Harvoni Side Effects (Page 35)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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Re: erna (# 670)

so many of us with now severe back pain and can't tell you how many times I have heard people say my tailbone hurts,,,mine too,,,something has happened to our pain sensors, nervous system and no one is even looking to see what happened to us 1 %? Or are there actually more of us just not on these forums?

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Re: Dogman (# 669)

Update! After my last post I started having a fever that started low grade, but each day got worse until a temp of 104. Finally got a phone call from my doctor and I'm at svr on my 8 week blood test. Temp finally broke, and now I feel great! Stopping was the right move. My blood pressure, which had been slowly creeping up over the years, has returned to normal! I check it each morning per dr instructions, and was told if it was in the normal range, I shouldn't take my blood pressure medication for that day. Before the harvoni, my blood pressure was high enough for me to take each day, but now post harvoni, my blood pressure is normal! I feel great, and my blood pressure is back to normal, and the virus can't be found in my blood. Right now, it's a big win. In three months I get more blood tests, done and if I'm still at svr, then I can be considered cured. My doctor does not think that I will be cured with only 8 weeks of treatment. I'm hoping she is wrong. I'll post the results when I get them.

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Re: luna (# 680)

Yes me too. But through detoxing, clean eating, and physical therapy I’m nearly back to pre Harvoni! It took a year to get rid of pain but hep free and Harvoni Free.

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Re: luna (# 680)

I took Harvoni for 8 weeks too and HepC free. Agree that no need to put poisonous drug like Harvoni for 4 weeks more! My body just had enough and by the end of week 8 more and more nasty sideeffects were present! I am not sure I would survive 4 more weeks with high BP, heart palpitations, shortness of breath and much more.

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Not sure who all you Pro people are maybe we didn't take the same medicine so either mean all these other people crazy or you people took sugar pills

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Re: erna (# 684)


I'm sorry but this medicine has done nothing for me but make me ill and make me wanna jump out of my skin. If this is the cure I think I'd rather die... and by the way, I am in remission because I had cancer. I had chemo radiation and nothing can compare to this.

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I was thinking the same thing while reading the recent posts... Not that I want anyone to suffer from this drug, but I also don't want to be told exercise, vitamins, become a vegetarian/vegan, and you'll be cured! If it were that easy don't you feel the majority of these people would choose that? It feels like the Dr.s speech, lose weight, exercise, antidepressants, another drug to try that doesn't work! Only to be told that I've run outta options, you'll need to see a psychiatrist! They don't help with pain, just depression! But if you feel better about life and yourself you won't be in pain! What a load of crap... I want to die most days, I hate myself and my life, I see no future without Drs who are irritated with you, give you another pill, cause they don't know what the hell's wrong with you. Took Harvoni almost 5 weeks out of a 12 week course. I couldn't move, I STOPPED IT!! Dr still wanted me to continue. I am in way more pain now than before the treatment and I had lived with needing a hip replacement (bone in bone) for 4 yrs (2014) before I had it replaced; my knee was replaced Apr 2016 before starting this great drug in June 2016 and I couldn't walk! I could before the Harvoni!? Still have permanent nerve damage from it. But Dr's can't say for a fact it was Harvoni or the surgery. I had no nerve damage from my hip and felt like a million bucks!! Also, I didn't take Harvoni afterwards! Still need a right knee replacement but I am afraid I won't heal right. I was a bubbly, fun, mostly happy person before this drug. Now I'm just an obese blob of pain, that fears life and sees no future, but fears death, cause I want to see my Grandchildren grow up. God help all of us who are that suffering 1%.

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luna I have to respond to your last thing I had back surgery of really long time ago and I have my good days and my bad days now after less than 25 days on this I am miserable I am snapping at people I am bloated to anything I mean I am just a mess I wish I never would have started this thing

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Does anyone know about A-fib after Harvoni treatment? I finished 84 days on a Thursday and was admitted for severe heart issues the following Monday night. Any info would be appreciated. Thanks.

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Re: Patrick (# 689)

I have heard of many people with heart issues post treatment. Some of course during it. It is the mediction!

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Re: Patrick (# 689)


Absolutely....there are many reports of heart issues during/post-treatment. Check the FDA website for hundreds of reports of heart problems from Harvoni.

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Re: Keeneland (# 688)

I thought momentarily I was getting better, almost 2 years post, still have severe back pain, feet pain, digestion problems, ears ringing, headache! Every symptom of the drug while taking it is still with me, I feel like my life is worthless, I can't work or do much of anything in so much physical pain.

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Re: Tina1624 (# 687)

I think that big pharmaceutical and Drs are covering for this garbage. I also went off at 3 wks and have never been the same, it was like I took a pill named demonic possession. Depressed, achy, high b/p, thyroid issues... I still have hep C but they are $100,000 richer. When are they going to hear the people?

