Is There A Representative For All Chronic Pain Patients
(Newest replies first)

Is there a rep. for the ppl. who were controlled on 3 OxyContin OC a day, who now suffer and have proved the new OPs DON'T WORK? NO MATTER WHAT PURDUE OR FDA SAY? We need a rep. for us chronic pain patients, who were controlled and NOW SUFFER & CAN'T DO MORE THAN LAY IN BED CRYING.

REPLY

REPORT

Re: Mark (# 3)

You know what else is ridiculous? It's when you become addicted to opiates due to chronic pain, and then they take all your opiates away. What do you do? You go to street drugs. Now, all the street drugs are pretty much laced with fentanyl or are just fentanyl itself, which is dangerous as hell and killing people left and right. Why? Because a few addicts are going to take away all the opiates from people who need them. It is absolutely ridiculous. If a person is in chronic pain, what's worse: not having a life because you're in chronic pain, or being addicted to Oxycontin or whatever drug it is? If you ask me, I think I'll take the latter. Having chronic pain in my back is like an "S." I am uncomfortable continuously, all the time. And because I am an addict, I have been to treatment for opiates, and now they put me on buprenorphine. You know what it does? Nothing for the pain. It's bad for my teeth; it is absolutely ridiculous that they are allowing chronic pain patients to just suffer, suffer, suffer.

So, instead of suffering, what are we supposed to do? We go to street drugs because they're cheaper, and our doctors have their hands cuffed because of the FDA's bulls***. Meanwhile, fentanyl is coming over the borders like bales of hay. What is the FDA doing about that? Nothing. "Oh, we're going to put out Narcan to save people. Oh, wonderful!" But in the meantime, everybody that's suffering and in chronic pain has to suffer. It doesn't make any sense at all. If you're in chronic pain, what is the difference? Who cares if you are addicted to your chronic pain medication? I don't understand. These are the doctors; these are the ones that prescribed it. Initially, all these drugs helped: the Fentanyl patches, the Dilaudid, the Oxycontin – the regular Oxycontin – helped. But because they started prescribing it to everybody with any kind of ache, now people with severe aches can't get it, and they end up with what? Oxycontin OPs, which are junk! Somebody has to do something because our country is so freaking backward, and our kids are dying. I would rather have my kid addicted to Oxycontin than have him go out and risk his life getting fentanyl on the street. You know what? This country needs a makeover, bottom line.

REPLY

Was this helpful? 0

Re: Christine (# 2)

I was on the phone 7.5 mcg fentanyl patch.they cut me to 6.2 mcg. 1 is a 5.0 patch and the other is a 1.2 patch ...I think their goal is to take me to 5.0 but they gave me Norco for breakaway... The paths are still available and many companies make them.. whoever told you they are not available lied to you

REPLY

Was this helpful? 0

Re: Anjali (# 15)

It’s when medicaid kicked in you guys we don’t pick our leaders so it doesn’t matter . The Rothschilds who own our banking system are who run the show. Yes it got worse with medicaid 100% because the plan was to bombard the system and have retired disabled and elderly folks bumped off . All the generics are changing for the worse under Obama and trump but it’s all an agenda it doesn’t matter who’s in office sadly we really don’t decide our leaders. It’s all an illusion but yes things went south big time since medicaid and now it’s gotten way worse

REPLY

Was this helpful? 2

Re: Etech (# 63)

I keep saying the issue is they’ve changed the design of opiates, they eventually cause adverse reactions and more pain, yet when you take another pill the pain goes away so you never catch that it’s the pill causing more pain. Stay away from Purdue pharma’s new name Rhodes Pharma. The design in generic opiates have completely changed!!! Maybe not everyone has caught it but that’s why unless your dying of cancer forget it. Look at the huge increase of reported adverse reactions since 2014! To now!

And that’s all cvs gave me was the worst one and of course they do it to ya when you have other meds on your list so you don’t know which meds are doing which! Now it’s happening with Dava pharma’s Xanax. I swear and on top of that I live in rental assistance next. To a bombardment of 4-5G mobile towers, digital meters, and a bombardment of high levels of WiFi! And the meds work like an antenna to this technology it’s insane but this is gonna have people getting a variety of a new set of problems! Heart attacks and blood pressure etc it’s really bad my dog just died and my neighbor just got carried out for a heart attack and I’m in not position financially to move. And my dr is retiring so I’m losing my meds as I’m still having adverse reactions and weaning off.

