Immunosuppressive Forums (Page 5)

My father has been a patient of myasthenia gravis for years & is also diabetic. Is imuran safe for him? He has been taking 2 tablets daily for the past 1.5 years. In the past he had gone through plasma franious treatment once for almost 5 to six days. He also had high blood pressure. ## I'm a patient of Mysathenica Gravis. In mid Sept. 2015 my Right Eye Lid had gone down about 75% gradualy in 15-days, then I consulted a Neurologist who advise me first to start taking AMYGRA Tablet, 1/2 each morning/night, and also advised for some Tests, like, MRI, U/S of Chest etc.

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Have been using Humira now for 6 months and pain has been non existent for that time but for the last 6 weeks have chronic back ache and neck pain again. I suffer with psoriatic arthritis in the back and neck, I can't see my Rheumatologist until 16th May and taking strong pain killers is making me tired. I saw an advert for a pain relief pen on a website and wondered whether I could use that in conjunction with Humira the fact that it is drug free is very appealing to me

The balance between benefit & side effect, must be overwhelming on the side of benefits. Otherwise the medication should be considered "work in progress". The question that needs to be asked is why it is allowed for general distribution (remember radium tablets Cora 1910-1920) ## Hello, Ken! How are you? Neoral is listed as containing the active ingredient Cyclosporine, it is an immunosupressant. It was originally isolated from a fungus in 1969, so it's actually not new. The FDA lists its typical side effects as possibly including nausea, dizziness, headache, gum enlargement, peptic ulcers and pancreatitis. What types of symptoms have you experienced from taking it?

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I was prescribed humira for crohns and I finished my starter pack 5days ago. I am having numbness/tingling and nwrve pain in my left arm and left leg. Has anyone else experienced this and does it typically resolve? I am a musician and the numbness/tingling affects my ability to play guitar which is very scary. Any info/advice is appreciated. Thanks. ## Hello, Tootie! How are you? Those are listed by the FDA as being common side effects of Humira. You may also experience bladder pain, feeling cold, indigestion and stomach pain. However, side effects are usually transient and tend to go away in time, once your body gets used to the medication, but that may take a few weeks. Is there anything else I can help with?

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I am 53 years old women patient of Rheumatoid Arthritis since 1987. Taken infliximab two times (1991 and 2006). At present I am taking Arava 10, Methotrexate, HCQS-200, Defza 6 and other medicine for blood pressure and thyroied. I am taking Defza 6 for last one year. Now my skin is becoming dark and eye power is gaining. How long I can continue Defza 6. Any other sugestion? ## According to your advice I have reduced the Defza 6 dose to alternative day and also reduced the dose of HCQS. Pains are increasing but trying to reduce the pain by Paracitamol. I shall reduce the doses of above medicine gradually. ## Now I am taking Defza 1mg daily. I have stopped HCQS. Now I am taking Saaj 500 instead of HCQS. Pain is tolerable.

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Just curious, I've been on Humira for almost 2 years. Has anyone had issues with low iron or low red blood cell counts? ## Hello, Denise! How are you feeling? The FDA warns about the possibility of developing various blood abnormalities, while on Humira. Other side effects may possibly include flu like symptoms, back pain, sinusitis and hypertension. Has anyone else experienced this?

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cellcept was prescribed for me by neurologist for multiple sclerosis. Have had MS for 20 years and had symptom progression 2 years ago. Within 4 weeks I had almost complete turnaround with my MS disabilities. I could see better, was able to walk without my cane. I could swallow without choking. I speach and handwritting improved 100%. My doctor is with the Vanderbilt MS clinic. I have not been able to talk with anyone else with MS who has had such improvement. I have had no side effects. I must have CBC blood test every 6-8 weeks. Would like to hear if this is considered a break-through with other MS patients. I don't think FDA has approved cellcept for use in MS treatment. ## My mom has had MS for 25yrs, has been wheelchair bound since 1998, we tried Avenox, Copaxon, Betaseron shot...

