Prolia Side Effects (Page 73) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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I had the last injection of the 3 I have hat on September last year.
My specialist said it might take up to a year or longer before this is totally out of my body. I'm still having some symptoms, swollen feet, pain in joints and hands, recently also jaw and teeth.

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You just had one injection over a year ago? How was your health before the injection? What made you decide to go for it?

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So have the side effects worn off for you? How long did it take?

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You are fortunate. I had the shot 3 months ago and immediately got 3 colds one right after the other, but the weird mouth/gum issues, tingling in extremities and bloating and gas are constant. I never had such until Prolia, and would like to know when (and if) I will ever be back to normal.ZIOUE

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My health was fine. December 19th I fell on the ice back of the house feeding the birds, fractured my wrist. Have no osteoporosis. Had the cast (THEY DID A LOUSY JOB, GAVE ME PROPOFOL.) Then saw the orthopedic clinic Jan 25th to get the cast off, the doc told me there is a new clinic Post Fracture Clinic with new medicine - well who will you believe. I had an appointment on April 7, 2011. After blood tests, my no osteoporosis tests - and the doc with another one sitting was very nice, talked about everything except, the side affects, gave me the shot, and said to see him in 6 months. Prolia sent me a brochure 10 days later, and it was written this should be given as a last resort, if all else fails? To call the nurse if I have any questions. I fell very tired and sleepy right away - and then got all numb on the left side and fell into bed May 19th, called Prolia, they said to go to ER - where they didn't even know what Prolia was. Had cat-scan of head, etc and sent home. I found later that I had water in my ear, and the jaws were hurting - June 1, my gums started getting large and bony - had cystitis - antibiotics etc - the doc said these were not the symptoms of Prolia - and didn't want to have anything else to do with me. Needless to say, I didn't get the 2nd injection. Prolia doesn't even know if and when the symptoms will disappear, every day there is something else that hurts, or sleep is bad, or gums and jaw hurts - and psychologically, it has destroyed me.
So, before anyone takes any type of injection, think of it, as you can't get it out of your system, like when you can stop a pill. For the Pharma, one shot - more money, less work then all the pills - guess who is the winner in this game???

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So you still have side effects after over a year since the injection of Prolia?

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Its not surprising that memory loss is a possible side affect from Prolia - as it is released into the brain stem, and into the blood vessels - it goes through your whole body, and every part is affected. I had a tear in my right retina in November. Thankfully I was seen by the specialist in time and had a laser repair it. Now I am seeing the doc every 6 months and am scared about my eyes. Ofcourse, Prolia people will deny, deny, and again, the gums and teeth are hurting me - and all the side affects, are still there now its 14 months - not much better. Its poison. PS I am 71 years old and was in good health. Used to be a speed walked, swimmer.
Now I have a hard time walking.

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Faith:- Just got back from the Dr. and he doesn't know when the side effects wil wear off. Because my hands and feet are sore and swollen he said I have Arthritis. I told him it wasn't arthritis that these problems started just after the Prolia injection,so he sent me for a blood test to see if the Prolia has affected my kidneys because of the swelling. Should get a report sometime next week. I am 73. Because I have fibromyalgia he is saying that is whats causing my pain. I sure told him that the pain was completely different. I don't know why they are keeping these problems so Hush Hush. Even my pharmacy said oh all you would probably get is a rash. He said he would look into it.

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I had the Prolia shot Dec. 31. 2011 and am due for the 2nd one June 30. I will not get the 2nd shot. My life has been pure misery since the Dec. shot. My whole body aches, my jaw is tired. The pain seems to travel throughout my body. It may start in my neck, and then go to my back, etc. etc. I was perfectly fine before the shot, but because my blood work came back with a diagnosis of early stage of osteoporosis my doctor suggested Prolia. I should have been smart enough to research this drug!! I keep wondering how long I will have to endure this pain!!! Fortunately I have been able to continue with my job, but don't know what I would do without Aleve. It helps me get through the day and night.

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Joyce, do not take another Prolia shot - its been 14 months, and I am still feeling sick, with bladder infections, rashes, terrible itches. my spine feels on fire and hurting - nothing has changed since I got that shot April 7, 2011. I count the days - but today I was so tired, I was dragging and had to sleep, not like me at all, always on the go Slept all afternoon - feel a bit better but still tired and can't wait for 8PM to go back to bed, if I don't wake up during the night, burning hot or cold - eyesight changed - oh yes the docs will tell you stories, by acid reflex is bad, can't even drink a sip of water - the jaw hurts, the gums are swollen - have the best water pick, do the dental floss, spend 1/2 hr maing sure that my teeth are not going worse - nothing helps, still have these lumps, and torus growing - whatever you do, do not take anything by injection - sorry you have to go through this - I hope the docs are rejoicing for causing so much pain and suffering

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Today, I had my second injection...so far only a few aches. After my first shot, I had a few days of body aches, which disappeared after 3-5 days. Much easier than dealing with the side effects of Actonel, Fosamax or Boniva, which caused weekly and monthly pain.

