Harvoni Side Effects (Page 27) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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We should all remember that STRESS will cause body aches and pain all over. Depression is the same. It will help if u can change your mind set. I know. Easier said then done. But we have to suck it up and bet one thing at a time. One way is to not to be depressed cause u r ill and not feeling well. I know when i feel like s*** I will watch tv and let my mind wonder off on to other things that make me happy. Happy thoughts will work wonders, and to help whomever u can and that also will help your mind set for the better. Good luck

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Do any of you know if people are going through the same kind of things with Sovaldi? Or is this just with Harvoni? I have read on a HepC support page that Harvoni is the more side-effect prone, the "more harsh" of the two...

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Day 2 on Harvoni. Side effects after two days are headache, a dull boring headachee, very tired, first day slept on and off for about 12 hours and thirsty, dry mouth. I will continue to post my side effects, God Willing.... The facts with my Hep C, I have no cirrhosis of the liver or signs of it. I have had Hep C since 1978, I had to have contracted Hep C in the Navy, I did drink quite heavily from then until around 2005, other than that I've lived a fairly normal life.. I am in the 12 weeks Harvoni treatment,, there are two drugs in the Harvoni medication which are called --> Ledipasvir 90mg and Sofosbuvir 400mg, these two are combined in one pill which I take daily at the same time. I pray it works and I pray that all the bad side effects I have read about dont happen. As I said at the beginning I will post side effects, I will try to do this every couple of weeks. I decided to take the chance it will cure me and I pray that I dont get all the wicked side efects that I have read about. The VA will see me every two weeks unless I need or ask to see my doctor in between. I will keep you posted..

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Jamie, God Bless that it helped you. I started this despite reading about all the side effects everyone wrote about, I wanted to be cured. The doctor at the VA in West Palm said that the side effects of a headache will go away, being thirsty is one that will stay around. As I said other than being really tired the first day, day 2 is not so bad. Keeping my fingers crossed. I indicated on my post earlier I would keep up every couple of days letting people know what if any side effects I have. I know after reading them all and I read them all, I was worried, day 2 it hasnt been bad as of yet, so its important to put as many reviews out there so that if anyone is deciding whether or not to take this that they have a variety of reviews to base their decision on. Thanks for your service, one Veteran to another... Stay strong brother!

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I encourage you who had or have bad sides to post on Twitter assuming u might have an account. I tell Gilead all the time how some of us were duped. I am about to lose my apt because I can't work. It's not funny it's depressing as hell. The world doesn't want to hear I couldn't work cause of med's. My LL feels my weakness, never been late before with rent and as always we see who our friends are and are not. There is mold in my apt and LL is giving me a hard time about doing any repairs, just when my immune system is weak I feel like I am in quick sand. I also take it personally, trying hard to find a soft landing place spiritually. The greed and power of big pharma. To think that they daily tell investors what to purchase, there will be more (suckers) *****s like u and I who made a deal with the devil and trusted yet again a doc who's best interest was the Dept of the hospital. I can hardly move my neck, back, all joints are really inflamed as I said before, now it's RA and what is more annoying is I have constant "airs" from migraine. I don't have headaches, just a very tight neck and aura. Not a happy place to be seeing lines and wearing shades or dim lights. Even a PC monitor is awful. Weak too, my back is so weak I feel off balance. This is not funny the financial toll that it's taken its hard to keep positive when the world is caving in and our bodies hurt all over.

When I did speak with my doc she said it was the Solvadi or whatever, too lazy to look it up, the other half of Harvoni. If she knew it was she rolling the dice that 3-5 could tolerate? Or did they only want to get ppl on it, PAID for and post treatment you are on your own. It's depressing no one cares. They care about the stock and their shareholders. They either don't know or will not admit that they do. Hard to believe we can type this but don't tell the doc, puleeze. One day at a time, so depressing.

