Prolia & Hair Loss (Page 13)
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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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230

I have handfuls of hair falling out after 4th prolia. Finished prolia now, will my hair regrouped

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Re: Sharyl (# 227) Expand Referenced Message

They either lied or they don't know enough about the drug. They take the drug salesman's reports and then let it go. The $1600.00 they charge for this drug has to be an incentive for them to administer this crap. NO Dr. will admit or think it's Prolia as just as soon as one of them say it does, the attorneys will use them as a witness. That Doctor will have hell to pay by the AMA, and others.

As an update on my wife. We are into our 8th month now. The unbelievable inflammation on the ankles, knees and neck area are gone. She's not experienced hair loss or problems with her teeth. But the overall pain in her back and shoulders is 24/7. Her Capillary bleeding in the arms are almost gone, but she wakes up in the morning with some kind of fluid in the back of her throat and it's made her sick thru the night so she wakes up vomiting.

We live in Colorado, and got her some medium strength CBD oil, and it seems to be working a lot better than when we first tried this. The next bottle I will step up the strength.

Good luck to all, and if anyone finds an attorney that will take this case please share.

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228

Re: Sharyl (# 226) Expand Referenced Message

I have a hard time walking and my feet are red hot all the time. The aches and pains have not stopped nor the hair loss and I have not had a shot in over 8 months now. Good luck and I wish you well again soon.

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227

Does anyone feel like their doctors lied to them concerning the Prolia? I was told nothing except “there were no side effects” Is there anyone having abnormal infection in their gums/mouth. Had 5 rounds of antibiotics and still infected. Had all teeth cut out..I had to and now have to get dentures. Groin pain is strong and I have never had this. Went to ob/gyn and nothing found but one of the side effects of Prolia is groin pain. Says to contact physician of you have groin pain so I did that and no answer. Doctors are at a loss here in Kingsport TN they have no education whatsoever about Prolia.

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226

Re: teddt (# 223) Expand Referenced Message

I wish you all the best and I hope your wife gets better as I know how she feels. I still can’t walk very good and this has affected my whole life, which I turn affects my family. Prayers your way and God Bless you and your wife and all who are involved. We have to come together to get this poison off the market!

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225

Re: Sad lady (# 222) Expand Referenced Message

Thank you for your understanding as I have had no one to listen to me other than my family. I still can’t walk good. Does anyone seem to have any vascular problems? I am having great pains in my groin area. This is an acid they put in my body I feel like. I am talking to an attorney now but if anyone thinks we all should get together and try to get a legal suit against Amgen, I’ll be front row to that! I’d say individual legal suits are going to have to be the case but I will go above and beyond to try and get this poisonous drug off the market. I don’t want to see anyone die or become permanently disabled because of this.

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224

I have experienced body hair loss as well as the hair on my head. Otherwise I have been lucky because I haven’t had any other symptoms.

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223

Sharyl (# 221) --

I've contacted a local Attorney that specializes in malpractice and drug reaction cases. On our initial conversation he thought it would be a legal suit, and now he believes maybe it would be best for individual cases. I will update everyone on this thread once we get this together. Until then hang in there. My wife has nearly all of the same side effects. God Bless us all.

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222

Sharyl (# 221) --

I am so sorry for the terrible pain you are suffering from. I also feel the drug should be taken off the market or at least people should be warned of all side effects that Amgen know about... I did see whilst surfing the internet that there was a legal case against Amgen ref Prolia, so maybe try and find out about that. I hope that you get some relief from the pain.

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221

I had prolia two years ago and I have been disabled since. I was highly allergic. My body burned like I had been dropped down into the fire pit. My teeth snapped off like I had taken a hammer to them. My jaws hurt like somebody was taking a screwdriver to my bones. Several times I thought I was having a heart attack. The pain was so severe from my jaw to my chest. There was no doctor anywhere in kingsport tennessee that would help me or I would even try to understand what I was going through. I went to the emergency room several times and they just gave nothing to help me with my pain or misery that I was in. Doctors did not seem to believe me or understand how to help me with my problems and me telling them the whole time how intense the pain was that I was in. My back has never hurt me this intensely. I have always had fibromyalgia and arthritis. When I was 26 years old I had surgery on my knee but I was never in this kind of pain, never in my life. My back feels like it's breaking. My ankles feel like they're falling apart. My leg muscles my side muscles are so intense I can't stand. I have been in bed for 2 years in and out due to do nothing but get in and out of bed. I couldn't feed myself, couldn't do my wash and couldn't do anything. It even hurts to stand in the shower or to get in a bathtub and have the tub rub up against my back and my hips. After 2 years I'm still truck struggling with the intense pain in my legs and my hips. I've been going to the doctor having every test I can have done enough and they don't know how to help me. They give no advice as far as the prolia. They don't know what the heck's going on.