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I have been on Humira for 2 months now for HS. The shot almost instantly makes my muscles ache, my bones ache, no appetite, have trouble sleeping, etc. Are the side effects that I have listed normal? Is there an end to treatment, or just on-going? ## Yes, those are all normal side effects to Humira, as listed by the FDA. You may also experience nausea, dizziness and headache. In some cases, they have been so severe that people had to stop treatment with it. The duration of treatment will depend on how your respond to it. Is there anything else I can help with? ## No, you have just reiterated my fears. I spoke to my nurse and Dr. wants to change dose. I would guess this would be to 1x weekly - as per new FDA guidelines. This will be even tougher for me. I will just stick it out the best ...

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Hi guys. I've been on humira for about 6 months, what a life saver it is! But the last 2 inj's. when I get the skin ready to inj. myself the needle pricks my skin, then I think comes out and fills up the little white bit that covers the needle.... Anyone else had this problem?

I've been on Humira for one year with no serious side effects. Six months ago, I was on a series of antibiotics for almost a month for sinusitis and cough related to that. Since then, I have these huge coughing fits that end with me gagging to get control. Although I have never had allergies, this week has hit me with the classic signs of watering eyes, coughing and runny nose. Has anyone had these types of problems on Humira? ## Hello, Gigi! How are you? Those are listed as possible side effects of Humira, according to the FDA. You may also experience insomnia, agitation, wrinkled skin and shallow breathing. Has anyone else that's been on it experienced such side effects?

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I have been on Humira for about 5 years and it has been a life saver. In the past 3 months or so I've found that it would only help for 10 - 12 days instead of the 2 week cycle I've have been on. Now I'm down to about 80% effectiveness and only helps for about a week. Has anyone experience a resistance to the drug after a period of time? ## Hello, Richard! How are you? It is normal for that to happen with any medication that you are on for a long period of time, it can vary from person to person, so there is no time frame that can be given. Have you discussed the issue with your doctor? They may have an idea on how to help you. ## Yes. At least that's what I feel is happening along with random pains in my legs mostly my thighs. I have had fibramalasia symptoms but typica...

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I was just wondering if anyone else has come across this problem. First off, I know I cannot get live vaccines while taking humira. Although, I need to get my travel vaccinations and need to take a live one. About how long is a good amount of time to wait until you can take a live vaccine after stopping humira? My doctor is taking a while to get back to me with an answer. ## Hello, Mark! How are you? I'm sorry, but I can't find any data on that, though I've searched several resources. Have you heard back from your doctor, yet? Which vaccine is it? ## I am on Humira, is it okay for me to have contact with my grandchild who has just had the live flu virus shot (live spray up nostrils) Thanks for any help ## It's six months of no humira before a live inj. can be given. Then...

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I've been diagnosed with UC since I was 5. I am now 18 and for the most part my UC has been pretty mild. However I find myself suffering more from psoriasis and although not diagnosed yet but fairly certain, some form of arthritis. I often find my bones and joints aching, I have patches of psoriasis that just won't go away but my UC only flares once every one to two years. I'm not on much medication and if I am my doses are very low. I'm wondering if taking Humira would be a good option as it could treat all three illnesses, or if it would be a step backwards for me since all my conditions are mild- moderate and I have been able to live with them. I guess I'm just looking for someone with a similar story? Did Humira treat multiple problems for any of you?

I'm 55 yrs young, female, and just started on humira for moderate UC (diagnosed in my 20's). Also, I've been on HRT (estradiol .75 mg) now for 5 1/2 years since having a hysterectomy. Is there a possibility of negative drug interaction with humira? If so, what might the be? I'll have to admit that I'm a little nervous anyway..... ## Hello, Sunny! How are you? I didn't find any problems or interactions listed between them, but it's always best to double check such information to be sure. The FDA lists the typical side effects of Humira as possibly including administration site reactions, dizziness, vision problems, headache, nausea and psoriasis. What are you nervous about? Perhaps those issues can be addressed to help you. ## Hi, I am also 55 and have discuss...

