Prolia Side Effects (Page 39)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Canadian~ Please keep me informed about the sauna. Let me know if it helps. I have to join a gym in order to use a sauna. It was recommended by the lady at the health supplement store. Saunas are supposed to lower your blood pressure according to the pharmacist at my insurance company. When I get this god awful Prolia out of my system I am going to go completely natural for medicines. I am on something for blood pressure and cholesterol. I also take Prevacid for acid reflux. According to the lady at the health store that will be the hardest one to get off of. I have been on that for years. I will probably have to work with my doctor to get off of that slowly. She said probiotics will control acid reflux. I recommend all of us get more information from a health store. Doctors know little to nothing about supplements/minerals. They go directly to the drugs and a lot of issues can be controlled without drugs and the drugs just cause more side effects which means more drugs to control them. I've seen where a lot of people have doubled their calcium and vitamin D. It is best to follow the directions on the labels. Too much calcium and calcify in your system and cause other issues. I know we are all trying whatever it takes to get rid of this Prolia but do it safely!

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has anyone had insomnia from their prolia inj. I never had insomnia until less than a week after receiving my first inj. That was only 7 wks. ago and I have a LONG TIME TO GO TO HOPEFULLY GET IT OUT OF MY SYSTEM.

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Kathy, I looked at the web that sauna is not suitable for those people with high blood pressure, skin problem or heart disease. My blood pressure is pretty much at high level always so I am a bit hesitated to try the sauna. Quite disappointed!

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Anne~
Sleeplessness is a side effect of the prolia. I would ask your doctor for something. I take Alprazolam. It's for anxiety and it helps me sleep about 6 hours. I was sleeping 2-3 so it was a vast improvement. We need sleep to get through this so I would ask for something until you can sleep on your own. I would also ask for something that you can't get hooked on. Alprazolam is very inexpensive and I don't wake groggy. I had my shot on 08/03/15 and without taking something, I'm lucky to sleep 3 hours a night. I am also on steroids for the pain and they also cause sleeplessness. Everything we take has a side effect of some sort so the less you can get by with the better. BUT you need sleep to heal.

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Canadian~ Sorry to hear that. Was hoping that it would help someone. I'm going to try it after the 3 month mark. Amgen said that you shouldn't have any NEW side effects after that. My jaw is so painful that I don't think I can handle any more pain and I'm not sure if the toxins coming out of our system will cause more pain or not. I will let you know after I try it.

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Hi again~My mother got Thrush and her Dr. gave her some kind of medication for it. I didn't ask. I'll ask my brother as he picked up all of her meds. I know she was really irritated at both of us and said: "Doesn't anyone care that I have thrush.". I had to reply: Well, sorry, Mama, I have no idea what you are even talking about so she told me. I'll ask if he remembers what she got for it. Pood

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Canadian - specifically for what reason are you going to have your stomach scanned? What is the problem you are having with it. I seem to have missed that. Most of us can tell you a lot more than your Dr. can as we are all living with Prolia and sharing information. Is it vomiting? Do you also have diarrhea? Prolia is known to cause autoimmune diseases so I would highly suggest a more advanced blood test than just a CBC. You need to get immunoglobbins tested. From that, the MD has more of a good reason of what your body is doing x, y or z. Be well~Pood

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I'm sorry but I am reading everyones post on sleeping. I too have insomnia and I take a sleep aid, tomazapam. I have not had a Prolia shot in 21 months, so if I am reading what everone is saying correctly this "Prolia" is out of my system. The reason "I", "We" are still taking sleeping meds is because we have taken them so long, our bodies have become accustome to them. At this stage I don't think my Prolia shot and my insomnia have anything to do with each other. We can blame a lot on Prolia, but the facts are the facts.

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I'm sorry but I am reading everyones post on sleeping. I too have insomnia and I take a sleep aid, tomazapam. I have not had a Prolia shot in 21 months, so if I am reading what everone is saying correctly this "Prolia" is out of my system. The reason "I", "We" are still taking sleeping meds is because we have taken them so long, our bodies have become accustome to them. At this stage I don't think my Prolia shot and my insomnia have anything to do with each other. We can blame a lot on Prolia, but the facts are the facts. Also Alprazolam is the gernic for Xanax and is Very addictive. Please people if you are going to take sleep meds do so with caution.

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Poodle~ I did call the doctor's office yesterday and got Nystatin. It does help. Thrush is very painful. It's small white dots all over in your mouth and throat and your tongue just burns. I need to take it 4 times a day and swish in my mouth and swallow it. I've only taken it 3 times and it does seem to be helping the pain.

Victoria~ You say you've been off Prolia for 21 months. Other than sleeplessness do you have any of the other issues left? I've had a horrible time with my jaw, ears, teeth. The dentist finds nothing wrong. I am currently taking 20mg of steroids a day to control the pain and it keeps it bearable but that's it. It's always there. My teeth are the worst. I had a bone scan and my jaw showed a 'hot spot' which means there is inflammation. I see my doctor next Wednesday to see what else can be done.

