Epclusa Side Effects (Page 2)
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Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

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Re: Kathleen (# 137)

Hi Kathleen I have a feeling your not getting all my messages anyway once again I kicked my r foot on cupboard trying to move it ,they had me on antibiotics which made me feel terrible so Dr said it doesn't look infected don't take any more antibiotics ,that was a week ago but dropped cup coffee on my foot last night OUCH so now it's no looking so good bit swollen but that could be from hot coffee my Dr on holiday ,I have another script so I might have to start them maybe they make me cough more plus nausea,anyway more important is bow are you ? Do you have any plans for Christmas? I don't, I hate what's going on in the world it's terrible ,all the best to you Kathleen be thinking of you and hope you are not feeling too bad ,best wishes from Australia.

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Re: Kathleen (# 137)

Hi Kathleen hope you are OK.iv finally been allowed to move back into house after damage from floods 2 yrs ago,the stairs seem steeper after 2 yrs ,don't know how long will be able to manage stairs.sleep is very rare these days my breathing isn't improving hard to lay down at night usually get maybe 2 or 3 hrs if lucky hope you are OK mate starting to get hot over here. ??

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Re: Friendz4 (# 9)

Great read ,I can relate totally I'm in Australia where are you ,take care

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Re: Friendz4 (# 99)

How r you going now days?I am still getting problems yrs after treatment also copd asthma nerve problems and body jerks .can't get any help here in Australia hope you are OK.

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Re: Lou (# 136)

Hi got your next text. I take prednisone which is a steroid and another medication called hydroxychloroquine. It is the one that are horrible president Trump was telling the country to take to cure covid. It's not it helps with arthritis and you might talk to your doctors about those cuz neither one of those medications keep me awake at night it's the occlusa since I have clue so that I can't sleep at night. Anyway I think you need to take something and ask him if these are good for you. Because they're good for me the only thing with prednisone is it is a steroid and it does give you belly fat so that's something you have to think about too anyway let me know if you talk to your doctor and talk to about these new medications it's almost 2:00 in the morning here Thursday morning so I'm going to bed I pray and I worry about you and I have since I've known you and when you disappear I get worried that you're really sick again so don't be a stranger talk soon bye

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Re: Kathleen (# 135)

Great to hear from ,I think eucalyptus tree is our national tree !! I can't stand the smell either ,since epclusa I seem to be allergic to everything, they did bone density test on me that's how found out about osteo ,that med Dr wants me to take I looked it up on line said it caused nausea sleepless nights ackes pain ect sure don't need anymore of there crap meds ,I will get some calcium tablets and vit d I think ,why would I want something that causes nausea ect stupid Dr I'd rather suffer the option.cheers buddy try an stay cool your not alone..

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Re: Lou (# 134)

I take same medication. It's perfectly safe. Been on it for 4 years,since epclusa.
Bummer about pine trees bothering you.
I hate the eucalyptus tree. Do you know of it? Smells terrible and my so jeremie has one right outside his window.
Oh I've been in California for 75 years and only felt one earthquake.
News makes it seem worse than it is.
Still better than hurricanes and tornadoes.
Still 100 degrees here. I run central air about 16 hours a day. Can't take the heat.
Glad to hear from you my epclusa bud...

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Re: Kathleen (# 133)

Glad the hot weather is nearly over for ,I don't know how long it's been since a good night sleep ,it's really hard where the place I'm staying at are a few pine trees I think I may be allergic to them as my breathing seems bit worse ,just got results from drs after ex rays osteoperosis suppose to take tablet called fosamax check it out if you can so many side effects,I'm not going to take it I do t want more side effects.take care stay cool!!

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Re: Lou (# 132)

Carmichael is in the valley,a suburb of sacramento. It's hotter than can be in summer but winters are not so bad.
No snow. It has been 5 years since epclusa. I wish I could say it was a good 5 years.
Since epclusa my body has fallen apart. My eye sight rehumatoid arthritis, sleeplessness and much more
You are going in to spring and you in to winter. Love winter.
Hope you are finding news about housing.
Thinking of you Lou

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Re: Kathleen (# 130)

Wow saw results of earthquake
and floods in California the weather is terrible at the moment ,it's suppose to be early spring here all ready it's so hot and summer hasn't started just hope there's no floods for a while .Hope the weather isn't too bad and you are safe !!

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Anyone having post-Epclusa nerve problems?

