Prolia Side Effects (Page 110) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Its pretty much over now, but I itched terribly the whole year after the Prolia shot. I really thought I had body lice or fleas or some sort of creature living under my skin, you could see the little roads under my skin where I scratched so hard. When I told the doctor that the Fosomax I used to take did the same thing, he said that no one else has complained about itching and that it wasn't even a symptom listed on the web site. I don't know how much the doctor makes per shot, but my doc was almost begging me to please just try 3 years of shots.

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Thanks Pood, after my rheumy visits where he flipflopped his views from asking if I was going to go surgery for parathyroid to your not primary the second time, the acceptance of pharmacy dollars etc. I'm done. Also no resound to my second high 24 hr urine calcium. Right now I'm doing nothing for O. Too many other things going on. I doubt those docs can help me, none of them have helped me with the digestive issues. Just refer me to gi to doc who refer to endo is etc my pump rep gave me some tips. Most have no clue how to gel me it seems.

Im a little better the past 3/4 days but Bg is too high most of the time. Yes golden doodles are too expensive for me lol. Think I will stick with my siamese Babyboy and maybe rescue a doggie eventually. I saw a gorgeous Australian shepherd mix at pet smart today with her person she was soooo sweet and beautiful. Very smart. Wish I could have one her syblings. They all came from Texas. Her name is Bella. I knew she as special because she looks at me as soon as I walked in the door and told me to come say hi.

I have vertical ridges on one of my big toenails and one was crumbly without fungus.y endoscopy said I have mild chronic inflammation in my stomach I think. The mucus in the duodenum was ok so it is net for celiac. I don't trust it since I was gluten light got so long so I'm sticking with avoiding all cross contamination. It seems to be helping me.

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Mem sorry you're going through this. Hugs to you. I hoe it gets better soon.

Pood, I always fall slept after I eat dinner. Turn wake up and can't sleep more till 4/5 am. Today I was up early and no sleep going to try to sleep now so no wrk etc.

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That's great Jan. I saw Quell advertised and I was thinking of trying it. Is it covered by ins at all? I've had chronic pain for years and maybe it will help the other issues too.

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Pood, celiac is strange because some people become violently ill and others had no symptoms at all with gluten exposure but they do get damage too. My pump rep said even if I'm not celiac it could still be a gluten sensitivity which is real and which is affecting my digesting and everything else. I would think celiac caused by prolia would be different.

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Quell is not covered by insurance because Quelk wanted it to not require an RX or doctor appointment. From a car accident several years ago I had a tens unit covered by insurance- my out of picket was $10 a month for electrodes and I paid $175 out of picket for the unit. It brought some relief but only to targeted areas. The quell works on the nerve in one calf that disrupts pain in the rest of your body. I am still amazed at my pain relief...

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Thanks Jan, I'm definitely going to try it when I can get one.. I have lots of pain and it's hard for me to take painkillers now with my digestive and diabetes issues. I hope it works for me too.

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I have a tens unit too.. I think my insurance paid for a lot of it and I get the site pads cheaply at amazon. I don't change them very often. It does help me a lot but I can't walk around with it everywhere although I did used to wear it on the train after my first injury. Now with all the disc issues and everything I hope this will help me too.

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@Skitty~it looks like it is making itself known to me again. Why? I don't have a clue. He also did a TSH test which will help tell me about the hair loss. I've been very ill for a month so decided to go GF today and I feel fine. Apparently, that which Prolia causes never really totally goes away....it lingers in us for an opportunistic visit. Isn't that a lovely thought for the remainder of our readers. I wonder how long I have to stay GF this time. Totally ticked off~Pood

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Pood, so sorry to hear you were sick again what is GF?

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I also had my one and only Prolia shot in January of this year...this is what I've experienced the last 8 months: Fatigue, dehydration and leg pain first of all, then a spot on my back(not a mole) was found to be melanoma in March. I then had 2 UTI's in May and June(NOT prone to them at all)in the following months. Now I have shingles! It really makes me wonder what Prolia has done to my immune system and what else is going on in my body because of it. I know this is not a coincidence as I've done nothing different.

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Treva~your immune system will be lessened ONLY for the time you are on Prolia. When the Prolia leaves, your immune system will be rebuilding itself. I just found out yesterday that autoimmune disorders leave with Prolia but can reoccur again at any time for any reason. Is leg pain cramps or pain? If it is pain, itself, you should be X-rayed or CT scanned to make sure you are not getting a break. Ever so sorry about the Shingles. That is real pain I never want to know. My Grandmother had them badly and they hurt her until her last day on this Earth. I know Docs can do more for them now tho. Hang in there. You will make it! Be well~Pood

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Sheri-GF means gluten free. I can only eat foods made with rice flour and cannot even sniff anything with wheat, barley, rye, etc. Am allowed rice only. It's irritating because the stores mark the GF food up 4 times to take advantage of those of us that cannot have ordinary food. Just came in to look up my Dr's phone number to tell him he will know for sure when the test comes in. I already know. Did not have the constant vomiting with this one tho, just severe diarrhea. Miserable Prolia poison. Hope you are doing better!! Mama Bear

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Mama Bear I feel so bad for you, I am still have issues with my acid reflux, this week going for 24hr study. They stick tube down my nose into my esophagus . I wear a monitor, for years I have been taking medicine for it and that medicine causes bone density loss