REPLY

Was this helpful? 1

I wish that this website would collect all of the suffering people and collect all of these posts and submit or present them to all these opponents that don't have a clue what they are fighting. Most of the pain sufferers know what the real problem is and ignore this propaganda we are fed by the either the CDC, Feds, DEA and so forth. Don't be led that most of the OD's are prescribed medicine. That is just BS to divert the real problem we have called illegal drugs and drug lords who they can't touch with any effectiveness. So blame it on the prescribed pills. PLEASE DON'T BUY THIS CRAP!

REPLY

Was this helpful? 2

In response to Christine's post from Fri, Mar 09 '12, 9:04 PM:

This chat is a little outdated but I just received an email from MedsChat about providing feedback to Christina's chat. Also they indicated that I have not been active for a good while and I guess they wanted to hear from me.

Hello Cristina, I know how you feel because without good pain meds, that is exactly what I do is lie in bed. I have many physical pain issues that have turned into psychological issues as well. Getting a doctor who will prescribe decent pain meds is a pain issue in itself because many doctors will not write and you have just wasted your time and money trying and who knows how many more times you will have to do this until you find a good doctor. I will tell you that I went through hell trying to get one after I had a good doctor but what happened was a delema. I lost that good doc because I was pulled over by an over zealous big in stature state trooper woman who wanted to make a name for herself. She pulled me over for a DWI after following me for at the VERY LEAST 5 miles and a mile off of the exit to try to make her quit following me. The video ONLY showed my field test (monkey see monkey do) where my lawyer and mother observed it and was convinced I was not impaired. The video did not show the 5 miles she followed me as she would AND should have pulled me over much sooner if I was so called impaired and driving so terrible. The main problem was I had just left the doctor's office with my meds but had not taken them during driving. I ended up having to plea to a reckless driving and a psychological evaluation where I had to enroll in an alcohol and drug course. This course discouraged the use of narcotics so I had to get a form signed by my doctor stating that I could use them during the course. Of course that put the doctor in a compromising position when he was then before prescribing 180 mg. of morphine and had to reduce me to Nucynta that isn't worth a ****. And my narcotic meds were NOT confiscated when the cop pulled me over. Even the local cop said I was not "loaded" when I asked him something as he was sitting behind the desk after the trooper arrested me.. Anyway, I had to take a plea to reckless driving. But the DWI arrest remains on your arrest record and when cops run your plates they see that and harass you. After that it took me about 3 years to find another doc that would write good meds.

Now I am hesitant to go back to the new doc that writes because of a weird thing that happened during a simple procedure that he has performed many times already. This particular time it was the same type of simple procedure where they put me out with anesthesia and inj. me with a nerve blocker as many times before.The difference this time was when I woke up in the recovery room it was like I had pneumonia symptoms.with so much fluid in my lungs that I could hardly breath. All the nurses told me to cough but that did not do any good and then discharged me.. I didn't go to the hospital because I have COPD and Asthma meds at home and don't think the hospital would have done much better. So usually, my anesthetics wear off before I am discharged from the procedure but this time it felt like it lasted hours and felt woozy even after I got home. Come to find out later on that day, I had 102 degree fever. This seemed suspicious when I felt very fine and healthy before the procedure that only took from a half to 1 hour...then right after that, feeling like I had pneumonia? So I don't know if I want to go back. What do you think? Do you think I am overreacting? Would you go back to him?

So to get to the issue of having a leader for a pain campaign, I totally agree with you on that issue. I have to say that previously, maybe between a year and year and a half there was a petition that was being passed around and if I remember correctly, I got help from this website. I remember a congress woman that had to lie down every half hour because of her back pain. I don't remember her name but I will try to find out for you. I'm not sure it was her petition or it may have been one of her proponents but maybe we can google it and find out. Or if maybe if MEDSCHAT has it in their archives, we could ask them if they might be able to find it and if they did, we would appreciate it very much if they would mention it on their site to us.

