Prolia Side Effects (Page 41) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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I had a Prolia shot on January 20, 2015, I am still having problems. I have been taking 5mg Prednisone daily and it keeps me more or less comfortable. When I try to reduce the dose the pain and stiffness and blisters come back.
I wish I could give you better news. It really depends on the person. You may be okay in a few months or it could go on for a while.
This is a terrible poisonous drug. If you do have another injection the symptoms you are having could be much more severe the second time around. That is what happened to me. I have had two Prolia injections. My Dr said no more. Another could kill me.
Good luck, Carolyn

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my pain and soreness around my ribs and waist has continually increased since my prolia inj. of 8.20/15. My shoulders and shoulder blades ache as they never have before. My gait is getting more and more unsteady, even though my PT and spine surgeon told me to walk everyday. I am afraid I might totally fall over. My energy level has also decreased with the walking - when it should indrease, and my legs feel like heavy weights when I walk. I have never had this problem before the injection. My insomnia was gotten no better - another side effect of the prolia and I am basically miserable.

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Ann, I asked my Psychiatrist yesterday: "Is Temazepam is addicting" and he said not at all! It's a very safe drug. Be well~Pood

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I had a prolia injection in March and shortly after wards developed a pain in my right hip. This made climbing stairs etc painful and then I noticed similar problems with my left hip. I now have what appears to be a frozen left shoulder with which I am in constant pain and concerned that this will spread to my right shoulder as I'm having twinges of pain here too. I had ME many years ago and suspect I have a problem with my immune system .I refused to take my 2nd injection and bitterly regret having started on this nasty drug.This drug does not suit everyone and I was not offered any information on it before being given it.I am particularly concerned that my symptoms are getting worse yet it is over 6 months since the prolia injection. I would be interested to hear from anyone with similar experiences.

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Went to see the doctor who prescribed the Prolia injection again and also visited another doctor (she also give the drug to her patients) that telling her my skin problem and the uncomfortable feeling that I am having, numbness in toes, fingers, itching in the skins etc. Both of them said it should not be related to the Prolia as their patients are doing fine with the Prolia. I said I got all these right after the injection as before my skin and health was pretty good. No help was given by them - seems like I have to cure myself by trying our own way. Quite hurting after seeing all these doctors.

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Carolyn: I feel extremely bad for you and I know exactly what you're going through. That's exactly how things went for my dad from the time he got the infusion in August until he died in April the next year. He had flair ups of things he'd never had before in his life starting the day after he got the infusion and each new day another problem would pop up. He would go for about a week with no new side effects (just dealing with the ones that had happened) and I would only hope that was the end to the side effects and I would hold my breath and then all of a sudden more problems would crop up. I'm not saying this is a timed release drug but I sure am saying that's how it seemed to work with my dad. So sad. My heart aches every day thinking of all he went through. I will think of you every day. Dad barely ever walked on his own again in his life starting the next day after the infusion. I have previous stories on here starting in October if you would like to read them. Best of luck.

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Victoria~ Price Temazepam without insurance. You will find it is really quite cheap. I fail to understand why insurance companies believe it is an expensive medication. Forget what insurance pays for and pay for it yourself. I promise, it is not expensive in the least. My Medicare Part D has it listed as a Tier 4 drug and that means really expensive. I buy it myself and it's about $15. Call your pharmacy and ask and you will find out I'm correct. Be well~

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Yes, Elizabeth. Prolia does tamper with the immune system. I have had severe infections from it and also an autoimmune disease that's new with Prolia. If you had something in remission, it will once again present itself when you are on Prolia.
Be well~Pood

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Canadian~Drs. do not understand Prolia yet. It's too new. You will have to find a friend that has a printer hooked up with their computer so you can take the written list of side effects with you when you go to the Drs. They would love for it to be just you, but we all know it's not just you. It's all of us and it's all from Prolia. That is the only way they are going to believe you. Be well~Pood

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It seems as if my diarrhea was viral and because of a impaired immune system it lasted much, much, much longer than it should have. Dr. said about 3 days and mine was about six weeks but now getting very well again. Maybe some day in the far future Doctors will know how to deal with the side effects of Prolia. Soon will be the start of my 6th month so hopefully 99.9% of it will be gone from my body. Be well~Pood

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Next week I am seeing a neuroscience Dr. My primary Dr referred me to a heart specialist after complaining of fainting, dizzy spells when standing and walking, leg weakness, loss of strength, body aches, increased headaches and migraines have increased all over tiredness, my jaw seems to be moving. By that it seems like my mouth feels more comfortable if I slide my jaw forward so bottom teeth are protruding in front of upper teeth ( I only do that when no one is around). I also found that you ca t have dental work done while on prolia. Back pain is the worst so it's makes it very hard to do much house cleaning. Also there is pain in my right ankle sometimes when walking that feels like it will snap and break if I bend it while walking and just plain feeling like I'm dying from the inside out. I am 70 and have always been very active........until my last Prolia injection (my 4th and last), that is when I figured out that it was the Prolia!!!! With each shot all symptoms progressively got worse. My Dr. Assistant who gave me my last shot told me that the other patients who started Prolia months before me, most didn't have good results. GREAT, I thought as she is injecting me with this poison. So now it has been 3 months since my last and final shot and it was time for my yearly mammogram and bone test ( haven't had bone test in 2 yrs because Dr said need time to show progress). Well it came back as no change from 2 yrs ago. Probably because 3 months ago he increased my D3 to 3000 iu daily (I think that is unsafe amount). Anyway, even if my feeling bad went away today it has cost me almost 2 yrs of my life, maybe more because this last shot isn't over yet and I believe many of my side effects will continue because they just seemed to intensify with each Prolia injection. No more for me. As to seeing the neuroscience Dr. That is yet to be seen. Not sure why I'm referred to him as the heart Dr said it's just so "we" cover all the bases......What the heck.

