Prolia & Hair Loss (Page 23)
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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Yes, & 7 months after my last shot it's still not back. It was the least of the horrible side effects. I'll never take it again.

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I am so upset and horrified!! My waist length hair is falling out in masses. I'm 32, got the shot less than a month ago and have had excessive hair loss and don't know what to do. Has anyone experienced the after affects, does it regrow? Hair loss is just devestating.

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I too have had vast hair loss from prolia. Prolia is a cancer drug & as we are aware, cancer drugs cause hair loss. You can find additional info on the National Cancer Institute's website about it being a cancer drug & about the hair loss that goes along with it. I am now 8-1/2 months post prolia & my hair loss is slowing down some, but only after my doc gave me a script for prednisone has it slowed down. My Dr. is filing an adverse effect report on all of my suffering these last months to the FDA on my behalf & in turn I am staying in close touch with Amgen (Maker of prolia) & the FDA by phone, email, & in writing as well, as I want this info for my personal records. I have even gone so far, that I have contacted both of my insurance companies & attempted to stop them from approving this inj. & save a lot of women from suffering & the companies money.

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I have started experiencing tooth and jaw pain. The pain will start on one side of my face and move to the other side. I can't tell if the pain is coming from my teeth or my jaw, it appears to be both. The pain is intense. My face rash has returned, on my cheeks and around my eyes. The bumps are pink and painful. The bumps usually last a day or two. I drink lots of water when the bumps appear so that they will go away quickly.

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NO - the side effects of prolia do not wear themselves out in 6 Months!!! I am now at 7 months, 2 weeks, & 4 days, & today is one of the worst PAIN days I have had so far. I contacted Amgen (Maker of prolia) a few weeks ago & voiced my deep concerns. The following week, I received a personal letter & a 26 page side effects & the results of their study on same. WA! WA! big deal. It was in a nice portfolio, Ha! It stated that sciatica (Nervous system) is included with the side effects of which I now have. Prolia IS the cancer drug that causes hair loss. There is one thing you can do about that. Talk to your doc about taking a round of prednisone to stop the hair loss. It definitely helps. The sad part is: most docs are not educated enough on that poison drug. I still say all docs should have to take the inj. prior to prescribing it to innocent people.

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.I have been taking Prolia for 2 years now. This was the third drug I was place on I wasn't able to use the others due severe symptoms, vomiting and painful joints. When I first started taking the drug I developed a severe case of painful fluid filled red bumps on my cheeks around my eyes. My hair was coming out and thinning , extremely dry and brittle. I went to my dermatologist for an answer, she only prescribed more drugs and injections into my scalp to help with the hair loss, which didn't help. I have experience itchy face and scalp. It takes me quite a while to get over a sinus infection. I did my research and realize what was causing all of these problems. I have decide not to take this drug again. Hopefully this will shed some light to others experiencing the same symptoms.

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HELLO I JUST HAD A PROLIA SHOT ONE WEEK AGO AND MY HAIR IS SHEDDING AND FALLING V OUT AGIAN. I DO THINK THEY SHOULD TELL YO THIS BEFORE THEY STAT THE SHOT IT IS VERY DISTRESSING TO LOOSR YOUR HAIR.

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I have not gone for my 3rd shot of Prolia because of the hair loss, yet! My hair is growing back and filling in the thinned spots. I should have had the shot by January.
I am still not sure what I will do because I recently had a tooth implant and when I returned 4 months later for the post and crown, the oral surgeon said that so much bone had grown over the implant that he had to take some off the implant. This proves to me that the Prolia and the calcium must be working!!!

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Anne~the problem with the FDA is they only put the warning labels on the info sheet that comes with Prolia that is for the MDs to read. Do you really think they read that? I think the FDA is wasting their time. Now, at almost one year, my hair is still falling out. I don't know when it's going to quit -- I think it goes back to the half lives and there will always be that poison in us no matter how long we wait. I'd love to color it but I'm scared to death of what would happen. Next to breast cancer, Prolia is the worst thing that happened to me in my life. Yup, me again~Pood

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Oh Yea, and that ain't the half of it.

