Epclusa Side Effects (Page 3)
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Updated
Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.
Re: Lou (# 115)
So sorry about your sister. Did she take covid shots? Basically not taking them is a death sentence here. I've had 5 boosters. Sounds like you have suffered so much since Epclusa. Now to lose your home and everything is just awful. California has had so many floods this year. So much damage. I live about a quarter mile from the American River. Its a big one and quite long. Hundreds of homeless live over the river banks. Over 10.000 homeless in our area. At 75 I'm not well enough or young enough to move. I hope it won't happen. I've often thought about you, my brother in arms with epclusa horrors. Take care. Respond soon if you can. I'm so sorry about your living conditions.
Re: Kathi (# 114)
Hi Kath ,no my sister never took epclusa ,but she always worked in clubs also alcoholic I think ,she made a few mistakes in life as we do ,I don't think she had a good start my mother made her leave school early and help her in clothes making ,then she escaped with alcohol drugs ect then a bad relationship had a daughter who is a waste of time ,then she caught covid plus serosis liver .I'm glad she is finally out of pain,IV had a few hospital stays with breathing issues also having lot of trouble with sore swollen feet cramping ,my dr is hard to see plus hospital is good place to catch covid which I really don't need, my house got flooded March last year lot of mold damage plus lost just about everything including my old car ,so now they have me in a thing called a pod village while waiting for insurance to fix house IV been living in ,a pod is like a container with windows or a caravan with no wheels ,guess it's ok not much room has tv air con ,since flood lot of homeless people great to hear from you ,Lou.
Re: Lou (# 113)
Yes it's me. Have worried about your health since epclusa.
I think it has ruined me.
Did your sister take covid vaccine ?
Re: Kathi (# 110)
Sorry about previous message I made a mistake ,are you Kath from Carmichael ? Really like to hear from you. .Lou
Re: Kathi (# 111)
Hi Kathi,thanks for your message ,if we are talking about the same person ,we were good friends we both had problems ,IV been wondering why I hadn't heard anything from her ,Do you know any details.thanks .Lou in Australia
Re: Lou (# 104)
So sorry she died. Horrible sickness.
I've had all 5 boosters. Still a thing here in usa.
Epclusa is still the ruin of me.
Re: Lou (# 109)
Yes hello Lou.
Still struggling like me? Glad to hear from you
Is that Kathleen fr carmichael USA would like to hear from you again.
Re: KatyKat (# 98)
KatyKat join the club ,I'm dam sure I felt better back in the good ol daze ,probably best time of my life ,we had best music ect I'd hate to be a teenager these days it's all so boring ,I hate epclusa for what it's done ,don't believe everything you hear ,it's no wonder cure ,were just guinea pigs!! Now we have covid (great)
Re: Friendz4 (# 8)
Do these groups include Harvoni patients as well?
Re: Friendz4 (# 99)
Hi ,hope you are not feeling too bad ,I finishy epclusa about 5 yrs ago I'm 69 yrs old ,don't seem to have virus anymore ,but lots of other problems ,too many too mention ATM ,drs have no answers ,I havnt heard a word from Gilliard !I get these body jerks often usually when relaxing dr hasn't a clue ,anyone else get these jerking symptoms.also have cold asthma since epclusa my life feels crap since treatment epclusa
Re: Lou (# 1)
Hear you & feel your pain
Re: Kathleen (# 86)
IV been thinking about you Kathleen ,what is covid situation in Carmichael ? My kid sister died from covid last weekend, having liver problems on top of covid was too much take care my friend.
Re: Kathleen (# 89)
Hi really great to see your message Kathleen IV been worried about you getting cold here in Australia sorry to hear things have not improved for you ,I am the same ,I hate looking at my puffy feet abdoman no word from Gilliard as usual it's been yrs now since I did treatment ,no help ever.my kid sister passed away last Saturday ,drs say she could not cope with covid on top of liver problems ,epclusa didn't help her .take care K everyone ,??
Re: Friendz4 (# 99)
To Friends ,same your not alone ,I feel we were guinea pigs ,like has anyone really cared about how we feel ,where are you? I'm in Australia IV had no support from liver clinic or epclusa people ,we all should have been paid damages for what they have done,do you remember Kathleen a lady who was suffering from epclusa in America she use to join conversations often about problems since doing epclusa I'd really like to know .thanks take care try stay safe.
Re: Kev (# 100)
Kev, I'm in Australia finished epclusa probably 7 yrs ago ,no hcv anymore ,but I now have asthma find myself breathless swollen feet ankles also low immune system ,too many problems to mention .I'm 69 yrs old levery time I go to drs if I mentinlon epclusa he strongly disagree s that it may have changed my life for the worse he has no answers why I've deteriated so much! ,I use to go swimming fishing ect wish I never let epclusa into my life .at least I could wear socks shoes with out cutting into my feet .now I am super paranoid of catching covid,I'd like to go back too 70s 80s when I still managed to feel fine ! Stay safe Kev ect
I am trying to be open minded here. I am no friend of Big Pharma or mainstream anything, my friends call me a conspiracy wonk.
The problem here is that many of the side effects of Epclusa are very similar to the damage from Hep C. I am aware that the testimonials here say the problems “did not start until the Epclusa treatment was started”.
I am male, over 60 yrs old, I probably had Hep C for 46 years after a blood transfusion in 1976, but was not diagnosed until this year, 2022. I am on week four of Epclusa, 8 weeks to go.
Before this year, MRI showed two herniated discs, which resulted in radiculopathy in one foot and one hand. That happened about 15 months ago.
To complicate things, I was on prescribed morphine for over 30 years for chronic pains, diagnosed as Fibromyalgia but probably due to liver disease from Hep C. I quit the opiates 8 months ago, before I knew about my Hep C infection, the withdrawals were traumatic and I will never recover from that, mentally, lime PTSD. Rehab ended when I started pooping black, bleeding varacise (sp?). That is when they finally discovered the Hep C
Stage four cirrhosis, short life expectancy.
There, that’s the background. The many terrible symptoms could be getting worse due to the Epclusa. I asked why bother with it if I am dying anyhow, but I did not get a satisfactory answer, Now I wonder if the Doctors are pushing Epclusa for “reasons other than my well being”
I have to stop now, so tired.
Re: KatyKat (# 98)
Same here this is awful nobody told us this would be our life’s I am 6 years post treatment and I am getting worse my ears are so loud I can’t sleep neuropathy muscles spasms damaged my eyes BP dropping so much pain I can barely walk having heart palpatations and breathing problems
hey, THIS IS WHAT I WAS LOOKING FOR. I am 2+ years past treatment and I have never felt worse in my life. Lethargic, weight loss, nerve and body aches, insomnia. I felt better when i was an addict tbh. I have now developed tinnitus and feel like my brain is shrinking. What did i get myself into. Nobody explained I might feel worse after treatment..
Re: Kathleen (# 89)
Hi Kathleen hope you are ok and your eyes are not giving you to much pain. covid seems to be not improving much over here, even if government says we are alright, can't get to see drs only phone appointments which are useless. very humid here, I don't know if that's why my feet ankles are numb puffy. some things I read say it's post Epclusa symptom, next thing I read says asthma medication cortasteroids will cause Edema puffy feet ankles numbness. I told my dr he just suggested doing feet excercise, that don't work, supposed to see lung specialist but everything at hospital been put on hold due to pandamic. I just watched a documentary about Washington USA, I didn't realise that marijuana was so accepted legal, it's still a criminal offence here!! Giving people criminal records for nothing. I hope you're staying safe and well. It's very stressful this covid pandamic, do you think it will ever end!
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