Is There A Representative For All Chronic Pain Patients (Page 3) (Top voted first)

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Is there a rep. for the ppl. who were controlled on 3 OxyContin OC a day, who now suffer and have proved the new OPs DON'T WORK? NO MATTER WHAT PURDUE OR FDA SAY? We need a rep. for us chronic pain patients, who were controlled and NOW SUFFER & CAN'T DO MORE THAN LAY IN BED CRYING.

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61

Re: PAM (# 7) Expand Referenced Message

How are you doing now Pam? What have you been doing? Meds ect., In or out of the chair?

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64

I wish that this website would collect all of the suffering people and collect all of these posts and submit or present them to all these opponents that don't have a clue what they are fighting. Most of the pain sufferers know what the real problem is and ignore this propaganda we are fed by the either the CDC, Feds, DEA and so forth. Don't be led that most of the OD's are prescribed medicine. That is just BS to divert the real problem we have called illegal drugs and drug lords who they can't touch with any effectiveness. So blame it on the prescribed pills. PLEASE DON'T BUY THIS CRAP!

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66

Re: Anjali (# 15) Expand Referenced Message

It’s when medicaid kicked in you guys we don’t pick our leaders so it doesn’t matter . The Rothschilds who own our banking system are who run the show. Yes it got worse with medicaid 100% because the plan was to bombard the system and have retired disabled and elderly folks bumped off . All the generics are changing for the worse under Obama and trump but it’s all an agenda it doesn’t matter who’s in office sadly we really don’t decide our leaders. It’s all an illusion but yes things went south big time since medicaid and now it’s gotten way worse

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14

Re: HOUSE (# 9) Expand Referenced Message

What manufacturer do u get your Oxicontin from? So far the Oxicontin I get does nothing to help me?

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26

Re: HOUSE (# 25) Expand Referenced Message

Yes if I cannot try or afford the cbd oil please. I am near most of Maryland. {edited for privacy}

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28

Re: Barbara (# 20) Expand Referenced Message

Barbara who do I write to first? The senator of NY the FDA the DEA the president? Any suggestions would b helpful. Sue. As I can't work for now anyway I want to devote what time I have to b heard.

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29

I need a name and address. I can start there and keep movin forward. This new plan gov't came up with will not work. The street dealers r in a good spot they no if chronic pain patients will get it from them. This whole scam of trying to now control medical field. Unbelievable. I am very pissed that people in awful pain have to also deal with it and have awful quality of life but do u have time or why should we have to research these meds and have anxiety cause we might not b able to fill out justified scripts. It's too much bull and lies. I feel we r not free to choose anything. Please try get me a name and address. Sue

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30

Re: HOUSE (# 25) Expand Referenced Message

Hi again. I would be grateful beyond words if you could give his name.

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31

Re: Christine (# 2) Expand Referenced Message

They quit making Opana. Guess why? They found a way to break it down and abuse it. The generic is Oxymorphone. I found it because I could not get brand paid for. Even the generic is over a 1,000 for 30 days. Try the generic. I do not get it anymore. My doctor retired and my new awful doctor took it away. I get 15 mg of Percocet a day.. does really not much for me. I am stranded on my couch as I have back neck leg issues. I live in Virginia and would travel for a decent doctor.

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32

Re: Sandra (# 30) Expand Referenced Message

Hi Sandra, his name is Richard Brouillette, DO. Number is 301-645-1523... I really hope that you find the help that you need... Let me know how it goes!

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37

Re: Sandra (# 30) Expand Referenced Message

I tried to find the Current Petition it is not there is there a link?

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46

Re: Verwon (# 1) Expand Referenced Message

There is another alternative. You can have a pain pump implanted which ur PM Dr can tailor to ur needs. Then there is no need to worry about ever having ur meds reduced or denied. U should inquiry about it on ur next visit to ur Dr. Good Luck

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47

Re: sandy (# 42) Expand Referenced Message

I’m so very sorry for what you are going through. Physicians are not obligated to prescribe medications. However, if you were my patient I would not leave you alone and without medication, if I had to wean you off or switch you to another safer medication for pain control, that’s what I would do. Here’s the thing, MD NP PA’s can prescribe almost all opiate pain medications so long as they have a reason and can show documentation that you have a legitimate need and reason for taking narcotic pain medication on a long term basis and that your doctor has tried and exhausted all other available options. Whenever I keep someone on long-term opiate therapy I always have documents stating why and a plan to continue or not, but no physician should leave their patients with out medications no matter what the situation. I really hope this helps and FYI we are also doing study’s on replacing dangerous high potency narcotic medication ( Dilaudid, Fentanyl, OxyContin) with a just as potent pain medication called Buprenorphine. I will keep everyone updated on our findings.

