Prolia Side Effects Duration (Page 7) (Top voted first)

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happen?

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In 4 months I was diagnosed with ovarian cancer. I have even had 2 doctors agree that is could have been the prolia shot. Good luck to you.

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Six months since shot. Felt noticeable improvement about month 5 but still have lingering groin and muscle pain but bearable. Weekly message has been extremely helpful. Every time I have new pain I freak out and wonder.......is it?! Don't believe I will ever be completely symptom free. Please make sure your doctor and pharmacy add Prolia to the list of drugs used so that everything can be checked for drug interaction. I am coming to believe the interaction with methotextrate was the problem for me.

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Diana is having surgery for cancer on her thyroid gland. They are going to try to save as much of it is possible. This is long after the Prolia supposedly went poof. Most days she cannot walk and has to use a walker. She was tall in high school but has lost only 2 inches from osteoporosis which puts her about 5'10. I'm beginning to think there is no end to Prolia and I know that is exactly what you ladies do not want to hear. I just invited another lady to visit us here. Her Mother had a Herpes Simplex virus that sprang out during Prolia and has caused her to be blind in that eye. I think we are long over due for legal action.

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At 4 months I was soooooo sick. I have gotten a little better each month since month 6 post prolia. My upper respiratory infection got so bad, I was told it was copd! It took months to get better and I'm still getting better... seems my symptoms are cyclic... it's not fun, but at almost 11 months post prolia... I do have hope.... when I'm not sick, fatigued, in pain, coughing, or more....

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To All: One strand of hair takes 7 years to grow so it may be a long time before we get our hair back. Today in the shower, it did not clog the drain so that's a big plus. I did notice, however, that hair on one of my arms has started to grow under the whole arm, How weird. I'm going to ask a friend for hypnosis to change what's growing where it should not be growing and have it all moved to my scalp where it is supposed to be. It's a really bad time for him so I will have to bide my time. Will report the results when wildfires settle down and are gone. Pood

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Jan~That is what mine said too. Big deal. It doesn't help me. It will help future patients but in the meantime we are all still dealing with side effects of Prolia which really is a chemo drug. It just has less of the active ingredient in it than it's twin, Xgeva. The FDA in the US had a lot of questions about it but ended up passing it anyway. They are busy now adding more warnings on the boxes as if our MD's read the boxes it comes in. Pood

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About 2 and 1/2 years - some nerve pain in back of neck returning with the addition of proton pump inhibitor to meds. Quitting that. But I can walk again, skin better, don't feel like I'm dying now.

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Its been almost 3 years for me - - I had to have radiofrequency ablation on nerves in neck, will have to keep having them as they wear off. I still have trouble with my hip and leg on right side, but at least I can walk, which I couldn't two weeks after the shot without assistance. I think it causes trouble with the PTH in one's body, which is excreted from the parathyroid - about 7 months ago, I had a tumor removed off the parathyroid gland and one off my thyroid, at that point non-malignant. I can't prove this. Only from my research have I concluded myself that Prolia and Reclast do work through the PTH, or affect the PTH. Of course we can't prove any of the damages to our bodies, if the physicians deny the causes are Prolia. All we can do is report, and hope an attorney will pick up the case(s) if we want restitution. I spent $36,000 in two years on COPAYS, in order to get my life back. It would be nice to get renumeration. If any one comes up with an attorney who will take these cases, please let me know. I've called several and they are not interested.

