Muscle Pain From Warfarin? (Page 5)
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Hi. I have been taking warfarin for 4 months. Prior to my PE when landing home from a long flight I was very active running and swimming every day. Since the attack every muscle and many leg joints ache all the time. Is this a side effect from medication? Thanks.

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Well first night, never had a headache like it wanted to throw up, thought I was gonna die, day one amazing difference all pains almost gone, only in toes if I bent them right over. Day two wow what a difference could breath again, didn't even have a pain killer at all, went out all day walking, and went to a gig at night. Got my zest for life back it was like having a new body. Day 3, had a bit of a headache last night, and today my hip on the other side aches like hell so had one pain killer, feel a bit tired, but probably cos of the excitement etc. All in all breathing is back to normal and only pain is in hip, hoping it goes soon. Other side effect is no RLS at all, did not have a good nights sleep waking up etc, bun no RLS at all. Also changed diet, and on a diet. Eating fish, cinnamon, nuts, prunes and all that and steering clear of the greens.

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You don't have to be at risk. Drink homemade ginger tea, takes Systemic or Proteolytic enzymes, fish oil, etc. Plenty of natural ways to help keep the blood moving. As you said, the warfarin does nothing really, except destroy the body and keep platelets from clotting which is very dangerous. Also, drink loads of water, dehydration alone can cause blood clots AND keep moving.

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Artial Fibralation is NOT managed with Warfarin, Warfarin just stops the blood platelets from forming a blood clot, As the Artial Fibralation continues

My latest news is after six weeks clear of Warfarin I am now almost pain free more of a severe ache, but it obviously takes its time depending on how poisoned you have been I think.

It is hard to define pain, but week by week taking warfarin my muscle pain got worse, to the point my back muscles were like a raw steak stretched to it limit, after two weeks off, it was just like a raw steak, then just like a severe bruise, now it is just a severe ache that is relieved by heat.

I am hoping it eventually goes completely

The only problem is I am now at risk of a blood clot and stroke

Jim

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I am now on Amiodarone 200 mg and Bisiphorol 2.5 after my cardio version did not work and went to the ER with heart beat 270 beats...also taking 4mg of Warfarin since June 13....So fed up with side effects....does anyone useVitamin therapy...as various sites Vit E. Garlic. GINGER and cod liver oil does anyone have any advice on how to manage Artial Fibralation with out warfarn....anyone have any thing to do to get off Warfarin

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I have been on Warfarin 10-14mg (up down up down etc etc) for about 4 years since my second PE. No reason found. My hips started aching badly, one side was like having a knife stuck in it, then my INR went upto 4.8 and one night my pain went, but I could not breath. So went to doctors cos I though I had another PE, impossible they said, well it is possible, Warfarin only lowers your risk of getting another PE, but no I did not have one. Given pain killers. Pain in toes, especially right toes, knees, hips all the time, shoulders, fingers especially little finger on right side. Also this is new metal taste in mouth, teeth stand on edge any metal noise, key in lock etc. Cannot eat anything crispy or brush teeth as too painful. Now I blamed memory loss, no interest in anything, no libido, no energy on a previous drug I was taking for RLS called Mirapex, but I'm wondering if these are from Warfarin as I took one after the other (I blame Mirapex for my PE's it's such a nasty drug). Went to doctor, he said not to do with Warfarin take more pain killers. So I went and said put me on new stuff as I am being poisoned. Said to wait and he would get back to me if I could have the new stuff, but then went off sick and has not been in the rest of the week so obviously a no then. I'm still in pain and I told him I am coming off the weekend no matter what, I am sick of feeling this ill, I can no longer work (took two weeks off to detox as cannot even do my 4 hr shifts so tired and in pain).

So here goes, you lot have been an inspiration, would rather die than feel like this another day. My wife is very resistant, but said she respects my decision. Will try and get a diagnostic for sticky blood in 6 weeks just to eliminate.

Hoping I feel better asap.

Good luck everyone, this stuff is evil.