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@Skittie~Celiac Disease is one thing and an allergy to wheat products is another. One can have one without the other. Prolia causes autoimmune diseases and they are no different from any other autoimmune disease. Does this make sense to you? Hugs~Pood

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After a miserable mess with Prolia, and then 17-18 mos. later being diagnosed with thyroid disease, and having just now come back from Tampa where I had minimally invasive surgery to remove tumors from Parathyroid and Thyroid, I have some good news perhaps for some people. The tumors have gone to labs for a check on cancer. But all are out - had a sistimibi scan right before surgery. I'm tired, long long drive, but feeling good - all pain from bones is GONE! And a lot of other pain. I'm on calcium for about two weeks until the remaining healthy parathryroid glands kick in, then I can cut dose way back. Most patients regain a good deal of bone density within two years I'm told. So I'm going to Primary, get scheduled for a DEXA with plans for another in two years. Have some strength to regain, and hope to be back in Gallery on duty in about 10 days or two weeks. So, I'm wondering - - did the Prolia cause the tumors? I may never know. I've got a feeling -some drugs that are made to treat cancer, could they possibly cause cancer? I think Prolia's cancer treating name is Denusumab - Poodle, do you know? All I know was when I took that Prolia everything in my body went crazy. In fact, the right hip that was not allowing me to walk after the shot, and was diagnosed as burstitis, and eventually allowed me to limp around, quit hurting totally, as did my upper arms, after the PT and thyroid surgery. So, I guess an overflow of the PTH from the parathyroid is what was wreaking havoc through my body. As I related my history the surgeon was just shaking her head. Is the nightmare coming to an end? I hope so.

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Hi Diana~I'm so happy to know that all went well. You have been in my prayers old friend. We have cancer cells in our bodies all the time. It is the job of our immune system (T-cells and T cell helpers) to seek and destroy what is not supposed to be in our bodies. As Prolia diminishes a lot of our immune system, it cannot do it's job correctly and cancer cells are allowed to stay and multiply. Thusly, we can easily get cancer. It reads as if you are now a totally renewed person from the one before the surgery. Unfortunately, MD's will not check our T-cells or T-cell helpers without a high suspicion of AIDS. We just have another one here that just got melanoma. Denusab is just a generic name from Prolia. It's twin is Xgiva that is used for cancer and has a lot more of the 'active ingredient' (Chinese hamster ovaries) in it than does Prolia. I 'think' Xgiva is for bone cancer only. You have just made my year by coming back so well!! Now that you are feeling well, find us an attorney! You could hardly even walk before. This is truly amazing. If people here knew what I know, they would say it's a miracle and it truly is. So very, very, very happy for you. Now back to art, gallery and life as it should be lived. I'm so happy you went with your better judgment to the best surgeons. Hugs~

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I hope your story of Prolia is ending in a heathy chapter...sounds like you are moving onto an exciting new chapter...my mom had whopping cough X-ray treatment as a kid which made the thyroid and parathyroid go crazy and grow tumors and make her so very suck. After her surgery it markedly improved. I brought it up to My docs but they said my thyroid was no connection to my Ostepoperoisis.... So glad you are feeling better!

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Hi Sheri~the anti-acids cause calcium to not be absorbed. For calcium to be absorbed we need an acid stomach. My Dr, had me taking calcium with any kind of Vitamin C as that is an acid so it would get absorbed. I was taking 600mg four times a day. When I just had my blood tested last week, calcium was a tiny bit high but not enough to worry about so I'm going to cut it down to 600 mg 3 times a day. My Dr. had a patient that was younger and her bones were falling apart and she had been taking the anti-acids for her stomach for years and years. I don't know which ones as I didn't ask but now I know the reason. There has to be something they can do for your tummy so that it is not overly acidic so your body can absorb the calcium you need and just drinking milk, yogurt, cheese, etc. is not sufficient. The testing should be painless as they spray it with a numbing spray so zero worries about that for you. Then, hopefully, they can figure out the reason for your current problem. I'm happy to know you are seeking out specialists. BE WELL!!!!! Diana is doing well now so I'll put you on my prayer list. Hugs~Mama Bear Pood

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Yes I know pood, I know a it all of them. I don't have an allergy. I either have celiac or I have gluten sensitivity which isn't an allergy and which causes similar problems as celiac such as inflammation which I have. I already have several autoimmune diseases unfortunately of which type1 is the worst. I also have been on acid blockers fur years but I don't believe they cause osteoporosis. My osteoporosis as I mentioned before happened in a 3 year period from 2009 when I went into full meno to 2012 when I had severe osteoporosis. And I was on hrt for 1:5 years of that time which helps prevent it. So something is very weird. No one goes from normal BD to bad O in 3 years. It has to be celiac, diabetes or primary hyperparathyroidism causing mine or all 3 or something else maybe. Wtf? I'm glad your feeling better Diana after your surgery at the Norman center. I just wonder if that is the case for me too. My muscle mass is waist get away and I've lost 14 lbs. Bg is high all the time or crashing. None of it makes sense. I feel like I'm starving to death. I'm excreting a lot of calcium in urine. I absolutely have to stay on ppi or my stomach etc. gets much worse, I can't eat and I end up in the hospital. I'm sure I'll get cancer if I go off those drugs. They told me to stay on my Meds after the biopsy results. Did you have a scan that showed tumors before the sestamibi? My endoscopy refuses to do one.

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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