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I had my 2 year Prolia shot in Aug. 2016. On 8/23/16, I went to the hospital for severe and debilitating back pain, difficulty breathing, that stretched across the mid part of my back, from one side to the other. The ER said I had a Vaginitis infection and prescribed medication. The 2nd night, back pain, back in the hospital, a 2nd infection, UTI. On 8/26, diagnosed with acute back pain with more medications. On 8/29, my right knee was swollen, hot to the touch and too painful to walk on, 3 weeks bedridden, more medications, 3 days in the hospital in Oct., MONTHS of rheumatologist, orthopedic & infectious disease doctor visits and tests. In Dec '16 & Jan '17 I went to Physiotherapy, no change. On Feb 17, I had arthroscopic surgery, nothing was found. My condition remains undiagnosed. I am a "medical mystery", an "enigma" and the specialists are done with me. It is now the end of Mar '17. Last week, the word "Prolia" popped into my head. I googled "side effects" & one site said that at the 2 year dose there may be back pain, infections and joint pain and swelling. What else can it be? Will I continue to have to use a wheelchair for any distances more than a half block of walking, every step is a shooting pain, extreme pain when I sit for too long & back pain at night? My husband says that I groan in my sleep so I started taking Tramadol every night to be able to sleep. I NEVER had any side effects before this happened and my bone density had improved dramatically. My next shot was due in Feb '17 but I decided never again. I just read that bone density results are based on "quantity" and not "quality" so the bone density is improved but...with brittle bones.

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Your story sounds like mine. Since my prolia shot my body is not my own. I'm depleted... I never know how I will react to a regular new health development like a cold, bug or allergic reaction because my Body immune system is way off. Pain, itching, diarrhea constipation new gum disease Ha rash new allergies cramps muscle and bone pain brain fog sleep disturbance and more..,,

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My husband had found weight gain was a side effect. I have told my Drs. after the 1st shot the weight was going on I can almost feel my self growing. Had 2nd shot Nov. 2016. finally my primary care Dr. Said it was the shot putting on the weight. I'm due in May for the 3rd shot. After reading these post. I'm sure I will not be taking that shot. I thank you all for your post. I wish you all the best. Has any one else had this problem Weight gain?

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I did. About 15 pounds. But it's off now. I quit Prolia after first shot. It changed my physiology. Not only weight gain, I aged about 10 years in looks and I tire quite easily still. Don't know if it's permanent. Did loose the weight but took a long time. I look forward to next bone scan, had a parathyroid tumor, was told on its removal my bone density should increase in 18 months. Why the primary dr and endocrinologist never checked me for that with my high calcium levels on tests, i will never know.. Haven't broken anything since prior P. though, despite a fall caused by some medication for ulcers. I had to quit the ulcer meds. I certainly would tell people to beware if they had any pre-existing conditions....I think Prolia makes them worse and causes past condition flares. Hope this helps. I had researched all I could before taking P. All its possible terrible side effects are not given to us before the decision to accept them. Some do ok. And what is worse I've read that if one stops Prolia and any positive results it may have had, rapidly disappear. But at least now I have some activities back, my head us much clearer and physically much better, the hip and neck seem to be permenent damage. But I am angry that the majority of b us are not fully informed pre injection.

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Diane ,Thank you so much for writing. Yes I agree with you I was never told the side effect just the ones they posted. & after the first shot I told my primary & endo Dr. I was putting on weight to fast I can fee myself grow. they said no it wasnt the shot. My husband found that it was a side affect. I also have day when my limbs seem very heavy . achy. I could tell by my friends faces when they saw me how I had change. & You know as well as I Menopause is not nice to being with. I worked so hard to get 43 lbs off be fore the shot to see them come back & I'm still working out to try to control it. Thank you again. Patti

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Yes,

I had the rapid weight gain... I could feel myself getting bigger- 3 dress sizes! I purchased a dress for my daughter's wedding in December. Had Prolia shot January 3rd. Bought next size up in February, next size up in April and a third size up in late May. Wore that dress in early July. 2 of the 4 dresses in my closet! I too have aged, physically mentally and visually. I say I was a healthy and gapoy 58 year old before Prolia... now I'm sick and tired and in pain all the time. Depressed too... I'm an old 58 now. Post Prolia... it's unbelievable.

