Prolia & Hair Loss (Page 12)
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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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The only way to know for sure about your hair is to see a Dermatologist. That Dr. will confirm if you hair is capable of growing again or not. As with many ladies with just one injection, the answer is NOT. It will not grow back. Some are buying expensive wigs to look normal again. It also affects fingernails and the best description I have read on this site was that 'my nails are like onion peels'. I really do not know why this happens but it does and it has happened to me too. My hair is a NOT. It's all over everything. It's worse than having a dog that sheds. Be well~

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Re: Bubbles (# 248)

Do not believe your doctor. There are hundreds of messages all stating that hair does fall out in many cases after a Prolia shot. I lost all of mine within 4 months. Now after 9 months I have fluff growing, not hair, and am told it will come after this has grown. The drug is a poison to certain people. The side effects I had were dreadful and still have some which I am told may never leave my body. Just one injection ruined my life.

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Yes- just had one shot 6 months ago. My hair is falling out. My Dr says Prolia doesn’t do this. I think she is wrong. Wondering if I should take another shot now.

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Anna (# 232) --

I'm 70 also, and after 2 Prolia injections, I decided to risk broken bones rather than take anything for Osreoporosis. I had lovely hair, and after all the breakage and hair loss, it still barely grows. I had 2 Prolia shots...the last was March, 2015. Three years later, my hair is still hardly growing, my immune system is weak, my jaw cracks all the time, and I think it was responsible for my hearing loss...though of course I cannot prove any of this. Very sad situation.

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Two weeks after my first Prolia shot I began experiencing hair loss...I am continuously shedding hair with the bulb attached. Hair has noticeably thinned. Am no longer using a blow dryer and use a large tooth comb instead of a brush... trying to hold off what I hope is not the inevitable.

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Re: Karen (# 243)

I read that 3 years was the usual timeframe...so 6 shots. I took 2 and stopped. My last shot was March 2015. My hair still doesn't grow much...I colir it and I can go two full month easily without the roots needing treatment. My immube system is horrible. U got that bad flu twice this season. I had the flu shot. I know they saud the shot was not effective this year, but I still feel Prolia has left my immune system weakened. This is horrible. I will not take any other drugs for osteoporosis...they have all been bad

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Re: Karen (# 243)

Like you I was recommended to continue with Prolia despite them seeing how ill I was and the loss of all of my hair and other bad side effects. They suggested that it was not due to Prolia but other reasons. How ridiculous to even suggest it when it is obvious what caused all this misery. I felt like my life as I knew it was finished, and the pain and misery continues eight months after the one and only shot.

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Re: sad lady (# 240)

I want anyone reading this post to understand that the people who have been given these shots are supposed to continue with the shots forever! My Doctor never, ever mentioned the side effects or that I had to stay on the shots. The pain I am in now is awful. It is one leg starting at the lower buttock and continuing down the back of the leg just past the knee. I live on Advil now. I just stopped the shots on my own. I was sick of the doctors acting as if the loss of my hair didn't matter one bit. Money, money, money! We all know the kick backs are huge!

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Re: Rosebud (# 239)

It's only one molecule of Prolia that stays in our bodies and it is unable to harm us any more than an aspirin we had 30 years ago. Prolia has a half life of 16 days. In 16 days 1/2 of the Prolia is gone from your body so that by the time we reach six months, there is only that one molecule left. That does not mean in the least that the side effects of Prolia leave with the drug. They can and sometimes do last for years on end. My hair is horrid and I loved the description one lady wrote about her nails being like onion peals. It takes the worst of our DNA and uses it against us. When we have to have cataract surgery, thyroid surgery, jaw problems and teeth replaced, that does not fall within the 6 months that the drug is active in the human body. It is a long haul to get the body back to pre-Prolia. How long? I'm not really sure and as humans we are all different. Some people have zero problems with this drug while it creates havoc for a lot of us. One thing I believe our medical community needs to clearly understand is that Prolia is to be used only when ALL OTHER drugs have FAILED. Drs. are now using it first. It would seem that Amgen has done a wonderful job of advertising. You will get much better each and every month, little by little. That I can promise but I don't know where the real end is. I believe I am close but not there yet. I lost 68 pounds in 3 months with only one injection and that was just the beginning. Be well~

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Rosie (# 231) --

The strange pain in your lower right back it started with me to the pain i can't describe all i know is its very painful. So tired of hurting non stop and i feel for everyone else.

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Re: Rosebud (# 239)

I am now 2 months past the 6 months after my first Prolia injection. I will never have another one as the side effects have not gone away. Total hair loss which seems to be growing very slowly and not like hair, peripheral neuropathy, vertigo, indigestion, inability to sleep at night more than a couple of hours, rashes, UTI's almost permanently, and so it goes on. I am waiting for the Dexa scan result to see if this dreadful drug actually increased my bone density. Will message when I get the result. People should be aware that it can have dreadful side effects for some people. If you escape with none then you are extremely fortunate.

