Prolia Side Effects Duration (Page 7)

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happen?

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Re: Raccoon (# 120)

I heard from an attorney, legal cases are in for femur and jaw issues. As of yet, there's no litigation for what I am seeing on this site. But he says with all these complaints and those being filed with the FDA, he expects a wider case being built on these issues.

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Re: teddt (# 121)
Would you mind asking if the 'jaw' issue (osteocronisis of the jaw) also includes the roots to teeth that Prolia kills before it goes to the jaw bone itself. I lost two and had implants put in. Other ladies here have lost all of their upper teeth and one in Canada has lost her front teeth. Implants are very expensive and it is my opinion Amgen should be paying for them together with the crowns on top. We all of taken very, very good care of our teeth. Thanks in advance, Pood

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Re: Poodle (# 118)

Poodle your saying that it's no longer the Prolia but the damage it did to my immune system ,(which is already zapping my thyroid). So with strict adherence to an anti inflammatory diet will my immune system return to normal?(or at least what it was before, years down the road.) Will I ever be free of this come and go rash and extreme sensitivity to the environment? Thanks Poodle for your feedback

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Re: Elaine (# 123)
Prolia causes our immune system to diminish by knocking out T-cells and T-cell helpers. Will this damage be permanent? I can be if you do not get into an Immunologist to get it corrected. Prolia also causes unknown problems in our DNA to come front and center. Again, an Immunologist is required. I can only thank mine that I am here today After my Prolia injection I was so very sick, throwing up and severe diarrhea along with all the other complaints I developed a gluten intolerance. It was horrid and I could not even smell it. Lost 65 pounds in 3 months and white as a sheet. My Doc ran Immunoglobulins and IgA was extremely low (64). At that point she got with an Immunologist that worked with her to get my immune system working correctly and I can now eat all the gluten I want with no problem. I would highly suggest you see one ASAP to find ways to take yours to where it belongs. Sometimes a small tumor can grow on a thyroid gland that will cause your problem too. Get with an Immunologist and find out how to treat your specific problem. It does not have to last forever with the correct medical help. You can be well but you have to have the correct people helping you get there. You will need a referral to see one and that should be easy. Be well~Pood

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Re: Poodle (# 124)

My wife has a compromised Immune system,,,HIV,,,it was under control, CD4 count was in the high 700's. And totally undetectable. Since first Fosamax for 3 months, then a Prolia shot in May 2017. She's lost 100 in her CD4 and is now detectable. She's had a false Heart Attack, skin on her hands felt like leather, inflammation in her Ankles as big as a grapefruit. We are now fully in the middle of the 6th month. The only thing that has left is the inflammation. She can't taste food, has lost 30 pounds, pain all over her body. But she is walking a little better without her cane. I've talked to Amgen, now I've noticed they've changed their website warnings about this drug. But she was never supposed to have been given that shot. All we can do is pray, and hold out for more time.

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Re: Morgan (# 117)

Thank you! I'll look into it. I have to watch being in the sun, even with sunscreen. If the length of time isn't too bad I might be able to do it.

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Re: Poodle (# 124)

Thanks Poodle i will get on it. As it seems the problems are getting worse.

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Re: Poodle (# 122)

I had problems with a crown (pre-existing problem) and dentist would not admit it was Prolia. It was my mouth, Doc. Also had tongue and mouth sores. What a time that was. Jaw popping.

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Re: Elaine (# 123)

I agree Prolia affects the immune system. My experience with this drug will be in my mind until I die! It is poison!

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December 2017, will mark 6 months since having my 1 and only Prolia injection with no known side effects. What are the chances of 1 injection staying in my system forever? When will it be safe for me to have oral surgery?

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Re: Rose (# 14)

I do believe that this medication causes cancer. I started feeling sick two weeks after having the injection. Now, two years later, I have bladder cancer and lots of pain in my bones.

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Re: Maria (# 131)

Do you know the formula has Chemo? I had my first and last injection May 1, 2017 without being advised of side effects. I was so, so sick - IBS, teeth and sores in my mouth and tongue, my hair was falling out, lost 20 lbs. Lots of pain now 7 months later. Doctors do not know what they should about this drug Prolia and similar ones. I wish the substitute internal medicine doctor had never brought the subject up and sent me to an arthritis doctors who has a terrible reputation. I spent over $1400.00 out of pocket up until August and still having arm and thoracic/neck pain. I have come a long way but when does it end. I kept a detail summary of the doctors I saw and how much I spent. Sent this to FDA and my insurance company and the maker of the drug, but they could not even reimburse me for the $4,000.00 shot and I paid $200.00 out of pocket.

