Topamax And Eye Twitching (Page 2)
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Hi, I have been using Topamax for depression for 12 months and must admit that it has been very sucessful. The one major draw back is that I have developed a very annoying eye twitch. It only affects one eye, but is very noticeable. I was taking 100 mg twice a day, but have decreased it to 100 mg daily. The twitch has decreased somewhat, and I realize that I now have to come off this drug completely to get rid of the twitch entirely.
Has anyone else experienced this problem. I read 1 other reader, but are there more?

114 Replies (6 Pages)

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94

Re: Vick (# 10) Expand Referenced Message

I was on the generic, topiramate. I developed the twitch shortly after starting it. Then when I was really tired it became worse and my upper right eyelid started to twitch. I decided with my PCP, to come off the med to see if the twitching stopped. It did!!!

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93

I'm doing the Chewable Vitamin C too. 500-1000mg a day with the ascorbic acid. Not doing much for tingling, but it has helped somewhat with my swollen glands. Perhaps it has been helping with the twitching too, along with the tonic, and potassium, twitching is less. I'm also finding I'm losing quite a bit of weight.

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92

Hi, I posted in January, I was taking 12.5 mg topamax and the twitching in my left eye was minimal. My headaches started to return so I increased the dose to 25mg. The twitching doesn't seem to have gotten any worse. I know for a fact it is a side effect from the topamax but the twitching isn't as bad as the headaches. October will be a year I have been on it and I haven't noticed any other side effects. Hope this helps.

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91

This is so frustrating. These meds are supposed to help us, and the side effects are awful, and the Doctors dismiss our concerns.

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90

I'm still having a twitch under my left eye. It went away for a little while, when my Doctor prescribed Potassium. I tried magnesium supplement, but it has a laxative effect. Then someone mentioned I try tonic. I thought this was strange, so I tried it about a week ago, every day, just a small glass, and twitching has stopped.

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89

I started Topamax a few weeks ago. Had a lot of tingling in my hands and feet. Doctor said to chew 500-to1000mg Vit C daily. Tingling is gone, it may work for the twitching as well.

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88

The under eye twitching has finally gone away..thank goodness..keeping fingers crossed it will not come back..however two days ago, my left part of my knee by my knee cap started jerking and spasming..its been going on all day and night. My Psychiatrist says..she does not think it is Wellbutrin or Topamax causing this. My primary care Doctor dismissed my concerns saying that my electrolyte levels were all perfect and just said perhaps I could get Magnesium Oxide over the counter..and start taking Potassium supplements again..so I am taking "Methocarbamol" (Muscle relaxer..prescribed, Potassium, and Magnesium Oxide..nothing is helping..) so I guess I will have to go to ER..I don't know..this is all getting very overwhelming. So tired of this..at my wits end..

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87

I also have a pretty servere eye twitch. I was only on 50 mg but am weaning off. It is so bad I can barely see to drive! It is really annoying. I can't wait until I am off.

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86

Yes..At first, I thought it was from increasing the Wellbutrin from 150 to 300mg a day. But I decreased it because I noticed twitching everywhere - mostly at night when I am trying to fall asleep or when I wake up..it's there again..fast twitching in my lower legs..sometimes I'm my stomach..my buttocks..now my lower lips..now my right eye for about 5 minutes, then that went away, but under my left eye..it comes and goes..sometimes it's there very fast for about 1/2 hour..then a day goes by..no twitching..but it keeps coming back. I decreased the Wellbutrin..twitching did not go away..pharmacist said he hears a lot of complaints from patients on Topamax and eye twitching. The medication is doing wonders for me..not sure what to do..and of course Psychiatrists won't listen..

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85

I don't understand how having a constant eye twitch under your eye does not bother you. I would talk to your Doctor about this or trying a different medication.

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84

I still have my eye twitch under my left eye. It does not bother me. It is there all of the time.

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83

I'm going to back on the Potassium CL ER MEQ 10. I was prescribed this by my Primary Health Physician when I was sent to ER due to severe muscle twitching in my left knee from Lisonopril. They took me off the Lisonopril and put me on on another water pill. Will see if the Potassium supplements work for the twitching. I wish I knew which med was causing the twitching..the Topomax, or Wellbutrin. I spoke to pharmacist who advised me she knew of several people who do have pins and needles in their feet from Topomax, as well as muscle tics/ spasms/twitching but it is not Tardive Dyskinesia which made me feel better. She said if it bothered me enough to talk to my Psychiatrist if Potassium and magnesium Oxide did not work..not sure what to do..just want it all to go away. There are days when I am at my wits end and want to throw these dangerous meds away, but I also don't want to live the severe depression. SSRI's don't work for me, or SNRI's. Not sure where to go from here except an older tryciclip medication..

