Prolia Side Effects (Page 109) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Skittle~it is here now. I opted not to take it. I just did my 'own experiment' and when I chowed down on Mac & Cheese and about 5-6 cookies I was really sick. The next day I ate no gluten and had no diarrhea or vomiting. Why waste money. It left when the Prolia did but my Doc says it's only in remission. How can something I never had before and disappeared with the Prolia be in remission. It just doesn't make sense to me.

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Been having bi -annual prolia shots since 2011. No problems until May 25 2016. WHAM! within 8 hrs-. Severe PAIN IN left shin.( I'm familiar with pain. Had 4 joint REPLACEMENTS) Prime MD ordered ultra sound, xray (ok..so far) & proscribed prednisone. Worked on shin pain ( severe) after abt. 10 days. Have been so fatigued and weak and sickly since onset. Usually am moderately active. ALSO, unusual edema in both legs, ankles, feet. MD has ordered numerous thorough Lab/blood tests. Ok. Until this week (July 12'16) have been using walking cane. Still debilitated. Wonder if I will ever recover?

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Anti Prolia
I had my second and last shot of Prolia in Jan 2016. About 5 days afterward I had a slight pain in my right groin area. It kept spreading to my hip and thigh I had a lot of tests done and found out I have a fractured femur bone. I might have to have a rod put in. I've been using a walker and cannot drive.i have also been badly bloated with weight gain. I know it's all from the Prolia. My weight has been the same for a long time. I hate it. I will not take pain pills for the severe pain. Is all they do is make tired. I see my Dr next Wed. And I'll take from there.
Good luck I feel for you.

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Pood I have not heard of it comimng here yet, do you know the name of that test? I've forgotten now. I do prefer to have this confirmed now because I'm having multiple issues and it may help in my treatment. That is weird that your doc says you still have it. Were you retested to see if you still have it? once you have an autoimmune disease it is vey very rare for it to go away. But since it was caused by prolia maybe it's possible.

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Skittle~it's just a blood test to check immunoglobulins. They are part of what makes up our immune system. When they get messed up, autoimmune disease happen. Mine was IgA -- which meant I was allergic to wheat, barley and rye. It's called Celiac Disease. After the Prolia went 'poof' mine went into remission. I lost 65 pounds in 3 months, totally unable to keep any food in either end. I was barfing it up or if it managed to get into the gut well it came out like water. There are 5 that we have and any one of the 5 could cause you big problems. It has to be sent to a speciality lab for reading the results, not an ordinary one that does most of the blood work. The immunoglobulins in turn, make the T-cells and T-cell helpers that seek and destroy foreign invaders in our body. When they get messed up, they attack the body. Just make an appt. with your Dr. and tell him or her that you want this test done and to send it to the appropriate lab. You should have the results within 5 days. Easy, huh? And, then you will know. I also requested T-cell test but was told they can only do that if there is a high suspicion of HIV-Aids which does not include us. Hope you get some answers soon! Hugs~Pood

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Pood I have type 1 & hashimotos and Ive the testing for autoimmune diseases etc. I have been tested twice for celiac once years ago- it was negative. And once after my type 1 diagnosis again negative. But that time I had stopped eating gluten for 4-5 months due to my reactions to it. So I do t know for sure if I have it. Some people don't even have symptoms but their organs get damaged over time from it from eating gluten. What I was saying is there is a new celiac test in Australia which is supposed to better and more accurate because you don't have to eat gluten for several weeks at least for it to be accurate. I want to have they test because I'm not going to start eating gluten again. Also supposedly the only way to really accurately test for it is to do a biopsy with upper endoscopy. It looks like I'm gong to need that soon anyway. But I hope not. I'm sorry you were so sick that is horrible. (( hugs)). I hope you have a permanent remission from it. Do you eat gluten now?

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I forgot to say that I had the T cell testing for type 1 in a research study I was in and I do have the T cells that kill off the beta cells which make insulin
As well as theantibodies for type 1 that was tested in the hospital when I was in DKA.

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@Skittie. Yes. We have it here too. My Dr. mentioned it but I did my own test -- I pigged out on mac and cheese and numerous cookies -- wow, was I sick. The next day I ate no gluten and the food stayed in. There are other ways of knowing if one has it too by fingernails and I think maybe goosebumps on the skin of the behind. It can cause damage and a person would never know it until it's about too late. Prolia is very good at causing autoimmune diseases. Hugs~Pood

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Thanks Pood, goosebumps on the behind? I've never heard of that one lol. I had an endoscopy. They did biopsies in two inflamed areas. One was the duodenum where they do celiac biopsies. Hopefully they can tell from that but some people told me if you're not eating gluten even the biopsie may not show it. I've learned et 14 pounds and I'm pretty sick- having trouble eating and Bg crashing when I eat so there's no way I'm adding in gluten to the mess. Even a tiny bit in the hospital made me worse. Also pwc told me I'm not gluten free because my family eats gluten I'm getting cross contamination. So now I'm putting all dishes in the dws on sterilize. I'm going crazy trying to avoid it. Well I tried to adopt a Siamese kit but the one I wanted passed away. It will be Nov prolly before I get a baby boy. So sad. None of my doctors know how to help me. I'm eating tiny meals food ground up with shakes and very low carbs and almost no insulin but I'm getting nausea bloating pain etc. if I eat too much or sometimes not. Bg is too big most of the time and the. It crashes if I don't eat enough. I keep dreaming about my life before all of this hell. Wish I could go back to my old life. I looked at a golden doodle in a pet shop- so cute but very expensive. Hope you and everyone are ok. Hugs

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Everyday my chest is on fire from indigestion, told my husband I can't live like this, just want to get out of my body. I am going to Gastro on Friday but I don't think there is any hope he can help me. I am on prescription meds for acid reflux, but he won't up it because they cause bone loss, so it is a vicious cycle that I want to get off.

