Epclusa Side Effects (Page 4)
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Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

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Re: Friendz4 (# 8)

Do these groups include Harvoni patients as well?

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Re: Friendz4 (# 99)

Hi ,hope you are not feeling too bad ,I finishy epclusa about 5 yrs ago I'm 69 yrs old ,don't seem to have virus anymore ,but lots of other problems ,too many too mention ATM ,drs have no answers ,I havnt heard a word from Gilliard !I get these body jerks often usually when relaxing dr hasn't a clue ,anyone else get these jerking symptoms.also have cold asthma since epclusa my life feels crap since treatment epclusa

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Re: Lou (# 1)

Hear you & feel your pain

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Re: Kathleen (# 86)

IV been thinking about you Kathleen ,what is covid situation in Carmichael ? My kid sister died from covid last weekend, having liver problems on top of covid was too much take care my friend.

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Re: Kathleen (# 89)

Hi really great to see your message Kathleen IV been worried about you getting cold here in Australia sorry to hear things have not improved for you ,I am the same ,I hate looking at my puffy feet abdoman no word from Gilliard as usual it's been yrs now since I did treatment ,no help ever.my kid sister passed away last Saturday ,drs say she could not cope with covid on top of liver problems ,epclusa didn't help her .take care K everyone ,??

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Re: Friendz4 (# 99)

To Friends ,same your not alone ,I feel we were guinea pigs ,like has anyone really cared about how we feel ,where are you? I'm in Australia IV had no support from liver clinic or epclusa people ,we all should have been paid damages for what they have done,do you remember Kathleen a lady who was suffering from epclusa in America she use to join conversations often about problems since doing epclusa I'd really like to know .thanks take care try stay safe.

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Re: Kev (# 100)

Kev, I'm in Australia finished epclusa probably 7 yrs ago ,no hcv anymore ,but I now have asthma find myself breathless swollen feet ankles also low immune system ,too many problems to mention .I'm 69 yrs old levery time I go to drs if I mentinlon epclusa he strongly disagree s that it may have changed my life for the worse he has no answers why I've deteriated so much! ,I use to go swimming fishing ect wish I never let epclusa into my life .at least I could wear socks shoes with out cutting into my feet .now I am super paranoid of catching covid,I'd like to go back too 70s 80s when I still managed to feel fine ! Stay safe Kev ect

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I am trying to be open minded here. I am no friend of Big Pharma or mainstream anything, my friends call me a conspiracy wonk.

The problem here is that many of the side effects of Epclusa are very similar to the damage from Hep C. I am aware that the testimonials here say the problems “did not start until the Epclusa treatment was started”.

I am male, over 60 yrs old, I probably had Hep C for 46 years after a blood transfusion in 1976, but was not diagnosed until this year, 2022. I am on week four of Epclusa, 8 weeks to go.

Before this year, MRI showed two herniated discs, which resulted in radiculopathy in one foot and one hand. That happened about 15 months ago.

To complicate things, I was on prescribed morphine for over 30 years for chronic pains, diagnosed as Fibromyalgia but probably due to liver disease from Hep C. I quit the opiates 8 months ago, before I knew about my Hep C infection, the withdrawals were traumatic and I will never recover from that, mentally, lime PTSD. Rehab ended when I started pooping black, bleeding varacise (sp?). That is when they finally discovered the Hep C

Stage four cirrhosis, short life expectancy.

There, that’s the background. The many terrible symptoms could be getting worse due to the Epclusa. I asked why bother with it if I am dying anyhow, but I did not get a satisfactory answer, Now I wonder if the Doctors are pushing Epclusa for “reasons other than my well being”

I have to stop now, so tired.

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Re: KatyKat (# 98)

Same here this is awful nobody told us this would be our life’s I am 6 years post treatment and I am getting worse my ears are so loud I can’t sleep neuropathy muscles spasms damaged my eyes BP dropping so much pain I can barely walk having heart palpatations and breathing problems

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hey, THIS IS WHAT I WAS LOOKING FOR. I am 2+ years past treatment and I have never felt worse in my life. Lethargic, weight loss, nerve and body aches, insomnia. I felt better when i was an addict tbh. I have now developed tinnitus and feel like my brain is shrinking. What did i get myself into. Nobody explained I might feel worse after treatment..

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Re: Kathleen (# 89)

Hi Kathleen hope you are ok and your eyes are not giving you to much pain. covid seems to be not improving much over here, even if government says we are alright, can't get to see drs only phone appointments which are useless. very humid here, I don't know if that's why my feet ankles are numb puffy. some things I read say it's post Epclusa symptom, next thing I read says asthma medication cortasteroids will cause Edema puffy feet ankles numbness. I told my dr he just suggested doing feet excercise, that don't work, supposed to see lung specialist but everything at hospital been put on hold due to pandamic. I just watched a documentary about Washington USA, I didn't realise that marijuana was so accepted legal, it's still a criminal offence here!! Giving people criminal records for nothing. I hope you're staying safe and well. It's very stressful this covid pandamic, do you think it will ever end!

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Re: Jamie (# 95)

Jamie,thanks for having open mind!! take care.

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Re: VerFree (# 2)

I don’t believe for a minute that the myriad side effects that these patient are experiencing are due to the Hep C virus. Don’t doubt that the drug is causing serious problems that may or may not resolve after one finishes the treatment.

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Re: Sunshyne (# 93)

Just read it , unbelievable what they can get away with ! Feel like I'm stuffed my asthma I never had lung problems till I did treatment now just to top things off my feet ankles are puffing up ,drs won't believe that treatment has caused my problems ,I know it did ! Take care

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Re: Lou (# 92)

Read blue link in my last post of hearing on side effects.

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Re: Sunshyne (# 91)

ThanksSunshyne ,sorry to hear of your loss,try and be strong stay safe,sometimes I think they are just trying to wipe us out, because we are to sensitive to there crap.

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Re: Lou (# 87)

It's wrong what they did to tennis player.
The whole world has seen news.
If you trust Pharma & government to take care of you, you've been misled.
J & J (leaking) pain patch killed my sister. And GILEAD Harvoni killed my husband.
Mandating jab is wrong & tyranny.
Personal choice not to be forced on those who've had covid & recovered with natural immunity.

https:/­/­fb.watch/­aA2kPkXMQ7/­

I pray for all who are suffering from Pharma pushers and government profits.

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Re: Kathleen (# 89)

How are your feet mine seem to be swelling more lately I try to elevate feet as much as possible ,think it's all from Edema from Lung problems or heart not working working probly just from Epclusa ,I have to go to lung specialist next mth,can't say I'm looking forward to it ,take care safe

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Re: Lou (# 88)

Never drank or smoked cigarettes.
I had a blood transfusion in 1985 and they traced it to it had Hep C.
So went 40 years with many problems but not being diagnosed. So when Kaiser diagnosed me with Hep C they put me on Epclusa.
Then found cirrhosis.
So I guess I should be grateful that I didn't cause it myself.
For some reason never liked the taste of alcohol and hate the smell of cigarettes.
Some people can do it and that's their choice. I guess I'm glad I was not attracted to either.
EPCLUAS made me feel almost insane within hours of taking it. I could not think clearly. Had to have help for all personal issues. Could not even cook. Felt like I was poisoned. Every day. Has taken years to feel better.
Take care mate.

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Re: Lou (# 83)

My step sister is going to try get another diagnosis for liver problems,I really tried to warn her about alcohol .problems that it's so dangerous,I havnt had a drink in years! Itake care

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