Harvoni Side Effects (Page 28) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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Jim how long are you doing it for? I know its rough and I am one who is left 17 months later with chronic feet and hand pain, but glad that I am undetected. For some that didn't have symptoms prior to treatment I can understand stopping but I was having bad liver area inflammation pain for months and was more afraid of that!

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It worked for me as of now. But i have a very bad cirrhosis and hep c. hep c cured (maybe) and no side effects except i had a headache for 1/2 a day and very thirsty. All of the bad sides, i had them before and i had the old way of pills and pegasus and they still gave me the meds and it worked. I also take pain med methadone for pain. all in all. it is all good as far as i am concerned. But if i had no effects or very little, i don't think i would take it. I was at the end. so it was a win win for me. Just very tired and have trouble breathing. I have ascites from a liver problem where liquid makes your belly fill with fluid the liver doesn't work with. Hence the belly fluid puts pressure and compresses the lung and makes it hard to walk and breath but for about 30 steps and then stop and get air with heavy sucking in air. Hoping i don't want to pass out in the street. If feeling good stay with it. don't look for trouble. I was surprised that they let me get the new med Harvoni. i think they used me AS a trial patient to see how it works on very serious liver Hep C patients. Reading everything here and other sites, I think i would not do it unless i was showing bad signs that affect our quality of life. Remember the DR works for YOU. U tell them your problems and they're about helping out sick people. Demand relief!!! But you have to be truthful. Good luck.

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I spoke with my pharmacist last night about side effects prior to beginning harvoni. Nerve pain in the back and legs are definitely a side effect. I am lucky that I have no cirrhosis and my enzymes are good right now. This is after 20 years which amazed doctor!! I eat VERY healthy tons of fresh vegetables, fresh fruit, etc. I don't know if that has helped or not but, after having an extreme reaction to fentanyl pain patches I live on Greek yogurt, laughing cow cheese, some fruit and meat kills me. Fentanyl almost KILLED ME!!! If you have to take pain meds stay away from fentanyl, it's a killer!!!!!

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Have you tried neurontin/gabapentin (generic name) it is for nerve'm pain

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Just started harvoni 2wks ago for hepatitis c tx and have extreme hope and low back pain, in joints?

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i made sure that my Dr at the VA knew that i was in great pain. When he treated the pain , everything else feel into place. I am alive and thngs are on hold hep c wise. But u have to treat any extra side effects with this drug, then thy have to take care of what they brought it on. now they should take care of it. get ride of the pain and your world will get better. good luck

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I didn't have much pain while on Harvoni. The nausea was severe, the depression and anxiety were nearly unbearable. Lots of other sides but, luckily, no pain. One thing I know for sure is that it has become nearly impossible to obtain a prescription for pain since the new laws regarding opioids (about 2 years old). Not to mention the stigma of Hep C which is sometimes transmitted via needles. I wouldn't have been able to sleep on Harvoni if it weren't for my wonderful primary doctor who prescribed me Xanax. She has known me for over 12 years and doesn't pass judgements, etc.

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I would like to have a copy of the FDA side effects that you have; I have read Canada's site and am wondering if you have more than what's listed there. Thank you, I've spent months researching this as I now have glaucoma after taking Harvoni.

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I've been having post side affects back and legs and my neck are killing me .i finished my Harvoni in sep 2015 never hurt like this before.

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Well that figures >.<
1 day last week my forearm muscles for each finger felt like they were cramping at different rates and different weaknesses which was weird because a cramp is usually 1 thing not like this.

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Go to you tube harvoni day 50 stage 4 liver cirrohsis reversal, watch the vid

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I am so sorry, please tell your doctor. I went off it but do not want to give medical advice. My suggestion is to everyone POST, POST. Share with others. Sign the petition on change.org, let's help one another! Please see your doc and if u r feeling worse don't swallow the poll that it will get better, for me it for different but permanent. Now they are trying me make me out to be I don't know what anything to divert the responsibility from the doctor. I wish you the best please keep us posted.

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DennisHarvoni: High blood pressure can occur in those with lactic acidosis. Some people develop lactic acidosis as a side effect of Harvoni, most likely from the sofosbuvir. Also, people with poor liver health can develop lactic acidosis. You might want to get tested for this as well as for creatine kinase levels before taking anything new. Find out how well your kidneys are functioning. I am not a health professional and am only sharing what I have found in my own research. Not a lot is known about Harvoni's impact on the body, so your issues might be different than what I have talked about on here. If your doctor won't order lab tests, there are many labs that will take walkins. Many tests are not too expensive. For example, a CBC, complete blood count, runs about $35. Obviously you are good at researching, as the supplement regimen I ended up with after my research is similar to what you did. Don't stop now, you can figure this out.

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thanks for the heads up, got a weeks out of town when I get back ill be hitting the doc

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Is there anyone out there that is on Suboxone and harvoni

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HAPPY GO LUCKY: No but soon I will probably be on Methadone and Harvoni.

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Try a different Dr. I saw a Dr a year before I was okayed for Harvoni. This Dr told me I wasn't bad enough, (diagnosed 22 years ago) probably won't qualify for treatment. When I spoke with the office staff I asked a couple questions, like what do I do now? And explain the situation to me? NEVER did I get a return call from that Dr. In May 2016 I go into another Drs office for Colonoscopy and he offers to look into funding for the Harvoni, I have Medicare /Medicaid... I was covered!! As with these other people I too am having alot of joint pain, had just gone through Knee Replacement 2 months earlier (Hip replacement2014) and I am having a set back, having to walk with a cane, the fatigue/weakness is awful ..... But if it will cure my HepC I'm trying my best to finish the 12 weeks. I'm just beginning week 5... Please seek a second opinion, its your life ... And you deserve to live it HepC free.

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tina make sure your Dr gives u something for the pain. it will help your mental sense when u dont have pain

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I am curious about what others thought too....day #1 and I'm as sick as a dog.... Could it be suboxone?

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@Tina1624...congrats on finding a doc who is actually honest about this drug. Hope u continue to heal and that the virus stays dead.

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