Stopping Lisinopril (Page 5) (Top voted first)

I have been taking 10 mg/day of Lisinopril for 3 months and have developed a tightening in the chest and flu like symptoms. Within the past 3 weeks I have felt progressively worse and would like to stop. Is it ok to just quit or must I wean myself off?

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Hello David, Yes I did get something else. I had the dizzy thing also. I told the doctor with NOTHING with snake venom lol. I'm glad you tolerate it well. But there are people like myself that get very sick from Lisinopril and drugs like it.

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Oh yes! I had the shortness of breath whenever one of those attacks occurred. Funny thing is, I have a portable oximeter and despite the shortness of breath, the reading of oxygen in my blood remained high. That shortness of breath for me was that something (lisinopril) was triggering the symptom. The more I read of other peoples experiences, the more I realize they were basically the same as mine. I even saw someone who had the vision problem also that I had in a lesser degree. My scary thing was rising blood pressure and it went over 210 systolic even though I had not skipped the daily dose of lisinopril. Of course, I did have really violent trembling and body tightness. For me, the only thing that brought it down was 'time' or oral clonidine. ERs didn't do anything but feed me clonidine send me one heck of a bill for my short repose on their money making bed. I'm now on the transdermal clonidine patch and bad attacks are history for the most part, but I believe my general health was negatively affected and I feel that the results of the lisinopril remain the 'Monster under the bed' for me. My question now is when the h#!! is the FDA going to admit to it? like they just did with the Cipro that now is not supposed to be given for ordinary infections. If I were to make a completely uninformed guess, I'd think the lisinopril caused internal swelling as it is known to cause swelling or edema that even the DFA admits to.
The best of luck to newcomers here who will realize what a disaster lisinopril has been to us.

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Oops! Thats FDA not DFA. My internal proof reader is on vacation, so when I get into a hot subject like lisinopril you might read anything.
btw: I don't recommend the clonidine patch system for anyone. In my case it was the only thing that worked, and the alternative was definitely worse than clonidine's side effects. Now I feel like I'm hooked because I am fearful of the rebound if I go cold turkey, because the withdrawal would probably be high enough to scatter what few brains I have left.

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I agree Oliver, damn pill made from POISON, snake venom. I was the one that woke in the morning and couldn't see. My vision is about half way back now. Funny thing that actually helped me when and after that crap made me so sick was Aleve! Now don't go asking me why because I don't have a clue lol. The drug companies don't care as long as people use it, the advertisements they put on TV with side effects are scary. I now use as many herbs as I can, they work and are real NOT synthetic.

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It has been a couple of weeks since I stopped taking Lisinopril. I still have a cough and get very tired trying to do normal things. How long does this last?

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When you are discussing Lisinopril which is a generic medicine no one has mentioned which manufacturer made your specific Lisinopril.. every manufacturer is different fillers and binders. That might be the reason 4 different side effects if any. it is very important to mention the manufacturer of your Lisinopril.

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HAS ANYONE HAD BURNING MOUTH SYNDROME RELATED TO LISINOPRIL?
MY MD SAID IT COULD CAUSE IT AND I HAVE HAD IT FOR 1 AND 1/2 YEARS AND IT IS TERRIBLE. TRIED ALL OTHER BP MEDS BUT HAD SIDE EFFECTS AND UNFORTUNATELY IT IS THE ONLY ONE I CAN TAKE. BURNING TONGUE AND MOUTH IS AUFUL AND CONSTANT AND NO KNOWN
CURE. TAKING ELAVIL TO RELIEVE SOME OF THE PAIN.

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Sorry, that is one thing I didn't have. There has to be something that won't make you react so badly. They gave me a new one to lower my low side. I can't recommend as I just started. But I insisted on one NOT made with snake venom. So I have to see what happens if anything. I sure wish you well, PAIN SUCKS!!!!!!!

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I have been taking positional for around. 14 years. Know I have liver damage. What's next. I get a cough every now and then. Does anyone with liver problems have pain?

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Gooch, you aren't stupid. My mom has been taking it for years and it doesn't bother her. But by what you have said i would guess your tolerance to lisinopril has worn off. I took it for about 3 years before it made me real sick. As soon as I stopped taking it, I stopped being sick. They gave that junk to my dad a few months ago for a short time and he got sick right away from it. So I told my doctor no more pills with PRIL on the end of it.