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I hear you Jim. I started taking harvoni after i had enough of being sick so I would try anything. Well like i said earlier that i had a few minor problems like headache and thirst and that was about it. I had some many problems before so i can say it is from Harvoni. Also it is good if you are a Vet. I found that they know most vets have body pains and mental health also. so u get more understanding from Va Dr. find the older the Dr is and is a male. well.... they understand what u are going thru. They only ones I have had trouble with are the young women white Drs. well they now teach the Dr to not to give out drugs to people that really it. MY lady Dr said I am at the most she will give out. I take 10mg Methadone 3x a day and she has told that is the max she will give out. That is crap cause we all know we will get use to the dose and will need more. Thank goodness i never wanted to take too much. I every month cut out 3-4 days of no Methadone so i wont get addicted or the urge to have to take it. I don't ever want the govt telling me how to take care of myself medically. So now the govt are telling the Dr how to treat the patient. I know that they are not all Drs but lawyers and they know nothing. Why does a few bad patients are the cause of not giving the right dose. Reading about the drugs. I find that a lot of you guys are taking way more they u should. Pain meds are to relieve the sharpness of the pain. I doubt that we will be PAIN FREE. I was on Methadone years ago and i was on 100mg which is plenty. and maybe a Valium should be given out. u never want to depend on anyone but u to take care of your body. I came to the point i called the Dr out. I would ask him why he wanted me to lie with pain and have a s***ty life. they have no answer and u have to shame them. When i first started with her. she wasn't given me a proper dose. well after a few months of that. I finally had it. The next appointment i took my shirt off and pulled my pants down so she would get the whole picture of my body and not covered up by close. well that sealed that and we have had no trouble since. cause a stink if u must. There are the boards of Drs and groups that u can argue to to make sure that u were getting the right meds. Always complain if u r having troubles. Good luck to u all and I don't know everything. "let your heart be your guide"

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@KKh thanks and thanks to everyone on this site. No one judges some have awful sides some have none and others my very well be dead. I am glad I found this site, the format is easy and we tell the truth. God knows how many people don't even have a computer. Take heed, in time if we keep posting negative sides its a matter of time before the company comes on with GREAT wonderful results LOL. I had to say something funny because you all know that its true. They want to keep a lid on this like no tomorrow oh no sorry for the pun. I am so disgusted I am losing it, I just have no life no zest its awful. something positive to cling to a person who recovered we don't see that. We were used, big pharma and docs we trusted. System failed us and think about it the cost. What nerve? I hope and pray there are never new hep C patients. Imagine the audacity they are angry there are not enough new cases. Amazing. huh, as so many of us were trying so hard. Fighting for years addiction, staying clean, doing the best we could and now a wave came over and washed it all away. That's what I feel like. When I see these people on the ads post their wonderful experience I ask the company to please ASK me, I would gladly tell you my side of the story.

Folks, guys, gals, thanks for caring, sometimes I feel like this is the only thing left. you understand, for those of you who felt a difference and not in a good way, you get it. to the others, I wonder if it really did save you from liver cancer, or something dreadful from Hep C. if a virus is in your body and is in remission for 30 plus years would you really say that's a killer? I wouldn't we woke up a dragon. What dept orders the med before you commit to take it and has it delivered to THEM! That is unheard of and then they protect the doctor and the hospital? Really? talk about unethical. Greed, pure and simple greed. What's next? probably more meds, socially living conditions my home no one cares. My greedy LL can't wait to put me in the street. What a life, I am so saddened and depressed I often feel like it would be kind not to have to wake up to this mess its not going to get better it would take 10 miracles. So much evil in this world, and the way I am speaking this isn't me, the old me would be joking and laughing or finding some spiritual strength. this stuff caused real depression.

If only I listened to myself talk about all this I discussed with the doc snake oil sales person. She and my NP two birds of a feather. Like they don't have enough money, they needed to make extra. Cure cancer cut off your head.

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was that the official cause of death? on the death certificate..

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I do not have access to cause of death. I doubt any doc at this point will state Harvoni is the cause. What I was told was these people were healthy and active before Harvoni and died while taking Harvoni.

