Prolia & Hair Loss (Page 13) (Top voted first)

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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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367

Yes I have hair loss from just one shot of prolia. I took it two years ago and after a month my hair started to fall out. I feel like half my hair is gone. Now my hair is much shorter due to breakage. I am so upset I used to have long beautiful hair.

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369

Re: Ruth (# 368) Expand Referenced Message

Yes, I also was just put on thyroid meds. I was checked a few times and never needed meds but this last time the Dr. checked it twice and said I need to go on it.

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374

Re: Karen (# 369) Expand Referenced Message

What drugs are you taking for your Thyroid? Can you please tell me?
Thank you!
God bless!

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381

Re: Lizzie (# 372) Expand Referenced Message

I have just decided to look into the new drug I am on for my thyroid and found that it also causes hair loss. I have been having a lot of dizzy spells so I am trying to take the drug every other day for now.

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384

This medication is poison to the body. I had one injection on Mar 7th and have suffered severely. I had hair loss and now it is starting to come back. I am nurse and curse trusting the system that once I loved. You need to read this sight and see what others have experienced. It will shock you. Dawn from Canada

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385

Re: Dawn (# 384) Expand Referenced Message

Eyes opened: I had one shot a year ago and am still experiencing all of the yucky symptoms- hair loss, bone pain, rashes, mouth infections. I just had to have one of my parathyroids removed because of a tumor. I am not necessarily linking that to Prolia. HOWEVER, prior to taking Prolia I had high calcium blood readings-- these went down after Prolia. Had I understood about parathyroid function, I never would have gotten the Prolia shot. Evidently the parathyroid controls the calcium production and a problem with it leads to osteoporosis. That is probably why the bone scan indicated the osteo. If I had known, I could have perhaps taken care of the parathyroid problem and avoided the Prolia. So, I am guessing if you are diagnosed with osteo, check out your parathyroid and maybe avoid the whole Prolia nightmare. Right now I am rebuilding the calcium levels and the parathyroid doc says the indications of osteo should diminish over time. I just did not know that the high calcium levels could indicate a parathyroid problem.

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387

Re: susan (# 378) Expand Referenced Message

I also experienced the GERD and took the acid drugs for 2 years which contributed to the bone loss. There are magnetic implants you can get for the opening in the esophagus that control the opening of the esophagus and stop the GERD. It looks like a ring and it is day surgery to implant it. Then you don't need the drugs to control the GERD. It was like some awful circle.. you get the GERD and take the drugs which tear down the bones then you take the drug to build the bone which gives you GERD... etc.

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392

Re: Anna (# 391) Expand Referenced Message

I wish I would have stopped after the first shot because it was the second shot then I started losing hair like crazy. I am still so devastated!

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393

Had 2 prolia shots. About 3 months after my second shot started my hair loss. Now it’s time for my third shot. Not doing my third shot my hair loss on top of my head is awful. Now buying hair toppers which even makes it difficult to clip on since hair is gone.

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397

Re: J (# 394) Expand Referenced Message

How many shots did you have? I only had one, a year ago, but still have the after effects.. but yours are way worse than mine. I have the hair loss, and other problems but so far teeth are ok. I am really sorry that you are having to experience these wretched symptoms.

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398

Yes. Prolia made my hair fall out in handfuls. I only took one shot. I’ll mever take it again. Also effected my teeth.

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401

I'm due for my third Prolia shot and bone density and test for vitamin D. My hair has fallen out, just breaking off. The only new med is Prolia shot. After my test l'm going to discuss this with Doctor. I'm so embarrassed of so much hair loss. Wearing baseball caps and order a hair topper. l will not take a third shot, wasn't aware of all the side effects never knew it can cause severe hair loss.

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402

I was on aledronic acid first with slight hair loss stopped for 6 months then advised to have Prolia told hair loss wasn't a side effect , mine is coming out in handfuls can't wait for it to get out of my system ,I won't be having a 2nd one ,just hope my hair regrows

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403

Re: Mrs t (# 402) Expand Referenced Message

I stopped Prolia--too late after the third injection
Now I have to stop dyeing my hair because my scalp is so dry because of all the hair loss that the traditional dye causes so much irritation and hair falls out all day long it's affecting my moral
There must be alternatives
I hope you find something to replace Prolia and let me know
Thanks and be well

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404

Yes hair loss lm ready for my third shot but have severe hair loss

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407

Starting to get a little fuz on top of my head. Can’t wear a toppers no hair to clip it on. Had 2 prolia shots. Spent plenty of money on hair products no more shots. So depressed.

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408

Re: Viv (# 405) Expand Referenced Message

These drugs are really horrible. I've been on Fosamax which now I have terrible GERD I've been on Boniva which has given me terrible joint pain and the Prolia which made me lose hair and I have thin hair to begin with. Since I did not have my third shot in April I have noticed the hair on my arms grew back which gives me hope that maybe more hair will grow on top. From what I have read Prolia is a low dose of chemo used for bone cancer so it makes sense that hair loss would be a symptom. I hope everything works out for you in whatever decision you make.

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410

I am still losing hair and having trouble with teeth. I have never been the same since I had the Prolia Shot.

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411

Yes, hair loss is one of the many side effects of Prolia. It has been a nightmare for me, having had many of the horrible side effects of this drug. My last shot was in 2015, and I still have lasting side effects that I am not sure will ever go away. Teeth problems, just saw an oral surgeon yesterday, and he said that I was lucky to have had no more tooth and jaw problems for this drug. It is now being used for Cancer patients who have bone cancer. As I stated, a total nightmare for me. I hope this helps you and others.

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419

Re: Lizzie (# 418) Expand Referenced Message

I've been writing about my hair shedding for a while and convinced myself that avoiding the next prolia injection scheduled in April 30, 2019 would be the end of this. However, nearly a year has gone by, and the shedding is such that the crown of my head is getting incredibly thin. I didn't pay enough attention that when I had my hair dyed that my scalp was extremely itchy, so I stopped going for traditional colouring. Since I still work full time at 66, I want to look presentable with the many people I meet each day. I could retire, but that seems a bit extreme. I'm searching for a colour product that won't irritate my scalp. As far as my teeth/gums: they're in big trouble, as some teeth are loosening from the jaw. Is this all because of prolia? Or perhaps my hormones are completely out of whack. I'm seeing the doctor Monday am and will ask these questions and hopefully she has a few extra minutes for me. I really appreciate sharing my struggles and learning about yours. ending my best thoughts to all who read and contribute to this site.

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