Prolia Side Effects Duration (Page 6) (Top voted first)

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happen?

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Re: Andrea (# 284)

There certainly are many options, I don’t feel deprived at all. Gluten free
has changed my life.

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Re: Phyllis (# 2)

I feel for you as I am in a similar situation. Only one injection and I am not taking another. If I end up in a wheelchair it will be by my own doing not someone else. I do not trust the system and I am a nurse who was part of it at proud at one time.

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Re: BB (# 18)

Yes I had one injection Mar. 7/19 and have had every adverse effects that they have listed. I am in my 7th month and still have effects. The worst is my asthma is severe now when it was controlled and I now have right ventricular heart failure. So no I am not happy and would rather have not ever had that poison. I am still working on looking where I can take this and will keep all informed.

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Re: Poodle (# 16)

I feel your pain, Poodle. I'm on 11 months off now too, and if anything I got worse!!!

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Re: Sal (# 292)

I would not recommend Prolia to any one who had cancer because of the way in which this monoclonal antibody tampers with the immune system, particularly the T killer cells which are the forefront of defence our immune system has against cancer. Prolia causes a disorder in the immune system thus triggering autoimmune disorders in the thyroid, the cardiovascular system, etc. Some have developed Lupus, others Graves disease, Hashimoto, rheumatoid arthritis, etc. Prolia is giving a lot of money to some to the expense of thousands of women’s health, world wide .

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Re: Maritere (# 294)

Mea culpa. You are correct. This drug is poison.

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Re: Nikki (# 296)

Re: Communicating problem to doctor. I had a similar result. I found one study that referenced hair loss and also told him about the problems mentioned on this site. The doctor stated that, while those side effects were listed in the medication pamphlet (except of course the hair loss), they were extremely rare. He had given it to over 100 patients with no problem. He said that, while my physical problems after taking the drug were real, they were not related to the drug but to other age related issues. I never got my second shot... its been about 3 years and I think I might be close to normal. I have not gotten another osteo test... what is the point? I will not take any prescription osteo drug.

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I had lots of side effects from prolia they started about 6 weeks after the injection. Bad headaches...dizzyness...vertigo...chronic constipation. ..
Hip pain...dry mouth and lips...strange taste in my mouth...ear infections....utis...and many more....now when stopping you need a relay drug to protect yourself from compression fractures to my my spine....its a terrible drug that drs are very trigger happy and anxious to inject you...wish I had never heard of prolia...

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Re: Nikki (# 314)

Thank you, Nikki. Good health to you!

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Rose, it certainly could have allowed your cancer to happen. Prolia weakens our immune system so we catch everything that goes around. There are always cancer cells in our bodies but with a healthy immune system that invader cell is killed. We don't have that protection with Prolia so, yes, in theory, Prolia caused your cancer by weakening your immune system so it was unable to kill a cancer cell which then just grew and grew. Call the nurses at AMGEN and tell them ALL of your problems with Prolia so they can modify it or delete it. They really care.

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Rose, of course it could have caused your cancer. AMGEN admits that it can cause skin cancer and from skin cancer it's just a short hop over to the ovaries. This is not to mention your immune system is very weak and unable to fight off invader cells like cancer. I hope you find an excellent oncologist and get lots of plasma that is full of immune building cells along with the proper treatment and hopefully, it has not spread to major organs. Please let us know how you are doing. Pood

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Rose, I'm wondering if after all you have gone through, that the 'tightness in your chest' could possibly be the infection our hearts can get from Prolia. I would certainly ask for an echocardiogram if I were you. I'm so very sorry it has hurt you so badly. The big C is no fun at any age and I sincerely hope you do as well with it as I did. 1992-Present and still cancer free here. I did call Amgen today and talked to a nice man named Mike. Their 11 month clinical trial was just a beginning for them. They are doing a 10 year trial and I am under the impression that it includes all of us who have had that dreaded injection. That's why they are keeping all of us in files with each and every problem we are having. Could it be possible that we are in a clinical trial and don't know it???? Yes, rest assured you will be in my prayers. Be well~Pood

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I was at one of my Doctor's offices today. This one has a brain. I asked him if he had any idea of how quickly an immune system can fully restore itself. He went on line and made a comment -- I'm in a Forum now -- I said: Would that be MedsChat. He said yes and I said: I'm Poodle. So that ended his searching. He did tell me that the basal cell cancer that we know for sure Prolia does cause, cannot enter the human body so in Rose's case, it has to be from a weakened immune system that did not recognize the cancer cell and allowed it to grow and spread. It only takes one cell for our immune system to not recognize and kill. I tried various products with no help. Finally, I ordered specific surgical masks that do not allow any virus through the nose or mouth, that means colds, flu, H1N1 and any other virus out there cannot get past this specific mask. If you need them, they are available on Amazon made by Curad (the band-aid company). I am more than capable of using lots of alcohol on my hands and Lysol on surfaces.

