Prolia Side Effects (Page 98) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Poodle, Sorry I meant the DEXA scan = the BMD test (bone Mineral density test) not bone mellow test. My mistake. Take an osteogorosis x ray test may be able to identify any Formoral fractures if you have abnormal pains with your leg and groin.

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Poodle, my goodness, your doctor ruled it is fractured -OMG. I will talk to the doctor about filing a complaint and ONJ when I see him tomorrow. My mouth look ok and I was told that my blood works are normal.

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Am I am not getting high level of vitamins D that leads to this leg fracture because of Prolia?

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NO Canadian~It is just because you are on Prolia. Prolia does this for unknown reasons but it has zero to do with getting the correct supplements. Some of the others did too if one stayed on them long enough. It is NEVER supposed to happen with only one injection of Prolia but so much for their NEVER because you have it with only one.
Get well~Pood

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Canadian~you didn't mean bone marrow but I sure found a 'can of worms' with Prolia and blood marrow. It has got to be the reason that the thigh bone breaks. Thank you for making the mistake as we are all now more aware than before. Remember: Knowledge is Power! Glad your mouth looks okay. We'll find out why it's hurting then and it may be like mine -- a certain muscle in there and it goes down my neck too.
Hugs~Pood

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Canadian~While you are at your Drs' office, ask them to write down the email address of Health Canada for you so you can report your problems with Prolia. Make sure you have made notes so you don't accidentally leave anything out.

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Anne~just noticed I forgot to take my Mirtazapine on Wed. night. I slept like a log so it would seem like that is one that can go when April comes and I see him again. It was still on the night stand when I woke up in the morning. I really and truly believe I need zero Valium but I'm not sure as how to quit it so I'll leave that one up to him. Be well~Pood

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Could it be possible that magnesium makes me muscles hurt , I thought it was suppose to help

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TY Pood, I will keep doing the calcium and magnesium , if I do 250 of magnesium once a day, I am good, when I try to do twice a day that's when I have discomfort . Si for now as long as I get some it is better than nothing, Again TY for being there

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Some side effects went away - I puffed up like a cloud- and turned yellow - that's cleared about a year out. I began to suffer from a very severe bursitis in hip, which is recurring after taking the first shot a year ago. I was so sick I would not take a second shot. I still have occasional burning pains in upper arms which were very severe in thighs as well. Thighs are ok now.. And some sores started on my back end which have never cleared up and I've tried everything. I was ravenously hungry and gained 20 pounds. I have lost 12 of those at this time, and hunger back to normal. Also a prickly patch started on my neck, which turned into such severe neck pain I could hardly stand it. This lessened but never went away. I have now had a radio frequency ablation to stop the nerve pain. I will not be taking another Prolia shot although my doctor swears this was not caused by Prolia. However there seems to be a common thread of pain issues, etc., in some of us who have taken this drug, the symptoms I mentioned were not there before Prolia.

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What do you think about taking water pills to get rid of the bloating?

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Sheri~please divide your supplements out evenly. You can do it two times a day or 3 times a day. Just depends on your appetite and if you are able to tolerate much food. If food is not tolerated well you can always take them with a glass of milk or buy the kind that don't need food and you can crunch on during the day. Doing it all at once means your body is not getting what you put in it. It can only handle x amount of a supplement at a time. Does this help you? Hugs Pood a/k/a

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Hi Pood, I do not tolerate food very well because of the bad indigestion that had gotten worse with the pills and then the shots. I take my calcium 3 times a day, magnesium once a day, diuretic twice a day and one multi vitamin. I feel that I fill up with water since all this started almost 2 years ago. Again, I
hope you are doing good and thank you for being there for me. Sheri

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Sheri~what is your blood pressure now????? Pood

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I sent you a long answer and they said it has to be reviewed I didn't say anything off the wall

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Actually my doctor is very kind, and I think very sharp - much more than many, and he keeps a close eye on me. I could put up with some pain, even have put up with a lot of pain - but when it goes on and on and on - - I don't think so. He is setting me up with an endocrinologist. I just read that they have had a wonderful trial (but small) with great results using human growth hormone. But it is too expensive. Well, that is the U.S. for us. And I don't want to die over a broken hip - the mess with my wrist was awful, and I had a miracle working hand and arm surgeon that I will always be grateful too. Acupuncture seems to have alleviated my falls for over a year now. I plan to update with a few sessions. But yes, we desperately need something to stop this process of bone degeneration, but something that is not dangerous to a few - - and I've read so many, many bad reports that I'm wondering if the numbers of those suffering greatly from side effects are much higher than anyone knows.

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Thank you Pood, I am so glad I found this site and you, you keep pushing me a long giving me hope, maybe when weather gets warmer, the aches will ease up a bit, just glad you are feeling better and there is hope I will too someday.

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Hi Pood, TY for your encouraging words, I hope that it will go fast , hate rushing my life away, but don't have much of quality now. Take care of yourself

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Kitty~I looked and looked and could not find it. Would you please give me an idea of what the FDA is writing is bad with Prolia now? Thank you in advance~Pood

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@healingtree~thank you for mentioning acupuncture. I have told people here over and over to use it and I don't think any of them believe me. I cannot say how it works, it just changes 'energy' around in your body so you don't hurt anymore. It is totally painless as the needles they use are so super thin they slide between skin cells. I only had one owie as she had forgotten one in the end of my big toe and dropped a heavy towel on it. That I felt!! Pood

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