Prolia Side Effects (Page 67)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

REPLY

REPORT

Does anyone make bone broth to help support bone? I just started reading up on it and would like to know how to make it.

REPLY

Was this helpful? 0

Bone broth is very easy to make. You buy the bones that are sliced and you can actually see all the marrow in those bones (about 1 inch thick). Put them in boiling water with the veggies you want to use to flavor it like onions, celery, etc. Soon the bones will have no more marrow in them so dip them out and and put in whatever you want in the broth. You may have to ask the butcher at the grocery store to cut them up for you as I'm not noticing them like I used to. It's the same as making any beef soup except you are using bones instead of pieces of meat.

REPLY

Was this helpful? 0

What type of lawsuit is mentioned in the posts? I am frustrated with getting sicker ... I am spending nuts money on more doctors and medications to deal with all the Prolia side effects. I substitute teach and can't take jobs because I am too sick. Mornings are so bad... Pain, nausea, cramps, cough acid reflux, gas, constipated or diareah....not to mention that i catch every illness I encounter- cold, pink eye, UTI, and I itch everywhere- from head to toe....

REPLY

Was this helpful? 0

Rick~I know Canada has a somewhat different system than the US but for Medical professionals to leave your sister in a state like that is beyond HORRID. We know Prolia deletes and messes up the immune system but this is also easily fixed if a Dr. wants to put forth the effort. We had gay guys dropping like flies as they had no immune system. They now have cocktails of drugs they take and live long healthy lives. Why in the name of Heaven has your sister never been referred to an Immunologist or a Dr. that works with one. They are able to change that immune system quickly with an array of drugs. Maybe they don't want to spend the money as they are expensive but so is life and to sit back and let someone suffer is totally against the oaths they took to be Doctors. Maybe you need to go back and shake some heads until you get her the help she deserves.

REPLY

Was this helpful? 1

Jan~I just posted it. Should be showing up really soon.

REPLY

Was this helpful? 0

I know you are Jan. I know exactly what you are going through but I will tell you there is an end to this horrid suffering we are in. If you are lucky, in the 5th month you become pretty much yourself again and then by 11 months you are completely and totally well or should be. It seems to me that your Docs are not giving you what you need. You have to have the tiny little blood test for the immunoglobulins as that will tell them which are low instead of getting a bag of blood you could possibly get a bag of plasma - depends on immunoglobulins. You need a first rate pain medication, not some over the counter junk, you need to take 500 mg magnesium every night to stop the muscle cramps - that's Prolia trying to get more calcium so it attacks the muscles. You also need your Calcium/Vitamin D supplements. When the Docs can get things taken care of for you, you will feel better. We know you have anemia but they have to look a little farther into that as in do you really just need some blood or do you really need plasma? It will lessen over time. If you wanted to make beef marrow soup, I posted it. If you want to make it from chicken, take a cooked chicken and remove all the meat and again boil the bones and you will get the marrow from the chicken bones. Some people also do this with a turkey after Thanksgiving - throw all the bones in the pot and make a soup. With the beef bones, you will need to buy about 2 pounds to make the soup. Be well~

REPLY

Was this helpful? 0

Thank you- you are a treasure trove of information. Thank you. I will be making the broth soon. I'm on a road trip from Chicago to Sacramento with my daughter.

REPLY

Was this helpful? 0

Thank you-
I will start a magnesium supplement.
I'm doing D3, K, plant based calcium called Osreoben, and also B. I take Dextalin for my acid reflux which has helped greatly. I was told to walk, do yoga, jump rope it dance. I drink a glass of tonic water daily now which seems to help my foot cramps and pain in my feet but not my legs, arms and rib cage. My itching doesn't respond to any RX cream. Yesterday was my face and today is bottom. Yesterday my teeth felt awful and today they feel better. My lower back is screaming today. Everyday pain migrates, itching moves and I am so fatigued... I am hoping my chronic cough is due to Prolia also- I've been coughing and breathing harder for 2+ months. Sores. One and go on my face and thighs... I'll follow up with your suggestions with my doctor as I am only at month 3 from my Prolia injection. I really did not want to do the Prolia. I was pressured by my md and my endocrinologist. I knew better. I am amazed by how doctors are not fully aware of the medication and its effect on people. Thank you for your posts on this sight.

REPLY

Was this helpful? 1

Skittie~is this what you were looking for from the FDA - Prolia adverse effects thru 2015
1 Death 4667
2 Osteonecrosis of jaw 1971
3 Back pain 1900
4 Pain in extremity 1770
5 Arthralgia 1727
6 Pain 1555
7 Hypocalcaemia 1213
8 Rash 1034
9 Fatigue 1016
10 Bone pain 961
11 Myalgia 937
12 Asthenia 929
13 Nausea 875
14 Malaise 819
15 Fall 818
16 Tooth disorder 759
17 Pain in jaw 717
18 Dyspnoea 701
19 Pruritus 690
20 Muscle spasms 665

REPLY

Was this helpful? 1

yes that was it.. I found it at the other link I posted from askapatient. Not at the FDA site, did you find there? Can you post a link? I want to show that to my doctor if I see him again. My baby boy kitty passed away thursday and I'm grieving and in shock... not much energy for even myself these days. I'm just trying to make it through the semester.

