Prolia & Hair Loss (Page 21)
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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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It is odd that you mention stress fractures on your feet. Just 4 weeks ago an x-ray showed that I had a fracture on my foot. Tomorrow I go for an MRI of same to ensure there is nothing else going on since it is not getting any better. I had one inj. of prolia & am still in pain. So far as the hair loss - it started 1 month into the shot & has not let up as yet & that was 16 months ago. Prolia is an evil drug & I regret the day I allowed my doc to give it to me. Of course they are not well versed on prolia! I wish he had to take it prior to giving it to innocent patients, then he would see what we go through. A piece of advice here: Save your hair in a baggie & take to your doc on each & every visit. I now have a gallon bag full since prolia reared it's ugly head. So far as your hair growing back, I think we can dream on....

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I have been on Prolia for 3 years, so I've had 6 inj's. over the 6years (1 every 6 months) I was on Fossamax before that for about 1year. My hair started getting very thin about 3 years ago and it is v bad now. Nearly bald on top. I also take Eltrixin for an under active thyroid. And I take Rosuvastatin for high high cholesterol. My consultant is taking me off Prolia for a break of 2years. I wonder will my hair grow back now or is it gone for ever. I didn't connect the hair loss and d Prolia when I last visited my consultant so I didn't ask him about d hair loss & he didn't mention it either.

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Dawn~you may want to add apple cider vinegar in that mix to massage in the scalp and also a little in a pan of warm water when you do the final rinse of your hair after shampooing. I promise you will not smell like vinegar. A lot depends on the water you have and if you have very soft water, you don't need the apple cider rinse but if you have hard water then you do as it completely cleans the soap scum and everything else out of your hair that comes from hard water. It's a very old home remedy that works well. Prolia is chemo, it just has less of the active ingredient in it than it's twin, Xgeva does which is a total 100% chemo drug. You went thru chemo once and lost it all and now you are going through it again but to a lesser extent. Amgen, the manufacturer, has never admitted to this side effect but there sure are a lot of us with it. After mine is dry, I put on about 4 handfuls of mousse to make it look thicker to help with the appearance. Also, have your hair dresser be careful in cutting the hair. We need sufficient to comb over the spots. Another thing I noticed which is totally unreal -- apparently my 'mind' forgot where it is supposed to be growing the hair and I had a huge patch under my forearm. I will ask a friend for hypnosis after the Holidays to get it back on track and growing on the head where it belongs. When do the side effects end? We don't know. Some of us are still struggling after two years of one little injection. You may want to read other posts I've made on 'carbon' and half lives. It will explain a lot of your problems. I think they are on Prolia Side Effects thread. Be well~Pood

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You know, rheumatologist & almost every other Dr. play down the side effects of prolia & I am baffled at their lack of knowledge on this drug. It is horrifying to know that these are the very people taking care of our medical needs. The only Dr's that are up to speed on prolia are Dentists & Oral surgeons.
Merry Christmas to all..........

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I read about hair loss and just one strand of hair takes 7, yes, seven, years to grow so we are in for a long wait when the Prolia finally stops the hair loss and as to date I don't know when that is. It seems like many side effects last years. I know I find hair everywhere - on my clothes, on my bed on the sofa where I may lie down -- just strands of hair all over and it's been a couple of years since my one and only Prolia injection. My rheumatologist just says its from old age. I'm not that old to be losing that much hair. Pood

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My hair seemed thinner after my first Prolia shot in February. My second shot was in September and my hair started heavily falling out a couple of weeks later. I went to this website this morning and found other women experienced the same problem. I will cancel my next shot in February and return to Fosomax.

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I am 15 months post prolia injection & my hair is still coming out. For the last 13 months I save all my lost hair in a baggie or should I say multiple baggies. On each doctor visit I take many, many bags as proof of loss & stick them in my docs face to look at. This he can't deny. Prolia is a cancer drug & all cancer drugs cause these results. Source: National Cancer Institute.

