Epclusa Side Effects (Page 8)
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Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

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Re: Sunshyne (# 17)

Hi hope you are going ok !this coronavirus has changed things ,I can't ever see things going back to what they were ,I'm just hoping U don't catch it ,since doing Epclusa treatment my breathing is t good ,I'm same as you would love to see someone take responsibility for screwing up so many lives,the liver clinic near where I live still denigh there horrible DAAs might have caused problems ,just heard of 3rd death from people who did the treatment ,I so wish never did it ,my immune system is wrecked ,stay safe sunshine,what part of the world are you from? I'm in Australia ,use to be good place ,

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Re: Lou (# 25)

The sad part is a majority of us are experiencing the same horrible debilitating side effects and we can’t converse any other way that in here and they will not let us provide our information for contact or use any website information it gets deleted harvoni epclusa post tx is a site to search where we are in a group that descusses all the side effects I can’t leave my information they block it out try to search what site I wrote and you will find us please we need to get this out there

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Hi Kathleen ,are you going ok ,been worried ,please let me know how you are , you understand me an my problems, waiting to hear from you.

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Hello Kathleen,how are you since your recent hospital drama,hope too are feeling bit better ,Well this coronaviris has changed everything ,I never mixed with people very often so that part is ok,I'm not sure but I think you are on cortasteroids for asthma ,I am on them twice a day,I read on line that they can effect our chances of catching this new virus plus weaken our immune system ,I mentioned this to my dr all he said was don't stop taking the cortasteroid as they are helping my condition,I am just so mixed up who do I believe ??after the Epclusa treatment I was told so many things that were wrong,I don't know if I should just stop or do what my dr says again, I really don't need to catch coronavirus ,I've been coughing a lot lately and I'm really getting bad leg pain from the Epclusa I think my feet feel like I have extra tight socks on 24 hrs a day plus numbness,now they have stopped people going over the border so can't see my grandkids ,I worry they might catch something one has rhumatoid arthritis isn't very strong ,sometimes I feel like IV had enough of going to drs stressing out putting up with pain ,telling my story ect, please try stay safe ,hope you are ok.

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Kathleen,how are you going since hospital? Every day here seems to be more people getting coronaviris, I hope you are ok ,noticed it seems to be spreading fast ,USA really seems bad, I really don't need it, mentally or physically,my legs are are aching so much today trouble walking plus feet numb puffy feels like I have tight socks on has to be circulation problem, impossible to even see s dr ATM, hope you are ok.sometimes I wonder where these viruses come from.like cud it be manmade or natural,stay well ????

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Re: Friendz4 (# 8)

Both Harvoni and Epclusa are made by Gilead and contain Sovaldi. Many of those who took either of these drugs are now suffering. I took Harvoni 5 years ago and my post drug life so sucks. I honestly wish I had my old life back with Hep C. There is also a caution that just because you are cured you are not safe. There are reports of cancers and fatty liver showing up after treatment.....not to mention the myriad of other problems people suffer from such as 24/7 headache, tinnitus, neuropathy, fatigue, rashes, vision issues, dental issues. joint pain, etc. etc. That the medical profession can prescribe this and then dismiss the issues post treatment is disgusting! I hear it all the time from my group of post-Harvoni survivors.

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Re: Friendz4 (# 12)

Hi I'm in Australia sounds same as people here are going through ,not everyone but a lot of people are really feeling bad ,I had no support at all ,seems they just wanted me to sign dotted line ,and sign my life away ,makes me so mad I'm 67 yrs old ,and got through many of the struggles you get living an alternate life style ,which I don't regret ,only to be brought down by so called liver experts ,I must have had a 5 min interview with liver dr ,who assured me it's so easy to do maybe a headache or very slight nausea ,nothing that drinking water would not fix ,ha ha I doubt it ,now this new virus has arrived I feel as if my immune system is stuffed so I expect to come in contact ,IV met a lot of shady people but the ones I had to deal with on this Epclusa treatment win hands down ,the fact that they said wear always here for any problems you may have ,plus support you might need ,what a joke .somebody should have to take responsibility ,for the damage an hurt .good luck everyone.

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Re: Lou (# 19)

Yes it does effect our immune system I was treated 4 years ago was never sick prior to treatment I am sick all the time now on and off antibiotics join Harvoni Epclusa post after treatment where there are a lot of people dealing with side effects since treatment

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Re: VerFree (# 2)

Hi just wandering if Epclusa effects immune symptom,since finishing treatment 18 mths ago IV had a few infections that anti biotics were used.now I'm worried about this new virus ,doing harm ,already have asthma breathing problems plus other problems since doing treatment.thsnk you any info greatly appreciated.

