Prolia Side Effects (Page 102)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Thanks Poodle. You confirmed what my gut told me, but couldn't find the literature.

The implants are on hold. My body including oral and facial pain are way to flared . In addition, I went back to my old dental practice , the faculty practice at a major dental school. I was encouraged that there are other options, such as a night guard, and the possibility of a new partial. In the past, I never wanted implants because even minor dental work can trigger pain. All of this is on hold until the pain and spasm subsides.

Another issue about implants, at this point in my life, nearly 70, do I need to put $$$$$ into my mouth ?

Thanks again for your info. Continued good health.

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I just turned 70 and wondering about spending that much on implants but just can't stand these dentures so I am going to spend the dollars and get it done. I have one more month to get the implants and four more months after that to get the teeth.

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Since I have only a partial, I am not sure it is worth . Still, I have not entirely ruled it out. I am going to try other options first. Even more than the cost, it is the potential for all that work exacerbating my long standing condition; which had been in remission until Prolia.

Best wishes to you, Linda. Keep posting

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Linda~please read the note I wrote to Sal about implants. I don't remember how many you needed but it was a larger amount. They can do two implants and bridge the other missing teeth to the implants. There are no wires and other things to get in your way as with a traditional bridge. Start searching the net about dental implants and the cost and you will find the correct decision for you. Mine were for 2 and removal of 2 with sedation $4950 + $1145.00 + $450. If you lost your whole upper or lower teeth they do 3 implants and it is beautiful and looks like you have bright shining no cavity teeth. It's in a way that fits you perfectly and anchored in so no debris can get under them. My brother got one recently cheaper at his dentist's office and the dentist replied: "You know I am making no money on this" and my brother was very happy. He is 80 and I am 72 so yes, we do need our teeth if we want to eat more than cream of whatever soup and ice cream. They offered me the bridge because I have 1 that stopped Prolia from continuing on. I was stupid and declined. I would had have to have only one implant instead of two. There are sites on the net all about dental implants and how much they should cost with photos of each option. Read them and make up your mind what you want and they will accommodate you. The $450 was for a special X-ray they have that shows the live nerve in our jaw under the teeth to make sure it is in full placement so they know they can proceed. Get busy! Hugs~

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My dentist waits two years after last shot before he will work on someone. I didn't have to do implants...just bridges, crowns and a root canal.

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Thank you Diana. My implant issue is shelved for now, but what about filling replacements ? I have a couple that need replacing.

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Thank you for the input on the implants. My 4 months is up next month that my dentist requires to wait after pullling all of my upper teeth. I am getting ready to make an appointment to discuss my options and will ask about everything you talked about. I already had one implant and may get by with 7 more. Oh how I wish I had never taken Prolia.

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Sal~You can have fillings. No problem there. Crowns are a different story as are implants. I was told by my dentist to not come back until the side effects of Prolia were gone. They are 99% gone and I had the fillings done I needed and just a month ago I had two implants put on. I wish I would have researched it well on the net because I could have had only one more implant and the bridge that fits like a natural tooth and does not have wires and junk on it like regular dentists make. Today I went up for an X-ray and visual checkup and everything is perfect and I get my crowns on Sept. 18. He said I should have my dentist cast them now so they will be ready to put on me on 9/18. Check the net well to see what is the best option for you. Be well~Pood

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Thank you, Poodle.

Right now, my jaw is so tight the fillings are out if the question; but my mind is at ease for future reference.

On Friday, I will start P.T. for that.

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Since my second jab of Denosumab I have been having headaches and difficulty sleeping at night which is very unpleasant also depressing thoughts crowd in while I am trying to sleep.
I'm wondering whether to stop this drug and not have it next time. But how can I stop the osteoporosis without it? My vit D3 and calcium levels are very good and I walk every day and exercise.

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Jennifer,

This is a toxic drug. 5.5 months after my last shot I am still experiencing side effects. On fact, I was crying from pain last night. My head hurts so much the pillow caused pain.

Anyway, rather than take anymore of this, I am following an anti inflammatory diet, performing Yoga ( there are specific poses for Osteo.) doing resistance exercises and any type of exercise to stimulate bone growth. Also take supplements for bone support. At least I will resume my program when this period of spasticity passes. Right now I need to stop because of spasms in my hand.

