Prolia Side Effects (Page 5) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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I had one injection of Prolia six months ago. Previous to the injection, I could run three miles, be active and working from morning until night. Since the injection, I have lost 27 pounds, had nausea and vomiting without relenting, have caught several "bugs" including bronchitis, and had waves of fatigue so uncharacteristic of my usual 51 year old self. Also, I NEVER again will I do an injection. It has been 6 months of ill health, multiple doctor visits, and many tests. My heart goes out to anyone experiencing side effects from this awful drug.

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I wouldn't ever take another prolia shot or take any pill. Calcium and vitamin d. Is all you should take. I tried taking the pills for osteopenia and had one shot of prolia. Next day I could barely move my legs and was in horrible pain for two weeks. Never have been able to walk correctly since then. Do not take it. Very few people had taken it without bad side effects and I don't think it helps. You also have to take calcium and vitamin d with any of the osteoporosis drugs and that is why helps. Have your vitamin d level checked on a regular basis.

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I've written to the FDA 4 times and I've called them several times. I've posted several previous times on here. I'm so disgusted in the FDA in so many ways but I told them I think it's horrible that they approve drugs like Prolia and don't make it mandatory that the doctors have to do follow up with patients that they prescribe Prolia to nor do they make it mandatory that the doctor reports any side effects. In my dad's case, because of the chain of events and no one in 4 different facilities would take responsibility for reporting the side effects, none of them got reported by professionals as I feel it needed to be and should have been. I have reported and reported and reported each time he had a side effect. But it needs to be made mandatory of the health care professionals if they're going to prescribe these wicked drugs. As far as I'm concerned, they are off the hook and therefore I feel that the FDA has NO clue, no true picture of what these drugs are doing to people. Simply an unorganized joke in our healthcare system.

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I sure hope you're all screaming at your doctors, the FDA and Amgen! I did. But its gonna take an Army and a bunch of ornery people to get this drug off the market. Keep on contacting them. The drug reps are NOT telling the doctors the right info OR the doctors are not telling patients. One or the other. It's gotta stop. So disgusted.

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Kathy`in plain English' there is no end to a half life. It goes into infinity meaning forever with no end except death for mammals. With the Prolia, Amgen said the half life was 26 days, so that should indicate that 1/2 of the Prolia has been deleted by the body on the 26th day after the injection. It's horribly untrue as we know that just from me, and others here the Prolia is HELL for months on end. Toward the beginning of the 5th month I got a lot better, some others did not. The Prolia is supposed to be totally deleted from our bodies by 6-11 months, depending on our body they say. There will ALWAYS be a molecule or two of Prolia in our body because it has a half life so it can never really totally end even though we feel wonderful and the world is great again. The only way a half life ends with mammals is death as there is no longer any living tissue. MD's like to view this a little differently but what I am telling you is the 100% truth scientifically and mathematically. Go ask any Physicist about half lives or even a good math teacher and you will get exactly what I wrote. All drugs (chemical or bio-engineered) have half lives. Pood

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I'm sorry your doc did that to you. It proves you can not take money and still be a terrible doc which I have also experienced. The deaths reported in the ask a patient graph are deaths ocurring after the drug was approved not in clinical trials. There have been 4-5000 deaths reported which is extremely high. The age of the patient doesn't matter. No one, especially someone more vulnerable, should be given this drug with these high risks. It's disgusting to me.

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Re: Lady (# 2472)

THAT WOULD BE IMPOSSIBLE SINCE IT HAS TO BE INJECTED BY A MD AND YOU CANNOT GET IT MORE OFTEN THAN EVERY 6 MONTHS. What medication do you think you are writing about or is it the alcohol that is doing the writing here. Confused!

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Re: Poodle (# 2576)

Hi , not just USA and Canada...add UK to that, thanks to this forum I refused the drug, but my consultant tried to tell me not to believe everything i read on the internet.....i do hope you all manage to get some relief and get this drug banned for all of us.

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Re: Norma (# 2580)

You have no idea how much I understand and sympathize with what you are going through! I’ve suffered so much from this poison called Prolia.... There is a Rheumatologist in my family who told me she does not offer Prolia to her patients at all for anything, given the risks involved and that I was very lucky to have experienced such a bad reaction from the first shot thus discontinuing it immediately. Despite that, on the 30th of june it will be 15 months since I had the bad idea of listening to my GP’s insisting recommendations that this would be a “wonder drug” for the osteopenia I had. I have been sick since, experiencing cycles of pain and illness that started with a serious type of cutaneous and vascular inflammation on my legs and arms followed by very swollen legs (diagnosed by a MD in another country, not in Canada, where no one of the MD’s I saw wanted to associate what i was having with this horrible drug—not even to establish an hypothesis). As such, I was diagnosed in another country as having Erythemas Nodossum, usually resulting from an autoimmune response to a med, This left me disabled (could not walk without help or a wheelchair) for a good two months. Had to be put on Prednisone decreasing from a 20mg’s dosage for several weeks. Shortly thereafter I lost 20 pounds in less than three weeks due to a Hyperthyroidism that I did not have before... For the first time in my life, my yearly biochemixal profile showed that I was also anemic, had calcium deficiency and high cholesterol! I, who had just turned 60, had a perfect weight for my size and frame with a healthy BMI, who was on a super healthy, well-balanced diet (and vegetarian since 2011)... who didnt drink alcohol, did not smoke and was at the gym 5/7 days a week doing yoga, cardio and weights.... Well... things did not finish there.... in July 2017 the cycle of pain and swelling in my legs started again...kept half of my days with my legs up and with an ice bag on each...In July 2017 I was also placed on Tapazole for my hyperthyroid and propranolol to control the shaking of ny hands caused by it....August was a weird month! Although I was very skinny and took me forever to gain back my weight...WOW! I felt well until mid Sepember... when at my daughter’s bday party everyone noticed my eyes were very swollen...Although the thyroid numbers were under control, I developed the eye iphtalmooathy associated with hyperthyroidism—Graves disease. If I had an eebemy, i could not wish this on them...Since September I’ve been suffering from not only an esthetic problem but a decreasing vision that was not properly diagnosed nor treated at home. Currently Im semi-hospitalized. In another country diagnosed with an optical nerve compression.... secondary to the Graves, caused by the thyroid problem, caused by PROLIA.... Thyroid disorders are autoimmune in nature. It is well known that Prolia causes it.

