Prolia Side Effects Duration (Page 8)

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happen?

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Re: Maritere (# 139)

There was information in this post about Prolia I wasn't aware of. Thank you so much for sharing.

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Re: Maritere (# 139)

Thanks for sharing. My wife already had a compromised immune system, and yet they assured us it was no problem. Now we find out, Amgen never tested those with my wife's issue on their drug study. As a matter of fact they were excluded from testing. Well, medicare pays those Dr.'s $1600.00 for that shot. No wonder they don't want to give up that income.

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Re: teddt (# 142)

I have rheumatoid arthritis. I also read that it had not been tested on people with this problem but my dr. gave it to me anyway .
It has destroyed my ligaments in my hands and feet. Now I have a fractured back. I took this shot in May of 2016. I had none of these problems before and I was doing great.. Dr.'s won't believe that Prolia is causing it. I think they may believe but they won't comment.

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Omg, reading all these side effects is scary, especially now knowing that prolia stays in our system forever. My arms are so sore that I can’t lift them and ache so much in bed that I’m unable to have a good nights sleep. Now have developed pain in the lower right side of my back that makes it Increasingly difficult to stand right away from sitting position. Seems something else is developing everyday other day. I’ve had 2 injections, won’t be going back for the third. Please anyone considering taking it do your homework first.

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I had my first prolia injection in October. I have had increased pain but also constant burning while urinating and frequency to urinate but no urinary tract bacterial infection but my WBC count in the urine is elevated. Have had other tests to test for bladder cancer. I also take exemestane for breast cancer . I feel like prolia has made me already more miserable than I was. And now I have high blood pressure and high cholesterol, which I never had before. Can prolia be causing all of this???

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Yes, I would like to know the answer to that question!

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Re: Barb (# 145)

Yes, I believe it does. I saw my GP for severe bladder spasms she started treating me for UTI . But the culture did not have any bacteria growth. That did subside after about 7 days, but the joint and WHOLE body pain is almost unbearable. It has been a month since my last, and I do mean LAST injection. Can't deal.

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Re: Katherine (# 9)

I. Had. My 4th. Prolia. Shot in. December. And I now have pain all over my body l have decided stop the prolia. Going to. Seek alternative and do accupuncture for the pain. Glad your mom is doing better

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Re: Alice Allen (# 140)

My regular doctor says my left shoulder problems stem from a rotator cuff issue. Waiting to hear if the x-rays reveal anything.

I just had two x-rays on my lower back for constant pain. My lower back hurt before but it has increasingly gotten worse. My first suspicion is the Prolia. Do you think I'm wrong? Has anyone else had these problems? I take Plaquenil for osteo and inflammatory arthritis and I have fibromyalgia.

Thanks y'all so much for the help.

Hugs,
Nikki

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Re: BB (# 18)

Yes. I only had two shots and was stopped because of breathing problems. It has been over two years since the last shot and I am still experiencing breathing problems.

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Re: Shirley (# 147)

Hi Shirley, I also have been experiencing all over body pain and joint pain after my 4th shot in December 2017. I think I am going to stop the prolia. I have been on the heating pad and tylenol. It does scare me to go off of it but scared to stay on it.

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Re: Barb (# 145)

Barb,
High cholesterol is one of the side effects of Prolia. I now have it when it was never an issue before. I'm praying since I'm off Prolia it will resolve on its own. Sending you hugs and prayers for a full recovery.

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Re: Nikki (# 149)

I am sorry you and so many others are going through this ordeal. I also had x-rays of knees and CT of my back resulting in useless physical therapy. I will encourage you to follow through with ANYTHING you think might help. I started having these symptoms with Zometa and that is why the Dr changed me to the Prolia. I too, had ER+ breast cancer and was prescribed Arimidex, another drug that blocks estrogen. The lack of estrogen, especially in women, increases the risks of osteoporosis. So we are being treated with one drug to "fix" what another drug is causing. Until I started piecing things together and doing research, I was and still am wondering what I have gotten myself into. After starting the Arimidex my cholesterol went up. Once changing over to Prolia....my cholesterol is now OVER 300! I was being prescribed antibiotics (Levaquin, which is trouble in itself) every 6-8 weeks after finishing a round. One ENT told me the arimidex could lower my immunity, Oncologist said he must have been thinking I was talking about chemotherapy and that Arimidex would NOT lower immunity. Hmmmm....do doctors ever read the package inserts to the drugs they prescribe??? On my own, (without Dr's consent) I stopped the Arimidex. I was not aware of the pain I had been in just because of that drug. So he prescribed a different drug to take the place of the Arimidex.