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Re: CAB (# 132)

One day here will be a "Bad Drug"! Class action Law suit... but no money will ever give me back the last 2 years of my life, nor repay me for the humiliation and emotional pain the doctors have bestowed upon me as they poo-pooed my symptoms and looked at me like I was a hypochondriac ... I stopped working, limit my social life and more due to the pain, IBS, muscle weakness and more. I celebrate each day I move further into Prolia's half lives... and begin to get my life back. It is sad that we all continue to go through private and individualized Hell... each of us is different yet the same-
Hugs to us all!
Jan

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Re: Jan (# 133)

Good Post Jan. I am contacting local Attorneys in Denver to sue the Dr. and Amgen for what they've done to my wife. She's been living in a Hell for the last 7 months but things are slowing coming around. Stay strong.

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Re: teddt (# 134)

Keep us posted. I hope you do well with an attorney. I called two but none were interested yet. I think it is lovely how you are supporting your wife! I lived in Parker 9 years - have a daughter in Highlands Ranch with a Grandbaby on the way in May. I hope to continue to improve a little each day... I will stay as strong as I can... same to both you and your wife~stay strong(er)!

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Re: Raccoon (# 120)

Poodle and everyone else,

An update to let y'all know how things stand to date: September 7, 2017 was my last Prolia shot but I continue to experience numerous infections and eczema which is still there though not quite as bad. Not sure on the high cholesterol issue but I did show my Primary Care doctor a print out from the Prolia site and he refrained from the cholesterol med. at least for now.

I'm praying the numbers go down to normal. I don't want to get on any of that stuff.
The chronic fatigue is worse than what it was and that wasn't too good to begin with.

As many of you have stated, it takes quite awhile before you start feeling better again. I'm believing it will be the same for me. The next time I go to my doctor I'll ask him about seeing an immunologist.

Hugs and prayers for restored health to all!

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Re: Jan (# 135)

I will let you know jan about the attorney. There are two in the Denver area that are working on it for us.

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Re: teddt (# 134)

So glad you are seeing an attorney about this issue. I fear attorney's do not want to step on doctor prescribing. Actually I asked two doctors if they knew what Prolia is and they mumbled around and said "well I have heard of it". Don't you think a orthopedic and gastro doctor would know? I went to both of these and got no results as they did not know what to say. They disc me. I have a new ortho doctor in January. The other practice will not let me change doctors within a practice, even though my Pain Management Doctor put in a request. Piedmont Ortho in Greenville, SC sucks.

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Re: Bunny (# 108)

Congratulations to you for doing what I usually did until I made the mistake of following my Dr.'s advice without researching this horrible drug.

I had my first and only Prolia shot on the 30th of March, 2017. Four days later I was at the Emergency Dept. of a local hospital here (Im in Canada). I had an autoimmune response that included severe erythema lesions on my legs, feet and elbows. The pain was unbearable and I could not walk. My husband had to take me to the hospital in a wheelchair. Nobody at the hospital (and I saw three different MD´s) wanted to write the word "Prolia" in my file. The three of them told me that it could have been "anything"... I asked them to write it at least as a hypothesis... (a month later, however, when I requested a copy of my file, the reference to this poison was nowhere written). Three weeks after the inj., I had lost 20 pounds and was loosing my hair, my heart was racing all day and I was suffering from extreme fatigue. At that point I went to see my GP who had prescribed this poison and told him what I thought. He told me he had “many, many patients on Prolia and nobody had had any side effects”. What I found quite curious is that the Dr. had kept a list with the names of all the patients he had prescribed Prolia to. He showed it to me emphasizing that I was the only one who had had these reactions. I told him that I thought I was “lucky enough” to have had these reactions immediately after the first shot while many might have had several shots before they had a severe reaction. Perhaps many out there who have had reactions do not associate them to this poison because these reactions did not happen immediately after the first shot.

