Prolia Side Effects (Page 116) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Stomach problems:Pains and spasms in mid stomach area after 1 month of taking Prolia shot

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You just described me! I am 11 months post prolia. Even though I am better, I cycle through all the old health issues often. I just remember how really bad it was... still horrible. It better now...

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Yes it was horrible but this poison never leaves us and who knows what else it did to us

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Amgen really does not know. They know it's a bad drug and are working on a replacement for it as was written in the NY Times. They only followed people for 11 months. It takes a lot longer than 11 months to get a lot of the Prolia problems out of our body. They had no clue that it caused hair loss either and that should have been a 'given' considering it only has a little less of the active ingredient in it than does it's twin, Xgeva which is a true 100% chemo drug. It's good to call them though as they are required by law to report your side effects to the governing body of any country in which we live. Rather than chiropractor, do you have an acupuncturist available. They are very good at stopping the aches and pains of Prolia or there are physical therapy companies that do dry needling which is based on acupuncture but instead of using 'energy', they use specific body point marks. Look and you may find one. Be well~Pood

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Poodle, re my lips , I have discovered a product , Cicaplast, ( la Roche- Posay) which is really helping. I just came from my GP ( not the dr who prescribed Prolia) and she is doing blood work and also referring me to a rheumatologist re my sore joints and muscles. She mentioned that it is an auto- immune problem I may have.if so prednisone can help. I worry about that, though, as it is not good for the bones. In the meantime the skin rash continues, spreads(now on my back) and my mouth sores get irritated , specially eating any citrus or spicy food. I found another webpage where , lo and behold, others are experiencing the same mouth problems. So I'm not just imagining it. Too coincidental! All I wait for now is for this awful stuff to leave my body.

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1,300 days since I had my one and only Prolia injection. Almost 3 1/2 years. I measure my recovery in small milestones over the years. I keep a journal to measure my progress. I started to read postings all the way back to C Louise, Bennie, Anna, DP Girl, Lallie and Lynn Herondon. My docs predicts I will have 2 to 3 yrs more of side effects until my body recovers. As many of you have stated, you begin to feel better and then the side effects come back. This has happened to me also. I wish I had this site when I was going thru through the worst of it all. Remember it's not you, it's the Prolia. I am writing today because a post caught my attention. Two people noted stomach problems and indigestion, maybe infections? When I was on the phone with Amgen last week they asked me if I had stomach problems or infections. My two cents, did they ask this because they have had reports to this effect? If you had this side effect or others, call the FDA (1-888 463-6332) to report. Doctors are not required to report and Amgen is supposed to contact the FDA with reports. Just to be sure call the FDA. I suspect the next FDA Prolia label warning change may be for stomach issues.

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Judy~please forget about Pred hurting your bones now. I promise that Prolia has made them so strong that a year on Pred. will not hurt you in the least. That's why it is a racehorse getting to the finish line ASAP. The only thing you need to worry about is going off of it VERY SLOWLY. In the meantime enjoy having that nasty rash GONE. Prolia is a very wicked drug as we all here know so it takes another wicked drug to fight it, If you don't, Prolia will win and you can easily be in misery for 3 Plus years. Worry about your immune system. That's a big worry with Prolia. When it is not working properly we can and do catch everything that's going around and can also lead to an autoimmune disease like I got and so did many others here. Some people got cancer from it as there are always cancer cells in our bodies but our immune system recognizes them and kills them before they can start. On occasion, they can change themselves so our immune system doesn't recognize them and when one gets by, it will invite all of it's friends to the party in your body. Worry about your jaw and teeth. Worry about your thigh bone breaking in half for zero reason at all - just an ordinary step and do not be the least bit surprised if you get a cataract in your eye too. Prolia is good at that too. There is a lot to worry about with Prolia so stop fretting about what is going to help you. Just make sure you come off of it very slowly, tapering off. Your Doctor should guide you on that so you have one less worry. Be well~Pood

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My mother took the Prolia shot June of 2016. She has been in terrible pain ever since. Hip pain, lower back pain, shoulder pain, and arm pain. She has also had a UTI - first one in her life. She has lost approx 20 lbs. She is experiencing groin pain and struggles to walk every day. Prior to the shot , she has occasional lower back pain. She was told she had moved from Osteopena to Osteoporosis and needed the shot. She is sicks months in and still no relief. Has been referred to an Endocrinologist and also an Orthopedic Dr. She has also been told that the drug is no longer in her system. She was just recently diagnosed with Arthritis (never had prior) I too think that this is a case of money won. In everything I have read, this drug should have never been released to the public. It is so misrepresented when it is mentioned by the Physicians or the advertisements. There may have been some that have had no issues but the ones that are having issues, are having life changing issues. So we sit and wait and pray that the side effects ease up. At this point, I am not sure they ever go away. I could not find a post that said they ever got better. Is there anyone out there that had severe side effects from Prolia and they eventually got better.