Then after I checked with the pharmacy and found out the medicine was going to cost over $110 for a one month supply, I said, "Uh-uh!!" Around about that time I thought....... if I don't take something to lower my estrogen then I will not be "required" to take anything to "build up" my bones. I am in NO way suggesting that you stop any of your medicines or go against your doctor's orders. I am just, without making yourself paranoid, pay close attention to what your body is telling you. You have only this one body on this earth. I was given my body to take care of and I am the only one who lives in it. I see the oncologist again in March. I don't know what I may be up against when I say I don't want anything else. My breast CA was Class 1. I know that this Cancer is more apt to come back in bone than anywhere else, but taking these medicines does not absolutely prevent it either. Two years after I had bilateral mastectomy I had a total thyroidectomy for Thyroid CA. I truly wish each of you improvement of any physical and/or emotional pain This drug has caused. One more thing, from what I have read, and please someone correct me if I am wrong, but out of ALL the thousands of people who were in the trial studies... NONE "0" complained of the severe bone, joint and muscle pain. FDA got these complaints AFTER the drug got put on the market.....WHAT?

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Re: Shirley (# 153)

Did you know also, they specifically excluded people with compromised immune systems from the test? So how in the heck can they feel comfortable giving that to anyone who has had Chemo, or HIV, or old age? This is a death drug.

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Re: Ann (# 143)
If you stopped the Prolia, you do get back fractures. That is even in their literature. I sure got them. Be well~Pood

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Re: Nikki (# 149)
You will be the second one here if you do have rotator cuff tear. The other lady's is pretty much inoperable because it involves two tendons. Maybe she can do stem cell therapy to heal them. And, it had to be in a very bad spot and involved her heart too. YIKES!! Pood

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Re: Rosemarie (# 144)
No, No, No. Prolia does not stay in your system forever. A tiny molecule will be left but it's not enough to hurt you any more than that aspirin you had 20 years ago. They are both made from products from our Earth. Prolia clears out of the human body in 6 months. The half life is 16 days so that means in 16 days 1/2 of the Prolia injection leaves then in another 16 days 1/2 of that remaining half until we reach the end of the 5th month. That does not mean that the side effects leave with it. Some side effects do and others linger for years as our bodies try to repair the damage done to it. This is the first year I have been able to have any gluten since my injection years ago. I guess it just finally got over it but it sure took an awful long time. The muscle/tendon in my neck is no longer sore either. It finally left too. I did get the back fractures from stopping it. Everything in there is a total mess now that I don't pay that much attention to it. Be well~Pood

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Re: Maritere (# 139)
I am sorry that you are a fellow breast cancer survivor but the good news is we did survive. Prolia is not used as chemotherapy under it's other name. It is to build up bone quickly in people that the chemo has ruined their bones so they will not suffer a spinal collapse or another very nasty side bone side effect from chemo. They get more of the active ingredient than we do is the only difference between Prolia and Xgeva. Both are to build up bones. There are specific eye drops that contain Prednisone. I'm not sure I have it spelled correctly "Prednisonioli". I had to take it when I had surgery on my macula. I had that one as an anti-inflammatory, one for dilating and an anti-bacterial. Mine was from a retinal surgeon but any can Rx drugs in the US. I distinctly remember having to go off of the Pred. drops slowly after he was sure I had no more inflammation. It does exist and you should be able to have it. Prednisone can be a very safe drug if it is stopped correctly which means slowly tapering off. I know all about the skin, hair and nails. No longer healthy and nice. Be well~Pood

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Re: Poodle (# 157)

I was not at risk for fractures in the spine when I started prolia, I had a risk in left hip -1.5, am I at risk for fractures in the spine if I stop

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Re: Nikki (# 149)

Hey Nikki, I already had an appointment scheduled with my GP, just for a follow up. Thought I'd get her opinion about the Prolia. Just like many others, she doesn't think my symptoms are caused from the side effects of Prolia. She order lab work and gave an RX of Prednisone. She told me that if the Predisone helps then it would highly suggest Poymyalgia Rheumatica. That also had crossed my mind in trying to figure out what was going wrong with my body, but it is so much easier to blame a medication that you can stop to get the pain to end. So, I MAY have jumped the gun in my earlier, angrier post. I am in limbo now with more specialists to see. I am SO tired and frustrated.

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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

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