I had breast cancer 6 years before Prolia and I realize that my Dr. should have never given me this inj. (now that I understand how these monoclonal antibodies type of drugs work in your immune system). When I had cancer I did not want to have chemo. I chose to do immunotherapy. The goal was to increase my T-killer cell count and strengthen my immune system. I won that battle and after my 5th year post-cancer, I was not only cancer-free but healthier than ever. My skin, my hair, my mood, and my whole health had never been better. I went back to my gym 5 days a week, had a perfect weight and when I turned 60 early this year, nobody could believe my age. I then had the bad idea of having my yearly check-up and listening to my GP when he suggested that I underwent a densitometry to later insist that I should use Prolia. I must have been in the 10 most stupid minutes of my life when I accepted this poison without having done my own research! It was so totally different to what I did when I was diagnosed with cancer! When I understood how Prolia works, I cried for days, realizing that I had been given a drug that is used as chemotherapy and that also causes your T-cell count to go down and go totally crazy. In addition, In order to get rid of the erythema on my body, I had to be treated with Prednisone, a corticosteroid that leaves you immune-depressed… I was living a total nightmare. Despite the nightmare, in the middle of July I was feeling slightly better and had partially recovered my weight. I travelled to South America and shortly before my trip I felt that the whole cycle was beginning again. But I had my ticket and still felt well enough to travel.

Shortly after my arrival there, I was having palpitations, was feeling extremely tired and my hands were shaky… I had to urgently see a Dr. who immediately diagnosed me with hyperthyroidism. I was put on two medications and only started to feel better and regain my weight about two or three weeks later. In the month of September, when the thyroid medication had already been reduced and I was feeling quite well again, we were celebrating my daughter`s B-day when everyone noticed my eyes were swollen. I have seen at least three Ophthalmologists since. None of them seemed to care about my story. I have been told that having swollen eyelids happens with age (LOL), that I need artificial tear drops because my eyes are too dry, etc…. Fortunately I have been in touch with the Endocrinologist I saw in South America. He believes that I have Graves Ophtalmopathy, probably as part of the whole autoimmune response to Prolia and that unfortunately, this tends to run parallel to the thyroid disorder. In other words, it may not automatically correct itself even if the thyroid is well controlled. He believes it is imperative that I am treated with Corticosteroids to prevent the eyes from popping out… which has not yet happened as only my eye lids are now severely swollen but the eye globes seem to still be contained... I`m desperately trying to find a reasonable Dr. who would put me on Prednisone or another immune-suppressor, as I realize I have no other option. It is not only a horrible condition aesthetically speaking, but is also causing vision problems as I have diplopia and photophobia….

Please, if anyone in this group has had the ophthalmic problem associated with the thyroiditis following the use of Prolia, could you please share the name of the medication that has been given to you for this and the actual prescribed dosage?

October 30th was the 6th month anniversary since my life was transformed by this horrible “medication”. I look like 10 years older than 6 months ago. What used to be my beautiful hair, is falling out, as I have only seen in cancer patients who are undergoing chemo.

I agree fully with those of you who have said this drug works in cycles…. That is what I have experienced. I currently am again experiencing fatigue, insomnia, and strange ‘migratory’ pain in the bones, even though I had a couple of pretty good months between July and September.

Lately, my spine makes strange noises when I move and I have the feeling that I`m extremely fragile. My nails, which had become very nice and strong in the first few months after Prolia, have again become extremely fragile and brittle. My skin goes through periods of being nice and soft and days or weeks of being rough, ugly and dry.

I never thought 2017 would be so horrible for me because of this drug. I retired from my permanent job two years ago and was beginning a new and very successful cycle as a self-employed professional. I have hardly been able to work since March.

I feel we have been used for a clinical trial without our consent. If you look at AMGEN's website, you will see that the list of negative side effects for this drug is continuously being updated…. Isn’t that a proof that they had not fully researched what they had put in the market? I hope we are at least compensated for the objective losses that we have incurred because of this killer drug.

I hope that my long message helps you and other potential users of this poison to not run the risk. All medications have a level of risk, we know that, but the risks of this one out-weight by far the potential benefits, if any.

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Re: Gloria Varnadeau (# 15)

I have taken Prolia for 5 years my Magnesium bottomed our The side effects has hit my muscles my legs are so week my jawbone hurts have lost two teeth I have been told by two doctors you should not take Prolia more than two years also that the muscle damage is irreversible this Prolia shots have ruined my life we have to fight to get it pulled off the market we are suffering while the drug company gets filthy rich

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