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Re: Sunshyne (# 17)

Hi. I can relate to what you are saying. What part of the world are you in? I'm in Australia. I'm in my 60s. There's a lot of people just starting to find out giliards new miracle med also damages a lot of us seriously. I wish I hadn't tried to cure the virus. I didn't feel that bad before treatment started, I would just like to see someone from giliard or fix hep C man up and admit they have really stuffed up and hurt a lot of people, maybe apologize for what's happened to a lot of us. This silence is like them just showing how little they care about us. They should just admit that $$$ is what matters to them, not how terrible we feel, like really when did people like that start caring about people like us... As I said before, bout time someone aimed up. Really sorry for your loss. Your husband was lucky you were with him..take care.

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Re: Lou (# 15)

Is anyone reading these comments? Does anyone care? Where is a lawyeror law firm who will help all of Gilads victims and the families who have lost their loved one to this poison that us now under a new name. Advertising a 99% cute rate. My husband was cleared by week 5. And died week 20. 8 weeks after treatment.

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Re: Lou (# 15)

The anxiety is unbearable I am a shell of who I use to be I had no liver damage and was living a wonderful life we were not told the truth about this drug my life is destroyed Please join Harvoni Epclusa post you can search it anywhere it will come up can’t drive a car anymore or even live peacefully the drug was pushed through to fast. And we were the lab rats I have lost vision in my eye have cataracts severe floaters and my muscles spasm all the time.

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Re: New day (# 14)

Agree totally,I felt ok pre treatment,now it's 14 mths Poste treatment iv so many problems now numb feet hands swollen abdomen arthritis nausea anxiety just too many problems ,hate to think what's next,the liver clinic that scared me into doing treatment no support at all,in fact Iv had the misfortune of having suffer a lot of poor excuses over my yrs but IV never had anybody destroy my life like the Epclusa people ,not even a oh we are sorry about what our new wonder med has done to you.think the DAAs keep working on destroying things in your body long after the virus has gone ,I'm sitting here 4am Thurs morning after being awake all night looking at my puffed out deformed looking feet,anyway good luck hope people have better luck,,peace,

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Re: VerFree (# 2)

So you work for the pharmaceutical company?
Many of us were symptom free for 35 yrs. had these Anti virals pushed on us and life was never the same. There is more in these drugs then anti virals
Until it’s you, comment many of our lives have been cut in half post treatment. By ny virus or hello death?

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Re: VerFree (# 2)

I call BS. Just like Harvoni this drug is making people sick, sicker and killing others. My husband had NO CANCER in his blood work or scan. Started drug and died 5 months to the day of start treatment date ... liver, pancreas and adrenal glands. Follow the patients after treatment.

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Re: Lou (# 11)

Hi Lou it seems the miracle was not a miracle drug after all. It was pushed through too fast not enough time to see the side effects they are devastating unbearable. Harvoni and Epclusa posts have so many people in the same situation. I have gone to Drs for 4 years had every test and scans and feel something happened to my immune system and I am in overdrive.

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Re: Friendz4 (# 9)

Sounds very similar to me. My breathing seems to be getting worse. What kind of breathing problems are you getting? So sick of bloating and body jerks, it's like the treatment has effected everything. I felt so much better before I touched Epclusa. Anyway please take care, we are not alone.

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Re: VerFree (# 2)

I.m also having restless leg body jerks every day also really bloated around stomach ,but I haven't gained much weight also ,I'm worried they say virus is cured ,but I have definitely got liver symptoms happening,the liver people who signed me up are no help at all , favourite line is damage was probably done years ago would not be the DAAs ,I'm forever dropping coffee cups due to numbness feet puffy toes look puffy anxiety there's heaps I could go on for ages,I tell my GP all he says is oh I spoke to liver clinic they said treatment wouldn't do this ,mmm it all seems to much for him,I had abdominal xray yesterday I wonder what or if it finds anything ,I'm 66yrs old I was Geno 3also VL very high before tx .cheers take care

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Re: Lou (# 5)

These side effects were not mentioned prior to treatment if they had been I would not have taken this treatment I have severe tinnitus 24/7 hearing loss. My head is always clogged up, neuropathy through my body. Hands and feet are the worst. Extreme anxiety, awful brain fog, and confusion rashes that never went away since treatment. My Immune system is so messed up I have muscle spasms, and something happened to sleep pattern, breathing problems and I have been to Drs for 4 years during treatment. My Dr said like all of you it’s not from the treatment. Well it’s not a coincidence that these side effects are the same we are all experiencing. {edited for privacy}

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Re: Lou (# 7)

Hi Lou we are on a group of people harmed severely from these DAA with no support from Dr they all say the same thing it’s not from the med it is not a coincidence that all these same side effects are happening to us. {edited for privacy}

Editor's note: Per our privacy policy, personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads.

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