Muscle Pain From Warfarin? (Page 3)
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Hi. I have been taking warfarin for 4 months. Prior to my PE when landing home from a long flight I was very active running and swimming every day. Since the attack every muscle and many leg joints ache all the time. Is this a side effect from medication? Thanks.

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67

Good for you that is what i did the pain had gone within a few days and my doctor came up with xarelto a week later and not had any pain on that at all since.

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66

I'am warfarin too 5 years now the Paine in upper body just keeps getting worse doctors say its all in my head going off it just to prove to my self its not

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65

I have been on Warfrin for the past two years after my PE and have suffered pain in my hips, shoulders, legs and arms. We are all aware of what medication we are taking and would like to hear if there is anybody who takes another blood thinner other than Warfrin and do they have any side effects similar to what I have?

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64

I have been on warfarin now for 18 months after a 2nd blood clot I also have lots of joint ache, and dizzy I told my warfarin nurse and she said she had not heard of the things I mentioned before from this drug, but I can hardly walk with the pain in my back and knee, also shoulders, I feel sorry for my husband as he gets my anger sometimes when it gets bad, I feel bit better that I now have heard I am not on my own, I wish us all an answer soon and hope someone listens.

from this drug, I can hardly walk far as its to painful makes me not nlive with

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63

Hi I have been on warfarin for 3months for a clot in my carotid artery. I am having extreme leg pain and my Dr have not heard of side effects such as this. I am convinced it is from the blood thinners. I am 35 years old and was fine before this, hopefully I don't have to be on this much longer.

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62

Hi Jodie, I feel for you I feel exactly the same symptoms as you. I had a Multiple PE in my lungs and nearly died, I also had a previous PE 20 years before so am also on life long Warfarin. Since being on it I have experience severe backache, joint ache on waking I feel like I have flu, dizzy, foggy, achy, generally feel like "s***" every day. Have asked the Dr if warfarin is the cause, no response just sent me for blood test echocardiogram, x-rays, etc. I had every test under the sun no results. I'm sick and tired of not knowing what is the cause.

Hearing your message makes me think it must be the warfarin as the symptoms were there since taking it!! I lost my job as I was unable to work full time as it was a physical job I have know IT skill. I'm 60 this year and am struggling to find work. I cant retire for 6 more years. I know I am lucky to be here but it feels like a living hell. I am searching other natural remedies as an alternative. I will come back to you and let you know what I have found. I don't want to feel like this for the rest of my life!!

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61

I was on Warfarin for a DVT & PE about 7 years ago and the longer I took it the more my muscles and nerve endings would hurt. It got so bad I could not even stand for anyone to touch. It hurt to even sit. My doctor out me back on Lovanax shots and the pain started subsiding but was still present. After I was off all the blood thinners it took some time for the muscle pain to completely reside. I was diagnosed with a blood clot about a year ago and this time I was put on Xarelto. At first it did not bother me but again I started developing muscle pain and it felt like my nerve ending were firing all the time. A strange feeling that is hard to describe unless yo you have felt it. This was gradually get worse. I went to a Hemotologist, since I did not want the pain to get as severe as it did with Warfarin. She recommended that I remain on a blood thinner since this was my second DVT, but I chose to discontinue using the Xarelto in hopes that my muscles would stop hurting. I have been off the Xarelto almost four months now and I am still having muscle pain. I am beginning to wonder if I have some kind-of permanent damage since the pain is still there. The pain and feeling in my body is hard to describe and I am sure to some hard to understand, but it is real. I just want my body to feel normal again.

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60

Hi I was on warfarin for 4 months following a unprovoked dvt while I was on warfarin the only things I noticed was hair loss and felt a bit cold but as soon as I stopped taking it omg every muscle I own aches I am so tiered I am now severely anemic and have also had a stomach infection I have been off work for 2 months since stopping this drug I hate to think what it had done to my body but I know it can't be good cause no one should feel like this !!! Hope you feel better soon godbless xx

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59

Hi john yes I believe it is I didn't have aches while in warfarin but since stopping it my legs and back ache and the nerve pains in both legs are horrible I do try to walk every day and I am taking vitamins think it a case if wait and see if it gets better hope you feel well soon xxx

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58

Well been on Xarelto nearly a year now, no aches and pains anymore. As far as I can say no side effects but too early in the drugs life to tell. One yearly blood sample and one easy pill is like freedom from Warfarin. I say no side effects and probably coincidence but will put it out there if anyone else has the same. Diagnosed with Type 2 diabetes six months ago, age 47, and last week underactive thyroid. Now could just be one of them things time will tell.

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57

Hi I was taking warfarin following a dvt last year took it fir 4 months didn't have many side effects but since stopping it 2 months ago the muscle aches and nerve pain in my legs and lower back are awful my doctor says nothing to do with the warfarin but I'm sure it is this has defiantly done something to my body I have never felt so Ill since stopping it so to everyone suffering my heart goes out to you and I'm so serverly anemic all sinc being on warfarin although doctor says no connection !!! Well we cannot all be wrong !!! Good luck and health to you all x

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56

sue i feel like u have saved my life...i have been on warfarin for 4 months now and i have never felt more unhealthy. i just looked up cardio for life and the enzymes and i am wondering why no one has ever told me about this. I am usually a really upbeat girl and lately i have just really been feeling like my time is up. I have had the worst digestion i have ever had, chest pains, aches in my arms, and lack of sleep due to these problems. i just want my life back. Thank you so much for sharing this information. I am also telling everyone i know about these enzymes and how we all should be taking them....thank u so much sue!!!