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I had my first prolia shot about 6 weeks ago and my hair seems to have thinned a great deal especially on the top of the head. I am thinking I will not continue this drug because of all the terrible side effects. I did a little research on 2 or 3 occasions and this is the first time I have run into anything which mentioned loss of hair.

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Mine is the same story. Won't ever take another Prolia injection. I too, have bald spots. Devastating!!

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Pood - I made an appointment to see an endocrinologist to talk about the side effects of Prolia. I may also see a dermatologist, but the meds that they use also seem to come with some scary side effects. So, I'm going to wait on that. My Oncologist doesn't think that Prolia is the cause of my hair loss due to the fact that I'm taking estrogen inhibitors. And I admit, I do get hair thinning from the inhibitors, but not fall out like this. I've been on them for 2 years and have never had this happen to the point that I can see my scalp. After finally getting my hair back from chemo - to now be going through this is devastating and frustrating to say the least. It's upsetting and I just don't know what to do.

I called Amgen and they said that the med remains in your system for 4-5 months which is why you need another shot at 6 months. I have to believe that this will stop in a few months.

I started treating my hair with coconut oil because it's also very dry. That seems to be helping a bit. I also take Biotin and have a follicle stimulating system from my salon. Oh, and I bought an all natural oil remedy that if nothing else helps treat my scalp. I'm hoping that my hair can hang on a few more months until this crap is out of my system.

Trying to be positive, but I must say after all I've been through, being positive is exhausting.

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Pood-
My hair starting growing back by six months it was very noticeable around the hairline. I was very gentle washing not pulling it. I am still on Vit D and Calcium regularly. I have chin length hair and kept it at that length to not add further weight to the hair.(I usually had shoulder length hair.It's totally back! I just had a bone density and I am awaiting results since I have been off of Prolia for a year.

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Barbara~from when to when did your hair start coming back in? How long have you been off of Prolia? You seem to be the only shining light here. Pood

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Dawn~Our MDs know very little about Prolia and a lot less about how to get rid of it's huge list of unwanted side effects. They get their info from Amgen, the manufacturer. Most are pretty useless. If we could find Immunologists there could be some help for us but they seem to be as scarce as hen's teeth. Be well~Pood

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SDMOM~Prolia is chemo. It's just in a lesser amount than it's twin. Does your hair grow back like it did with chemo? Not that I have noticed. I've had both and Prolia has been the most devastating of all chemo drugs when it comes to hair. I know of nothing at all that stops it and I have inspected the fallen out hair and it is good hair with the follicle attached. One good thing we can do when we dare to wash it is to rub the scalp well with apple cider vinegar and also use it as a final rinse mixed in a pan of warm water. I promise you won't smell like vinegar. It's not listed as a side effect but it seems as if we all have it. Be well~Pood

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Cookie~I used L'Oreal Preference. No damage to hair beyond what Prolia has done. Just bought another kit but have not applied it yet. I would not go in for bleaching as that would cause more damage but I have found a little darkening has not changed it at all. It will also make you feel a little better when you look in the mirror. Be well~Pood

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Did your hair come back after stopping the Prolia?

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Hi Ann, I'm seeing the same issues with prolia and hair loss. Wondering how many shots u had before you realized it was the prolia causing the problems. I have only had one and do not plan on another. I'm going to call my dr today about getting a prednisone shot to slow down the hair loss. This is insane! They told me that there w

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I am a 49 year old breast cancer survivor and am taking Anastrozle that has caused bone loss. I just received my first Prolia shot in June 2016 and I can't get over the hair loss I am experiencing. I went through 4 months of chemo and lost my hair back in 2012. I am devastated that I am dealing with this now!

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OMG! I am losing alot of hair and I had baby fine hair in begin with! I took my second Prolia shot in June. I am not going to get another!
I'm going to go on an extensive high protein diet like avocados etc.
Going natural is my way from now on!!!!
Then next year get my 2 year bone density test and see and go from there.

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Has anyone colored their hair with permanent color while using Prolia? 4 months into my 3rd injection with hair loss. Need color!! Worst drug ever!!

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