Prolia Side Effects (Page 107)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Sheri~are you writing that your nails have separated from the Prolia injection? I wonder if that was why I was having so much pain with my toe nails towards the beginning of Prolia. I had breast cancer in '92. Chemo from that didn't seem as bad as Prolia. I would be sick in bed for a few days but then I'd feel okay again until it was time to go back to Denver for more. Pood

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Oh my Goodness Canadian~you are not well yet either? This is now 4 we have that still have nasty side effects from Prolia after it has been stopped. If anyone has a clue as how to help Canadian, I sure would appreciate it. She has had a worse than usual time with Prolia. My heart breaks for her. Pood

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Pood, I was just saying not using Prolia for breast cancer,my point was my nails were separating from nail bed and realized that it was due to Prolia because it is a chemo drug. Chemo drugs , same as when I was going thru Breast cancer .

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Hello everyone, can anyone who had experiencing the severe stomach reflux (swelling and acid reflux in the stomach),let me know will this horrible side effect leave your system automatical after the 6 months Prolia injection? Thank you!

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Sheri-Prolia can be used for breast cancer but, and this is a big but, they get an injection every month, while we get one every 6 months. If I had breast cancer again, I could possibly see it if my Oncologist recommended it but not for just osteoporosis. It's too much with too many and varied side effects. It's also so new, none of the Docs know what to do for us so we are left high and dry. Being so new, I doubt if my Oncologist would have recommended it. He seemed to be an overly cautious man to me.

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Anne~check it out first and make up your own mind if you want to take it or not. It has had it's problems too but nothing like Prolia. Just be a very well informed patient and make sure you find all of the side effects. Poo on what the Dr. wants. What does Anne want is the real question here. You have not even got over Prolia yet and are already thinking of a replacement? Give your body time to heal. It's been to 'He double toothpicks' and back again. Worry about a replacement when your side effects go away and you feel good again. You need some quality of life in here somewhere. Be well~Pood

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And my GP told me to only take 600mg Calcium twice a day. Do I believe him or my body and my calcium tests. If people are on certain blood thinner meds they have to stay clear of K's in food or supplements. The new ones are not that way but there seems to be an overload of class action suits on one of them. I had one injection of Prolia on April 5, 2015. A day I will never forget and will always regret. Day one was fine and so was day 2 and then it hit like a ton of rocks. She knows better than to even bring up the subject with me now. I'm going back to Salmon Calcitonin. It works slowly but it does work and I don't lose any bone. It's all her fault in the first place as she had me on 10-20mg of Pred./day for one year and that did my bones in so she tried to mitigate her damage with Prolia. In how many ways can a Dr. go wrong!!! Pood

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my doctor told me to stop Prolia at all costs and take Forteo.

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Thanks Poodle,

I won't take any of those drugs- i'm sure if you have read about them you know they build up the phone density by building up bone on the old phone which causes your bones to be more likely to break! Not less likely… I have never had a fracture in my life in spite of being very active- falling off of horses etc. I have type one diabetes and Hashimoto's – it cost me to go to early menopause I'm sure. I did have a blood clot in DKA so I don't know if I'm going to be allowed to go back on low-dose HRT but that would be my choice if so. No problem saying no it's all of these drugs and I think you ladies should do that too if you value your house those drives a lot of them are made up of the same ingredient as laundry detergent! If you take calcium supplements and vitamins E make sure you were taking vitamin K2 as well because otherwise the calcium is going to go into your arteries instead of your bonus. Also it is better to get your calcium from FOOD not from supplements. If you were not on the poison pro Leah ready of course. My next-door neighbors friend separately I know she has horrible rash is all over her body since the drugs in your system for six months there's nothing they can do about it and of course The doctors deny any of the symptoms are caused by rolling out or the other drugs. Onj can be caused by the other drugs to not just by prolia- well this is Suffolk OK answer another horrible immune depression affects. There is no way I will ever take those drugs! I would rather die from osteoporosis. Mine is more advanced now they said however they are going to have to figure out what is causing it it is not just menopause. And I will do my best with exercise and the supplements I'm taking and possibly more hormone treatment to build it back up. have chronic pain and guards and a lot of other things going on and there's no way I'm taking any of those drugs because I know they will kill me! Please think long and hard before you take any of these drugs or any other drug that your doctor is recommending because I know they are getting kickbacks with these drugs my endocrinologist took over $100,000 a year for fake speeches so ladies this stuff is happening. Many of these people do not have your health status as their best interest- have to be your own doctor trust me.

