Prolia & Hair Loss (Page 22)
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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Anne~I just had a TSH test for my thyroid and it came out perfect so it has to be the remains of Prolia in my body. Everything tested perfectly for me on all of the lab work and he ran everything in this world he could think of so I only have one thing to blame anything on -- poison Prolia. Some day here more of it will leave my body and I'll be better. The Calcitonin is working well. I fell and absolutely zero happened to my bones. I got a bone bruise was all. That's nice to know!! Anything gained from the Prolia disappeared months ago. It starts leaving as soon as one quits it so I cannot say any bone health was from Prolia. It's my Calcitonin working well as usual. Be well~Pood

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Lola~eventually. Just because Prolia goes 'poof' in six months does not mean in the least that it's side effects do. They can and do remain in some people for years. Let's hope you are not one of those people. That is all we have is hope. There is no magic pill that deletes all of the Prolia from our bodies. Perhaps your Rheumatologist works with an Immunologist? That would be your best way to go. Be well~Pood

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I will never take P again, hair loss was only part of awful students effects.

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I noticed hair loss over the last few months, much more than before Prolia. I only recently realized that the two were related. Not sure it's worth the next injection, due in November.

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Christine~FYI -- Prolia ia a chemo drug. It's twin just has more of the Chinese hamster ovaries in it. What happens when we go thru chemo? Hair falls out. Just because it has not happened to you does not mean in the least that it has not happened to the rest of us. We are not cookie cutter people. Everyone of us is different. Maybe you are younger with a healthier immune system to begin with -- dunno but please do not judge Anne on your experience. Be well~Pood

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Christine, I had a dexa scan to determine the osteoporosis. I was taking Boniva with no positive results in bone mass. I was in excellent health with no fractures & certainly no stress involved prior too, however the stress came dealing with the horrible pain induced induced by prolia. Hips, thighs, & groin to the point that I could barely walk. I cried day after day from the pain with no relief in sight. It's been over 12 months now & it is beginning to come & go, but mostly come. I hope your experience & others are not quite so horrible.

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Anne, I initially had had hair loss, but it stopped and was not due to the drug. I have a couple questions regarding the diagnosis of your osteoporosis, if you don't mind, which can account and help understand the hair loss. Did you suffer a fracture that disrupted your life? What was happening in your life about three months prior to the actual shot that you got? Was there some emotional/physical stress or trauma? These are important things that interact with what your experiencing and are unrelated to to prolia.

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I had a Prolia inj. in late March. Shortly thereafter my hair started falling out. Every time I brush it or run my hands through it, or after shampooing, handfuls come out. It is horrifying as to how thin it is now. I firmly believe this is indeed a side effect of that drug, despite the pharma company sales reps' denying it. I was scheduled for a 2nd inj. the end of September and cancelled it. Never again will I get another shot. Not only has the hair loss been terrible, the aches, pains, swollen joints for no reason, closed throat, difficulty swallowing, coughing, blurred vision and a host of other side effects have been a nightmare to live with. NONE of these things were an issue before I received the inj. Do NOT get it.

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Hair loss is not on any website that I can find & I have saved all 198 places I have searched in an offline file. The nearest I can get to this issue is from the National Cancer Institute stating that prolia is a cancer drug & as we are all aware, cancer drugs cause hair loss - Period. Good luck as it has been 1 year & 2 weeks since I had my 1 & only inj. & am still losing my hair. This is the devil's drug.

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Have had a couple of Prolia injections. I couldn't believe the change I my hair. My hair stylist asked if I had a change in medication, My hair has fallen out and the hair on the top of my head is very dry, broken and frizzy. Ugly and difficult to control. I have always had lovely hair. So I began investigating on line and sure enough there are lots of people experiencing hair loss. I will never have another Prolia shot again. And I implore the company to list hair loss as a side effect of this drug.