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I don't think the water pill and lisinopril are related but I'm no doctor. Do some research on your own and if you aren't sure why you take the water pill ask your doctor OK.

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What kind of tiredness? Ever since I started taking it I ain't tired but like exhausted or drained.

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YES!!!! Been dealing with burning mouth syndrome for past 1 1/2 year... Dr gave me Constanzi Solution which is a special compounded medicine given to cancer patients (although I was told I don't have cancer) and it works great at first, but always returns. Now to hear of a tie-in with lisinopril doesn't surprise me at all!!! I am getting off of it immediately. Also have developed diabetes at this late age (almost 70) and have read how lisinopril can adversely affect blood sugar in addition to damaging liver & kidneys. Sad what the greedy drug industry puts out there to unsuspecting people.

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To SickofDrugPushingDrs, please be very cautious when taking whatever the next drug is. After lisinopril, I was prescribed losartan with the assurance that, since it is a different class of med, I probably wouldn't react. Reaction was swollen tongue and throat landing me in the ER. Next came chlonidine-totally different I was told. Greatly swollen upper lip and right leg. I was referred to a nephrologist who wondered why no doctor had ever even tried a diuretic and prescribed one. (It's been two weeks and I am praying it works.)

Good luck to you. I can sympathize with the burning tongue issue. Have you tried keeping grapes in the freezer and putting a few in your mouth? Or is that possible with your diabetes?

Oh, and don't let anyone tell you that you're imagining it. (If you can't "document" it, it might not really be happening and could actually be anxiety. That's what I was told by a doctor.) Let someone have burning tongue for awhile and see how anxious, frustrated, and depressed they might be. Hang in there. You're not alone.

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When I finally got off lisinopril, I stopped having bad reactions but still had three of them then that weren't severe. It took a while to get the stuff out of my system.
Next, I went to clonidine patch system that really did work for Blood pressure. My side effects for that were what everyone else called insomnia but what it amounted to was that it rescheduled my body's normal timing so that I was wide awake in bed, but actually fell asleep sometimes during the day. That continues to this day, but melatonin seems to help get me back to normal sleep cycles. (I wouldn't recommend clonidine to anyone, but in my case, it's the only thing that worked.)

Your swelling from clonidine is something new to me. For clonidine BE SURE you check out contraindications for anything else you take now or will take. There are apps online that will do that for you. Listen to your doctor, but DON'T accept his word as gospel.

A previous reply here said "You're not alone." Believe me he's right about that. Also, anxiety is a legitimate diagnosis, but some doctors use it much too often when it is not the case. Dump them.

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Years ago I was prescribed Lisinipril/HCTZ. As an Asthmatic they forgot to take into account the use of inhalers (ALBUTEROL) which can raise BP.

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Albuterol can also raise blood sugar levels. It's best to check with your doctor.

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Yessss! Today, Im finally off of BOTG HI BP meds, the last of which is Lisnopril. And my general practice doctor smile, and next we will be getting you off of the other generic drugs! Big pharma, bite my big one.

Starting eating lots of FRESH veggies, sauteing them, and a fresh veggie salad for BREAKFAST. Lots of natural probiotics in the veggies I choose.

Als go to the gym, sev times a weeks

And the arthritis in my knees has LESSENED!

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I've been asked for an update with my lisinopril experience. Looking back my comments go way back and I haven't participated for some time, but:
When I went OFF linsinopril my symptoms disappeared after a few very minor episodes. I am now on another BP medication that does control my BP and the other symptoms no longer exist. Yes! many take lisinopril with no ill effects, but some, myself included, know that severe reactions DO happen. May it not happen to you, or if it does, may your primary care get you off the denial go-round I went through.

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My dad took lisinopril for 2 days, and had a bad allergic reaction. His hands swelled up to where he couldn't make a fist, and sore tongue & lips. He finally let me take him to emergency room, and they gave him IV to neutralize the lisinopril. Lisinopril almost killed him. It has been 2 months since, and his tongue is VERY sore. The Doctor gave him mouthwash yesterday, but sore tongue isn't improving.

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