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82

I would like to post an update to my October post. I have cut the lowest dose in half. I'm still getting the eye twitch on the 12.5 mg a day but not as bad. I have not had a headache in almost 3 months. It is so worth the trade off.

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81

I was prescribed Topamax (Topimirate) for Emotion Regulation by my Psychiatrist about 6 months ago. I also have been on Remeron (Mirtazapine) since 2005 45mg and Wellbutrin (Buproprion) 150mg. The Topamax has been a Godsend and has helped me tremendously as I have several mental health diagnosis. I take 25mg in the morning and 50mg at night, the only side effect I got was pins and needles in my feet..which of course was dismissed. I was told to go to my Primary Care Doctor to see if my magnesium and blood work was okay and I did and was not deficient in anything. Then in October, Wellbutrin XL was increased from 150mg t0 300mg..and that's when I noticed muscle twitching/tics/spasms in my lower legs right before I would go to sleep. It was very annoying. Again..my concerns were dismissed, by Psychiatrist saying it was all in my head because I am going through alot of anxiety and stress. Then when I first would wake up..again twitching in both legs..then..the bottom of my left lip there would be one or two twitches..but only when lying down. But enough for concern. Then I could feel parts of my stomach spazaming. But only when lying down..and the deal breaker was when I felt a short spasm in my tongue. She lowered the Wellbutrin down to 150mg..now I feel depressed. Then today, my muscle under my right eye twitched for about 10 minutes. I don't know if it from Topamax or Wellbutrin. The twiches in my legs and stomach seem to have stopped. Its all very frightening..

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80

I only had total of two doses of topiramate 25mg each and had redness both eyes and twitching of right eye! I stopped 36 hrs ago my eyes still twitching ! WHAT is the bestime remedy?

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79

I just stopped it and now I have eye twitch in right eye like a flutter that comes and goes.

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78

I just started taking Topamax on Oct 10th for migraines. I have the eye twitch over one eye also. I backed down to the lowest possible dose and am still getting them. I'm trying to hang in and hope they go away. The drug seems to be working pretty good even at a low dose.

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77

My daughter has the eye twitching, but as you said it's usually one eye at a time. It seems to start with anything but usually when she gets anxiety I think, and stress. Didn't have this until her seizures but started taking Topamax in June of 2016 this year obviously. I hope it goes away we will have to see..

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76

I come from a genetically obese family, with my mother and sister being over 300 lbs. I used to eat so little I was afraid people would think I was anorexic, but it is what I had to do to not be unhealthy. I also used to have three-day migraines, lying in the bed in the dark unable to function. I have been on Topamax since 2005, and it has been a miracle drug for me. I can eat like a normal woman, and my migraines are controlled enough that most years I don't miss a single day of work due to them.

But two years ago I developed severe muscle twitches under my right eye, that would go on for an hour at a time. I am in a profession where people look right at my face, and these were very visible. then they started to spread around my face - the other eye, below my lips. I became very concerned that I had hemifacial spasm, in which the twitches get worse and then your face kind of freezes like that. I researched it, and found this herbal stuff called SPZM. I also made an appointment with my neurologist, which took a while to get. I also stopped chewing gum, tried to keep my face relaxed, and kicked the person who was causing me horrible stress totally out of my life. The twitches stopped completely (BTW, some people with actual hemifacial spasm report that when they move from a place with a lot of stress to a place where they are calm, their twitches stop). I saw my neurologist, and he did an MRI. Hemifacial spasm is caused by swollen blood vessels at the base of the brain, and I don't have those. He told me to stop taking the SPZM, but by that time I had noticed that the major thing in it is magnesium, and read that lack of magnesium causes muscle twitches. When I stopped taking SPZM, the twitches came back, but I take magnesium taurate (good for the heart) and magnesium threonate (good for mental clarity) and the twitches are much less.

I was still afraid that maybe I had MS or some dread disease, so reading that the twitches are a side effect of the Topamax is actually a HUGE relief. I can stand the little twitches I have now a whole lot better than a three-day-long migraine, and I am afraid that if I ever go off Topamax I will balloon up to 300 lbs like my relatives.

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75

I lost sight for 3-4 seconds yesterday while driving and it scared me to death! I'm on Trokendi Xr 100mg daily fit migraines. My sis in law said her friend went blind for a week until her sight came back when they stopped all her meds. I'm weaning off now. I'm getting Botox Thursday for migraines. I hope it works!!! This drug scares me!!

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