Prolia & Hair Loss (Page 6) (Top voted first)

I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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REPORT

The only way to know for sure about your hair is to see a Dermatologist. That Dr. will confirm if you hair is capable of growing again or not. As with many ladies with just one injection, the answer is NOT. It will not grow back. Some are buying expensive wigs to look normal again. It also affects fingernails and the best description I have read on this site was that 'my nails are like onion peels'. I really do not know why this happens but it does and it has happened to me too. My hair is a NOT. It's all over everything. It's worse than having a dog that sheds. Be well~

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Re: Bubbles (# 254)

Amgen denies that Prolia causes hair loss but my Consultant dermatologist told me that he has seen patients who have had this problem with Prolia, including myself. We, as patients, know that it is Prolia but money makes them deny it as it would certainly cause a massive drop in sales should they have to declare under side effects that it causes total hair loss in some cases. People would not take the risk. Hence the repeated denials. My hair is growing back slowly, but a different texture which I hope will change eventually. It will of course take years. In the meantime, I have had to pay out for wigs.

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Re: Poodle (# 126)

I have been off prolia for around two years. After the second inj. is when I noticed horrible hair loss! My hair has always been thick and naturally curly. It too was my better feature! Now the hair loss has stopped however I don’t see much regrowth at this point. It is also very dry and brittle. Immediately after the shot I had severe itching for approximately 2 to 3 weeks. Also hip pain was beyond ridiculous! My immune system has also suffered and I seem to catch everything going around. I have another bone density coming up in May and will see the difference if any since I stopped. I must also note the reason my oncologist recommended this I’m guessing it’s because I am a breast cancer survivor. However I only had a lump ectomy with radiation. I did not have chemo. Not sure if this helps anyone considering but I have declined anymore for two years. More than likely I will decline again after my bone density as I have an appointment with my oncologist after. Also note that I work out five days a week with various routines. I do walking elliptical and weight resistance training. My point is with my healthy diet I try to also do most days, side effects of this inj. greatly affected me. After reading all of the postings it seems it doesn’t discriminate between Active and non-active or mostly healthy diet people. Very interesting how deep into the pamphlet hair loss is noted.

I also have small cataracts on both eyes however they are not growing. These did not appear until after my shots started. I appreciate all of the information about the hair growth. I knew that at some point your hair can be on a six-month cycle. I was not aware of a seven-year period. So I’m hoping I only have five more left for my hair to possibly return to its thickness. I am not losing anymore since I stopped, however, what I lost has not returned. I will look up this Saw palmetto and read on it. I have also started collagen over a year ago and extra vitamin D with my multivitamin. Sometimes it’s very difficult to make the right decision on taking care of yourself. It seems to me like we’re all in a rock and a hard place.

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Re: Anne (# 20)

My doctor is pushing prolia and I hate it. I have terrible bone pain and my hair are
Getting out in clumps.My ears are itching. I will stop no matter what my doctor say.Bad drug.

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Re: Yana (# 268)

I stopped Prolia after the first injection as I had so many side effects and very bad ones. My consultant agreed that I should stop after he saw the damage it had caused, and he eventually believed me when I told him it was Prolia, and nothing else. Amgen will deny it as it means big dollars and profits and the damage it does to people’s lives seems not to matter. I just wish there was a court case against them that we could all join. It is the only way they will rewrite the side effects to include the many dreadful effects that are not listed.

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Re: Bubbles (# 257)

Stop Prolia now or you'll be bald like me. And who is paying for wigs???

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No way Jose for me either. I truly believe it led to my hearing loss by weakening my immune system. I'm so mad I listened to my doctor on this. My hair has not returned to it's former glory and hardly grows. My last shot was March, 2015. I only had 2 injections of Prolia.

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Re: Lizzie (# 282)

I know when I posted this message and till this day my hair (what is left) is very thin, no more fullness. Now I take vitamins and I feel much better. I just want ladies to know. I'm glad it works for some in this chat but not for many of us...

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Re: Isabel (# 288)

I stopped the Prolia shots after I noticed the extreme hair loss and the floors looked like we had a dog. It was all my hair. I stopped on my own and read after that not to do that and that you must remain on it forever once started! NO WAY! The doctors like that money flow and I think it is criminal what has gone on with this drug. I have had a lot of problems with pain since I stopped. I continue to ride my bike every night because of my diabetes. I am 74 years old and to think that these shots may have caused health problems for me is maddening. Ladies, do not get this shot EVER!

