Stopping Levothyroxine (Page 2)
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I have been taking Levothyroxine .88mg for the past two years. I just left town on a three week vacation and realized I left this prescription at home. Should I be concerned?

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107

I was put on levo before & gained weight i stopped & felt ok..Last month thyroid level was down do doc put me back on.Am immediately gaining weight..Stopped them last fri & feel a bit rough today.Don't know what to do really -Ll

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106

What could happen if I do still have a thyroid and I suddenly stop my levothyroxine medication

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105

What are the withdrawal symptoms please to not taking levothyroxine

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104

Can you stop taking this medication if after been on it for 9yrs after a total thyroid remova,my levels al over the place the last few months was under so higher the dose now it way to low my gp said I should stop it for 3 months feeling afraid in doing this, when had the surgery yrs ago specialist told me never to stop it as can be life threatening and could end up in icu and would be up to man above if I pull threw can someone please please give me advise

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103

Want happened if u stop talking your thyrioxine tablets for a year

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102

I was on levothyroxine since March 2016 I started on a 100mcg and in june after tests had gone back to normal so I started on 50mcg then in early August my thyroid was completely normal so I started on 25mcg but in al this I was already tired and already had very bad constipation. I withdrew a week ago but the withdrawal symptoms are bad worse than hypithyrodism itself.

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101

Thyroxine is normally given why thyroid gland is not working as well as should with resultant clear symptoms As this is son, stopping without medical advice and blood checks is not wise.. The results of stopping will become clear over time, slow process normally , and severity dependent on degree of thyroid dysfunction . But given the thyroid role as the power house of οver all body function , its results will be generic and increasing.

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100

I have been on 74 mg levothyroxine for 4 months now before that I was on 50mg 3 week after first taking them I had heart attack I have never been so I'll as I am now taking this

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99

HELP I have been takeing Levothyroxin 50 MCG for 7 years in the past few weeks i am haveing left arm pain into my neck raceing heart it comes and goes all day and night . I dont have insurance .

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98

I posted earlier this year that I weaned myself off of Levothyroxine - with the exception of a few pounds of weight gain, which have now come off by walking everyday, I feel better than ever. Again, I was going through menopause when my gynecologist prescribed it, but after three years of using it I decided it was not helping with what it was intended to do - stronger nails and hair, weight loss, uninterrupted sleep. I've now been off of it almost a year and feeling better than ever. Do the research - it takes some time to come through the withdrawal process...

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97

What was the end result of your issues I am in the same exact boat not sure how old his post is but I'm in the same boat taking those pills are like a free ride to panic attacks and insanity

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96

I've been on levothyroxine 112mcg for awhile now and lower doses for about 4 yrs.. Well I stopped taking it about 5 weeks ago and I'm having horrible pain in my shoulders, neck and arms since... Could this be a result of this? I've been to several Drs and had several evaluations trying to find out why I'm in so much pain.. Just remembered I haven't been taking thyroid pills.. Maybe this is why??? Lying down is so painful and sitting for any length of time!!! My muscles and joints hurt but no tests show anything... Cat scans MRI's ex rays.. At wits end!!! Please help.

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95

Tsh is .02 TF3 is 3.6 Tf4 is 2.0. Have been on levothyroxine for 3 years .088. Had no symptoms except thin end brows and borderline readings so was put on this. Want to stop
Packing on pounds. Nothing i do stops weight gain
Can I stop?

