Topamax And Eye Twitching (Page 3)
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Hi, I have been using Topamax for depression for 12 months and must admit that it has been very sucessful. The one major draw back is that I have developed a very annoying eye twitch. It only affects one eye, but is very noticeable. I was taking 100 mg twice a day, but have decreased it to 100 mg daily. The twitch has decreased somewhat, and I realize that I now have to come off this drug completely to get rid of the twitch entirely.
Has anyone else experienced this problem. I read 1 other reader, but are there more?

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74

Hello my daughter has been on topamax since June and has experienced a lot of twitching in the eyes usually one at a time. Gets is usually in the upper lid area, I have been searching for an answer as to why this is happening but haven't gotten a straight out answer yet.. She has other problems to, so I'm not sure how to relate these symptoms yet..

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73

I take 150 mg to prevent migraines and have the twitching under the left eye all the time. Over the past 20 years, I weaned off topamax twice for about 9 months once and over a year nice and had migraines galore- up to 20+ per month, so the twitching is fine with me. Years ago it was under my right eye at a higher level.

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72

I take 150 mg per day to prevent migraines and have the spasm in the muscle below the left eye. Years ago I took 250 mg per day and had it under the right eye. I weaned off Topamax then and it went away.

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71

I have also noticed a twitchy eye only on the left eye. I didn't develop this until I started on topemax. I didn't think it was possible until I read your story. I don't take it on the weekends and the twitch is light but when I take it regularly throughout the week it twitches all day! It is so annoying!

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70

Does anyone have all over twitches? Like I have literally for the past two weeks have had all over body twitches idk if it is from topirimate or something else. Kind of scared. Developed finger and toe tremors too. This was for weightloss.

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69

I have been on Topamax now for a little over a year. I had the eye twitching for a little bit in the beginning and numbness in my fingers too. It all stopped and my migraines went from 3-4 a week to 6 in the last year total. I am very pleased with this drug and will stay on it as long as it continues to give me the relief I need. I am very happy that my doctor prescribed it.

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68

What do you take now and does it work? Any side effects? Liz

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67

I just wanted to say I'm in the US I take the regular Topamax, my right eye has been twitching for three days non stop my feet go numb all the time, it just the meds. We should all stop taking them

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66

I too was getting 3 to 4 migraines a week and currently down to about one a week which is grest if only I could get rid of the annoying twitches! Ive akready had them about 7 weeks now and wont last much longer if they continue. Its such a shame as this is definitely the best result ive had from any medication which is why im so reluctant to give up on it

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65

About a month for me. I know some people say it lasted longer for them and others weren't bothered by it at all. I think if it continues to bother you then you should talk to your doctor about it and see what he or she can do for you. I do hope it stops for you soon though. This medicine has been wonderful for me. I have gone from 3-4 migraines per week to 4 in the last 3 months.

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64

Great news - do you mind me asking how long did the twitching last?

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63

My eye twitch has stopped. I am still taking the same dose ( 100mg per day) but the twitching has stopped and doesn't bother me at all now. I do not have any side effects at all other than the vivid dreams. The numbness in my fingers has gone away and life is wonderful again.

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62

Hi I was wondering how you were getting on and whether you have persevered with thede drugs and if your eye twitching has improved at all or whether you have had to give up the drug. My twitching is driving ke mad at only 25 mg im holding on in the hope that it would reduce or even stop as my body got more used to the drug but unfortunately that doesnt seem to be happening for me

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61

I started topiramate for migraine 6 weeks ago. Only able to take 25 mg developed really annoying eye twitches after 2 weeks they are constant. I have not been able to increase my dose which I was supposed to do every 2 weeks because of this and also terrible restless legs at night and indigestion. I fear I will have to come off these drugs which is a shame as my migraines have reduced greatly to about 1 per week. I was hoping that this was a side effect that would wear off but if anyrhing it seems to be getting worse

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60

I have been having Eye Twitches more and more lately maybe five per two hours, I have been taking Topamax for my seizures for about two and a half years before that I was on some other medication for some time.
I have been having seizures for about 11 years I was diagnosed at the age for 4.

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59

I have been taking Topamax now for about 3 weeks. I started out taking 25mg twice a day after seeing the LPN and then had a Spinal Tap and a follow up with my actual doctor. He said that dosage was pointless and raised it to 100mg/day. Since then I have developed an annoying twitch in my eyes that almost feels like electrical sparks going off in both eyes all day long. when I lay down to sleep I feel it in both eyes to the point tha tit makes it quite bothersome. I also really miss my sodas, but have delevoped an addiction to green tea. I am trying to get used to taking medicine, I have never had to take any meds before this at all and now I am on Topamax, Imitrex and Naproxen. I just hope the twitching either subsides a bit or I get used to it or it goes away. If not, I am going to have to have a word with my doctor. I am loving not having 3-4 migraines a week, but not sure if I can handle putting up with my eyeballs jittering about in my head all day every day either!

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58

It's been a little while since I last posted on this thread. It took me a long time to completely wean off Topamax, even though I knew it was the cause of my 24/7 eye twitch. I am now on Candesartan after trying Relpax for a few months and finding I just needed too much of it. The problem I had with weaning off Topamax was the weight issue. I started to gain weight as soon as I came off it. For that reason, I continued taking 25mg daily along with my Relpax as needed because 25mg of Topamax is not going to prevent migraines, but it did seem to help with the weight issue. Anyway, the twitch set in again even at the 25mg dose, so I just had to bite the bullet and come off it completely. This time, my weight seems stable. Maybe it's the Candesartan! If I have one piece of advice about Topamax, it's that it is very hard to come off. My side effects started 5 years after starting Topamax and I really thought I was developing a neorological disorder due to the 24 hour a day eye twitching and also a tremor in my left hand and different parts of my body. All side effects have disappeared off Topamax.

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57

I have been on Topamax (topiramate) since the days when it was only available as a name brand script. It has ALWAYS caused a twitch below one or both of my eyes. It is more pronounced when I'm more tired. In fact, when I was on the name brand, my doc told me it was probably because I was not getting enough sleep (which I wasn't, but what else is new?? LOL). Since I have been on Topamax, the generic form and only 50mg, I am back to the under eye spasms. Most people don't notice it or at least don't ask about it.
Once it changes my taste for carbonated soda - turning it to tasting like metal - and makes my lips/face feel strangely tingly, then I'll get a little more stressed. Right now, it's not quite gotten my migraines under control but I'm finding I've got tension/stress headaches more than migraines these days.

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56

I tried everything-- potassium, calcium, magnesium, more rest, told the dr, saw a neurologist. I took myself off the medicine. I finally had to get Botox shots for a year to make the twitch stop!! It worked perfectly.

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55

Yes I took Topamax for about 8 months ( I took Topiramate). I got the worse eye twitch only in one eye. It got worse and worse. I saw others had that too so I took myself off of it. I had to get Botox shots for a year in that eye muscle to make the twitch stop. I had tried everything else first: rest, magnesium, potassium, calcium, and all the home remedies. Nothing worked but Botox shots. The doctor was clueless about this side effect.

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