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I bought some Curad anti-viral 'surgical' type masks from Amazon. They work. I went to the grocery store yesterday and am always extremely ill from being around people with Prolia but with the mask well in place I am not sick today. They protect from all flu viruses so all we need to worry about is cleaning our hands and nails very well with a good washing of anti-bacterial soap and hot water. We cannot get any air born bug, cold, sore throat, etc. I'm sure I looked like I'm from another planet but whatever works!!!! Impossible to recommend them highly enough to us in the Prolia group. If you live in a larger city, you may be able to find them in a store.

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That certainly is better news. I don't think you will be a patient for 'life'. My Oncologist thought I was dead until I sent my best friend to him. LOL!! Why go to an Oncologist when cancer is ALL GONE? She had it easy as to where to find what she needed. I gave her all the Doctors and hospital names that she would need. She was advanced Breast Cancer but clear now. That's always such a worry - where do I go, what do they do, who does what, etc., etc. You are more than welcome for the prayers. Be well~Pood

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I had my first Prolia shot in April 2015.
My jaw is sticking now.. Can anyone relate?

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Happy to say now in my 5th month of Prolia, I am becoming human again and starting to schedule needed surgeries for when the 6th month is over (10/22/15). My MD Rx'd a different pain med. In the packaging from my pharmacy was a note: REMEMBER YOUR NEXT PROLIA INJECTION IS DUE ON … That will be over my dead body. I'm going to wait and someone will eventually come up with something that doesn't about kill us while it builds brittle bones. Once of Prolia in a lifetime is more than sufficient. I've even gain two whole pounds but that seems like a giant leap from where I was while in the depths of Prolia. I can see the end of this horrid tunnel now. It did cause an autoimmune disease. I don't know if that will magically disappear at the end on the 6th month or if it will take longer. Hang in there. It does get better.

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Hi Poodle. Can you share AGMEN,s response to the end of the side effects and if prolia stays in the human body forever? Is there any way to take it out of the system?

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RM - I am so very sorry to read your post. You should go to your dentist immediately. They'll take you as an emergency tomorrow if you say I think I am getting ONJ. They will take X-rays and visually check your teeth and find all is well. Then, have them keep feeling around with their fingers to find what muscle is acting up in there. They can find it and when they do you will about jump out of the chair. Mine said heat, No work. It needs PT. You can go to PT for dry needling to break it up or go to an acupuncturist. It seems to me that PT is faster. 3 trips and you are done. Prolia can also cause your teeth to spread out and some people here have had to have braces put on their teeth. Regardless, your dentist should be your first stop and hopefully s/he is very intelligent like mine. For Heaven's sake, please don't take this drug again! Some people have zero problems except for their immune system not working well. The remainder of us get everything Prolia has to offer and some that are not listed yet. You need to understand that Prolia is actually a chemo drug and that is why it has no many horrid side effects. Life starts getting better in the 5th month but the previous ones are living Hell. Please post back after seeing your dentist tomorrow. Also, it is proven that Prolia does not work. It builds more bone mass but that bone mass is very brittle bone so you are really suffering for zero benefit. Prolia is also not a chemical. It is made from ovaries of Chinese hamsters. Amgen is a bio tech corporation, not a pharmaceutical. There is a huge difference between them. Do not let your dentist believe this is anything nice like Reclast or Boniva. This is in a world of it's own that makes the chemical ones seem like taking an aspirin. Please post back so you can help others here too. Be well~Pood

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Amgen wrote and has told me verbally that by the 5th month I should be feeling much better, which for me is true. It is also written on their site that it can take 11 months for the Prolia to stop causing problems. If you are not better at 5, you will be in the second group that has to wait until the end of the 11th month after the first injection. If one has had more than one single injection, I don't think anyone knows. It's AMGEN Corp. Look for the drugs they make. Find Prolia and read what they have to write. It's very sad and the FDA decided the outcome would be worth all the casualties. That's us. Well, it doesn't work. It builds brittle bone so we are suffering for zero reason. When one falls, what's the difference between brittle bone and thin bone -- NONE! You are going to get fractures or breaks one way or the other.

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