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I was reading the post on 11 Feb. 16 & was surprised to see it was my own, with the exception of some of my words rearranged. The hair loss is definitely from prolia as I stated. It is a shame that Amgen omits it from the side effect list. I am now @ 6 months, 3 weeks, & 3 days & the pain & hair loss have not let up. I again reported it to the FDA & plan on reporting it for the 2nd time to Amgen. My next step is placing a Warning ad to all women contemplating the prolia injection. Hopefully we can save some poor sole the misery.

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Hair loss is a side effect of Prolia! Same thing happened to me so I got busy to find out why. The other why is: Why doesn't Amgen list it on their website? Look up National Cancer Institute, then cancer drugs of which it lists Prolia & Denosumab as CANCER DRUGS! You can search further & both are found in chemo drugs as well & as we're aware, chemo drugs cause hair loss. It says that it will grow back in 7 or 8 months @ 1/2 inch a month. Big deal, what do we do in the meantime - wear a wig - That's not my style. I took a print-out of the National Cancer Institute to my doc & believe me, from the look on his face he had no clue about it. Needless to say I just got a blank look. The docs should educate themselves first & foremost. If anyone is considering this inj. - do your homework before making such a critical decision. I did it once - but NEVER AGAIN!!!!

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I am having numerous and debilitating side effects after my second shot of Prolia. It has zapped all my energy, given me aches and pains and I was surprised to read about hair loss, because I have it big time. This is a horrible drug. Does anyone know if all these side effects wear off after the 6 month period.

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YES! I had one shot of Prolia and my hair fell out like crazy. It's time for my 2nd shot and Im not getting it until I see if my hair stops coming out.

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I am now about 2 months past the 'magic day'. Hair loss is finally letting up. I will still need dry needling to break up the muscle bands it has caused. First I had the cataract it caused removed and just got home from a total hip replacement. I still have the muscle pain and the autoimmune disease it caused. Seems as if I can tolerate more wheat than before so that one may be letting up some. There is life after Prolia. I have gone from 165 lbs. down to 108. BAD DRUG! Believe it or not the Prolia muscle pain is worse than a total hip replacement. Amgen is also now writing that one needs Prolia for TEN years for it to work. No Thank You!! Hope you all get better faster and remember to stay away from this poison. Be well all~Pood

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Amgen, the manufacturer of Prolia, states that at the 6th month mark it should be all but gone in our bodies; however, there are certain things that can apparently last 5 more months after we reach the 6th month mark. They don't state what 'they' are though. One would have to call the nurses at Amgen to find out if what you are experiencing after the 6th month mark is definitely from Prolia. I believe that it will take some time for our immune system to be working again 100%. My 6th month is this Nov. 5, 2015 so I'll be able to respond better after I get past that date even though I am close. I'm very impatient about this in my body! I want it gone NOW! Be well~Pood

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I had my second injection in June of 2015 and I didn't connect the dots until now that my hair loss is due to these injections. I've been trying to figure out what was causing it, thinking my hormones were the problem. I turned 53 in June when I had the second injection, and my hair was coming out in amounts I'd never seen before. I've been trying all kinds of different shampoos and conditioners, oils, vitamins and supplements, etc...and spending lots of time and money on this and I finally figured out it's the Prolia. My skin is itchy, my scalp is red, and I've had lots of breakouts on my face, too, and all of this wasn't happening before I started taking Prolia injections. I'll never take this drug again. I hope it's out of my system soon and my conditions return to normal.

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It's the end of August and my hair is falling out despite being careful! I love not having the backaches but I may have to stop this drug by not getting my third injection!

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Hi Gracie, when you look at the active ingredient in Prolia it is the exact same as in Xgeva. Xgeva is for chemotherapy. Hair falls out completely during chemo. We are receiving lower doses but still getting many of the same problems. Does that help answer your question? When you stop the Prolia, your hair will return to normal as it does with chemo patients. I'm not happy about it either and am definitely refusing the next dose on October 22. It has tinkered so much with my immune system that I now have an autoimmune disease. Be well~Pood

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I've had 3 prolia injections and I am experiencing hairloss.
I don't think I'll go for the 4th injections. I don't feel comfortable
being a guinea pig in the last phase of prolia's drug trial.

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