Epclusa Side Effects (Page 7)
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Updated
Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.
Hi Kathleen ,how are you? Hope you are ok ,if any of your friends or family read this,I would really like to hear what is going on with your health and are you ok ,your Aussie mate please reply.
Re: Sam (# 6)
I was put on a closer 4 months after the approval of the FDA in 2017 first year was horrendous side effects the key is to drink lots of water every day I'm 3 years since treatment and I feel like I'm 17 again I have ringing in my ears I'm completely cured when I started treatment my viral load was over a million parts per the key is stop drinking alcohol don't do drugs eat healthy get a nap once a day and I promise you it will be worth it you have a second chance of life drink lots of water get plenty of rest
Re: Lou (# 3)
I'm 57 years old suffered with liver disease and hepatitis c for years I was put on eclipse 4 months after it was approved by the FDA I had horrendous side effects to first year couldn't even get off the couch it was a real chore just to go to the bathroom I'm 3 years since I took the drug and I feel wonderful I quit drinking alcohol I don't do drugs of any kind and I'll watch what I eat and I take a nap everyday I'm 57 years old and I feel like I am 18 yes I had side effects for 3 years horrendous side effects the first year but the key is not to drink alcohol to eat healthy and to take a nap everyday it is worth it cuz I feel wonderful living proof completely cured of liver disease and hepatitis c completely cured my viral load was over a million parts per and today I am healthy as a horse other than the ear ringing
I dealt with hepatitis virus for decades finally got to the point to where my justice system was not working right I was swollen my liver was sore and they came out with eclipsa I was put on it 4 months after the FDA approval side effects the first year were horrendous but it was well worth it I dealt with side effects for almost 3 years now I feel like I'm 17 or 18 again I'm 57 years old it's very important to stop drinking alcohol to eat right and exercise you have a second chance at life and it's well worth it the main thing is you have to eat healthy care about what you put in your body and you will feel wonderful again eventually I still have ear ringing but that's manageable right now I'll feel the best I've ever felt once again the main thing is stop drinking or doing drugs eat healthy exercise and take a nap everyday you might not be able to do the things you did when you were a kid but you will feel like a kid again eventually I'm 3 years since I was cured of hepatitis and liver disease hang in there and care about what you put in your body from now on
Re: Friendz4 (# 12)
Hope you have i.proved I can't say I have still got epclusa damage puffy feet nausea ectand much more I won't bore you ,just hope you are ok.
I have different adress now ,lost all my data and contacts ,but very interested ,thanksa
If anyone has any connection with Kathleen as she is old aquai tance and IV lost her adress also concerned for her health
I'm almost 30 and was diagnosed 2 years ago with help c during my second pregnancy. I've read a lot about Epclusa and have read the reviews and forums. I'm extremely scared to start taking this medicine. My Dr says that my liver actually looks really good I'm starting to wonder if these side affects are going to out weigh the benefit of having an undetectable viral load? Please someone help me out who's around my age and has pretty healthy body other than the obvious hep c.
Re: VerFree (# 2)
I just came across your posts ,I read it first couple yrs ago my name is Lou,IV had problems after doing epclusa treatment as my on line aquatance also suffered severely continual infections Edema ext unfortunately I think Kathleen has finally passed on ,after a long battle trying to get thru to drs an people that epclusa treatment had made her life a missery she tried as I have also,I am currently in hospital with heart problems ,I have had so many problems,thank you Lou.
Kathleen are you ok?
Lou
Re: VerFree (# 2)
Hi just read your kind message again! I'm Lou I have had so many problems since doing Epclusa,IV lost contact with my dear friend Kathleen ,she also had many problems infections ECT,I'm afraid she may have passed on,as she was a regular contributor to this Poste,I'm booked in to hospital next week to have acoranary angiogram I'm worried as I don't think my health or immune system are very good since doing Epclusa,please take care everyone if anyone heard any news from Kathleen please let me know.thank you from Australia ,Lou
Re: Sunshyne72000 (# 35)
Sorry to hear about your husband! I'm in Australia, still suffering after 3 yrs after stopping Epclusa. Wish never touched it. No support, just lies. Thanks 4 reply
Re: Lou (# 18)
I am in Northern Minnesota USA. Sorry I didn't see your message.
Thank you. I miss my husband everyday.
No attorney will go against big Pharma.
??
Re: Friendz4 (# 8)
Hi I am concerned about a lady I have blogged with on this Poste her name is Kathleen from Carmichael California ,she was very ill from Epclusa treatment ,any info appreciated thanks
Re: Friendz4 (# 9)
Do you know if there is any info on people over 40 who are now suffering or have died from cancers after Epclusa treatment ,I doubt if there would be ,as I have not been contacted since doing the treatment 2 yrs ago ,nor did I have any support whilst doing treatment ,since treatment IV had continual infections numb feet fingers nerve damage painful legs and joints nausea breathing problems ,(lungs ),I've also attended 3 funerals in last 8 mths Epclusa treatment was one thing each person did ,all were reasonably healthy pre Epclusa,IV read a lot on how good Epclusa is,I find it strange that very little is told about side effects people are now suffering.
Re: VerFree (# 2)
Do you know if there is any info on people over 40 who are now suffering or have died from cancers after Epclusa treatment ,I doubt if there would be ,as I have not been contacted since doing the treatment 2 yrs ago ,nor did I have any support whilst doing treatment ,since treatment IV had continual infections numb feet fingers nerve damage painful legs and joints nausea breathing problems ,(lungs ),I've also attended 3 funerals in last 8 mths Epclusa treatment was one thing each person did ,all were reasonably healthy pre Epclusa,IV read a lot on how good Epclusa is,I find it strange that very little is told about side effects people are now suffering.
Re: New day (# 14)
Hi hope you are going ok,my symptoms after Epclusa haven't improved maybe worse,numb acking feet sore legs an joints ,body jerks every day nausea anxiety so many skin infections plus antibiotics breathing problems now they have found couple spots on lungs ,omg I use to feel ok pre treatment ,anyway hope you have improved,can't get much help here in Australia,been reading about Cryo, something can't remember how to spell ,but apparently connected to hcv infection I can relate to some symptoms.take care.
Re: Friendz4 (# 16)
Hi how are you going? Lou here from Australia are you still getting side effects? I sure am. I don't think they will ever go away now, my feet really painful plus numbness, really aching leg joints, anxiety, diagnosed with asthma couple yrs ago plus COPD. Now they have discovered two spots on lungs. It's so crazy I felt near normal before I was talked into Epclusa. Now I'm stuffed, they tell me not to smoke. OMG it's the first thing I felt like doing when they told me about spots on lung, I just about give up!!
Since doing tx no body has even rang me to see how things are going tried ringing Gilead what a joke !! they just deny everything. I've had so many skin infections antibiotics etc, every day I get body jerks or jumps, my dr hasn't a clue, just gets his info from liver clinic that put me on Epclusa, totally useless. Please let me know how you are going, just wish we could do something about the poison they gave us, wish I could turn back clock. cheers
Re: Friendz4 (# 8)
Hi my pains are getting worse wish I never took the crap
Kathleen,how are you ? I'm worried that you may not be well !! Your friend from Australia
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