Muscle Pain From Warfarin? (Page 4)
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Hi. I have been taking warfarin for 4 months. Prior to my PE when landing home from a long flight I was very active running and swimming every day. Since the attack every muscle and many leg joints ache all the time. Is this a side effect from medication? Thanks.

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47

Hello everybody im sonny. I am 22years old. And i have a story as well very similar.. i had a PE 3months ago:( i got missed diagnosed for months. id go to the hospital put an ekg on me and take a regular xray.. and say i was just having anxiety nd give me ativan. I went 4 5 times and got missed diagnosed. I would tell my fionceii i feel something there i feel it but hospitals werent helping me they would never imagine someone my age having PE. My heart rate started raising to 183bpm started coughing up blood so i went back to the hospital. Finally some different doc said lets do a ct scan, the scan came back positive my oxygen would drop to 70s i thought it was the end:( i am the first in my family to have a clot PE. I was in the hospital for 10days. Thank God the clot in my left lung dissolved. . That feeling of lacking air is no joke at all. it is a very bad bad way to die. Its been 3months i am on warfarin bt the doctors never found out why i got the clot.. they have no clue... mentally this affected me:( im young and i jst had my first babby and sometimes i think im not gna be able to see her grow be there for her. Shes 5months old. Im depressed.. it is not easy wat i am going thru it isnt.. i have a pain in my neck in the front left side and some chest pain wen i walk its weird... if anybody out there that has had a similar problem like me with this stupid clots. I am soooo sorry wat ur going thru its mentally fustrating and physically too.. If anybody got some advice or sumthng to say feel free..

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46

Fluroquinolones and many other drugs are delivery methods for putting more fluoride in our bodies. Fluoride is an utter poison. Get off it when you can.

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45

My experience was similar; had an injury on April 20, 2014, didn't move around a lot and, looking back, probably was dehydrated--when I presented to the emergency room I definitely was dehydrated. Was seen by several doctors while in hospital but only one or two said the injury had anything to do with the PEs. How stupid can they be? Ultrasound of both legs show absolutely no evidence of clotting issues. I am beginning other methods to deal with this. Best to you.

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44

Had bilateral multiple PEs in early May and have been on warfarin for about a month and experience back pain that just does not go away. Have little bubbles on chest, had one instance of extreme nausea with uncontrollable urge to vomit, have had some diarrhea off and on.

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43

My onc doc put me on Warfarin last week due to a blood clot and within 4 days I was howling in pain, my leg felt like it was on fire - got to the hospital, doped up, x-rayed, ultrasound, they found nothing. I couldn't bear weight on my leg and it was numb and useless. I looked up the side effects of Warfarin: "sudden and severe leg or foot pain, foot ulcer, purple toes or fingers;" second one on the list. I knew it. I stopped that stuff and will never use it again. I have always been athletic and strong. My leg is finally almost normal, a bit numb around the knee cap and I'm able to walk steady on it now. Oh, and the blood clot? gee, now they can't find it. and there were questions from other radiologists regarding the clot ever existed. The Coumadin Clinic they insisted I go to didn't even acknowledge the leg pain I was beginning to go through when I was there. I strongly suspect there is a pharmaceutical influence on these docs where they are encouraged to prescribe drugs for some kind of payoff.

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42

Sorry for what you have hint thru. Consider looking onto ginger oil, turmeric and krill oil shame on the Dr who did not keep you at normal levels Unfortunately we have to do our own research

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41

Been on it for 130 days now, no side effects that I can tell. It's a designer drug, warfarin does not thin your blood anyway, it stops it clotting. Xarelto or whatever the other names for it is, does it in a different way, wiki it for info. And no blood work! that is worth it in itself.

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40

Get off it. Try natural blood thinners. Your body is telling u what to do. Listen. I say these things after watching the extreme pain my dad had been in and Drs not listening. Top bad we have to do our own research
It's about quality life and being your own advocate. Why don't Drs listen?

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39

Was only on warfarin approx 3-4 weeks. INR always was 4.plus. Got sicker day by day. Was hospitalized due to EXTREME fatigueness, shortness of breath, severe pain in neck shoulders and headache severe coughing. Was initially diagnosed as pneumonia but later treated for CHF. Also had UTI while in hospital. Something as a male i have nevet had. After about a week or so off warfarin almost feeling like my old self. Now the doctor wants to treat my AF with Xalrelto. I am afraid of that stuff too. How does one know the blood thickness or thinness without no monitoring. Has anyone experience taking Xalrelto?