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Skittle~T cells that kill insulin doesn't sound good to me at all. They should know with the endoscopy if you have CD or not. Prolia causes such an array of problems it is difficult to pin point what is what without ALL the tests. November will soon be here. I cannot believe it's already August. You have that baby and he will help you get will and give you an excellent reason for keep going in this horrid world we have of post-prolia. Keeping you in my prayers. Hugs~Pood

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Thanks Pood,

I didn't take prolia thank god because I'm sure IDE be dead if I did. This is all happening from autoimmune diseases I already had. Your 1 diabetes U.S. An sutoimmune disease where your body stacks the beta cells in the pancreas that produce insulin. It mistakes the best cells for an invader and produced T cells to a stack them. Same thing for hashimotos which I have also- the thyroid is attacked. I just hope not going to add celebrate av to the list. I'm not so sure about the biopsy because people with celiac said if you eat even gluten light and not gluten free your digestive tract can heal and it can be hard to tell. I will just have to go gluten free somehow avoid the cross contamination and see if it helps me. Some people don't heal from gluten free but they do prevent further damage. Yes I hope I get my baby boy at the end of October. I have never had a purebred cat, I just get my babies from outside or shelters. @ Sheri try pepto bismal that helps reflux pain a lot. Eliminate all acidic foods, fat and anything irritating from your diet. Eat soft, soothing foods. I'm back on a proton pump inhibitor which has helped too. Drink lots of water, I mean tons. Hugs to everyone. <3

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@Skitty~Rheumatologists are supposed to work with Drs. that work with autoimmune diseases. They have the people with HIV-Aids well taken care of so I'm sure one could help you too. I think she called them "Immunologists". You definitely need to be referred to one to get your body back to it's original condition. We don't even have one. She sends him the info and he sends her the treatment plans. Have you been on that route either. The net has some really good recipes for GF foods and there are GF crackers, etc. at the grocery store. I still eat the crackers because they are so very good.

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I gave terrible GERD and reflux from my Prolia.mayo clinic suggest
RANITIDINE- it doesn't work against calcium .... I was on Dexilant but was taken
"Ranitidine is in a group of drugs called histamine-2 blockers. Ranitidine works by reducing the amount of acid your stomach produces. Ranitidine is used to treat and prevent ulcers in the stomach and intestines. It also treats conditions in which the stomach produces too much acid, such as Zollinger-Ellison syndrome.

This helps me- not as good as Dexalsnt but it works-

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I had my second Prolia shot the first of june and a week later started with a rash. Thought it was from plants. Got a shot of Benadryl helped for 4 days and then started with hives and now I am cover with them. Had 3 steroid shots can't have more. Did a another pack of pills. stopped and came back soon as they were gone. Now the allergist wants to do test for allergy, never had a allergy to anything. Have been reading the side affects of Prolia and I have many. The hives are in my face now, which scares me. I am covered with them from head to toe. Going to see the Dr that gave the shot and I am not taking it again. Hopefully there is something that they can give me to take the hives away, I have until Dec to go. So scared!

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I had itching and hives- of all my side effects from Prolia, the allergic reaction to it was the only symptom doctors really cared about . Is it getting worse? Sounds like you are very allergic to Prolia...please see specialists that you need! My steroids for terrible respiratory infection were halted due to Prolia issues about calcium depletion...
Crazy...

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Jan~unfortunately Prednisone is the only thing in this world that fights that Prolia rash. Is that the steroid you were on before? Pood

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@Skittie~yes, Golden Doodles are expensive and top that off with grooming charges as the Poodle hair is like ours and keeps growing and growing and growing. August now so soon!! You will get through this horrid nightmare. It's a sin that Doctors do this to us and leave us out on the clothesline to dry~Hugs~Pood

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Skittle~also Celiac people have ridged fingernails going across the nail, not up and down. When I was on Prolia and off of gluten I had fabulous finger nails. Only decent thing I can say about that poison. I thought it was genetic as Mom had them too and maybe in the end it was and she just never really got sick from it and mine was far from what I would call 'normal' since the food was coming out both ends at the same time. She had been to a dermatologist and he didn't think it was anything bad. Pood

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Never had any problems until 4/25/16. Had been taking biannually since 2011. VERY painful along left shin, FATIGUE, EDEMA. NOW -edema and some fatigue. Ive had lots of medical tests, lab reports, etc

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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