If there's anyone that knows of a legal case against prolia I sure would like to know about it because I think this crap needs to be off the market. It's deadly and whoever invented these needs to go to jail forever. These pharmaceutical companies start acting like they're some kind of gods in that they can make bone regrow. My doctor lied to me and said there was no ill effects to this whatsoever and I'm very upset with him and I'm not finished with him yet at the court we're going to go. I mean who wants to have to lay in bed all the blessed day and suffer and suffer and suffer and suffer and no relief for the pain so intense you can't stand your body because of prolia. I read some of the messages that have been sent into this and I'm impressed to find out that you can take certain things to help rid your body of this poison. I'd like to know more about it if someone would please inform me because no doctors seem like they have any information to do anything. So I sure would like to have some relief this christmas. I had none through last christmas or last thanksgiving in bed. I can do nothing because of the prolia crap. I called the fda and reported to them my calls with prolia and they did not respond too well to me. I'm very disappointed in that this stuff needs to be taken off the market immediately before it kills somebody, puts them in their grave and takes them away from their family.

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220

Re: Sad lady (# 216) Expand Referenced Message

Hello. Thanks for your info about Prolia. I know how you feel as I am also depressed mostly by the traumatic damage done to my hair by this horrible inj... I have seen a Dermatologist for a second opinion and was referred to a specialist for my hair loss.

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Re: Julie (# 215) Expand Referenced Message

I have took the reclass and had no problems at all.After so many years they tell you ,you can’t take it any more!that is when I took the Prolia shot and it almost killed me,I am still losing my hair and still having trouble with my teeth.

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Re: Karen (# 217) Expand Referenced Message

I am so sorry to hear that. This drug has some terrible side effects and I am sure Amgen do not know all of them and we are guinea pigs. They seem to have little regard for peoples suffering or at least should warn people of all side effects.

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Re: Sad lady (# 216) Expand Referenced Message


My sister went into the hospital and had Prolia put into her intravenously every 6 months. She has been diagnosed with lung cancer in the past year but is now in remission. She blames the Prolia. I think she may be right.

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216

Re: Julie (# 215) Expand Referenced Message

Hi. I had zoledronic acid yearly infusions for 4 years with absolutely no side effects whatsoever, not even the flu like symptoms that some people have. However, the one Prolia inj. I had has been a nightmare. I have lost nearly all my hair, have vertigo all the time, red eye, numbness and pain in the legs so I cannot sleep, earache, and am so exhausted all the time. Now 5 months into the drug and just hope that these problems get better after the 6th month. The Consultant dermatologist informed me that my hair will grow back, not as much as before, and firstly fluff and then later on proper hair, but it will be a long job, probably 18 months. Amgem have a lot to answer for because these side effects are debilitating and have caused me to be depressed and tearful. I hope that these messages will be read by people before they choose to have this poison in their system, and will prevent them going through all this suffering.

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215

Re: Poodle (# 12) Expand Referenced Message

Just to let people know that I had 4 shots of Prolia for two years and I suddenly lost all my hair in just a week. No eyebrows, no eye lashes. No more prolia for me. It worked very good on my bones but I'm devastated and hope that by stopping it, I 'll regain my hair back. I also want to know about the "Reclast" inj. every year. Anybody out there had it, to please respond. Thanks.

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Re: Sad Lady (# 199) Expand Referenced Message

Did you say you have some hearing problems from this? If so, what problems?

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Re: Poodle (# 210) Expand Referenced Message

The numbness and tingling with the vertigo have been with me since day one and I feel that I can just about live with that as I know it will end after 6 months, and I am never having this drug again anyway. HOWEVER, the loss of nearly all my hair which I am told will only partially grow again after a year or so is another matter. This should be on the list of side effects so that a choice can be made when the inj. is suggested. I had no choice as it was not listed despite the fact that it is known to Amgem, which is very wrong and cruel considering the devastating effect losing ones hair has on a woman.

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212

Re: Prolia Hair loss (# 202) Expand Referenced Message

The Same is true with me.im wating to find out just what kind of shape my bones are in.My question is when are they going to get this poison off the medicine list.

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211

Re: Verwon (# 1) Expand Referenced Message

Yes. I have been on Prolia for about 2 years. My hair is thinning a lot, mostly on one side. It just occurred to me today that the only difference in my life since this started happening is Prolia. It is really helping, but I hate losing my hair. Nancy

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