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38

I was on 10 mgs of Warfarin for paroxysmal atrial fib for 12 years. After having a lot of health problems over the years, including multiple kidney stones and moderately severe osteoporosis, I too went off warfarin. Within a few days off, I experienced a noticeable reduction of debilitating fatigue and muscle weakness, especially in legs, and a disappearance of leg pain and restless legs at night. I've started to eat foods that apparently have a small anti-coagulant effect, including garlic, tumeric, ginger, omega 3s plus drinking 3 litres of fluid per day. I've only been off Coumadin for about 2 weeks so have no perspective on the long term affects.

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37

Coumadin/Warfarin ....been on this for 8 months due to a DVT in my leg. My life really has changed to being tired all the time. Pain in my joints, fevers, bleeding, even regular numbness in joints and fingertips. I was takimg 7.5 mg 3x a week and 5 mg 4x weekly. Here just these past few days I've been in and out of the hospital due to thin blood, but ive never missed a dose or doubled up. I went to a 8.0 where i should have been 2-3.5 in that range. I noticed a dramatic change when i started witnessing extra bleeding from my gums and even urine that was red/brown. I should have only been on warfarin 6 months or less then takin off to see where my blood levels would adjust and maintain healthy. I went to the ER and even with them running a blood diagnostic, ultrasound, and xrays, they said i was fine? I knew i wasnt got a 2nd opinion and they took me off warfarin right away. Reversed the effect with vitamin K and now i go back tomorrow for an INR. My point is my body wasnt handling the effects of warfarin for a long term , my doses were too high and they should be monitored more often for a drug like this. I was bleeding internally slowly, my blood was so thin it my body became a big pain and mainly on my right side under my right shoulder blade, lower back and right arm became numb. they gave me tramadol which was only a quick fix to the pain i had. blood was into the kidneys, i developed an infection, where my kidneys swelled up which created most of the pain and stomach pain. Also yes they do use the same substance in warfarin for rat poison, which threw me off too. My opinion only is this drug is a bad choice to stay on long term and the side effects ive had and potential death, i will never go back to it. there are alternatives and i couldnt believe all the legal suits filed on this drug either. My suggestion is to ask questions and ask for alternatives. your doctor dont care about you just a good INR! Im 29 years old and on warfarin I feel like twice the age. I dont know what 50 years old feels like I just know im suppose to have some kind of energy and i feel like a lost cause!

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36

Taking warfarin for month now. INR still not stable. Having extreme pain in neck and shoulder. Has anyone taking this drug experienced severe neck pain and also coughing?

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35

i can help you with stabilizing your inr. i know how to do it. first of all you have to buy your own COAGU CHECK aparatus,from roche germany. find it on google,order it,pay it and have it. then learn to measure your inr youself. not difficult at all. aparatus i have cost me around 800 euro,and for measuring little films,i dont know how else to call them,every farmacy have them. they cost about 4 euros each. not expensive. then you are your own master re your inr. after that you can eat what you want. and measure your inr once in a forthnight. in the meanwhile,have in mind that on whatever day you ate more green stuff,find on google lists of content of vitamin k in foods,on such a day you should take one fourth of a sintrom tablet more than on days when you did not eat much of such foods that are full of vitamin k. as general rule,green leafy vegetables like lettuce and spinach parsley etc have much vitamin k in them. it is not a good idea that you stop eating these foods cos they contain folic acid that is nesessary for health. and omega 3. the one fourth of sintrom tabblet more on days you ate more green foods,and less on days you did not eat much of these foods,is my rule. for me it works. but you will say,who will decide how much sintrom daily i will have to take after having measured my inr. you will decide it. ill tell you how i do it. lets say my todays measurement of inr was 2,75. its a good finding. then ill decide to take three thirds or one whole tablet every day. we dont all react to the same dose equally. so in the beginning you will have to measure your inr more often so as to see how you react at one tablet or at three thirds. but you will have only you,only one patient to follow,while your doctor has many. one more thing. it makes sense to take sintrom in the evenings,cos in a public laboratory or you doctor they measure it in the morning lets say at nine o clock. so,nine in the evening is half time,12 hours in between. my thinking is such.and my hematologists says so too. and also,you will know by nine o clock in the evening what you ate that day,and will take sintom dose accordingly. a good start is a presumption that you need a whole tablet of sintrom on daily basis,when you ate some green stuff but not much. if you ate much you may need one whole and a fourth of the tablet and on days when you did not eat greens at all,you need less,like three thirds. this way i saved my health and nerves. i buy every year in august one whole box of measuring films. they are 24 in the packet which is enough for approximately one year,for measurments once in two weeks. so i by my own mistake three weeks ago ruined two little films,i was nervous and did not draw enough blood. so i decided ill take longer before i remeasure,cos i have no money to waste and i want my meauring films to last mi till next end august when ill buy a new packet. so i let it be without measuring my inr for more than a month. and i found today my inr as 2,1. not bad,after a month. in the meanwhile i was deciding how much sintrom to take according to what i ate each day. not so hard as it sounds. and also,when my inr is high,then my gums bleed a little. it shows when i brush my teeth,a little pink. and also,there would be a little bruise somewhere on my body. this is a sign for me that i have to lower my sintrom dose. this is it. in the beginning it is hard cos you dont know yet how much sintrom you need with normal diet. presume it is one tablet. start from that. and measure it more often,until you learn your bodys reaction to one tablet of sintrom. here is my email address in case you want to ask me something. {edited for privacy}.
good luck,
viki

