Prolia Side Effects (Page 115) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Poodle, actually I'm in Canada so our summer has ended! I must admit , though , that November has been unusually warm....global warming, I'm sure.
As to my husband, we will be seeing his cardiologist in January. Because he had a second stroke after stopping Coumadin to have a tooth pulled they are having to make a decision as to what to do. I do know that when he had the ablation where there is some cutting involved he had stayed on his dosage as long as his INR was 2-3. When they had finished the procedure he was given heparin and everything went very well. Of course, surgery in the abdomen is a hole different ball game. I'm hoping we can wait till the spring as we have booked a holiday for 3 weeks in Florida for March. That's if liberals like us will be allowed in th USA! We are seriously thinking of cancelling and either going to Mexico or Cuba but not sure if we would be penalized and lose money. Our dollar is only worth 74 cents American so it kind of hurts!
I have so much confidence in his cardiologist and was talking to some women in my knitting group who said the surgeon is top-notch! There is also a hospital nearby (Shouldice) which is world renowned for just doing hernias. So that's an option. It's like a private club and people come from all over the world. Our health care covers it for Canadians.
Lots to think about. Will check out the stuff you mentioned I could get in the drugstore for my mouth....if it's available here. Merci!

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Judy~did some searching on the swollen taste bud issue. It says home remedies are to cover tongue with plain yogurt, use ice but not enough to burn mouth and also honey. Also said it can be a Herpes Simplex I, which is a cold sore on the mouth area except it acts up on the taste buds and makes them swell. Do NOT eat or drink anything acidic. That could well be an issue caused by our lovely poison Prolia. I think you would have a lovely time in FL, just don't go down to Miami. I would not go farther than Boca Raton or the gulf side is very nice and safe. Problem in Mexico is the water and I have seen the maids filling bottled water from the hose outside the hotel - nice! We are still under the Obama Administration until January 20th I think. Canadians are always welcome in the US. Some of our elite are wanting to move to Canada too.

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Thanks Poodle, funny you should mention yoghurt as I have been eating it and particularly holding it in the back of my mouth. Unfortunately because the back taste buds are the ones that taste bitter , the yoghurt can be rather unpleasant. I knew that herpes could cause canker sores but had no idea about it affecting the taste buds. As I have been getting cold sores in my nose it's all beginning to make sense. I'll certainly take all this "ammunition " when I see the 2 specialists next week! Just hoping that once I hit the 6 month mark when I would have received my next injection the symptoms start to subside! Or maybe I'm a dreamer!
As to Florida, we have, for some years now, been renting a place at Anna Maria Island which is on the gulf coast just south of Sarasota. A lovely spot...very laid back. I do know that many Canadians, out of principle , are deciding not to go now. This will probably be our last year. I just didn't want to spoil our children and grandchildren's winter break.
You have been a fountain of information and I now feel well informed when I see these doctors next week. I only wish the drug companies who use women as Guinea pigs and make big bucks because of us would get their dues! You certainly ,from time to time ,hear of class action suits!

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Just got thru my 6 month hell with Prolia everyday felt like I had the flue. Thought I was thru started feeling better for a out 2 weeks after it was up but now have shortness of breath and when I talked to my dr and I told her she said it could not be because of Prolia. You will not see side effects like this until after at least two doses, it planely says on Prolia website that shortness of breath can happen. She did not want me to report it to Prolia till I have a cardio work up . I understand it could be cardio however my eeg showed normal ,but I went ahead and schelduled a work up . I think it is due to Prolia. It could have put me into heart failure, not sure but this is FYI for all.

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I disagree with your Doctor. Report your side effects to the FDA. It is not your docs body, it is yours & the shortness of breath won't go away for another 6 months, if then. After you report it to the FDA, call Amgen (Maker of prolia) as well. Call
1-800-772-6436 to speak to a pharmacist. It has now been 15 months since my one & only injection of this devil's drug & am still having horrid side effects. It took 3 to 4 months to convince my doc of what I was going through. After the 6 months was over he reported it to the FDA on my behalf. Doctors are not aware of drug side effects & could care less since they are getting paid by big pharma to push their drugs.