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Yes, the side effects are life changing & you lose all sense of hope that it will ever end.
I have had bone pain so severe in my thighs, hips, & groin & have just cried in pain. It has now been 16 months since my one & only injection of prolia & am still in daily pain. Not as bad, but the same pain none the less. The doctors absolutely know nothing about this drug. They only thing they see are $ signs the pharma company pays them each time they give the shot to an unknowing patient. May God forgive them because I surely can't.

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Sheri~I read on one of these threads somewhere that people with stomach problems are taking an OTC version of Zantac, etc. I don't remember which one it was but they are pretty cheap and if you try different ones, you will find the correct one. Hugs~Pood

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I am on Dexilant 60 mgs, Milanta and Tums, Before starting any of these bone density medicine, Fosimax, Boniva and then Prolia, I was doing better. This has really taken over my life. I am miserable everyday and nothing is helps. I have tried going back to exercise and I push myself but all my bones ache. I listened to and take 200 calcium and 500 magnesium. Soooooooooooo Sorry I ever took Doctor's advise. Sheri

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Malyo clinic took me off of the medication They stated it caused calcium to not be absorbed. Instead I was told to take Ranitidine which is good but not nearly as effective as the dexalint. My gerd and gi tract are so messed up ... check with your doctor about the dexilant.

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I just started Dexilant , It is my last hope none of the other ones worked, actually had a 24 hour study with tube through my nose down my throat and showed that what I was on at the time didn't stop acid from coming up.

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I have lost 5 teeth and gained 20
Pounds since taking Prolia. I have now developed hypoglycemia too but do not know if the Prolia has anything to do with that. Never again,

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Linda, Yes! Prolia does cause hypoglycemia. You need to go to a Rheumatologist probably to get some medication to change that around for you. I'm sorry about your teeth. They can be replaced but please keep up good oral care so it does not spread into your jaw. You definitely do not want ONJ -- that means Prolia eats up your jaw bone. A regular dentist cannot help you while you are on Prolia. You have to go to specialists that are something like maxofacial. They deal with pulling teeth, gums, implants and bridges. I was told by my dentist to not come back to him until all the side effects of Prolia have worn off. I think it's safe to go to him now as my immune system is working well again. Please get the best care available. Be well~Pood

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Poodle, you mentioned that your immune system is much improved and back to normal. How long after your last injection did it take before you started to improve? It has been almost 6 months since my last one and I'm hoping to experience some relief soon. Just when my mouth was beginning to improve, today it's suddenly feeling worse again. Also ongoing very dry mouth, specially when I'm sleeping at night. The pain in my upper arms is still ongoing. As far as the eczema....well it improves and then for no logical reason flares up again. I'd just like to feel that there is some hope. Sure would love to enjoy my Christmas dinner! Still waiting to get the results of my blood work to see if my doctor decides on prednisone.

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Thank for your input. That sad part is that my doctor wanted me to take Reclast but I had read the side effects and I declined so while I was in his office, he told me about Prolia and said there are no side effects. It will costs thousands to have tooth implants because I need several since they are in the front.

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How many of you were told Prolia had "Little to no side effects?" Than when you had side effects what was your doctor's reaction? What conflicting information did you receive? Have you spoken to other doctors only to find that other patients have complained? What have you done for relief?

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Cookie,I, too was told how wonderful it was and she had had no patients have any side effects. When I told her of mine she said she thought they were more than likely caused by anxiety and stress! My husband has been dealing with health issues due to 2 strokes he had 4 years ago and now a hernia. Thought I was handling it fairly well! She also said, when I first mentioned them that she didn't need to be told what the side effects were, that she was in contact with the company and was well versed on what they were. Fortunately my GP is taking me seriously and following through with testing etc.

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I had huge side effects. Walked back into my Drs office and she said: What happened to you. I had lost 50 pounds and white as a sheet. I replied: You and your miserable Prolia. She then apologized over and over and told me how sorry she was that she pushed me into it against my better judgment as she thought it would give me better bones for joint replacements. I told her that NO surgeon in this world is going to do a major procedure on a person with an immune system that is hardly working. She then got busy and started doing tests to help me and also gave me pain meds to get thru Prolia. She also works with an Immunologist in a neighboring State. She got a lot straightened out but not all. I also got a cataract that I had removed in the 7-8 month after my one and only Prolia injection. Thankfully, I know a lot about science and biology so there are a lot of things I can do for myself and others. Pood

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

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I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

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I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

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Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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