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I'm a 42 year old male that was dx with RA about 1.5 years ago. Initial treatment was methotrexate but had lived issues. I've been on Humira for three months and it has all but wiped out my joint pain and I feel great except for my left jaw and ear. Jaw and ear pain and teeth/bite shifting started at about week three and has been intermintent since. Ear pain has decreased over that time and jaw pain is hit or miss and seems to come on with out rhyme or reason. It's bad enough right not that it woke me up. Had my last apt with my RA doc last week and mentioned the pain and he did not seem concerned or think that it is either Humira or RA related. I've never had issues like this prior and Humira is the only change. Any ideas/similar experiences etc? I would hate to have to...

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Please let me know about the scheme of getting free vials of remicade injection. ## Johnson & Johnson does have an assistance program for uninsured people that are receiving treatment with Remicade, but I am not sure what countries it is available in, outside of the U.S. They list a toll free number, so you may want to try calling to see if you can reach them and get more information, it's 800-652-6227. Is there anything else I can help with? ## i am working with j&j for remicade in central part of india and i would like to ensure that nedy paient ll get it at affordable price contact me ## please sms me your number for remicade. ## My mobile no. is xxxxxxxxx ## Kind attn: Mr. Rohit Singh & Mr.Iav Kush Pandey My mobile no. is 09xxxxxxxx ## I had been suffering from psori...

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I have started taking Cellcept for the treatment of CIDP. I am interested in knowing if anyone else is taking cellcept for CIDP and what kind of results they have had. ## I started taking it 3 week ago for CIDP...My Neurologist told me that it could take up to 6 months to started working. ## I have cidp and am on prednisone right now, My neurologist is going to add cellcept next month and I am wondering how it is going for those already on it. ## I have been on cellcept for over 4years. I am now having a number of issues that are believed to be associated with it! ## CellCept contains the active ingredient Mycophenolate and is used primarily as an immunosuppressant for organ transplantation. Some of the most common side effects associated with this medication include: increase susceptib...

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I have a question I'm having a pretty bad period pain and cramp wise and I was wondering if I should wait and take my Humira after it's over? Has anyone ever taking it while having a bad period and been ok? I have been on it for about eight months and have done fine this is just a painful menses so I'm concerned. Thank you for your input. I know my doctor will just say to take it so I'm coming to ask you all for your nonbiased opinion ## @Mamayogi, I haven't come across any specific details stating that you can't take Humira during your period. However it is important to note that this medication can cause changes within your menstrual cycle; including but not limited to abnormal vaginal bleeding or discharge as a potential side effect. But if you seem to be doin...

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I have had 3 infusions of Rimicade I have developed a small quarter size rash like tiny blisters on my butt check and at the top of my cleft, could the Rimicade cause this? ## Hi Sebrina, According to The US National Library of Medicine, Remicade (infliximab) has been known to cause different types of rashes on the cheeks or arms that are said to get worse when exposed to sunlight. It is also known to cause red, scaly blisters and skin sores. Ref: nlm.nih.gov/medlineplus/druginfo/meds/a604023.html#side-effects This sounds a lot like what you may be experiencing, in which case the link above recommends contacting your doctor as soon as possible. I would hope that he/she can then try switching you over to something else that may be safer.

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I found a pink and cream colored capsule with a rx or hourglass looking symbol and 311 over 50 imprint I need to know what this is if anyone could help. Thanks ## Hi monica, I haven't come across an exact match to your pill yet, but I did find out that Teva Pharmaceuticals puts an hourglass symbol on some of their pills (i.e. two small triangles facing one another). A good example of what I'm describing the hour glass symbol to look like is portrayed in a 50mg orange Cyclosporine capsule. If you google that maybe it'll give you an idea of who the manufacturer is... Does anyone else recognize this pill as something made by Teva?

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