Harvoni Side Effects (Page 29) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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Hi, I wasn't even able to take antibiotic's while on Harvoni, i got really sick fast. I have no idea how subox would mix. So I didn't take anything else, except small dose of klonopin at bedtime. No probs with that.

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Good for you Tina. That was a tough decision but it sounds like it was the right one due to your health issues. I wish I would have stopped at 6 weeks.

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I have 8 days to go of 12 weeks.
Been having joint pain stiffness in hands and feet to lesser degree. Also muscle weakness.
There's a post on the previous page.

I have found that this helps:
Wake up And hands stiff or joints hurt?
Are you sleeping in front of the cooler?
I was, and the cold air while sleeping makes it worse.

Run your hands under warm water this relives some pain.

Open and close your hands move those joints around for abit bend your fingers 1 at a time after the next. Like smoothly tapping your fingers on the palm of your hands.
closing your hands from the pinky to the index rolling em open and closed.
Also do it with fingers straight working the next joints.
Next Open em all the way and close em. ( Bent and straight fingered.)
Stretch and work those joints.

Do this with any joints that are sore to loosen em up.

Look up hand feet stretches and warm up exercises on the web.

I been doing this and playing the guitar and the stiffness and pain has gotten a lot less.
Seems like there's a build up in the joints that can be loosened up with movement.

If your calfs are feeling strange hold your foot up and make circles with your foot clockwise and then the other way warm it up.
Loosen those muscles. Massage em with your hands.

It's like if you had a cast on for awhile and you get it off and have to keep moving the joints around to get em back working again.

My thought is if you can keep the build up in the joints from getting too bad with these exercises it may prevent long term damage.

Anyway it does lower the constant irritating achey pain and burning short term.
Keep doing it a few times a day and seems to work better over time.

Also make sure you are hydrated.

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Many of us have complained about increased joint pain. Each case is different most of us take issue with our doctors minimizing sides or making promises that it would be like candy ZERO sides. Zero transparency is more like it.

I am not going to blame the disease of Hep C for side effects that were not not apparent until we touched this poison I refuse to. In addition only now are docs admitting there might be some, might be some uhh really joint pain. I also asked if and when I completed treatment would I feel different once the virus was cleared and the answer was not immediately. A silence... Uhh ever? What's the point then I feel ok now. The few of you know my story I was unable to tolerate the drug and now have many symptoms that were not apparent pre Harvoni. I have yet to speak to anyone who actually feels any different even the successful ones. It's all on their mind that the virus is clear but they feel no change. Those are the few that tolerated the drug without side effects

Think about it no where is it written that you will feel better we can only say that knowing you no longer have the silent killer is one thing. Feeling better physically and the enormous amount that feel worse it's not just old age, this drug caused inclination and other nurological issues. I have constant migraine with aura 24/7 I see aura. This did something to my eyes just haven't had the patience to see an eye doctor my life has been one doc after the other and I never completed treatment. They sure got paid though! Disgusting!

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Wow I thought I was the only one out there post Harvoni that was having pain in my hands and feet and having most nights with little to know sleep because of the pain. Now the nerve damage is going up my legs to my neck now. I have been off now for 14 months. GOD BLESS ALL !!!!! I hope who ever is taking now this does not have the side effects i am having.

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HEPCFREE... My GI Dr. never really admitted to the joint pain, after 2 days of taking it I was having symptoms of dehydration, muscle cramps, light headed, tired... The first nurse I spoke to told me dehydration is not a symptom of Harvoni.. Which it clearly is!! Says on the med form from pharmacy Drink Plenty of water.... My body's way of reacting to a lot of medications is the Dehydrating feeling. So it was nothing new to me, but since the cost of the medicine was so high, and not just the normal $3 for a monthly med. I wanted to know how to counter act the feeling..MY pharmacist suggested Pedialyte.. Not my DR office!