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this coumadin/Warfarin is POISON . since being in it just one month ; my life has been a living hell! I am glad i am not alone. i am a 64 year old female and was found to have a DVT in my leg while in the hospital for a bout with congestive heart failure (from an ultrasound) within a week of discharge; I began having severe bi-lateral leg pains at night and abdominal pains. This has become worse to the point of several ER VISITS/ ZERO SLEEP/ AND NOW DEPRESSION! my doctor of course is only concerned with that 'INR' NUMBER.AFTER ALL IT IS NOT "HIS PAIN"....AND PAIN WILL NOT KILL YOU.. I am seriously thinking of stopping this "rat poison" 'AGAINST MEDICAL ADVICE' ! They refuse to even do a new ultrasound to address my leg pain and re-assure me that i have no new clots. My blood count is dropping, i have severe headaches and also abdominal distention. Also ignored when a CT is normal! So..I do not eat some days ! No sleep...not eating...and up all night crying from leg pain. This is not worth it! rather
take the risk! i am glad i am not crazy Sara from Colorado.

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I commenced Warfarin in June 13, and at the same time took up exercise as in walking twenty minutes a day (after being sedentary for ten years)
After two weeks I could hardly walk due to muscle pain, I/dr put this down to lack of use previously of muscles, after four weeks I could not walk at all, and my muscle pain had moved up my back, Dr gave me pain killers, after two more weeks even more pain, Dr stronger pain killers and muscle relaxant, again after two weeks, then again after three weeks, I could not now get out of bed, I had to roll out and pull myself up the radiator to stand
I saw the consultant 14 Dec and asked to come off Warfarin, he agreed to four weeks,
Now three weeks later, the pain has reduced, and cleared completely from my back and shoulders , just in my hips now. I see the consultant on Tue 7 Jan and I have made the decision to stop the Warfarin, no matter the consequences, I would rather be pain free and live six months, than be in pain for six years
(the pain killers relieve the pain, but the ache is still there on 30/500g co codamol next stop Morphine, but I have decided no more Warfarin)

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Chris I have been on warfarin from august also for a pe and I have had tingling in both hands and feet I feel so much pain it is worse than my sickness tired of this drug

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I do fish oil, ginger, turmeric and also a product called Cardio for Life which zaps even small blood clots. Systemic Enzymes also called Proteolytic enzymes, do amazing things too, and they thin blood to the point it has a warning label on the enzymes about mixing it with blood thinners. I thought all the time, that Warfarin was my problem but turned out, it was the CIPRO they pumped me full of and still struggling and we have a legal case out against Bayer for the damage it has caused. Just also know, that heavy, fatty, bad for you meals will cause the blood to sludge, dehydration alone can cause blood clots, so loads of pure water.

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I have all the aches and pains in the joints and shoulders, which I blamed on the beta blockers and the calcium channel blockers...but have changed these pills and still have all the aches and pains and feeling unwell..only by chance cam upon this site and good to know that it is not just me....have you come off Warfarin and gone down the natural health route...ie ginger garlic etc,...perhaps you could let me know...I do take chia seeds which I take for constipation for the warfarin and the cocodamal I take for the pain but does not work..so would be interested to know how you coped coming off Warfarin

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prescribed warfarin in august 2013 and immediately experienced extreme pain in legs - bone pain in hips, knees, shins etc and also back. Mainly in lower body. Very fatigued and dizzy at times. I have experienced a severe rash which occured when warfarin dose was too high. My GP does not recognise this drug as being the cause but it is too much of a coincidence and things are getting worse. Unable to walk far, difficulty with stairs and bath etc. My mood is certainly becoming low.

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Why ask the Dr. if u KNOW why he is feeling as he is? They will just tell you that it's not the drug, been there, done that. There are many natural things to thin blood and aspirin isn't the best of the best as both aspirin and warfarin have the same ingredient that will destroy the stomach lining and cause possible bleeding. Google natural blood thinners...garlic, fish oil, ginger, Vit. C, many things thin the blood while giving good health benefits.

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I am so pleased to read everyones coments. My father is on warfarin and has been feeling exactly as everyone has described. Pains in legs, no energy and said he feels worse now than when he had his heart attack. He keeps mentioning these symptoms to the doctor and the warfarin clinic nurses but they all say they have never heard of theses symptoms How can this be when so many people just on this one forum have reported the same problems? After reading these I am going to talk to my dad, maybe we could go to the doctor together and ask could he stop taking this terrible drug and go back on asprin which he was on for many years without problems.