Well Christina, you are right that we need a rep to speak for the people who really need good meds for our pain. These people who are trying to ban them have got no idea how much suffering we are having and it is all in their hands and it does not matter to them because they are not in our situation. All they see is the big OD WHICH WILL HAPPEN NO MATTER WHAT. I just don't believe that the doctors or prescription narcotics are the leading problem of overdoses. THIS IS PROPAGANDA. We all know that mostly all of the OD's come from STREET DRUGS. Why are the doctors and pharmacies being accused? BECAUSE THE DEA CANNOT STOP THE STREET DRUG FLOW. So the only thing they can control is the FDA, doctors and pharmacies so why not blame them for this is their PATSY. C'mon people, smell the coffee. As long as there is a market demand for illegal drugs, there will always be that Pablo Escabar, Griselda Blanco or El Chapo to fill their shoes when they are gone. Prohibition proved that the war on alcohol was lost a long time ago and drugs are no different. If drugs were an issue back then, do you think prohibition would still be around? Even now, many states are considering legalizing marijuana and in Colorado it is a state statute that allows people to smoke it as a pleasure. So Christine, even though there have been petitions but these must keep going so it does not die out and the wrong people will prevail. Also, I wish you well feelings and hope you can find your meds that will give you relief...Good luck.

REPLY

Was this helpful? 3

Re: methadonehater (# 60)

You all need to really get on the kratom train and end all these bad opiates once and for all. Benzodiazepines are also hit and same with Adderall. They don’t want us better they want us suicidal or in too much pain. Brace yourself pharma is just one agenda! Next 5G mobile towers at every corner. Bad water. Unclean air. Cutting corners on organic foods. You really want to start getting as 'medsless' as possible or when s*** hits the roof we’re all as good as dead. I told my dr so many things and he’s retiring so is his nurse. I was hoping to hear in tripping but I’m not pharma is part of agenda 21.

REPLY

Was this helpful? 1

Re: PAM (# 7)

How are you doing now Pam? What have you been doing? Meds ect., In or out of the chair?

REPLY

Was this helpful? 2

Big brother is hurting everyone who is in chronic pain. People who have been taking pain medication for years should not have the rug pulled out from under them. This is a short-sighted and stupid way of dealing with chronic pain suffers.

That's all there is to it.

REPLY

Was this helpful? 3

Pain medication behavior varies from state to state. I'm in Connecticut and so far, I have been able to stay with my primary care doctor for my intractable pain post (2) spinal fusions, (cerebrospinal dura tear during surgery) > foot drop, arachnoiditis, scoliosis, and L-2 is still protruding plus "other issues" connected to foot drop. My injury is work related and the claim adjuster is approving my medication due to the malpractice, plus me, NOT wanting to be cut open ever again!
My primary care doctor took over once the neurosurgeon got banned from CVS. Went to WALGREENS and so far, I am still getting everything approved and filled. The pharmacist was a pain in the butt a couple times, but I fixed that by reporting her to corporate. CT. also has to pay for medical marijuana, as long as you qualify and it is connected to your injury. It falls under "compassionate care laws". Florida and other "Red states" are terrible on both of these issues.
Blaming Obama is just stupid. The House & Senate were a Republican majority, during his time in office. Why isn't your orange criminal reversing it, since it seems to be all he does when it comes to anything and everything Obama?
#DontPunishPain actually is getting the CDC to "lighten up" the strict guidelines, now that people are committing suicide, NOT because of OD'ing but because their pain is not being managed. #CPP voices mattered~

REPLY

Was this helpful? 1

In Cali., chronic pain teams goal, (no opioids) free of all pain meds. After 20yrs. Norco. & 15 high dosage fentanyl patches, it’s taken a year of stepping down, now free of all! I have 5 of 7 days rough & in pain. It’s forced me to accept pain, as a part of life & I can live through it. Others that abuse & sell meds caused my quality of life to be less!

REPLY

Was this helpful? 1

Re: Livingwithcancer (# 5)


In defense of LWC, I don't think of it as go off and die but it sure makes it hard for legitimate sufferers. I know at least 2 people who died from an OD but they just didn't get the help they needed at the time. Addiction is a disease and many do not know this. And most addicts are in denial and feel they don't need help. Yet some don't deny it but cannot stop because of an underlying reason. And some cannot be helped no matter what they try. They either wind up dead or in jail because they don't want the help and don't want to stop even when intervened. So you can't make them stop. That is where I think LWC is coming from. I also know addicts like that too such as a girlfriend's daughter. It would take divine intervention to change her.