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51

I literally need help help !! I went and dug all my old bottles and they were all Perdue !!! This is traumatic all the years taking it thinking it was not the one that caused me pain. It’s not normal for Percocet to make you shake way later waking up in the morning and then when take it goes away ! I’m so upset how did the designs pill that shows more pain as s side affect way later and it’s not withdrawl at all of course . Like in 24 hours after taking two you are shaking internally! Yet I don’t have that kind of pain without any pain meds! This is crazy and every pharmacy in Martinsburg WV after managed Medicaid only gave me thst one !

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58

In Cali., chronic pain teams goal, (no opioids) free of all pain meds. After 20yrs. Norco. & 15 high dosage fentanyl patches, it’s taken a year of stepping down, now free of all! I have 5 of 7 days rough & in pain. It’s forced me to accept pain, as a part of life & I can live through it. Others that abuse & sell meds caused my quality of life to be less!

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59

Pain medication behavior varies from state to state. I'm in Connecticut and so far, I have been able to stay with my primary care doctor for my intractable pain post (2) spinal fusions, (cerebrospinal dura tear during surgery) > foot drop, arachnoiditis, scoliosis, and L-2 is still protruding plus "other issues" connected to foot drop. My injury is work related and the claim adjuster is approving my medication due to the malpractice, plus me, NOT wanting to be cut open ever again!
My primary care doctor took over once the neurosurgeon got banned from CVS. Went to WALGREENS and so far, I am still getting everything approved and filled. The pharmacist was a pain in the butt a couple times, but I fixed that by reporting her to corporate. CT. also has to pay for medical marijuana, as long as you qualify and it is connected to your injury. It falls under "compassionate care laws". Florida and other "Red states" are terrible on both of these issues.
Blaming Obama is just stupid. The House & Senate were a Republican majority, during his time in office. Why isn't your orange criminal reversing it, since it seems to be all he does when it comes to anything and everything Obama?
#DontPunishPain actually is getting the CDC to "lighten up" the strict guidelines, now that people are committing suicide, NOT because of OD'ing but because their pain is not being managed. #CPP voices mattered~

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62

Re: methadonehater (# 60) Expand Referenced Message

You all need to really get on the kratom train and end all these bad opiates once and for all. Benzodiazepines are also hit and same with Adderall. They don’t want us better they want us suicidal or in too much pain. Brace yourself pharma is just one agenda! Next 5G mobile towers at every corner. Bad water. Unclean air. Cutting corners on organic foods. You really want to start getting as 'medsless' as possible or when s*** hits the roof we’re all as good as dead. I told my dr so many things and he’s retiring so is his nurse. I was hoping to hear in tripping but I’m not pharma is part of agenda 21.

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65

Re: Etech (# 63) Expand Referenced Message

I keep saying the issue is they’ve changed the design of opiates, they eventually cause adverse reactions and more pain, yet when you take another pill the pain goes away so you never catch that it’s the pill causing more pain. Stay away from Purdue pharma’s new name Rhodes Pharma. The design in generic opiates have completely changed!!! Maybe not everyone has caught it but that’s why unless your dying of cancer forget it. Look at the huge increase of reported adverse reactions since 2014! To now!

And that’s all cvs gave me was the worst one and of course they do it to ya when you have other meds on your list so you don’t know which meds are doing which! Now it’s happening with Dava pharma’s Xanax. I swear and on top of that I live in rental assistance next. To a bombardment of 4-5G mobile towers, digital meters, and a bombardment of high levels of WiFi! And the meds work like an antenna to this technology it’s insane but this is gonna have people getting a variety of a new set of problems! Heart attacks and blood pressure etc it’s really bad my dog just died and my neighbor just got carried out for a heart attack and I’m in not position financially to move. And my dr is retiring so I’m losing my meds as I’m still having adverse reactions and weaning off.

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6

Help. My current caring PCP left practice and now I need a new doctor or pain care provider in New Hampshire.

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22

Re: Christine (# 2) Expand Referenced Message

I was on Opana ER for a short time in December 2017. My Doctor insisted that I stop Fentanyl on Dec 26, 2017 and start Opana ER. It did nothing to help; I tried for 2 weeks. I felt worse at the end of the first week than I did in the first few days which was the exact opposite of what my doctor had expected. I even took the DNA test using the cheek swab to try to find the best medication for me. The test cost me $250 because my prescription plan would not cover it. The $250 was the cost the company offered for “the poor”. If it cost more I would not have agreed to the genetic matching. After 2 weeks of pure hell, with the help of my psychiatrist, my pain management doctor gave me a prescription for the patches. Soon after I heard Opana ER was taken off the shelves of the pharmacies and was no longer being produced. I don’t remember all the details but it was found to be dangerous.

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