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ill try to be short and concise. i have been on warfarin since 1998 for my metal aortic valve. and i have once,since then,had an episode of double vision that lasted maybe ten seconds. and i have osteoporosis,probably because my bones need more vitamin k1 that warfarin is killing. so instead i take vitamin k2 in hope warfarin will not kill it too and that it,the vitamin k2 will not drop my inr. i have read only in one vitamin k2 supplement that it does not interfere with my lessened by warfarin blood clotting which means that it,the vitamin k2 will help my bones without damaging the needed effecta warfarin does on my blood clotting by lessening it. i hope it is true,otherwise i am wasting my money and also taking more sintrom because i am taking the vitamin k2. but NOT k1.
so my questions are,was my diplopia,double vision,caused by warfarin,and does vitamin k2 does the same as k1,ie does warfarin kill it too,as it does withe k1. i am afraid no one can tell me either...

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I am back again to ask, has anyone here ever be on Cipro or Levaquin or any of the other antibiotics in the Fluroquinolone group? I ask, because last year, I WAS on blood thinner, however put it in God's hands, got another Doctor and she agreed mine was a fluke. I stopped the med and in 5 days when I went back, my blood was normal. I never did reach the plateau they wanted me in as far as INR and I know it's because my body was fighting the drug. Anyway, I have been off this garbage since last November, but continued to feel bad with bone pain, muscle pain, burning in the tops of my feet, you name it, the symptoms were stil there. So, I got a post on FB talking about the Fluroquinolones being poison and what they are doing to people. I started investigating, requested my Medical Records and sure enough, they pumped me full of Cipro IV and by mouth. I am very angry, because this stuff is like pumping chemo into your body. I am trying to get myself back to health but it's been a hellish 15 months for me, as I never know how I am going to feel from day to day. So, it's not just blood thinner that can do you in. BEWARE of the fluroquinolones .What I thought was the blood thinner all that time, was the antibiotic.

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I have been on warfarin for 6 years after having a p.e 3 weeks after my first daughter was born and then 6 months later after coming off warfarin I had another one so I am now on life long. For the past 6 months my health has detoriated im moody, I ache and have really bad joint pains, I have no energy and my appetite has decreased, ihave seen many drs all who say its not side effects of warfarin I dont take anything else and im only 26 how can this just be my body i feel at deaths door and its getting me down now, I will keep fighting until they sort me out. Good luck to all suffering the same hope u all get sorted xxxx

