood and nature of side-effects! The doctor who prescribed Prolia for me seemed genuinely surprised by the effects I suffered. Over the past 3 years almost all of them have gradually subsided. The first 18 months were a total nightmare. The doc seemed determined to find some other cause, dietary or environmental, but there was none. It seems that Amgen brainwashed the prescribers.

Fortunately for me, the residual effects are now mild, but have included increased sensitivity to other medications. This effect seems to be lessening, but makes me a little apprehensive about taking anything new.

REPLY

Was this helpful? 4

Re: Nikki (# 3074)

It's on the FDA in America or TGA in Australia. Class action is not possible now. Amgen has updated their side effects to spontaneous vertebrae fractures.....you have to rely on Drs knowing this but they don't...they just listen to the drug reps.

REPLY

Was this helpful? 4

I had after about 6 weeks in...got really bad headaches...then ear aches then vertigo..had burning mouth syndrome..hip pain... Prolia turns off your immune system . It doesn't make new bone. It stops the normal process of bone turnover...keeping old dead bone cells in your spine and if you stop without a delay drug you are at high risk of spontaneous vertebrae fractures...

REPLY

Was this helpful? 4

Re: Lizzie (# 3089)

I would not believe you doctor totally as when it relates to Prolia they have no clue. Now with Covid 19 vaccine you should talk to an immunologist or allergist as I was told if I get it then I should be in a controlled setting where healthcare providers know what to. I has my first and only Prolia injection March 2019 and still experience symptoms granted not as severe. I am deathly afraid of any new meds let alone injections. Again these are my experiences and I can tell you I am much more on the ball and do not take any doctor’s recommendations on face value. I do my homework and challenge them even though at times they are not pleased. Hope this helps with your decision making but you just have to be comfortable with what ever you decide.

REPLY

Was this helpful? 4

As I have stated many times, the drug Prolia has been an ongoing nightmare for me. I have had almost all of the horrible side effects of Prolia. I took 7 shots, before I researched Prolia and the side effects. I then realize why I had been so sick. Muscle, joint pains, rashes, lost of hair, vertigo leading to falls, and permanent damage to my whole body. My oncologist did not forward my records to my family doctor, he said he would have called me and stopped the shots. He said he would never give this drug to anyone for osteopenia. It is being used for Bone Cancer patients, it is a form of CHEMO! Horrible drug for me personally, I hope this post helps other to not have to go through what I have been through and am still going through!

REPLY

Was this helpful? 4

Re: JenjiOz (# 3100)

Thank you for your comments. I am a firm believer in not taking anything long term. (I won't put my cat on any long term flea meds) and yet... I have had bad results from Fosomax...fractured my spine with six months of coming off Boniva IV. Prolia gave me the bony tumor but it also increased my bone density by 12%. I just don't know what to do. On my behalf my rheumy has ordered Prolia twice before and I chickened out. I tried Forteo but it made the tumor hurt more. Strangling my intestines is at the top of my list of auto immune fears. I'm just trying to determine if I am opening another can of worms. I am 76 years old...(can't believe it!) Not sure which direction to head in. :)

REPLY

Was this helpful? 4

Re: Darcy (# 3095)

Hi there. I never had more than on shot of Prolia and still suffer side effects 2 years later. Mostly the stomach issues sporadically, joint pain and angioedema like face redness especially right side and my right ear. The right side of my face look as like I have had a minor stroke or Bell’s Palsy. Anyway I was torn about the vaccine but finally in April 25th at 10:00 am had the Pfizer vaccine. No reaction at the time but that evening sore arm and fatigue which was normal. Then 2 days later my BP went up and the angioedema redness but no swelling again and just feeling generally ill like when my reaction happened to Prolia. So far that is all and I am hoping nothing more. I am not regretting getting the vaccine and I did my homework on this one. You see I have asthma and Prolia reaction also did a real number on my lungs so not getting the Covid vaccine was not a choice as if I god Covid I would most certainly not survive it. This is my journey so far.

REPLY

Was this helpful? 4

Re: Marion (# 3109)

I would dump that GP ASAP personally. How insulting, especially after you’ve already told him of your Prolia side effects. I have moved to a different state, and I have now have to advise all my new doctors about Prolia issues. But this I will do because everybody needs to understand the old Prolia, or the newly minted Eventy as just plain old bad news.

REPLY

Was this helpful? 4

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

318 REPLIES

I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

200 REPLIES

I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

34 REPLIES

I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

7 REPLIES

I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

85 REPLIES

I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

11 REPLIES

Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

27 REPLIES

I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

128 REPLIES

I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

15 REPLIES

What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

29 REPLIES