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Poodle! Good Luck in hopes of the stuff being out of you on what many health care professionals have led people in to thinking that "it'll be magically gone from your body in 6 months" I have stated this in my previous posts starting back in October. This is just not true for SOME (most) people. According to the pharmacist at the FDA, The drug itsself might be gone but NOT the side effects. I post on here in hopes of helping others spread the word as to what can possible happen based on what my poor dad went thru. Hoping to have people give some serious thought before getting the drug. I sure would like to know how some of the people are doing today who posted on here 2 or 3 years ago and were sorry at that time that they got the infusion of Prolia because they were having trouble. I'd just like to know, are they better?, are they worse?, in nursing homes?, what happened to them? Please DO keep us posted.

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Anne, I have the same reaction to Temazepam. I take 30 mg at bedtime and another 30 mg when I wake up so I can sleep through the whole night. On rare occasions I may get through a whole night but usually not. It seems to be overly stubborn with Prolia. Be well~Pood

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You are a fortunate person not to have any side effects from prolia. I for one have had every one there is from this nasty shot. NEVER AGAIN - NEVER AGAIN! It has attacked my immune system, not to mention the severe pains in my thighs, hips, & groin. I can barely walk from pain. The muscles in my legs have gone haywire & are very painful. At night I wake up with leg spasms & hurting so badly I cannot sleep. I went back to the Dr. that prescribed this to me & of course his first suggestion was to give me a pain med. I wish all Drs. were required to take the injection prior to suggesting that a patient take it, then he or she could actually feel what it does to you. I am 3 months in & the pain gets worse with each passing day. NEVER EVER AGAIN!!!!!!!! Again, you are a fortunate person & wish you the best the rest of the way.

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Marilyn ~ As to the jaw problem. Some people have had braces put on their teeth to hold everything together until the Prolia is over. It's on a different Prolia page on this same site. I think there are about 8 threads going now about how horrid Prolia is on this website. I've even been having nightmares about Prolia. Be well~

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I had the injection on 9/25, the next day I started having all the side effects. Dizziness, weakness, Skin problems - itching, rash, muscle pains, stomach pain, sprams, chest pain, feel like short of breath. Taking high dose of vitamins make my stomach more worse. Those side effects still come and out everyday and no sign of stop. I hate myself I was so stupid taking this poison stuff. The doctor who prescribed me this shot denied all the side effects from Prolia. Yes, I agree that the doctors should take it before they give the shot to the patients.

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yes, RM, I've passed the 'magic' day and so far all of the side effects except for two are all gone. I'm still losing some hair when I brush or shampoo it. I also still have the autoimmune disease it gave me but other than those two, I feel good. I 'think' the autoimmune will cease in about 6 more months or so. I don't believe it's going to be a lifetime thing like the Drs. want me to believe. It was caused by Prolia so it will eventually work it's way out of me. I went on a plane trip to a large city and caught nothing so my immune system must be coming back around with so, so many people in the airports and in the planes. There is life after Prolia and I can say I'm really happy to have most of it out of me. There is never an end to a half life so there will always be a cell or two of Prolia in me but not sufficient to cause any problems. My surgeon has me on antibiotics for one solid month. Does not want to take any chances even though I'm 'technically' free of Prolia. Happy Pood. I know what the rest of you are going through as I had everything Prolia had to offer and some others that were new to Amgen. There is a good life after Prolia. I promise!! I also found my bone scan. It seemed that the Salmon Calcitonin worked pretty well. My T-scores went lower in most areas so it should be a good one for when everyone gets this poison out of their bodies. It's not fast but it works and doesn't harm us. Be well~Pood

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Yes, RM, on Amgen's site they state that is a problem some people have with Prolia. As our MD's don't understand Prolia well yet as it's too new, please take a printed list of the side effects with you to your GP who will then refer her to a cardiologist, just to make sure it is not her heart as Prolia causes an infection in the muscles around the heart and can also cause very high cholesterol. The cardiologist should do an echocardiogram and have her wear a Holter monitor for 24-48 hours or how many days it would be needed as it records exactly what the heart is doing. As far as I know, there is nothing they can do for it but they do say it is serious and to get help immediately. If you cannot get into your family doctor quickly, go to the ER as Amgen does state this is a serious problem. After you do this, please report back so others will know. Hoping you have a printer with your pc or one of your children does. Wishing the best for her~Pood

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RM-I just read what Amgen writes about Prolia and her symptoms. "Prolia may lower the calcium levels in your blood. It may get worse during treatment. …. but some people have symptoms such as: Spasms, twitches or cramps in your muscles. Numbness or tingling in your fingers, toes or around your mouth". CALL YOUR DOCTOR RIGHT AWAY." This means she needs to have a calcium test and the Dr. will prescribe the appropriate amount of calcium and Vitamin D she needs. She is apparently not getting enough. Hope this helps~Pood

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Hey guys! Keep on posting about how you are! Hope everything will be back to normal!

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

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I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

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I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

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Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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