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34

I've been on Warfin for over 15 years and just started having severe pain in my right upper thigh. It hurts to the point of waking me and or stop peeping me from getting sleep. This is the same leg that was used for placement of 3 stents, after my open heart surgery and aortic valve replacement. My INR IS ALWAYS BOUNCING FROM 1.5 to 4. I'm told its from green leafy vegetables which I hardly ever eat. The pain I'm thinking is deep vein thrombosis , but I've yet to see my Cardiologist yet. I have seizures when they thick in my blood with Heprin or Lovinox so I tend not to go in as they always want to thicken me up. No one in the medical field has ever believed me , although I have seized evert time followed with severe depression.

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33

Been off Warfarin for 83 days now, no pain what so ever anymore. Don't know what all this medically dependent on Tramadol is all about, don't matter if your on it or Warfarin if you have had PE's then you have to take something or run the risk again. There will be something new coming along in a few years. Told Warfarin clinic about it and they said they wanted to put me back on Warfarin to see if the pain came back then they could be sure it was the Warfarin...... No thanks ;)

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32

Been on warfarin four months now.I have lower back pain like I have never had before.Told pc about it he said it wasn't from the warfarin.Don't Belive him.I cannot even walk around the block without lower back pain.I'm on six mg of warfarin a day.Going to talk to my doctor again to see if I can get off this stuff and see if my back improves.

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31

I've been on Coumadin (Warfarin) for 23 years. I am 39. My legs have hurt every single night for 23 years straight. I recently started taking Tramadol at a low dosage every day. It has changed my life, although I realize that I am now medically dependent on Tramadol. The leg pain is gone though.

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30

GOD has nothing to do with it. I've been on it for 8 months and I feel the same way.

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29

IMPORTANT "ALWAYS CONSULT A DOCTOR" and do not self medicate

See my posts 21 and 25
Well I have progressed, my pain is now just a severe ache and only in my left sciatic nerve
The consultant agreed with me to stop the Warfarin, I discussed that I would now NOT be prevented from blood clotting, He advised me that I would be OK without it but to take 75mg of ASPRIN DAILY
I had gone from a normal person to a total cripple in six months, I am slowly returning back to normal
What an experience

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28

10 days after seeing my doctor and telling him I was going to stop taking Warfarin he rang back and said I could have rivaroxaban. So I agreed to give my wife some peace of mind (she kept jabbing me to see if I was still alive. So been taking that for 10 days now. Side effects of rivaroxaban, well first week felt ill now and again that was it. All my pain has now gone, feel amazing, decided to finish decorating house after 4 years half finished. Running round like 18 year old. Breathing normal, mind also a lot clearer. Don't know if its the rivaroxaban or the stress of it all but get a bit teary at times, nothing like the crippling joint pain I had on warfarin. So see how it goes from here, so far so good.

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