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Joyce,
So you still have side effects? Have they diminished at all?
I wonder what would happen if you got another shot.....
Daphne

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Alexis- have you had the Prolia injection and if so what p roblems if any did you have. Before taking the injection you should read more about the drug. I have had so many problems. You can read some of them on my post of several weeks ago.

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I had my Prolia injection in February of this year (2012) at my Rheumatologist Office in Corpus Christi, TX while on vacation there (my home is in Ohio). I have also been receiving Orincia infusions for 1 1/2 years and was doing very well with my RA. After receiving Prolia I began having so much weakness and pain in my joints that I had to start using a cane whenever walking. Like so many of you I hope in six months this will disappear, even if it does I will no longer take Prolia again. I have a sister-in-law, after having a Prolia injection, had bumps form in her mouth.

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Yes, I still have side effects and keep wondering when they will end. My 6-months are up the end of this month and the side effects are still pretty rough. I will not take the second shot as this 6 months as been pure misery.

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Hi Dee: I totally agree with Faith. This Prolia is poison.
I cannot go for my walks anymore as my feet and the rest of my body are so sore. When my 6 mos. is up I am going to try STRONTIUM SUPPORT it is natural. My friend was on Fosamax and got really sick so she looked up Strontium Support. Had a bone density done and her test was better than the last one. I know that meds don't affect everyone the same. Talk to your Dr. about Strontium Support and also look on line. there
doesn`t seem to be any side effects. But it is totally up to you and your Dr. as to what is best for you. Good luck on whatever you use.

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Thank you to all who responded. I will heed your suggestion and not go for the Prolia. I am Diabetic, take no meds, as I control all with diet and exercise. I will certainly look into the suggested alternative suggested. Truthfully, my Great Aunt NEVER took meds as she said all were poison, and she lived to be 99, I have an Uncle who is 96, takes no meds, and I am looking for him to beat my Aunt. Even my Mama lived till 86, and took no meds, she died from C-Diff, had she not gone to the hospital for Phneumonia, I think she may still be here today. Something said for just eating right and exercising. Thanks again to all.

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Today I stopped by an Alternative medicine Pharmacy. It was suggested to me that I not even take Fosamax. Was told that not only does this have severe side effects, but if you break a bone it doesn't just brake, it shatters. I'll post later the alternative suggested supplements. The Pharmacist is well know here and those who are fortunate enough to get to actually talk to him, find out just why he is in his 90's and going strong and looks like he is 70. Many trust his suggestions. I go back for my next Bone Density in two years, so I am giving his suggestions time to work. I am confident and trust his suggestions. Thanks to all that provided me info on Prolia. He too had the exact same things to say that you did.

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OMG, I wish I had read all these comments before I got the shot the other day. I have started hurting in my legs, hips and arms. I decided to check out the drug reactions. That is when I ran across this site. I was informed there were no adverse side effects. I won't be getting the second shot in Dec. I hope this does not get worse. I don't want to lose my hair or have GI problems. I have GI problems enough already. I hope you all get 100% better. Take care.

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Irene, as I mentioned in my earlier post, I had been to a pharmacy that practices Alternative therapy. The pharmacist suggested I start on Bio Citrate Strontium and take one a day for Bone health. In addition, he suggested I add Calcium -Magnesium taking 2 in the a.m. and 2 in the p.m. for Bone health. They also do compounding at the pharmacy and have developed a cream of all natural ingredients that supports bone health. So, for the next two years, I am going to give all of this the opportunity to work. Praying my next Bone Density is improved. I can say at 67 I take absolutely NO rx drugs. I take a lot of supplements, but I feel wonderful. A lot of people are not so fortunate as I am, and take an RX for something. As I get more info from my Pharmacist, I'll share. I totally trust him. He is living proof of taking care of yourself with ALL God given herbs, roots, fruits, etc. works. He is almost 90 and looks 70. He is amazing. Hope all have a great weekend. I am so thankful that I came across this website. Ya'll are great sharing your findings. Dee

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