When the joint pain got worse on the leg where I'd just had knee replacement, I basically said I was extremely concerned about the one replacement and still needed the other knee done. Had thought about having it at about 6 months post-op, which would make it September, October, But after the Harvoni, AND the other peoples stories of pain continuing long after stopping... I was afraid I would never be able to get the other knee done and the surgery already preformed would be ruined. So I just stated I Wanted to stop.( I was stopping whether they agreed or not) One of the last things the nurse said to me was, your one month test showed no detection of the HepC, so the drug was working.... But I was losing more then HEPC. I feel better being off it, and my knee hasn't buckled but a few times but I'm having pains in different areas of that knee, that hadn't hurt since before surgery, a few hours after physical therapy today (first time in 3 weeks I was able to go) I had sharp pains in the knee, didn't buckle but hurt like the dickens to stand and walk on. Hoping things improve but fearing the worst. I'm real sorry I ever took Harvoni... As the saying goes "Be Careful What You Wish For!"

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What the heck is your theory then about who should/should not take it? I'd very much appreciate you sharing this knowledge rather than just intimating you know and are not saying. I would like to avoid playing Russian Roulette with my health. All good wishes

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I have finished Harvoni about 3mths ago during treatment I suddenly started getting joint pain in my hands elbows and feet..I was hoping when I finished treatment it would calm down but it is now much worse to the point I can't even open my fingers in the morning..I never had any symptoms of joint pain before I started..I honestly think Harvoni has cause an overactive imune response. .I have mentioned to my hep c nurse this problem but was told that this is not something that has been reported with Harvoni. .I have read many posts regarding joint pain during and post Harvoni.
I think it should be listed as a side effect of treatment!

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Im sorry thats happening to you. Im getting ready to try Harvoni & ive heard the same thing in every post. I will Pray for you. Are you clear of hep C yet?
Ty,
Theresa

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Wouldn't touch this Big Pharma poison with a bargepole

Russian Roulette with your health is not a good pastime

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Russian roulette is not gaming roulette
You hold the gun and in the chamber is one live bullet and other dead ones
'The game' is to press the trigger and pray it's not the live one

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Spot on description of how the engine of the train (pharmaceutical industry) leads the rest of the train(the remaining health care industry)... brakes need to be applied YESTERDAY.

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It's very difficult to obtain an objective cirrhosis diagnosis. My fibrosure results showed extreme damage; the fibroscan showed minimal to no damage. The doctor said she was sending the fibrosure results only in order to obtain authorization for Harvoni. In fact, she waited to schedule the firbroscan until after medicare authorized Harvoni. Who can we believe? How do we believe anyone?

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Spot on description of how the engine of the train (pharmaceutical industry) leads the rest of the train(the remaining health care industry)... brakes need to be applied YESTERDAY. Entire world is offline.

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I agree. I am 2 months post treatment with my leg pain more than I can manage. This is different than my pretreatment pain. It is like my legs no longer work. Any exercise increases pain. Suggestions?

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Many of us are suffering after taking Harvoni. Check Change.org and search Harvoni.

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I have had several vitamin deficiencies... Vitamin B, D, Iron/ferritin.... I have taken supplements and hasn't helped. Iron still down on supplements.

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CATHYD: I am on a page that helps people get generics of Harvoni/Sovaldi, and they are mostly getting these generics from India. I would say 90% of the people on there who have been treated had either no side effects, or nothing significant. Very few complain of any side effects, and very few have had anything lasting.

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I just finished taking Harvoni but during the first month I was put in the hospital because it was affecting my pancreas. Now my vision is worse, constant pain in my back and once again have to get a MRI of pancreas. While Harvoni has cured the Hep C it has also damanaged my pancreas. Think we all need to keep in touch with each other because of possible other side effects Harvoni has done! Hope this helps and thanks for sharing! Lisa Moore

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I feel :-! Already having problems with my pancreas and did the first month I took it which landed me in the hospital! So now thru with treatment and once again MRI and MRCP test I have to do Friday because its messed up my pancreas. We all need to stay in touch with each other cause who knows what we are going to face down the road!

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