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The same Dr who gave me prolia told 1500 mg of calcium was too much , so That is why I thought 2400 was just because of Prolia suffering, my finger nails separated from bed of nail, same thing happened to my friend who was on mega chemo for Breast Cancer it was then that we realized it was from Prolia, when I got my EOB prolia was listed as chemo. Unbelievable what these Dr's put us through

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Nancy, up above where our posts are there is a tan line -- kind of the color we write the replies in the white boxes. You will notice on the left hand side of that tan line there are arrows. The arrows indicate which page you are on, Right now we are on a very large number so click on the arrow that goes back a page (to your right hand) and read it and then back again. Janie had had about 3 Prolia injections and was sicker than a dog and it wasn't until the end of the last one she put 2 and 2 together and came up with PROLIA. That's why she calls herself "Wise Up Janey". There is good info from Canadian and Rrd as they had bad nerve problems with Prolia. There is a treasure trove of info in the back pages. Happy reading~Pood

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Skitty~you just wrote the reason you probably have osteoporosis or osteopenia. Early menopause. When we stop making estrogen, our bones start to lose density. You can treat this condition yourself with the correct supplements and walking or swimming in warm water. Drs are pushing Prolia really hard but it is not for the first time user of any of the osteoporosis drugs. It is supposed to be the drug of last resort - when all of the others have failed so keep that in your mind when you see your Rheumatologist. They are the Docs that really deal heavily in the biologics. Know when to say NO. I'd rather do xxxx first, second and third. If you do have a bone scan and it says you are really low, then go for Boniva (it doesn't last that long so if it doesn't agree with you, you're not stuck). You can go for Evista too if you have not had blood clots, etc. Check out all osteoporosis drugs on your pc and you decide which one you may be happy with IF YOU EVEN NEED ONE. That would be like putting the cart before the horse. You may want to mention that fact to certain people. Be well~Pood

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Victoria - EXACTLY. And, it agrees with my body as when I am tested I come in just a tiny bit high. Absolutely nothing to worry about at all. Have your blood tested after you do it because you may not be like I am. We are all unique but that's what works well for me. Be well~Pood

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Sheri~The calcium is only to build bone - we need it all the time, not only with Prolia. I had super bad muscle cramps and charley horses that would wake me in the night so I started on the magnesium. It was just a store brand and I think it was 500mg. Could not keep any food in my body. After my Dr. ran tests and found that Prolia gave me Celiac Disease and I switched to rice flour I got better -- I could keep food in both ends. In the 5th month I felt really well and had cataract surgery in a large city so you know I was feeling pretty darn good. That was one day before my 'so called magic day'. Then on Nov. 17 I went and got a new hip. Life with Prolia was a complete and total living Hell for 4 solid months. I cut my sleeping meds in 1/2 after the surgery and he will not take them away until I am one whole year post injection. Hair is starting to get some better. It's been 10-1/2 months and just in the last week it seems to be coming out less. I have been so very, very careful of it. In the beginning my heart was very erratic and I had edema and a pain like gout in my toe nails, it would change nails every day. Got checked out well by a Cardiologist and my Doc just said my toe nails must be very painful. Really helpful guy. Also got a diarrhea bug and I didn't get well within the mandated 10 days so he was sending me to specialists. Didn't even bother to think that my immune system was not working well. Finally, it killed the bug before I had to go to the specialists. This is why I continually say they do not understand Prolia. We are supposed to be like cookie cutters and all the same. We are not. We are all humans and everyone of us is different. Many of us get the exact same problems. Why did I get well by the 6th month and Anne here is still suffering??? What is different about her than with me? These are the questions we need answered and we don't get them answered. btw, Celiac Disease left when Prolia did so I'm back to 'normal'. Pood

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Pood , how long after you started 2400 mg of calcium and magnesium did you feel better , is magnesium oxide good or it has to be citrate

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I am so with you and sorry you had so many injuries but you are my mentor and I appreciate all your advice

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Pood, Are you saying that you take 2400 Cal +D a day? 1200 2X a day

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Victoria~ I've been taking mine that way too but the Dr. just suggested that I change it to 4 times a day. That really doesn't work well for me as I never eat lunch so maybe another glass of OJ for lunch too although mine is not OJ - it's Pom-Cranberry. I may continue on with my 1200's 2 times a day. Back when I had a lot of side effects I would have done as told but now I m/l lead my own life. Bad on me!! He's the only MD that told me the truth about Prolia. I really didn't believe it would be that bad but it was and far worse than we can accurately describe. He also wants me to take Merck's and I flat refuse. He maintains I will have zero problem if I sit up straight for 1/2 hour after taking it. I don't want to take a chance. I'm asking for my Salmon Calcitonin back. I would rather have something that works slowly but well and I have zero side effects. I've had enough of osteoporosis meds to last me a lifetime. Honestly, 4 breaks in my hip and one in my back were zero compared to Prolia. Breaks heal in 6 weeks. Prolia does not go away in 6 weeks. Pood

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Poodle, I take my 1200 Cal + D all at once Is that not good? Should I be taking 600 and 600 at different times of the day?

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can you tell me how to get to page 3 wise-up janie I can't find it thanks

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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