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Re: LB (# 291)

I am glad this shot may have helped some,but what about the ones it has half killed like me.i will never be the person I was.the doctor told me it I took another Prolia Shot it would kille me.i still suffer because of this Prolia Shot.But you know what,I don’t think one thing will be done about it,because people don’t Care enough

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Re: Karen (# 289)

I have only received 2 Prolia shots. I had hair loss, jaw problems, oral surgeries, pain in back, arms, legs, migraines, I have had all my teeth removed, also a second surgery (been going through that over a year now). My doctor was the one that decided to stop the Prolia as it was doing too much to my body. My red blood count is too high, my white blood count is way too high. I don't know when Prolia will ever get out of my system. I am in severe pain a lot. Very few days that I am not. They need to take it off the market. It's not good. I have been sick ever since I took the first shot. My gums will not heal, I have had cataract surgery in January and I am still fighting inflammation in my right eye. Nothing will heal. I feel bad for everyone else
with problems too. If I had to do it over again I would have refused the shot. If I would have known about this forum beforehand and heard about everyone else's hardships and health problems just from taking the Prolia shot, I'd take citracal. Eating well is the best way to do it and getting exercise keep your muscles working. Don't let them get weak. I would like to get an attorney and file a legal suit against the company making Prolia. It's all about the money. It does not matter what it does to us... for those that it has helped which I am sure has been very few people. I am only 57 years old. This started 12 years ago with numerous fractures and I am sure there are more things going on with my body, but I am not putting myself through any more tests. Good luck and God bless to everyone!

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Re: Lizzie (# 290)

Amgen have so much money they can pay lawyers to drag any case brought against them. I have written several letters to the U.K. division and the replies are always deny, deny, deny and use the 'we were approved' message. The Consultant dermatologist i saw for my total hair loss informed me that 1% was the known amount of people who had hair loss. Considering there are probably millions of people having this drug throughout the world (my daughter saw huge billboard adverts for the drug in Hong Kong) there has to be thousands and thousands of people who are suffering, not just the hair loss but all the devastating side effects that have ruined so many lives. My life and body fell apart about 7 days after the first shot of Prolia and now 11 months later I am still badly affected, but my hair is growing back very slowly and hopefully in a few months I can ditch the wigs I had to buy. If only doctors and consultants recorded the problems and stopped recommending the drug maybe something would be done.

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Yes I did. I originally posted last year that my hair was falling out by handfuls and I was losing weight without trying. I refused another shot.
Well then good news is my hair is now growing back and my weight is back to normal and I feel strong again. Very impressed to me as I ride horses!

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Re: Bubbles (# 298)

Great news Bubbles! I know you have had a truly miserable time so it is wonderful that you are regaining yourself.

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You bet. Every one I’ve heard about is having this same problem. Mine is so thin that on top I use the stuff Joan Rivers sold, it's to paint your scalp/thin spots so your scalp does not show. And the other problems like teeth, just had one that broke off at gums had to have it took out and and in order to put one in, had to have the one beside it took out so I could have a bridge put in. My insurance would not pay a penny, so that cost over 1,500 dollars, the bone is deteriorating and I can’t wear dentures. I think enough taking has been done. I think something else needs to be done and this company pay for all the damages done from this Prolia shot. It is to blame.

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You are not alone. Everything you mentioned I have experienced and still experience. Prolia may be good for strengthening the bones but the side effects have made me regret going through the procedure. I haven't had an injection in almost a year, before Prolia I did Forteo every day for a year and Prolia every six months for two years. I can't say I have had a good day since I started. My bones may be stronger but I haven't felt physically good since I started on this journey called Osteoporosis. So again ”you are not alone ”.

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It has now been over a year and I/2 of not taking Prolia. I had no idea when I stopped on my own that it was not allowed. My doctor was not happy that I had done this. My doctor had not told me that once I had this shot I had to continue for ever. I had the shots for two years and my bone scans showed no improvements in my bone thickness at all. The only thing that changed was my hair and skin. I have gangiloids growing on one arm and bone spurs on 6 fingers. My hair looks like it needs a good conditioner, which it has, and my hair is still falling out in hands full every day. Help? Not one outfit, doctor or any person reading this.

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Re: dietitian (# 334)

I am glad you found some positives! So we can now be bald people with no eyelashes who do not have to shave their legs and have no underarm hair. LOL.... Our misery does indeed love company. I am really happy that we have this site to share our experiences. Blessings and thanks to all who share here..

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Re: Lizzie123 (# 342)

I do have a little good news. A month ago, I decided to add a multi-vitamin to my diet. This was a leap of faith for me, because I relied entirely on my diet until now. I noticed that my hair stopped falling out as much, and I attribute this to the iron in the supplement. I also appreciate the opportunity to share with others, and having done so, my anxiety has diminished enormously. The best to all.

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Re: Goat c (# 164)

I've lost almost all my eyebrow hair after 2 prolia injections.

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