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Absolutely report it. Someone has to be our advocate so it might as well be us. Not only did I tell my GP (who wasn't the MD to prescribe it) she called me a good detective! I also submitted a complaint to our government and called Amgen and spoke to some medical person. He took down all my info, my side effects, my Dr's name etc but gave me no suggestions as to how to alleviate my symptoms or how long I'd have them. I am now warning any prospective users to research as much as they can before making any decision. In all fairness, I have talked to others who have benefited with no side effects. Lucky!

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Thanks all I will report it and good to know that this on again off again short of breath should fade after 6 months it's scary, one day I'm fine and next I'm fighting for breath not fun, it does not feel like heart trouble it's different feeling

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The lady that has the eczema. I have had this since I started on Prolia and the doctor kept telling me it had nothing to do with Prolia. After 2 years off Prolia I still have weekly problems with eczema. I have to use an ointment that my skin doctor prescribed for me plus keep Eurecin lotion on my legs all the time. I don't believe it will ever go away but hopefully it will. You can buy Eurecin lotion at any drug store. It keeps your skin moist and that is what you need for eczema.

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To Janie, re the eczema, I finally saw a dermatologist this week and he did confirm that it is, indeed, eczema. However said he didn't think it was a result of the prolia. I do! I'm not planning on continuing with any more injections. He gave me a prescription for pdp-desonide which is an anti-inflammatory steroid cream and as well told me to slather my body with an anti- itching balm, Lipikar ( La Roche- Posay) . Pricey but I find it better than eucerin. Now I just have to get rid of the sores in my nose and mouth. I see a ENT dr. tomorrow.
Don't know if you're still on prolia but if so, maybe that's why you are still getting eczema. I'm really hoping mine will subside once the prolia is out of my system. I would be due for another injection in January. I can only hope!

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Judy I have been off of Prolia for almost 2 yrs. and the excema started right
after my first injection of Prolia. I have not had any and will never take it again.

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Judy~did you do any of the 'home' remedies and did any of them help the slightest with your mouth and the menthol petroleum jelly creams for the nose? Just curious if anything worked even a little bit. Be well~Pood

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Poodle, I did try the yoghurt and it did relieve my tongue to some degree. I still have some swollen taste buds but I noticed that I am ,ever so slightly, beginning to taste a little. However this seems to be quite sporadic and just when I think there's a light at the end of the tunnel , the sores flare up again. I've never heard of menthol jelly before. I'll check it out. Is it Vicks? I'm afraid it may sting as they are open wounds that scab over but as soon as I blow my nose, of course, they break away and the whole process starts all over again. ,Difficult not to blow as I also seem to be more congested since the injections to the point where I'm constantly clearing my throat and have a runny nose.hopefully the ENT dr will have some answers! I see her tomorrow.

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I don't want to be the bearer of bad news, but eczema is a lifelong condition which comes from the immune system & prolia affects the immune system. It can come & go @ anytime but will never be totally gone from your body. It can lie dormant for a period of time & hopefully your time will come for that. Prolia has to be the worst drug to ever hit the market & what makes it so sad is the Doctors all play it down because they haven't done their homework on the side effects & don't want the patients to be more intelligent on the subject.

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I swear never again for Prolia shot! I had it last day of August 2016. After 2 1/2 weeks, I started experiencing severe abdominal pain to the point of passing out. The pain wakes me up early in the morning around 3am, 4am and sometimes 5am. Am still dealing w/ the pain to this day. My doctor gave me a medication to take for anti spasmodic pain and it does work. Don't know how long this side effect will linger as I am sick and tired of it and it affects my lifestyle!

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I had my shot 4 days ago and am just today feeling stomach pain and nausea.