As far as sleeplessness - I think this is caused by the Prolia and in my case adding steroids. Both cause sleeplessness. I was only sleeping 2-3 hours a night before. I don't know if there is anything that isn't addictive when you are talking sleep medicine. When the Prolia is out of our system, that's when we will need to get off of them. In the meantime we are just trying to make it through this. Everyone should ask their doctor what would work best for them and their medical issues. I personally have had good luck with the Alprazolam and it's very inexpensive. Once it's not needed, I will ask how I go about getting off of it. For now, I just need to get some sleep.

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all sleeping pills are addictive, but one has to get some sleep. if not, one will go crazy with no sleep. yes Xanax too is addictive. it is really a viscous cycle - originally caused by the extremely sudden onset of insomnia right after my prolia inj. I used to sleep thru the night with no problems 11pm to 7 or 8 am in the mornings. now I am lucky to get 4-6 with interruption and on temazepam and Xanax as well. there is no light at the end of the tunnel either way. my back problems (after two thoracic kyphos in 5 wks.) has gotten worse, when in the past they got better. All I do not is ache no matter how I sit, walk or do my pt exercises.

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Victoria~
I just looked up tomazapam. It is in the same family as Alprazolam. Tomazapam is the generic for Restoril which is also a benzodiazepine which is for anti-anxiety medicine. I think we are taking pretty much the same thing. Have you tried to get off of it? What have you done? Just want to know what else I have to look forward to.

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Just wanted to mention that I am taking .5 mg of Alprazolam about a half hour before I go to bed. I do not take it throughout the day. This does seem to help me get some sleep. As I stated - talk to your doctor or pharmacist before you try anything. They know the side of effects and they can tell you what is best for you. We are not doctors here - we're just trying to help each other through this.

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Kathy, I was on Lunesta for years before I even had my first Prolia shot. I was diegnosed with insomnia some 15 years ago. When my insurance wouldn't pay for the Lunesta any more I switched to Tamazapam. Yes it is addicting.

I stopped the Prolia Because I was getting tingling in my arms and legs, I no longer have these. I don't know if it is because the Prolia is out of my system or that I found out I had a herniated disc in my lower back which I just had surgery on this past Wednesday . I could sit here and make a case and say I don't think I had any of this before the Prolia shot but the truth is I'm not sure.

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Poodle, thanks for your concern of my stomach. I had the stomach problem before the Prolia injection. I had gas in my stomach, no vomiting and diarrhea. After eating foods, my stomach is swelling and feel stress in my chest. I am not sure what is wrong. I went to see doctor and he referred me to the specialist a month ago. The scan will be done this Wednesday by the specialist in the hospital. Is it the doctor has to do the scanning first in order to find out what is going wrong inside? Now, I have the Prolia in my body, will I get infection during the process? Does the specially knows about the side effects of Prolia? Should I tell the doctor ahead of time, but it is very difficult to reach the specialist until the day in the hospital. Or should I cancel the appointment to bear with the stomach problem until 6 months later. My God, I am really get into trouble. I am supposed to go to Hong Kong in Oct 14. With the Prolia in my body, I really don't know what other side effects that I am going to have.

Kathy - a hour ago I tried the Spa pool for 20 minutes. After that I feel not that miserable and have more energy to do the housework. The water is not too hot this time 35C or 100F. I didn't sweat a lot. May be next time I will try the sauna for 5 minutes also. Will update you.

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Kathy~if it had not progressed as far as it did and you got to it at the very beginning had you even known what it was, you probably could have gotten rid of it with just salt water. It's a fungus so I would definitely say Prolia related. I'm sure your Doc gave you an anti-fungal type mouthwash that will knock it flat. It can also be caused from people that wear dentures and don't clean them appropriately so a fungus can grow. This is another to be reported to Amgen and the FDA. Pood

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I have posted a message yesterday. It get lost?

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Xanax is a VERY DANGEROUS DRUG in that it is very quickly addicting and to go off of it is extremely dangerous as it can cause the heart to stop so one has to go off of it in a 24-7-365 care facility where they will be constantly monitoring blood pressure. Never, ever take Xanax. I 'think' it takes about two months to go off of Xanax and be totally well. Private insurance will pay for this and that's about all.

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I am getting the thrush in my mouth now. Numbness around my fingers is getting more serious. Could these are one of the side effects. Look like the bad side effects are getting near and near. I don't know, not strong enough and no energy to fight with it as I have lost hope and confidence.

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Canadian~I just noted in the side effects of Prolia that it can cause an infection in your stomach and in your abdomen too. Going to Hong Kong soon. Ohh Ohh. I would not have the strength to get across North America, let alone across an ocean all the way to the Orient. I can tell you that it is a lovely place to visit if you feel well enough to go sightseeing. You had better get your immunoglobbins checked really FAST!! Hugs~Pood

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