Prolia Side Effects (Page 68)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Jan, you can search for their phone number on the net and complaints can be given on the phone or in an email which I believe is through medswatch. Please don't quote me on this but that is to my best recollection. It's also in the back pages on this site if you feel like spending a few hours looking so if mine fails, it's back in there somewhere. Hugs~

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Jan, I was close - here is how to contact the FDA for adverse events from a medication:

FDA MedWatch or call 800-332-1088

Sorry, I had an extra s in there.

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Jan, I have posted this twice and twice it had to go to review so should be coming soon. If not, get on your pc and put in: How to contact FDA. There are a few things they want to know first: when did you get your injection, who did it and do they have your permission to contact that Dr. and then you go to all your side effects thus far.
Hugs~Pood

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I'm sorry Skittie. I always say the very best thing to do when we lose a fur baby is to get out and get another ASAP. It really helps the grieving process. A new one will never replace the old one but I can promise you that in time you will love it just as much. That's the way I am with Poodles. Cannot live without one. You know there is a kitten at a shelter that would just love to be yours. Go find it and you will enjoy having a kitten around as they are so cute. Pood

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Jan, I contacted a firm and they said they would take the case if I could get sufficient people and I only had one week to do it. I did not get the number of people needed and others came in too late. I had to tell them we do not have sufficient numbers for you at this time. They were calling me every day and I would not pick up their calls and finally I had to talk to them. Maybe at a later date we can all get together and I'll find another firm. There are many that advertise on TV, so if they are doing one product, they darn well can do another especially with the number of deaths in the short time Prolia has been out because these type of suits are for the victims or the family of the victims. Pood

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Pood-
I had a toy poodle in college. Snuck her into the dorm in my backpack before tiny dogs rode in purses. I have several dogs now. Love every one of them!

Thank you for all of your information. Hopefully I will have more info to share after I go to the Mayo Clinic.

Since my diagnosis I have given up all soda. What are your thoughts on sparkling water? I have read a mixed bag of opinions on soda,carbonation, phosphates and caffeine - both yay and nay.

Today was a rough day. I also got a call from the school district where I am a substitute because I have not been subbing enough. I had to say that I have been too sick and fatigued to take sub days. The district employee stated her mom had Prolia and was sickened by it, too. What a small world and we really are not alone- thanks for helping me!

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Skitty~it was from askapatient as they had copied it from the FDA. Pood

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Poodle, a lot of these things you have listed on this list are really duplicated. numbers 5,11,12,14 are all fatigue and pain in the muscles, joint pain. These would all fall under Fibromyalgia. It seems the FDA is giving fancy names to things that are one in the same.

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I have had my first injection of Prolia. I have developed severe ringing in the ears, I have decided not to take the second injection that is due! If my ears ring badly now. What will a second injection due. How long will this ringing in my ears last or is it permanent ?

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Google "Tinitis" and read up on it. I have had earringing in the past and have bouts of increased ringing. I am assuming that my worsened tinitis after my Prolia will get better over time. There are some thing you can do to help it including some supplements and medication. I found in the beginning if I focused on the ringing it would get unbearable. I had to find a means of living with it as a constant background noise like a white noise, instead of focusing on it as unbearable or annoying ringing. It helps to focus on a hobby, have tv or music in the background always, chewing gum, crunching on raw carrots instead of listening to the roar in your ears. There are options to discuss with your doctor or ear specialist. From what I've read on this board, others begin finding symptom relief after 3 and 6 month markers and then continued slow steady improvement. At month 3 I have seen improvement in my acid reflux and frequency of intense itching. I'm hoping all my other symptoms begin to follow this pattern. This is my hope for all who are experiencing the side effects of Prolia. My doctor is under the belief that side effects can get more intense with additional Prolia treatments, I can't take that chance. Being proactive with my current side effects keeps me focused on feeling better and waiting the Prolia out. Hopefully tomorrow my ears will ring less, my itching will be less, I'll sleep better, my pain and fatigue will lessen and my body will continue to rid itself of Prolia. It's not you, it's the Prolia.

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Yes I realized that, I was just wondering where it is posted at the FDA website???? Presumably they have to list them there too but a search doesn't find it. I agree, on of the things prolia seems to do is attack the muscles .. actually I think 5 11 12 and so on are separate but they all affect the muscles and could be fybro like symptoms but anything can cause those symptoms. My guess is it is the effect of prolia on the whole caclium/mineral and hormonal balance which happens in it's inhibition of rank ligand maybe.

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Thanks Pood, I am too much in distress now, he left me only last week after caring for him for two years with crf/anemia/IBD and lymphoma which took him in the end. I hoped till the end he would somehow beat all this. We have another kitty, but she is not as attached to me, love her very much still. He was a little part siamese cat I trapped by accident and has been the love of my life. I'm just devastated, he has helped me so much with my illnesses. I couldn't give the attention right now to another and especially a kitten. I'm worried they may chew the tubing on my insulin pump. I'm going to visit a friend in CA maybe and then we will decide to adopt again. I was thinking even a dog/pup maybe but I'm not sure. I'm so devastated. I have been through this a few x before but this is just so hard. He has been there for me for everything including two devastating furbaby losses, for 17 years.. he was 18 maybe. I just wanted him to stay with me forever. He was pure love. <3

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Skitty I totally believe you are right. I'm 71 15 Months past shot date - post PRolla and am informed I now have hypercalcemmIa and may need parathyroid surgery. And still having muscle weakness.

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Skitty I totally believe you are right. I'm 71 15 Months past shot date - post PRolla and am informed I now have hypercalcemmIa and may need parathyroid surgery. And still having muscle weakness. The ringing in ears is less intense at month 15 for me

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Tinnitus can be gotten rid of either with acupuncture or hypnotherapy. I prefer the hypnotherapy way of doing it. Pood

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Thanks - accupuncturist helped me through the worst, when I could barely walk, will investigate for the incessant ringing!! I don't know why I didn't think of him.

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Carlene~so far nothing with Prolia is permanent except death and you are not going there. You can get rid of the ringing in your ears with acupuncture or hypnotherapy. They both work well for this. In the 5th month you should feel pretty normal and at the 6th month be well again. It doesn't work that way for many of our members but you, not them, so go get the ears done and you will be fine if that is your only complaint. Also be sure to report it to the FDA. Be well~Pood

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I search websites for information about our bones in general and they say
from people who know that we do not need all this medicine for our bones
because they mainly take care of themselves, yes they do thin with age
but our body has a way of protecting the bones. I am still having the rash and coughing but they are getting much better.

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I had my first prolia shot just over 3 weeks ago I am 53 and wish I never had it. I am so tired and fatigued, in sever pain, headache, not hungry confused and unable to look after myself. I would never recommend prolia to anyone. I live in Australia the heat affects me badly. Help what do I do?

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Wait it out & NEVER have another shot!

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