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My doctor prescribed dexolent which was so helpful but then Mayo Clinic said it kept my body from absorbing my calcium- so they prescribed ranitidine and that helps with pain, cramps, reflux and gerd . It's not a cure all but makes a noticeable improvement. Prolia turned my insides inside out, so it seems...,

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Judy~I was actually referring to Mentholatum for the nose. I live in a high desert and I use it every night. So did my Mother who lived to be 96. I think it would sooth the inside of the nose and keep the scabs from coming off before they have totally healed. I'm on Calcitonin now and use it in the nostril that did not get the Calcitonin as they are switched every day. I think it smells some better than Vicks in my opinion. I'm glad the yogurt helped some. Maybe keep it up until your Docs can figure out what is wrong. It is from the Prolia and something in your immune system is totally messed up. You have had it checked for bacteria and virus and other things? I think you went to an ENT specialist, didn't you? What was thought to be the problem or was it the usual 'I don't know'. I wonder if Prednisone would help this condition. You would have to take the pills because there is no way you can spread that all over your mouth. It works well on Prolia rashes and other skin problems so it may work well for the mouth. Ask your Dr. for a Rx and try it to see if it works for the mouth or not. It works quickly so you would know quickly if it is going to help you. The only downside to Pred is bone thinning which you definitely won't have with Prolia and taking 10mg/day has to be reduced very slowly when coming off of it or it causes blood problems. It too can be a wicked drug but it takes a wicked drug to fight a wicked drug and Prolia is extremely wicked as we all know. Be well~Pood

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Thanks,Poodle. I 'll check it out. The ENT dr suggested that I try vasoline in the nose. A bit on the end of my finger and then breath it in. It did help except for one small stubborn area. Also re my mouth, I have been on PPIs for some time now for acid reflex, and she feels that it could possibly be causing the stinging etc. She wanted to scope my throat but I objected. I gag very easily and the thought terrified me. My lips are also very sensitive and chapped. My B12 and thyroid blood work came back normal. She will probably try the scope next time I see her. It absolutely terrifies me. In the meantime I have been reading up on PPIs and the damage they can do over time. I tried to stop last week but the acid reflex and beltching became intolerable so....back again. I did notice that my food started to taste a bit better! They also can affect bone density. I'll see next week when I have a bone density again. Then on to see the Dr. Who prescribed the prolia. She wants to now "try" me on something else! Over my dead body! Up until this past July , I very rarely saw a Dr except for an annual check- up. Very discouraging.
As to my very sore upper back and arm muscles which I am assuming are from knitting ( surely not another prolia complaint) I have doubts as well about chiropractors. I'm worse now than when I went 2 weeks ago. It was originally just on the left side, now also moved to the right. $300 later and I'm in more pain than when I started! I go back tomorrow unless we get snowed in and I'm going to ask that they not use this weird machine with cups that send currents into my muscles. Maybe my mother's old standby theory of a bath with Epson salts may be the best answer! Time, maybe , to crack open the bottle of cognac I was saving for christmas!

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I have been off Prolia almost 2 years and I am daily having flairups with excema and
my doctor too told me that it was not Prolia. I had not had excema until I started
Prolia. I am furious that it was ever put on the market and I am still having
acid reflux I came off the prescriptions for that and started taking Pepcid
complete and it works just as well as any high dollar prescription and I don't believe it hurts your body.

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Judy~you put the Mentholatum on your lips at night too when you go to sleep.During the day you can use it or other brands like ChapStick, etc. I highly doubt your sore muscles are from knitting. Prolia needs Calcium and lots and lots of it. The human body really cannot store calcium as we use it so Prolia goes into our muscles to get the calcium it wants. When it robs our muscles of Calcium it causes us a lot of 'very nasty discomfort' because using the 'p' world only causes the mind to create more of it so always refer to it as very discomfortable. I cannot even imagine a Dr. wanting to put you on another osteoporosis med when you have yet to recover from the current one. Take 500mg of regular Magnesium every night when you go to bed. That should settle the muscles down a huge amount. Mine are not too hard to chew so I just chew it up and drink some water to get it all down. That way it is ready to go to work and not have to wait for stomach acids to dissolve it. This should help you some. Do you have sores in your throat too or is that a wild goose chase? As for gerd, read the recent post from WiseUpJanie. Be well my friend~Pood

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