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Re: Lou (# 129)

Hello my epclusa buddy. Sorry to hear you are still displaced. Here in California I have recently talked with two others who took epclusa and have bad side effects. Like blurry vision, aches in joints, sleeplessness. It it still going on. Don't get me wrong, epclusa cured my help c but has played havoc with my body. We are having a really hot summer. I know you are having a rough time. I wish I could help. Stay strong Lou.
Thinking of you.

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Re: Kathleen (# 122)

Still waiting in temp housing. Weather reports look really hard for you with the heatwave. I think the world is really changing (climate, ect.). Hope you are ok.

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Re: Kathleen (# 122)

Hi. I think a lot of my messages are not getting through to you. I often think of you and hope the heat isn't too hot for you. It's just starting to warm up here. I'm really not looking forward to it, between my breathing issues and trying to avoid covid, it's not easy. Take care ok.

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Hi Kathleen, How are you doing with the heat over there? It's been really hot everywhere, and we've been getting warnings that summer will be extremely hot with potential fire outbreaks. I'm not looking forward to it, especially since my breathing hasn't been very good lately. I've tried so many over-the-counter medicines to try to make my coughing easier, but nothing seems to work. Do you have any clues what might help? How have you been? I was driving through town last week and saw that the local liver council were having a big meeting. They were offering free drinks and sandwiches to people who signed up for Epclusa. I would have tried to tell people not to touch it if I had more energy, but I probably would have gotten arrested. What's new with you? I don't have much news to tell you, but I've been following the news closely. There's a lot of trouble going on all around the world, which I find both interesting and depressing. I still watch the news, even though it often keeps me up at night. Take care, my friend.

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I have had many side effects from Epclusa treatment 5 years ago. I'm now 70 years old and am really worried about covid. Seems to be a lot of cases where I live. I've had 5 vaccine shots that were suppose to help but did not help. My kid's sister passed away a year ago.

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Re: Kathleen (# 124)

I feel for you. I saw the weather report last night and it looks so bad. It's even in Europe I think. I heard that same will happen here when summer comes and that means fires getting out of control as well. I've been getting more and more body jerks lately. I spilt 2 hot drinks last night. Usually happens when I'm tired. I have no control. Lucky it doesn't happen when I'm driving. I think that's why I fell off a chair. My Dr is not interested. Anyway, try and stay cool. It's terrible we have enough to put up with without a heatwave I think.

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Re: Lou (# 123)

Sorry you fell. Yes epclusa has changed my body too. I can't sleep well,now take ambien. I have so many issues since epclusa.
Yesterday was 108 outside. Yes summer is a killer here.
Covid is not rampant in hospitals. I went to pharmacy Saturday in hospital and hardly anyone wears a mask . I just had My 6th covid booster shot.
My system is so weak from epclusa that I now stay current on all vaccinations.
I hope you get housing real soon. I've thought of you often

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Re: Kathleen (# 122)

Hi.Kathleen,great to hear from you,yes still in temp housing I was told prob be a month or two ,must be summer where you are it's winter here getting cold ,I had accident I was watching some silly movie 2am couple weeks ago I was sitting on a stool ,think I told you I sometimes get body jerks or jumps when tired since epclusa !! I had onelost balance on stool an fell on floor landing on my side ,I had x-ray next day I broke my collarbone so now have to wear a sling for 6 weeks I feel as if I haven't slept for weeks with my breathing issues (epclusa ) so this is short message ok dr wanted to admit me to hospital but I don't feel strong enough to put up with covid or similar if I had it.it apparently it's still in hospitals here but government plays it down ,ambulance driver told me hospitals are full of cases of influenza covid, take care always good to hear from you..

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Re: Lou (# 121)

Hello Lou, haven't heard from you in a long time.
I met a lady whom was taking epclusa the same time I was.
She also has same symptoms.
She can't sleep. While taking it daily for 90 days she also felt like she was poisoned for about 14 hours right after taking.
I felt like I was dying every day for 90 days jyst like her.
I have never recovered from all the poison I was given.
No one told us of the powerful side effects of taking it.
Yes we are alive but we will never recover from the medications side effects.
Tomorrow is our countries independence day. I am so tired that I won't be joining in the festivities.
Just mostly stay in bed now.
Did you get in better housing? Last time we spoke you were in a temporary housing unit.
Hope to hear from you soon.

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