REPLY

Was this helpful? 0

Re: Christine (# 2)


Hi Christine, Fentanyl did not help me either. First of all no relief then I notice my breathing was real shallow. Whether or not it was too much, i don't know but i went back and complained and got on Morphine. A little takes the edge off for me but too much does not help. Of course the thing that helped was the combination of Lorcet and Soma which my doctor will not prescribe for me. They are all paranoid of losing their license.

REPLY

Was this helpful? 2

Re: Aguywhocaresaboutothers38 (# 51)

Percocet is an immediate release medication with a half life of 4-6 hours. Depending on how many and what time of day you take your medication.. Let's say you take one pill at 8 am again at 2pm and once more at 8pm then you go to bed at 11pm. The medication leaves your system after 6 hours and if you've taken it daily for years your body becomes physically dependant on the medicine so when you wake in the morning your brain's opioid receptors are empty so to speak. Have you told your Dr of your symptoms? I'm not a Dr but have suffered chronic pain for most of my life and for decades had decent pain control. It certainly sounds like an extended release medicine would eliminate those uncomfortable symptoms. Good luck!

REPLY

Was this helpful? 3

We need Judicial Watch to help us protect our right to humane medical treatment. This board has fallen off track of the original post Is there anyone to help. Yes I believe there is there is a media onslaught on Opioids because Government wants the public's backing so they can do away with chronic pain treatment wake up people it is working and unless you, you and you do your part, kiss your pain management goodbye. Please flood judicial watch a lawyer group who goes after government overreach and their abuse of power only way we will get help is if the American people flood them about the abuse chronic pain patients suffer and docs also because I cannot share a website you have to google judicial watch contact and actually contact them...

REPLY

Was this helpful? 4

Re: ENJOY LIFE please (# 4)

If you can even get it prescribed and then filled, that would be great!!!

REPLY

Was this helpful? 0

Do you end up having tremors or Crazy sciatic nerve like pain

REPLY

Was this helpful? 3

I literally need help help !! I went and dug all my old bottles and they were all Perdue !!! This is traumatic all the years taking it thinking it was not the one that caused me pain. It’s not normal for Percocet to make you shake way later waking up in the morning and then when take it goes away ! I’m so upset how did the designs pill that shows more pain as s side affect way later and it’s not withdrawl at all of course . Like in 24 hours after taking two you are shaking internally! Yet I don’t have that kind of pain without any pain meds! This is crazy and every pharmacy in Martinsburg WV after managed Medicaid only gave me thst one !

REPLY

Was this helpful? 1

Re: Painwarrior (# 48)

If you have the money, just find yourself a good fentanyl doc and start getting it, it is a great pain killer - I wouldn't post this if I hadn't been through the ringer myself, I'm on a low income, and I can't afford to buy fentanyl from clinics that have it. But, it's not hard to find, especially if you live in a bigger city.

REPLY

Was this helpful? 0

Re: PAM (# 7)

I’m starting to think they know the generic opiates are bad and a faster death sentence

They want us to turn to the street and instantly die off the system

Even drs that want to help us and I have one who has was thrown to see that generics are causing me such serious issues when he justified it because they helped me and I got fit and lost 90lbs

Then came managed Medicaid and it all changed

Meds got worse generics just awful

Stuff is getting real

REPLY

Was this helpful? 3

People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight ...

557 REPLIES

Has anyone else been prescribed Belbuca? I'm unable to have any other opiates prescribed to me and now I'm on th...

4 REPLIES

I have been on methadone for chronic pain after back fusion in 2007. Been taking aderall for add for two years, also. Dr...

2 REPLIES

My husband is disabled. has had 3 hip replacement surgeries, moved to southwest michigan last month. husband's dr th...

3 REPLIES

Thanks to all you drug abusers there has been an ongoing war on us legit chronic pain patients. Thanks to all who abuse ...

118 REPLIES

Many people that are being turned away from opioids (and maybe other drugs) are refused based on the requirement that th...

1 REPLY

Is narcotic pain medicine becoming a thing of the past? Why are doctors across America phasing out the practice of presc...

1547 REPLIES

I had signed an old petition "Stop the DEA from interfering with chronic pain patients and their medical professiona...

29 REPLIES

My dr said they were limiting prescribing oxys to just cancer patients, took me off oxy 30s and now im on 4mg hydromorph...

48 REPLIES

Was taking 6-8 Lortab's a day with Fetanyl patch every 72 hours. Doctors need to know if my spine pain is still pres...

5 REPLIES