Prolia Side Effects (Page 149) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Lizzie (# 2513)

There is something much better than the oil. It's legal in the USA in all but 4 States. It's made from tree leaves in Malasia, Thailand and countries in those area. It acts exactly like a high powered opioid but we cannot OD on it and it cannot cause us harm. It has zero to do with the hemp plant. It's far, far superior. Also wonderful for anxiety. Just be careful when starting it and only take 1/4 teaspoon until your body gets adjusted to it and from there you can go to where you need to be for total pain relief. I started it yesterday. Slept 10 whole hours which was a wonder. First time in years on end. You can also take it to quit an opioid since it's herbal and needs no Rx. Be well~

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I am looking for dialysis patients who have osteoporosis and who have been prescribed Prolia from the nephrologist. What are the side effects?

My nephrologist wants to prescribe me Prolia for my osteoporosis. I also have anemia, high blood pressure and use thyrax for my slow thyroid gland.

Thanks in advance.

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Re: Poodle (# 2526)

Going to see if I can locate this. Having another flare of the hip pain from the shot - - it rose up so quickly after the first injection - - thought it was conquered. I can hardly walk!

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Re: Diana (# 2528)

Good grief! I sure hope it is not gonna be a broken femur. Back problems can show up in the hip from a pinched nerve between the 1-2 or 2-3 vertebrae. The Rheumatologist gives it an injection of Pred. and that pretty much ends that HOPEFULLY!!!!!

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Re: Poodle (# 2533)

Sherry what kind of side effects do you have.i am having more bonedamage then ever.

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Re: Lynne (# 3)

I went off after third shot did realize I was having side effects at first because I. Had knee surgery. Now bed ridden and more fractures.

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Re: sal (# 2525)

I am digging for any information on thishorrible Drug. Many are not told. Had trouble from the beginning now bed ridden.

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Re: Sherry (# 2538)

Bone and muscle pain, joint pain and swelling, fractures to name a few.
Musculoskeletal pain is nothing new for me, but this was worse than anything I have ever experienced. For a time, I had Hypocalcemia and hyperthyroidism. Also had skin rashes and fatigue to name a few more. I quit after the second shot.
Oh, and I gained 18 pounds, probably because my body was so inflamed. Some of my joints are permanently disfigured.

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Re: sal (# 2539)

Did you connect your Thyroid problems to Prolia? I have just been diagnosed with Hypothyroidism after about 5 or 6 Prolia shots. The problem could have been present earlier than recently because I was not told of any problems with my thyroid until a recent change of doctors

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Re: SYLVIA CRABBbird (# 2522)

I also had the mouth ulcers ( inside my mouth).. ongoing bouts ever since I took Prolia... never before.

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I, too, am still having bouts of mouth problems...stinging when I eat anything spicy, even salt can irritate. I'm curious to know what you do to help this problem. I've tried everything. The only things that soothes it are cold, like yogurt, ice cream, etc. I tried a herpes prescription but it upset my stomach, so I just live with it. No fun!

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Re: Judy (# 2542)

Same with me. Ice cream is my go to soother, but now I am gaining weight.
When J am home, I swish my mouth with coconut oil, then spit it out.

At night I use Xylitol discs.

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Judy (# 2543) --

Same for me. The most soothing thing I have found is ice cream, unfortunately it causing me to gain weight. Now, as much as I can, I swish Cocanut oil around in my mouth. At nighttime, I use Xylitol discs and I find that soothing.

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Re: sal (# 2546)

I can't thank you enough, Sal. I wasn't sure they were available in Canada but I finally found a place nearby (Walmarts!) that ordered some foe me. Hallelujah! Hope they work for me. I have been using Mi Paste in trays at night which is some help but also very pricey at $20 a tube. It also doesn't last through the night.
I'll keep you posted on how I find the xylitol discs!

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Judy (# 2547)

Good luck to you. I hope it is helpful.

Be well.

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Prolia is denosumab, a drug used to treat cancer! I was not told that is was a cancer fighting drug when I was given it for osteopenia. Seven shots of this form of Chemotherapy for a very mild case of osteopenia. It has been a nightmare for me, and I am battling the side effects of it right. My last shot was in 2015, and it is still in my body. Fighting nerve damage from this drug. Have to see a neurosurgeon because of prolia. I am still hoping for a lawsuit against Amgen. Although, the way I feel right, I may never live to see one against them. As I have stated so many times, FDA needs to become involved in this drug. A deadly drug!!

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Judy (# 2383) --

My doctor said none of his patents had side effects too. Well I do but he feels it's not from prolix but I'm sure it is. Every time I have gotten a shot my side effects are a little different and a little worse. I have had my last shot. I just pray there will be nothing worse before it's out of my system. I started with jaw pain but not constant and it got less as time passed until the next shot. Then I had extreme breathlessness but thankfully that went away after months of feeling horrible. But now I have pain in my lower back, hip and groin. I am praying it will go away as the others have. My doctor never told me and I didn't see anything about getting worse if I quit getting shots. Guess it will be a crap shoot when I quit. I think it is horrible that it is still on the market.

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Re: Lois (# 2550)

They all say that. I can't believe they are all on the take, but they just believe
whatever the Reps. tell them; just all those Dr's who prescribed addictive drugs because they believed the drug companies. I may have been just a low-key nurse, but I knew they were addictive. I digress, but my point is, they appear to blindly follow what big pharma says and ignore patients.
Have you seen the new Prolia ads? They are admitting to more side effects.

Your side effects are similar to mine, it took me a year to be relieved of most of them; some are permanent.

I wish you good health as you rid yourself of the toxins.

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Re: sal (# 2552)

I haven't had my calcium level checked yet but will do that, thank you. It didn't stop my hip and femur bones from getting worse. I am in the process of moving so I plan on going to a DO rather than a MD. They are more about diet and lifestyle rather than meds even though they are MD's.

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Re: Lois (# 2553)

Jaw pain and top of the thigh pain are common Prolia side effects. My first side effect was jaw pain, but I also had Hypocalcemia.
I agree about DO's.

Best wishes in your new home.

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