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Hi all~Pood here. One year and 3 months post Prolia and my hair is just barely starting to get better. I cannot have any Pred. as it is what caused my osteoporosis in the first place. Back is getting better and I still take magnesium (500 mg) every night at bedtime to keep the muscle cramps away. Prolia binds to RANKL and that L is a very, very important letter as it means our immune system. With a good half of our immune system deleted we get everything no matter how much we clean because germs and viruses are in the air. I like to take 2400 mg of calcium but my Dr. said I was doing it wrong and wasting it. I need to have acid in the stomach for the calcium to work so a glass of lemonade, a piece of cheese, just anything so I can get all 4 tablets working well. My appetite post Prolia is not overly wonderful. It will end, I promise, but it takes a lot of time to get this poison our of our bodies. It may go poof in 6 months but it's side effects sure do not. Stay well~Pood

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Yes, my hair came back in, but in the meantime be very careful washing your hair now and don't tug on the roots when you wash. I also washed only twice a week gently until it came back in. I have not taken another injection but have stayed on the Vit D and Calcium regularly.Good luck!

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Please see a dermatologist and see my prior post, research telogen effluvium. There's no research that shows prolia causes hair loss. The hair loss stops once this is addressed. It's a physiological bodily response the body has in response to stressors and the more we stress about hair falling out the worse it gets. It stops falling out and the hair grows back, I promise! Please email me {edited for privacy} I will talk more in depth about my experience with this.

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I was given an injection of Prolia in June, 2016 and was told of no side effects other than the ones listed which did not include hair loss. A week later I began losing my hair and checked with my doctor. I was told that this may be a side effect of something else since he was not aware of anyone of his patients on Prolia to have hair loss. Everything else is within normal range and my hair is 50% gone and I had very thick hair. I now have several bald spots and ver thin hair to the point that I may need to wear a wig as my hair is still falling out. I have had recent blood work and there are no indications that the hair loss is caused by anything other than the Prolia injection. I will not take another injection.

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I have had two doses of prolix. I have lost almost half of my hair. I am only 47 and I am so upset. Will this ever be reversed if I no longer take the injections?

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Ll

Prolia has given me terrible hair loss I wish I would have been told about these side effects, I would have never taken this medication, depressed in Fort Myers.

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A really interesting thing happened with my hair loss I think is important to share. First and foremost, the hair fall and shedding has basically stopped! I had posted back in April and it continued to get worse, to the point where I couldn't shampoo bc I would end up crying looking at my hands covered in hair. It consumed nearly all waking hours. My thick, long hair had become disgusting and my fear of baldness was a living nightmare. I was SURE it was the prolia; although many people did not have my experience.

Now to rewind, my acceptance of osteoporosis was a hard pill to swallow- I am an active 32 year old, was a runner, and had been sidelined horribly by a misdiagnosed spinal fracture that doctors thought was sciatica. Months of that torment, than came the decisions of medication- tried fosmax and it made me sick, another mental and physical torment I had a horrific time grappling with. Now some six-seven months later my hair is coming out in clumps and I'm beside myself with the fear of being bald and losing my "identity" of the girl with the waist length thick curly hair. BEAR WITH ME HERE.... Went to my doctors, all my blood work is okay and finally my dermatologist calmly and reassuring presents this common hair loss ailment to me that he has diagnosed me with: telogen effluvium. He helps me to understand that several months after you experience a trauma (emotional, physical, etc) it can shock your system and in doing so it actually causes a majority of your hair in the growing phase to go into the resting phase and SHED AT ONE TIME. The only thing to stop it is to remove the stressor and mine previously was the injury and the diagnosis of osteoporosis but now it was the horrid fear of baldness... Once I whole heartedly came to terms with the fact that I was NOT going to go bald and it was a bodily reaction, my hair literally STOPPED shedding. It was mind numbingly incredible. Sorry for the length of this post but I thought it so important to share my experience. It does get better and the hair is growing back.

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You bet, it's 8 moths since my last (& I do mean last) inn. & it's starting to come back very slowly.

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I had this injection just several weeks ago and immediately started noticing hair loss. I did not make the connection until I started digging and came across this post.
Has your hair loss slowed? How much have you lost because mine is now very thin after a few weeks. Does anyone have suggestions on what to do for the hair loss besides steroids as I can't use them due to glaucoma. I am starting Rogaine today!

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It is distressing, but the joint & muscle pain were worse as was the shortness of breath. Why were you taking this hat such a young age?

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