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Sal~is there an indoor swimming pool you can use? Swimming is the best way to build up muscles/bone with the least amount of effort extended. Often our Docs will refer us to Physical Therapists and we get the use of the pool free because insurance pays for it. Something to think about. Also, have you tried a down pillow without a lot of down in it. There is one store in the US that makes the best down and there is no smell to it at all. Things to think about~Hugs~Pood

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Thanks Poodle,
Water therapy will be next. This is a shoulder/ TMJ issue and I want to follow this Doc advice for now.

I am open to the pool, but a therapeutic program. Medicare will only cover one modality at a time.

My pillow and mattress topper is a Cuddle Ewe. Pricey but worth it. It is wool batting.

Hugs to you,
Nancy

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Linda~this is a study I found on a well known site about Prolia and loose teeth.
" Loose tooth with Prolia. Based on reports of 47,512 people who have side effects when taking Prolia from FDA, and is updated regularly." I have not reported it, have you? The other drugs were very small numbers but look at Prolia!! That means there are more than the 47,512 they know about. Way more than I ever dreamed. The reason it is killing the roots to our teeth is due to the fact that our immune system is highly damaged while on Prolia so our body cannot fight this as it normally would have done without Prolia. In how many ways can Amgen's Prolia go totally BAD. Hugs~Pood

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I have not reported to the FDA but will tomorrow and think I will call the drug company too. I am sure to no avail, but it will make me feel better.

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Poodle, would you please tell me the website address where you found that you mentioned today about Prolia and loose teeth?

My 2 sisters have been diagnosed with osteoporosis and have been meeting with endocrinologists. One has very nearly decided to go on Prolia. It scares me to think about it. They've nearly decided to go with the science--the studies, etc.-- that says that the benefits outweigh the risks, and that the risks of the worst side effects are very rare.
Thanks!
~ pjwould

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47,000+ and counting???? A d this is only loose teeth!

Profits before people How contemptable

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Poodle, I saw the same report! I now have to have my front tooth pulled as it is loose and eating is most difficult, this is the same tooth that had an infection back is January. I was on antibiotics and my dentist recrowned it. He is considerered one of the top in Toronto and said he'd never seen such a bad infection and warned me that the tooth was very precarious. I am devastated. I feel like the wicked witch from the west( or north, as I'm in Canada!) I have opted for a partial permanent bridge as I can't wait for 6 months for an implant and live using a "flapper" as he calls the fake tooth. I'm not seeing the doctor that put me on Prolia. I also read somewhere, maybe in the same report you mentioned that osteoporosis is not a disease but a condition which should not be prescribed with drugs! Finally, in Canada, the press is openly writing about Pharma companies paying big bucks to Drs . So far no Drs or companies have been named. I'm sure those Drs are dealing with major anxiety!
Sal as to shoulder pain, I can relate. I have an extremely painful rotator cuff tear which can not be surgically fixed. This all came on after terrible joint and muscle pain after taking Prolia. The only thing I was told to do was Physiotherapy. I've now spent close to 1000$ for this as my benefits have run out.
When is Amgen going to either take Prolia off the market or own up to the fact that their trials were inconclusive due to time constraints the brass had put on them. Leaves a very bad smell in my nose!!!

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The sites where loose teeth from Prolia are mentioned:

1. Source: "Will you have Loose tooth with Prolia?", ehealthme.com. Web. 2017
2. Source: "Prolia (denosumab)", netdoctor.co.uk. Web. July 20th, 2015
3. Source: "Prolia (Denosumab Injection) Patient Information", rxlist.com. Web. July 6th, 2012

If you do like I did on Google - 'what is the effect on teeth from Prolia' or 'What effect does Prolia have on our teeth'. They did not mention that our immune system is compromised and thus unable to fight off what is being done near our gum lines. That we all know is a true and verified fact from Amgen. Hope this goes through~

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Judy, I am so very sorry that this is happening to you.

Be well.

I am happy to hear that there is integrity in Canada. In my experience, it isn't until people die that action is taken; as in the case of NSAID's. Such is the power of Big Pharma .

It is my mission to spread the word about Prolia and urge people to utilize other modalities. In fact, utilize diet, exercise BEFORE developing Osteo. Sadly for me, my strong ( enough) bones took a dramatic downturn following a prolonged period of activity due to surgery.

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