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I HAVE NO NERVE TO READ ALL THE ANSWERS SO ILL TELL U MY STORY. I HAVE BEEN TAKING SINTROM,NOT SMALL DOSES FOR ARHYTHMIA,BUT AT LEAST A PILL A DAY,SINCE MAY 1998 AND I HAVE NO SUCH SIDE EFFECT FROM IT. BUT I DID HAVE MUSCLE PAINS AND IT WAS PROBABLY CAUSED FRO A STATIN,10 MG,THAT I HAVE BEEN TAKING FOR A LONG TIME TOO. NOW I HAVE NO MORE MUSCLE PAINS. I SUGGEST U IGNORE THEM AND IF U TAKE PAIN KILLERS TAKE AS LITTLE AS POSSIBLE COS ULL RUIN YR STOMACK. AND,INSTEAD OF CONCENTRATING ON THIS POSSIBLE SIDE EFFECT OF YR BLOOD THINNER,U SHOULD LOOK CAREFULLY AT YR DOSES AND YR INR. WHICH MEANS LOOK AT WHAT U EAT,WHERE THE VITAMIN K THAT SINTROM KILLS IS,IN THE GREENS. I DONT SUGGEST U STOP EATING GREENS COS THEY ARE PRECIOUS FOR THEIR CHLOROPHILE AND VITAMIN B9,FOLIC ACID. INSTEAD,TRY TO FOLLOW YR INRs AND YR DIET,SO THAT U CAN FIND A SHEME OF HOW MUCH OF GREENS NEEDS HOW MUCH MORE OF SINTROM. FOR ME ITS AROUND A FOURTH OF A TABLET MORE ON THE DAYS I EAT A BIG GREEN SALAD. AND TAKE SINTROM IN THE EVENINGS COS U MEASURE YR INR IN THE MORNINGS,WHICH IS THE MID TIME OF 24 HOURS. AND,ONE MORE SERIOUS ISSUE. VITAMIN K THAT YR SINTROM KILLS IS NOT ONLY MAKING YR BLOOD THICKER BUT ITS NEEDED IN YR BONE FORMATION. SO U CAN EXPECT SOME OSTEOPOROSIS AFTER SOME TIME OF TAKING SINTROM. THEREFORE KEEP YR SINTROM INTAKE IE YR INR AS LOW AS POSSIBLE. DENPENDS ON WHY U TAKE IT. BUT NOT LOWER THAN 2. I SUGGEST U BUY A MEASURER OF INR,COAGU CHECK,A GERMAN APARATUS. IT COSTS ABOUT 800 EURO AND EACH MEASURING PAPER IS ANOTHER 5 OR SO EUROS. BUT ULL BE FREE FROM LABORATORIES. U CAN HAVE IT WHENEVER U GO ON A TRIP AND MEASURE YR INR JUST LIKE THE DIABETICS DO,ONLY THEIR APARATUS IS DOUBLE SMALLER THAN OURS AND CHEAPER,IF NOT EVEN GIVEN FOR FREE. EVEN IF U ARE POOR BUY IT. ULL BUY YR FREEDOM. AND THEN LEARN AS MUCH AS U CAN ON THE INTERNET ON WHAT FOODS HAVE VITAMIN K IN THEM,FOODS WITH MORE THAN OTHERS IN QUANTITY,AND THEN DONT AVOID THEM,BUT BE AWARE OF WHAT U HAVE EATEN IN THE GIVEN DAY AND THEN IN THE EVENING TAKE AN EXTRA 1/4 OF A SINTROM TABLET WHEN U HAVE EATEN MUCH GREENS. FINALLY ILL TELL U THAT KALE HAS THE MOST VITAMIN K OF ALL PLANTS. MUCH MORE. SO MAYBE DONT EAT THIS,OR IF U EAT A LOT ON A GIVEN DAY,TAKE 1/2 MORE SINTROM THAN IS YR DOSE FOR THAT DAY.AFTER KALE ALL GREENS ARE FULL OF VITAMIN K,SPINACH PARSLEY BROCOL LETTUCE ETC. AND AGAIN FINALLY,CONSIDER FINDING OUT ON THE INTERNET OR OTHEWISE,I HAVE FAILED SOFAR,WHETHER VITAMIN K2,WHICH IS EVEN BETTER FOR THE BONES THAN K1,IS KILLED BY SINTROM OR NOT. I MEAN IF WE CAN TAKE K2 AS SUPPLEMENT FOR BONES WITHOUT RUINING THE EFFECT OF SINTROM ON BLOOD THINNING THAT WE WANT. AND IF U FIND IT PLEASE LET ME KNOW ON MY EMAIL:

xxxxx@xxx {edited for privacy}

LONG LIVE SINTROM USERS!!!

KISSES XXX

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What good does it do to report side effects? I told the other Doctor I went to and he just brushed it off. I go see a new one Monday and expect the same from her, and if so, I will keep searching until someone listens to me, or just remove myself from this poison.

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Well, I am not sure whether this will help, bur I had a horse on Warfarin, and she showed some very strange reactions when asked to perform Slow movements required in Dressage. My Vet came to see her and agreed that she would become hyper at certain moments, as if she couldn't cope with these movements. We took her off Warfarin, and she went back to being calm, and she had no more of the strange affects.

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It's funny that we should thank GOD this drug is here. I don't think so, because I think God doesn't want our bodies pumped full of this chemical garbage...plenty of natural things to keep the blood thin. My question to all of you is this one...HOW will a Dr. ever know if your blood levels will get back to normal if they don't work with it a bit? I mean, I believe they don't look at anything but keeping the blood from developing clots. My problem was a fluke and I had every test imaginable to check for underlying problems, as I said, and it all came back negative. Lying in bed for 3 weeks, being dehydrated, and drinking kale and spinach drinks did me in. SO, unless one has a genetic fluke in their body causing blood clots, I feel no reason for someone who had a one time occurrence to be on this stuff for lie. It is very deadly in the elderly and will cause them to hemorrhage in the brain and many times, the kidneys, such as it did with an elderly friend of mine. This drug is a "hard" drug and dangerous to all who take it. I've no felt normal since I've been on it, and all drugs cause other things to happen in your body and I am not willing to continue this stuff and wait and see what happens next. I go to see a new PC next week, and really dreading it, because most Doc's don't go out of their realm of text book thinking.

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