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55

Hi,
Sorry for your discomfort. My father was on warfarin for years. His muscle pain gradually increased. My family believes his muscle pain was from Warfarin. He was switched to Xeralto (sp?) which was worse and I believe responsible for his death. At least with Warfarin your blood levels can be checked. Good luck

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54

Sonny: I recently went through being misdiagnosed also. I had to keep going to the ER because of pain in my abdomen. I was told I had a kidney stone, then I was told I had gas pains. etc. Finally, a doctor decided to do further testing and they found I was FULL of blood clots in my abdomen and had 2 pulmonary embolisms. I was rushed to a hospital an hour away and thrown into ICU. I also was in the hospital 10 days. I am now on Warfarin for life. I never had back pain as severe as I have had in the past few months. I also have chest pain and severe pain on my side. I have just decided this is something I have to live with since the doctors cannot tell me why I have pain. I too have changed since all of this happened. I am terrified I am going to have another blood clot. Doctors never could tell me why this happened. I was tested and have no abnormalities with my blood. I had so many blood clots they could not count them all in my abdomen. I am depressed and scared. I am 44 and feel like I am 80.

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53

I had DVT put down to birth control, within 9 days I was in so much pain with my stomach and swelling under my ribs, my hair was falling out using the showerhead and without me touching it, the burning pains in my back and pains in my arms and sides were excruciating. Thought I had DVT in the good leg due to constant cramping, had Doppler turned out enlarged groin lymph node. For 8 weeks I was told by the coag clinic to get my warfarin changed to synthrome, but the doc wanted it in writing from a consultant, finally got hold of my consultant through DVT clinic and it was week 9, he said I could stop the warfarin, was supposed to be 12 weeks. Its been over a week now and I am nearly back to how I was before the medication, still waiting for pains in my sides to stop completely and my hair to stop falling out. Had a hell of a time. Coag clinic could see how ill it was making me and have put in my notes if I need this medication again to try synthrome.

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52

I have the same

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51

Don't do it, you'll be ok

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50

Thank you caroleeg for your adcice i apreciate it so mch.. i went to a blood specialist and he drew alot of blood to see if its a genetic thing that caused me to get a chronic pulmonary embolism. I was in hospital during this time i was getting tested for about 7days. They released me followed up next day with hematologists got bad news he said i had a clotting disorder that my PROTEIN S, was extremely beyond low he said i am at very high risk of clotting i am currently on warfarrin but he wants to switch me to xeralto. This is too much for me my family thinks im faking my sickness they think its nt a big deal theyre not supportive at all.. my fioncei is there for me but im always sick always its stressfull just had a bby 6months old. I cant work cant provide i feel helpless. And then knowing a clot can kill me or its gng to eventually i dont thinkso.. i had chronic pulmonary embolism i was gonna die clot was big in my lung of how many times i got mis diagnosed i couldnt breath my heart rate would go up 220.. i can deal with this im 22yrs old i cant live like ths:(.. i am thinking suicide planing it. Im sorry to everyone out there if u are gng thru a situation like me its hard really hard i wish you all the best. Cuz ths is too hard to live with:(

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49

Hi Sonny,
I'm sorry that all this has happened to you, especially the misdiagnosis. My daughter is currently being treated for breast cancer - she is a little older than you but still young. I was on warfarin for a heart arythmia - atrial fibrillation - not a PE but wanted to reply to your heartfelt message. Having such a life threatening illness is in itself a reason for depression, let alone being so young and misdiagnosed for months. You are at an age when most of us feel invincible and ready to take on the world. You have been hit in the head with a diagnosis that forces you to look your own mortality in the eye. Most people who recover from a life threatening illness experience fear and depression. Sometimes I think the depression, if it is not severe, is a way that our body/mind/spirit slows us down to focus on healing and how we want to live the next stage of our lives. Clinical depression is a different thing, especially if you feel suicidal. If you are feeling this way, it is important that you seek medical help.

I live in Canada so may have a different health care system than you but I think it is important to see a specialist to turn over any potential causes of you PE so you can make changes to prevent a reocurance. I have found personally that I have to persevere and keep asking for what I need in a pleasant and polite way. It also might help if you could somehow find an individual or group of young people who have faced a life threatening illness. It often helps to share with someone who truly understands. I also would like to recommend mindfulness meditation to help calm your busy worrying mind. Jon Kabat Zinn has resources on the internet and has written several books. The loving kindness meditation is one I use often when I feel unsafe.

All the best to you in your recovery. You are very early on your path and need to patient with yourself as you make sense of the life changing illness that happened to you. You made a great step in reaching out to others.
Take care, Caroleeg

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48

This is SONNY..i just commented but put the wrong email..if anyone has any advice comment me on here plz...

{edited for privacy}

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