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Re: Judy (# 2588)

According to Save Our Bones, Big Pharma has been aggressively marketing( read spending $$ on physicians in Australia )so, for those if you in Australia, be prepared .... More profits over people.

There other interesting articles on that site today; I highly recommend it.

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Re: Sherry (# 2590)

I also refused another dose. This was against the Dr.s' advice, but I stood my ground.

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Re: Norma (# 2605)

Thank you for your input re calcium builders. I will certainly consider any natural option. I have decided to accept the natural progress of aging without putting pharmaceuticals in my body due to side effects experienced. I'm amaged at the range of issues others have shared after so few injections. I'm currently using Shaklee OsteoMatrix and JointHealth Complex, could be considered expensive, but is natural with high % of beneficial ingredients without fillers, so worth it for me. I noted a prior post where someone stated there are alot of doctors "invested" in Prolia - I feel most of their investment is definitely $$. I'm appalled at those doctors that dismiss their patients concerns regarding Prolia as did mine.
~K

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Re: Lynne Herndon (# 17)

Don’t do any more injections. I was on it for 5 years. I had all the side effects. It will only get worse. I have not had Prolia in 8 months trying to get the poison out of my body taking Algae Cal and Strontium Pluse. Doing very well considering how much pain I was in

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Re: Marion (# 2704)

So now that the patent on Prolia is about to expire, Amgen is coming out with a new drug previously denied approval by the FDA due to dangerous cardiovascular side effects. It seems that they tweaked their warning label, and now they stand to be approved??.

They will stop at nothing.

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Re: Dawn (# 2785)

Dawn, im also in Canada. If any of us hear about legal action against the company that made abd profuts from this horrible drug at the expebse of destroying most oatients’ lives, let’s please share the information. I only had one injection in March of 2007 and my life has not been the same since that ill-fated day. I have developed several autoimmune disorders since..... Drs abroad (South Anerica & Europe) have agreed that Prolia causes autoimmune disorders among other things while in Canada most of the MD’s I have seen are very defensive when i say so and say it is my imagination....

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Re: Maritere (# 2795)

Same thing here in CA. I've talked with three doctors and one physician's assistant. Same crappola. Indignant......."Oh, no, Prolia has nothing to do with it". My response, "The hell it doesn't". I don't know about Canada, but these doctors here are all sticking together. Not one damn bit of concern, they're worried about a lawsuit and the rise in their prices of medical malpractice. That's the bottom line everywhere, no less pharmaceutical manufacturers or doctors. For some reason, which I have not been able to get an intelligible answer, lawyers won't touch it. I've been trying to impress the importance of making a complaint with the FDA. Our foraging around from one lawyer or governmental department is not going to get us anywhere. FDA, or wherever, we've got to complain in unison. One letter, here to an attorney and there to another attorney, isn't going to work. What does work in so many cases, is the noise. The louder the better. The squeaky wheel gets the grease. You girls in Canada, let us know what you come up with and I'm sure we'll do the same.

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I will sum up the 7 shots of Prolia that I tolerated before it almost killed me, Poison , deadly drug!

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Re: Sal (# 2899)

When in doubt about Prolia refuse it. If the doctor gets angry find another doctor. Three years ago my GYN doc filled a prescription for me. I refused it and she got testy. I had no idea all the pain people were having with Prolia. Once someone injects a drug and you are allergic to it the Prolia stay in your system for a long time. Quit listening to their advertisement on TV.

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Re: Hedy (# 2908)

The “. No one ever reported that before”. seems to be a common response regardless of specialty. I am quite sure people have reported side effects but they were ignored in favor of Big Pharma. I don’t believe they are all in collusion , it seems to be a particular mindset, not paying attention to patients.

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Re: Norma (# 5)

I had 7 shots and the last one 2 years ago. I still have an aching jaw, sore thigh bones and some nausea. I'm not certain the nausea is caused by the prolia but the other symptoms certainly are. I would have stopped the shots after the first 2 but 3 different GPs bullied me into more. I simply refuse them now. It is a dreadful poison to most people. I contacted Amgen Aust about my problems and they said "well, yes, they can be side effects but they are very rare" They lie or no one is reporting them.

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