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94

Hello. My story is long so I will try to be concise. Your story reminds me of my own...I was diagnosed with hypo in 1991 due to fatigue and intolerance to cold. I weighed 116 and am 5'5'. I have always weighed this. I experienced no hair loss, no depression, no dry skin. Just migraines that were directly related to stimulus such as smoke, perfume...my tsh levels were just at the lowest normal range. So the doctor said I could go either way and we opted to try meds. During the next twenty years I experienced migraines, constipation, a struggle with anxiety attacks that changed into severe panic and the inability to drive, bone and muscle pain. Intermittently, and depending on where I lived I was wither told to get off the meds or to try different types of the hormone...sigh. my symptoms fluctuated accordingly. But I always felt better when off them. Though at those times I had withdrawal symptoms and had to be accompanied by acupuncture or supplements. By 2010, I was back on at this time, I started to show signs of heart being effected. Pounding, skipping, palpitations, restless sleep. So they increased, decreased and kept changing it up. 2013 I tried Armour. Months later I ended up in bed for one month with extreme fatigue and continued heart problems and insomnia. They increased the dose and though it got me out of bed I was still experiencing heart symptoms. So they took me off cold turkey...At first it was ok, but then the withdrawal started. Remember I had been on for 20 years plus.... I ended up with hypersensitivity of all senses. I was closed in my bedroom with no light and sound, dark glasses and headphones or ear plugs for about 4 months. I sometimes could drive or not to get myself to the various therapies and doctors. It went through each of my systems. The heart stuff stopped almost immediately. Then it was extreme constipation which only adjusted after about seven months. Then it was the chest and muscle spasms and tightness of the diaphragm which made breathing extremely difficult. I did acupuncture every single week for two years btw... The breathing difficulty went away about one year later. I could not work and driving was dependent on the day. I stopped having muscle and bone pain immediately. My migraines went away very quickly and were back to being provoked by "normal" things like smoke or perfume. I had the sensitivity to sensory for about the whole time, but slowly it subsided into a more controlled level. However, I could not shake the fatigue. Extreme fatigue like I could not get up...Anxiety attacks btw were minimal and more closely related to "events". My body continued to overreact easily to stressors. So, I had doctors very confused. I was very confused. My numbers went from 18 to 8. At eight it sort of plateaued and so we decided to try levothyroxine...we even tried it compounded custom...2 months later...difficulty breathing, heart stuff was almost immediate, loss of appetite. I must weigh about 111 now, tremors, gut bloating, sensory sensitivity slowly returning, three migraines this month, extreme fatigue (normally I wake up at 5 and am up by 6. Today I got up at 8). The pharmacist wants me off the T4 and on T3. So does my naturalistic doctor. My endo said no. wait another 3 weeks to take blood and go into the office. So I started skipping a day in between...today my appetite came back...hmmmmmm.....so I did not take it. The side effects terrify me. Stopping the medicine also terrifies me because I know what I went through for one year. It cost me my marriage, my business and people turned their backs because they thought I had lost my mind. So, I am stuck in the middle without knowing what to do. My gut is to stop the medicine, but then what?

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93

Diabetes has nothing to do with how much sugar you consume, diabetes occurs when your pancreas isn't producing enough insulin.

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92

I suddenly stopped taking my Levothyroxine 125mg because I could not afford my medicine due to heavy debt. I was diagnosed with Graves Disease in 2014 and had radiation twice on my thyroid. I am gaining weight almost daily and I've always been a light eater, my hands and feet are cold even though its 95 degrees outside and my sleep and thinking is way off. To say the least I just refilled my script and am restarting my meds and soon as they are shipped.

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91

The affects of hypothyroidism happen sliwly over months possibly and the affects of stopping thyroxine will only become apparant over many weeks so forgetting the odd day or missing a week should be ok. Again the dosage matters as greater the dose ,possibly lack of ,sooner showing in the classic symptoms of letgargy , dry skin and rest.
So moral of story is take prescribed medication to order unless side affects.
Stopping for a short period in case of thyroxine which is the only medication I am comenting on here ,should be ok but GET back on track as soon as possible.

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90

I went to see a locum gp and in his wisdom of knowing me all of 10 seconds due to my latest bloods being normal stopped my Levo over a week ago I feel awful depressed bloated constipated cool at night it's horrid I have to put up with this for 6 weeks untilmy bloods will be done again ....God help him if they say I need another prescription!!!!

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89

I've been taking Levothyroxine since I was 5 years old (1994) and I'm 26 now. When I was 10 years old I got told I would be on the medication for the rest of my life, I was also on Hydrocortisone, Genotropin (the needle injection) and Estrogen (I had low estrogen so I had to take that in order to start my periods - which didn't start till I was 18, then I had to go on to Loestrin 20 which would help regulate my periods each month.) When the doctors told me that I was like I really don't fancy taking meds right up until I'm like 60 odd hehe but when I went to my annual hospital check up back on the 25th of November 2015. I told my consultant the truth that I haven't been taking my meds properly apart from my pill as I call it (which it is as it's also known as a contraception pill) and he said well it's entirely up to you what's best for you as I can see that you look happy in yourself blah blah (won't go in to much on what he said) and he said to me that I can come off them altogether just stay on the pill. So 2 months later I experienced some side effects like dizziness, heart palpitations (irregular heart beat - fast paced), unable to speak properly, hot flushes, sweaty (So I took my coat off as I was out with my friends but bear in mind it was winter time) blurred vision and shortness of breath. It took me 20 mins to get back to normal and I phoned my consultant the following morning but since he don't come to my hometown that often he wasn't at the hospital, so I made an appointment as I would be due for one in February / March 2016 time, they was fully booked due to Christmas period been really busy so I got an appointment to see him in May 2016 and I'll be telling him what I experienced and I don't mind if he put me on something similar to stop me experiencing those side effects again as I had them again at the end of February, but I did get told by my local GP that I could have diabetes which I don't see how because I'm healthy, I don't eat much sugar (due to sensitive teeth) and I don't drink many sugary drinks as I always drink diet coke (Well not always, I have at least 4 litres of diet coke a week, I know it sounds a lot but it's not really), but I do smoke and I got asthma.

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88

I have been feeling the same, I went to the hospital thinking it was heart problems but all the tests came back normal so I just tougher it out through most of the way so far and I'm only 19

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