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Re: Sandy (# 20)

Wouldn't surprise me if a person had difficulty walking after the Harvoni treatment. It seems to do strange things to muscles. I've developed a terrible problem in calf muscles. If i try to stretch it, just a little, it's impossible and painful. Strange symptom that i did Not have previous to my 8 week treatment. (I've been off of it for 6 mos. now). Have bizarre neurological problems now....and scheduled for MRI to see what my brain shows.

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Re: Candy (# 694)

Funny you mentioned your calf muscles. I'm having the very same issue, but my treatment ended 3 months ago. The liver clinic was supposed to have done blood work on me this month to see if the harvoni worked in the 8 weeks I was able to take it, but I think they may have forgotten about me. The truth is they don't think I had enough of that to cure me, and they really don't want the failure on their record. After all, according to the commercials, there's only 250,000 people that have taken the treatment. It really screwed me up! Made me really sick, and kicked my peripheral neuropathy into overdrive! The peripheral neuropathy is what the pegasus treatment did to me. Ruined my career of 35 years. I'm still pretty disgusted with V.A. healthcare system.

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Re: Dogman (# 682)

Hi, I’m glad to see that I’m not alone here. I did the Harvoni treatment in 2016, for 3mnths. There was no hep c detected after 5wks. It was totally gone. But my gastro dr. Wanted me to finish the 3mnth treatment. I hesitated because I was having problems with some of my joints prior to treatment and the treatment was causing more pain in my joints, muscles and nervous system/anxiety. Everything was so intense. I could hardly function. But, I was afraid my hep c would come back,so I finished the treatment. I was told by the pharmacist/pharmacy who was sending me the harvoni that all my side effects should go away after treatment. Well, here I am two yrs later in awful joint and muscle pain through out my whole body. My ansiety is sky high all the time. I have problems with my ears and eyes. I’m so stressed all the time. Now I’m told that I have an rheumatoid autoimmune disease. My blood work shows I have lupus. I’ve always wonder about what could harvoni do to the rest of my body, with it erasing my hep c so fast from my body. I don’t have quality of life really. I get depressed a lot. I’m on 24 hr pain medication and muscle relaxer, lexipro for anxiety.

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I too started to notice the same: legs pain while walking my dog and tingling in my toes. Do not have diabetes or overweight. Was left with blood presure highter then normal too. Did not have this problem before starting Harvoni. I just hope it is only these bad sideeffects I am left after Harvoni treatment. Ugly nasty medication. Would not recommend my worst enemy to take. Think good before agreeing for this treatment!

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Re: erna (# 697)

My thoughts on this medication are that your body knows when it's time to stop. In my case, 7 and a half weeks was all my body could tolerate. Although my doctor wanted me to be on this medication for twelve weeks, I stopped at 7 and a half weeks. My bloodwork at 3 mos post treatment shows no virus detected. My understanding is if you show no virus post harvoni at 3 months, it's considered a cure. The reason I stopped is because I started to spike a fever over 101 every day the 7th week, and I was extremely dizzy!! I also lost 40 pounds in that 7 week time. The neuropathy in my hands and feet caused by the pegasys treatment went into overdrive. I felt horrible for about a week after I quit taking this drug, and at the end of that week my fever finally broke, and I all of a sudden felt better than I have in a very long time. I was still dizzy as hell though. I also started craving oranges. I was going through oranges like a fiend! Orange juice too. It was a craving that wouldn't stop. I'm still drinking lots of oj. But not like I was after the week of hell. Now I'm dealing with tendonitis in my shoulder. Really severe, and extremely painful, and that started shortly after the harvoni treatment. I'm pretty sure it's related, considering how badly the neuropathy was from taking this drug. I start physical therapy this thursday. 4 weeks at three times per week. We'll see how that turns out. Plus, I've had insomnia for the past two months. That started when the pain was at its worst. Regardless, though, I'm cured! It worked. My doctor said 7 and a half weeks wasn't enough time for me to be hep c free, but my bloodwork says different. I'm supposed to have an appointment with her sometime this month. I'm not sure when that is though. I guess they'll let me know, but it took me two months just to find out what the results of my bloodwork was. Getting information from the V.A. health care system is like pulling teeth! They're just not very forthcoming. Anybody considering this treatment should think long and hard before you start. I don't know what the effects of taking this drug are going to be. It's a waiting game now.

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Re: Stef (# 19)

I read through all of the posts and I got peripheral neuropathy from taking harvoni as a side effect, it sucks because there is no cure for me except I got rid of the hepatitis c. I was talked into taking the harvoni by the doctors and I had a low gen type so it was not necessary for me to take it. If it happened all over again I would never take it again! {edited for privacy}.

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Re: Denny (# 696)

Denny what type of pain medication are you on? Since treatment my pain issues in my low back and upper back are horrid, I take hydromorphone in the morning and a demerol at night, it barely takes care of the pain, just the edge off

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