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Re: Patricia (# 3)

I’m having a lot of the symptoms you’re describing. My doctor highly recommended the prolia shots but now after seeing the pain I’m experiencing she’s told me to skip the next shot. I’ve decided to stop them completely. I’ve read that prolia never leaves our bodies. Even though I did skip one my aches are continuing to worsen. Hair loss is frightening. Everyone should be aware of side effects.

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Re: Bubbles (# 237)

Hi, I am so sorry it has happened to you as well. I lost all my hair and now after 8 months it is coming back but not as hair, almost baby fluff. I was told by a dermatologist that this will grow out and proper hair will eventually grow. I know it will take a year or two at least. I have three wigs which are necessary to be able to go out and look normal. Some side effects have not gone away and am told they may never go. Amgen refuse to acknowledge these dreadful side effects and quote regulations etc etc and how careful they are. Absolute rubbish. So many people have suffered badly but money comes first. I believe we were being used in trials as hair loss is still not on the list of side effects. Hopefully people will read these messages and refuse to have the Prolia treatment.

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Yes. I had one shot 4 months ago and my hair is falling out in handfuls.

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Yes. I took Fosamax which I could not tolerate so she gave me a Prolia shot. My hair is falling out in handfuls. I am distressed. If I don’t take another shot will my hair grow back? I am taking a ton of vitamins. Does anyone else have any suggestions to make my hair grow back?

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Re: Anna (# 233)

I sympathize with every symptom you have as I have had the same, with extras such as terrible vertigo and peripheral neuropathy and have now been diagnosed with MGUS. I know it is due to the one Prolia shot. My hair is coming back slowly, lost it last August - November 2017, but it is very fine like fluff. I am told that after that normal hair will grow, but may take a year or two. I have decided to have nothing more although they recommended Fosomax but reading the side effects I do not even want to consider it. I am just taking care, eating well, taking additional Vit D and hope for the best. Nothing can be worse than the last 6 months of sheer misery and pain after 1 shot of Prolia. By the way, I bought myself three wigs, at a cost of course, but at least I can look normal again.

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Re: Sad lady (# 216)

It has been over a year since my one and only injection. My hair started coming out like crazy. When I was scheduled for my 2nd injection- I made my appointment to tell my doctor--NO MORE! They didn't seem to like my refusal but-you know?--my health-my hair. I was told to come back in the FALL of 2018 . There is supposed to be a new drug out by then to help with bone loss. I'm 80 years old and very careful , take calcium citrate and good vitamins. I hate to tell everyone that my hair has not regrown. I really don't believe that it will.

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I was on Fosamax for over 10 years (before anyone knew any better). Once I stopped taking the Fosamax, I did nothing for about 10 more years (was told the drug "half-life" would stay with me for a long, long time). I developed a terrible cough, and after over 5 years of trying to figure out the cough, had an endoscopy and discovered that my esophagus was terribly scarred. Asked if I had heart burn, and I denied that I did, other than very occasional. As it turned out, I had gastric esophageal reflux disease (GERD) and I am borderline Barrett's Esophagus, all thanks to the Fosamax. Now, the Drs. are really concerned about my Osteoporosis so I finally started getting the Prolia injections. I've had two. My hairdresser and I are both convinced that I am balding, and I have always had a full head of hair! On top of that, I was exercising regularly at the Y and immediately after the first Prolia injection I developed a very strange pain in my right buttock. There was actually a mass that could be palpated. Went to Physical Therapy for 6 weeks, and it eventually tamed down. Now, after the 2nd injection of Prolia, it feels like it is coming back. Finally, I have developed very itchy skin and patches of what seems like eczema on my arms. Because I use the hot tub regularly, my dermatologist tells me it is related to that - but now I am not so sure. Balding, muscular/hip pain, itchy skin and depression -- and the only new item added to my medical routine has been PROLIA!! I think I will risk fracture for the remaining years of my life. I am 70 years old and up until last summer when I started Prolia I was very active! I am now a couch potato.

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Re: Sharyl (# 225)

I’d be with anyone who wants to sue and take this crap off the market. I’ve been having sore gums, painful brushing my teeth, walking is difficult as my body wants to pull to one side and strange pain in lower right side of my back. Never had this before Prolia. I’ve 2 injections, certainly won’t go for more. Will talk to me doctor about it next week.

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Re: Patricia (# 3)

Hi. I had very similar symptoms to you. I lost all my hair, also had peripheral neuropathy, vertigo, depression, lack of sleep due to the neuropathy and general aches all over my body, particularly the bones. I had just one injection, and am having no more. The side effects are just not worth it. I contacted Amgen who denied any responsibility and said their drug did not cause hair loss. My consultant dermatologist said that it was known that in a certain percentage of cases, hair loss was known to occur. Having checked the profits made by Amgen from Prolia, I understand why they do not wish this to be listed on the side effects. There are so many people out there suffering that it seems a shame we cannot get a case against them for misleading patients and causing such misery to our lives.

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