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There is a legal case pending in California right at this moment. I think once the outcome of that case is determined that's when many will have their chance to take or not take legal action, for now this case is CA is what will set precedent from all I have read, too late for some unfortunately...

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ChepCFree: Sorry, I thought it was Harvoni that was the problem. This chat is called "Harvoni Side Effects", so I made an assumption.

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kkh - The assumption is correct. If one is healthy before Harvoni and dies while taking Harvoni, there indeed can be a correlation. However.....at this point few to no medical professionals will admit to that. And no death certificate will read Harvoni was the cause of death.

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Dane (and anyone else with bad side effects), Can you share your pretreatment details? Like, genotype, viral count, liver condition, other health conditions (if any) and medications?
Thanks.

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Forgot this in my previous post. Can you also share your age and gender?

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for everyone. All of you that hurt and i include myself. We DO have a major disease. We will have bad effects even without Harvoni . So make sure we put the facts out there and see for ourselves what is really true. is it from Hep C or from the other meds like Harvoni. Time will tell so lets keep putting it out there. Good luck to us all. SMILE!!! it better then feeling the opposite. :)

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Today is day 7 of my Harvoni regiment. I am still having minor to terrible headaches, some morning upset of my stomach, EXTREMELY tired and I am having pain in my kidney region. The worst side effect other than the continual frontal headache and being so friggin wiped out tired is the pains I am getting in my lower back and down my right leg. I had hoped that the headaches and the tiredness would have gone away and gotten better but the headaches have remained the same and I am more tired than ever before. Combined with the lower back and leg nerve pain, I just plain feel lousy, not that I cant do anything lousy, but honestly I am feeling worse than I was when I wasn't taking the Harvoni. For the record, I never got headaches, I was always slightly tired throughout the day, now I am MUCH more tired. The pain I am getting in my Kidney areas are all new pains, my back and nerve pain down my right leg was already a physical impairment but it is worse than it was before treatment. So today is day 7, with 11 more weeks to go. I am trying to walk, take some motrin and stretch as much as possible but it isnt helping. I am still trying to think positive and hope for a better life. One last note, the color of my urine is so dark yellow, symptoms of dehydrated but I am drinking tons of water and pomegranate juice because the last side effect which is not a pain is thirsty, I am ALWAYS thirsty, drinking as I said tons of both those liquids.. Yet my kidney areas hurt and my urine is dark, very dark yellow which while not painful, it is still a troubling side effect as well. So [so] far I am most certainly having more side effects then told about and more than what is listed as possible side effects as many others are having and experiencing as well... This will be my last update for the next few days, I will keep listing any and all of them for others to know about. As I said I contracted Hep C in 1978 while serving in the Navy, my viral count was in the 7 - 8 million range, Geno type 1A, I am a 56 year old male and I had No cirrhosis of my liver surprisingly enough, I drank hard from 1977 - 2001. I haven't had a drop of alcohol since 2001. Thanks to all of you who also contribute by sharing your side effects.. I will write again at the end of my 2 week treatment. God Bless and keeping my fingers crossed for a positive end result for all of us taking this medication.....

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really that is funny. something to laugh about. for once

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Why is that necessary? I can say I was or still are 1A the other numbers othet then VL that moved around and I was told not to worry erer all within range. enzymes slightly elevated but nothing terrible.

Now I have auto immune disease and More nerve damage and God knows what else. That's TMI for the Internet as is
One more thing 4 liver biopsy I tried to really take care of my health.

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Sherri I wish you a speedy treatment with minimal problems. Many people have been okay so let's hope for the best for you. If I was facing treatment now I would probably have done it anyway knowing what I know. I was afraid of the pain my liver was throwing off and my family wanted me to treat! Keep me updated on how you are please. Break a leg!

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I am already having intense back leg and nerve pain previous harmonic. They say interferon side effects were even worse. I see pain management who is willing to help me work through painful side effects. If I didn't take neurontin now I wouldn't make it through the day. Say a prayer for my treatment as I will for all of you. I am nervous. Treatment starts in one week!!

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