REPLY

Was this helpful? 0

Apology accepted Rick. I know you are suffering too and I'm so sorry for that.. I hope your sister will start to recover a bit soon. I have type 1 diabetes so I know how horrible failure of the pancreas is. Maybe her pancreas/beta cells will recover along with the rest of her body.

REPLY

Was this helpful? 0

I've had itching, joint & muscle pains & hair loss. I had a minor bout with the flu (yes, I had the shot) & a cold for the first time in years, so believe my immune system was compromised. I believe this is an extremely dangerous drug & will never take it again.

REPLY

Was this helpful? 0

I had my 4 th Prolia injection last week. So far I've never had a reaction from them. I'm 81 next month and in March 14th. Had a total knee replacement. No pain with rpthat either. My bones seem strong enough. The reason I take Prolia is because in 2014 I had breast cancer and take Arimidex which is to destroy ones bones. So far so good with me. I pray those who have trouble with Prolia can tolerate it or find something else that works for them.

REPLY

Was this helpful? 0

granny~I am happy that you are able to tolerate Prolia well and that it is helping you. Unfortunately, for the remainder of us we live in severe pain and cling to life by a thread. FDA reports around 5,000 women have died from Prolia in it's short time out. Do hope and pray the cancer is gone and if it were not from the chemo drugs it will be from Prolia as it is a chemo drug. That has to be the scariest word I ever heard when the nurse called up and said you have cancer. I beat that and I beat Prolia but not all here are so lucky. Good for you. Wish we had more people that wrote in and said it worked well with no problem. You are a lucky person in deed! Pood

REPLY

Was this helpful? 0

Skittie~that's where I got it from too but they say it is from the FDA through 2015. I have a very difficult time believing so few people complained about muscle cramps as that is one of the major issues on this site. In my kennel of confusion~

REPLY

Was this helpful? 0

Marri- for muscle pains you need to take 500mg Magnesium every night. That will stop that part. As for the joint pains, your Dr. has to put you on a real pain medication or refer you to a pain specialist where you will get it. The only thing that stops the itching and the array of skin problems is Prednisone and I mean pill, not an OTC cream. You are very correct in stating your immune system is not working well. It's probably only half there and many autoimmune diseases come from this as all the infections, some of which are very dangerous. Get after your Dr. Gather up every side effect you have or have had and report it to the FDA. Take the list of side effects to your Dr. and put it in front of his/her nose and say I have … and have them circled on the side effect list. Undoubtedly you will get some that are not on the list. The FDA has been very busy changing warning labels on Prolia but it seems our Doctors are unable to read or don't care. Keep us informed. We will help you the best we can. We are all Prolia survivors in different stages from the injection. Be well~Pood

REPLY

Was this helpful? 0

I have good cancer markers. But don't know if cancer will return or not but I'm able to tolerate the Arimidex and Prolia. I don't care to take either as Arimidex is also a chemo drug - I need to take it everyday for 5 years. At my age 5 years seems like a long time. I pray that your pain will go away and everyone else's pain cause from this medication. I know people get very sick from medicines.

REPLY

Was this helpful? 0

Granny V, I'm glad you haven't reacted but keep in mind several people here did not have a reaction in till after several shops of pro Leah – the problem is no one knows what is going to happen with each individual person. And even when you have a severe reaction as you can see from what people have written here your doctor is going to say it's not from Prolia 9 Times out of 10 and deny everything! If you die they will say something else caused it not pro Leah…

REPLY

Was this helpful? 0

How do I contact the FDA?
I would like to file my side effects with them on the Prolia.

REPLY

Was this helpful? 1

Good for you Jan; Go online to FDA.gov. then file a MedWatch Report. Scroll all the way to the bottom to the "contact FDA" button lower left. Then on the Contact page, scroll down until you see on the right hand side where it says Online and you'll see Medwatch. You can click on that and the form will come up. Even though they only like you to file once, I tend to send them a reminder every couple of months thru MedWatch. Thank you for filing! You are appreciated.

REPLY

Was this helpful? 1

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

318 REPLIES

I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

200 REPLIES

I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

34 REPLIES

I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

7 REPLIES

I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

85 REPLIES

I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

11 REPLIES

Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

27 REPLIES

I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

128 REPLIES

I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

15 REPLIES

What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

29 REPLIES