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Yes... I put on 35 lbs in 2 months- went up 3 dress sizes and 1 1/2 shoe sizes...I felt awful, fatigued and was not eating differently. I eat healthy and low fat / low carb. 20 lbs are off now at 15 months post prolia. My weight can readily fluctuate 5 to 15 lbs weekly. I had purchased a mother of the bride dress 1 month pre-prolia and had to repurchase the same dress 2 times due to the weight gain.

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Smith Janet~Yes, Prolia does reduce a lot of our T-cells and T-cell helpers. That's why we catch anything going around and so many of us have developed urinary problems, etc., etc., etc. Muscle problems are an easy fix with the correct brand of Magnesium One has to be careful as some brands produce diarrhea. I still take 500mg of Magnesium in the evening when I go to bed and have long past the 'Great Big Prolia Adventure'. I got well within the 6th month period only because of my Rheumatologist that works together with an Immunologist. Only good thing I can write about Prolia was the fact my fingernails were very strong and beautiful. Years after the injection, my nails are worthless and usually bandaged and my hair is still falling out worse than a dog shedding. My Doc tells me it's my age but I'm not that old to be experiencing that! Also, after the Prolia, the bone it built up left quickly. It has caused my spine to be a much bigger 'mess' than it was before. "Mess" is my clinical diagnosis from an Orthopedic Surgeon. After I get my new knee I am going to start having injections for my back and then he will cauterize the nerves in my spine that are causing all the pain. It's definitely Prolia related and when I go to bed to lie down it feels as if each vertebrae is breaking. I don't know when I will ever get off of pain meds. I don't like them but have to have them. I LOST weight on Prolia and got down to 100 pounds. It has been a great difficulty getting weight back on. Finally, I am close to where I want to be at 118 pounds or 120. I was previously pre-Prolia at 165. You will get well, that I promise, but certain things just don't change. The half life of Prolia is 16 days so you can figure for yourself when it will leave your body as every 16 days 1/2 of it's remaining 1/2 leaves. Since it's a biologic there will always be a tiny little molecule left in the body but not enough to cause us any problems. I sincerely hope and pray that you will not be one of the ladies experiencing Prolia problems long after they should be gone. Prolia did strike at my gum line and took out the roots of two teeth but it could not continue as it ran into a titanium implant that stopped it in it's tracks. I have since had implants put in and have to wait until Sept. for the crowns. Be well~Pood

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Sandy


I've Had 2prolia shots
I've fibro cbc and some other problems
But prolia has made e very thing worse....and no energy at all

Never have another one at all

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Re: BB (# 18)

yes indeed< shortness of breath, almost zero intake of Oxygen, and couldnt swallow, completetly blocked, felt like passing away !!!

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Re: Anderperson (# 5)

Hi,
I was diagnosed with eczema after starting Prolia. Last year I had bronchitis 3 or 4 times when I've never had it before. The infections are harder to treat. This year I've just gotten over bronchitis, a continued sinus infection and an ear canal infection (this one is new too!).

I finally got the rheumatologist to take me off of the Prolia. The last bone scan barely showed any improvement. Why keep taking something that isn't working and is making my delicate health even worse? My doctor says I'm just one of those people who can't take any of these drugs.

I'm not take anything for osteoporosis except my vitamin D and K2. If I can ever quit getting sick I plan on going to the YMCA three times a week to work on the machines and the treadmill. I'm also looking into adjusting my diet to include bone strengthening items as well as natural oils/natural remedies to supplement what I'm doing.

Hugs and prayers to all of you!

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My worst side effect was the miserable rash over my body. It is better but at 9months post injection i continue to suffer with rash and itching response to things that never bothered me before. The intense internal heay sensation has decreased and only bothers me . Long story shory side effects never leave jusy ard less than while the drug is full sttength in your body. The drug is never gone from your body it remains one cell

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How long after taking clacee will the side effects stop? Specifically the vaginal burn and foul taste in my mouth? ## He...

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Vaccination given in the back of the upper arm. Want to know duration of protection and side effects. Three days later a...

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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

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I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

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I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

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Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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