Fentanyl Withdrawal Symptoms (Page 57) (Top voted first)

I'm trying to wean myself off the Fentanyl patch. I went from 75 micro-gms to 50 now I'm on 25. Having a problem and not sure it is related to the decrease in the med. It's been 20 days on the 25 micro-gm and I'm going crazy. I need to keep rocking, moving in any way b/c my body is very restless. Is this a symptom of withdrawal and what do I do? I cannot take it any more.

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Dear Chelle ,
Thanks for making me see the danger. I get so caught up in helping people in dire need that I barge ahead.

I still wonder if I had mailed that package by Fed Ex this morning and she got it tomorrow, if that would not be was a compassionate good person should have done. I will never know now. It weighs heavy on me and always will.
I guess we are all here to support each other. If anyone ever wants to call and talk my number is:
Four, one, four, seven, one, nine, seven, zero, eight five. My email is lshields (the at sign) w, small I , dot two r's dot c, o and m. In the SUBJECT space put your name from this blog.

Could we all exchange these facts? Then if someone gets lost, they shut down the blog or it's am emergency, we all have each other and could form a Google Group or something.

Sometimes I have a private message for a person and I don't want to blab it here.

I'm not trying to form a secret society; just a backup in case.

Shannon I owe you calls. I've got lots to tell. Is today a good day to call??

Gil where did you go?
Momma?
Cervical?
K bob ?
Dundee Lady?
Wheeler
Jim

Everyone stay on board. The more we hold tight the stronger we are together.

What would you all think if we had a conference call? I would set it up, check dates and times with you all. What you do is call in with a special code that allows you on the call. You can put your your phone on speaker if you want. I would cover the cost. Let me know your thoughts.

I have thought about starting a foundation for people JUST on the fentanyl patch. Would you be the charter members and help me recruit more?

Your Angel

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Lilred4,
Have not heard from you since storm started!!!

ASAP send us news you are okay.

Have been praying for God's mercy for my friends.

R u okay?

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Angel, this been done aad worked quite a few times. I have never but friends have and just address it to nutty. I get mail in that name all the time......But if you don't want to, then by all means don't....

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Hey Babes, I'm still here. I'm sorry to see some of you are in serious pain still, I think about you guys alot. I only deal with pain resulting from two lower discs, lowest one is gone and the next one up is 60% gone, at least that is what the surgeons say, and the MRI does look bad. This is hell no doubt about it, and it is good to talk about it. I know it feels like there is a lot of complaining, but we all understand each other and talking about the pain can be a help, because many friends and family around us DON'T understand. Please be careful with the mailing I don't recommend this, it could result in this site getting shut down and other getting hurt. One more thing, the person who mentioned banning these patches, NOT A GOOD IDEA. Fentanyl gave me my life back, there is a very high potential for abuse, but that needs to be dealt with at a personal level. Withdrawal is very hard and painful to deal with, I know, but I still would not give it up. Without Fentanyl my life would be a disaster, and yes Fentanyl was my last option I tried tons of things before I went to these patches. I still deal with pain, but I can get through it now, before I couldn't even stand up. To everyone, keep working through your pain the best way you can, I still believe things happen for a reason, although this is a horrid thing to happen to us. We will survive this.

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To Everyone,
Nanna and I talked on the phone. We both agreed my plan was impulsive and too dangerous. Right, Nanna?
I love you all so much but breaking the law, I will not do and Nanna will cope because she doesn't want to kill her Angel. Forget I said it. I was stupid.

It's so good to hear from you! Here we can be free to talk at what is truly happening with our bodies. People UNDERSTAND THE EFFECTS OF LONG TERM CHRONIC SEVERE PAIN. All we are trying to do is live as normal as possible.

I went back to my 75mcq/hr patch because my husband asked me why I was messing with something that worked.

I was momentarily speachless because he had a great point. It was the Pristiq that made me sluggish. And that was horrid to withdraw from, believe you me. It took over a month but I got the stuff out of my system. Sometimes it's not the Fentanyl.

Shannon, where are you??

Higs,
Your Angel

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Angel, i have decided that this is not a good ideal, don't do this. I don't want to lose anyone or this site. It helps to talk about what is going on in my life. My pain has been my pain for years so it's not going anywhere. Maybe one day there will be something that will help us all that won't hurt us when we have to come off it, or can't afford it. I have made up my mind that no matter what kind of pain I'm in, I will do something nice for someone every day. Try with a smile on my face too. Hope everyone had a happy and safe Holloween. Hugs and kisses to all.

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How did everyone fair holloween? How are the ones that went through the storm? I hope and pray things will get better for you and that this storm did not cause much damage. Chrissy, I'm sorry for being such a butt a few minutes ago. But to wake up to someone slamming us that are in pain just gripped my soul. Esp. since I had been up most of the night withering in pain and not being able to get in a comfortable position so that I might get a couple hours sleep. Then I looked out and saw what a mess my yard is in after my grandkids got through with it. I won't have to buy toliet tissue for a year.....lol They are so much fun......love all ya'll and have a nice day.......

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Sorry.
I am going through some withdrawal from the patch.

Makes me irritable.

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Well, I have had a very trying day, today. My daughter that just had her gall-bladder taken out, strained herself and tore some of her cuts loose, and had to take her to the ER. She was suppose to be at the dr. today for her follow-up visit, and he told her not to pick up anything for 6 weeks that weighed more than 5lbs. But, she is stubborn as her mom and thought she could do some things. She knows better now though....How was everyone else doing today?? @Nurseaudrea, please don't be hard on yourself. I lived with the guilt of everyone labeling me without walking in my shoes. Now that some have been where I have been, they understand. My mom just went through breast cancer, but did not have to have a radical mastectomy like I did, or the nine surgeries that I had to go through the five years that I was fighting this. She now has a new respect for my feelings and said at one time that she thought God allowed her to experiance just a little of what I went through to make her understand. I don't know about that, but she is my rock. She is 85 and still can run rings around me. She is a great lady. It is good that you can now talk about the issues that you were having when you were in so much pain. I hope you are not in so much pain now. If there is anything I can help you with, you just ask. I will help you in any way I can. Hugs and kisses to all and to all a good night...this old lady is hitting the sack....

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Dear Nurse Audrea,
You can visit is anytime!

But if I don't hear from everyone else fairly soon, I will go away.

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Hey everyone, just checking in. I'm doing ok. My oldest son had a band concert tonight at school. They did such a good job. Makes me miss playing the violin. Maybe I should pick mine up again....LOL.

Only slept maybe an hour today....sucks, because I know I will be getting Manic by tomorrow which will make it even harder to sleep. Thankfully I'm off work tomorrow night, but only because we have to be at my son's school by 6am on Sat morning ready to leave for OH. It's a 3hr drive, going to his last Marching Band compitition. There are 23 bands playing so we will be there all day...gonna be cold too....Yuck!

I hope everyone is staying safe and warm.

Angel i sent you an email, did you get it? If not let me know and I'll text you I would like us to have a way to contact each other.

Hugs everyone,
'chelle

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All of the people in Sandy's wake include:
Shannon. CA
Lilred4. Long or Rhode Island
Gil. Florida
Weeler. ?

Please, check in ASAP so we know you are okay !

Today I worked on my nieces baby's bed set. The quilt is called "Sails". The base is 4 squares by 6. Each square is made of two triangles: the top light, bottom dark. When arranged it does look light open sails on the lake. Get this! Holly's brother, my nephew, Fred was in Guinea in the Peace Corps. He has convinced her that
YELLOW DRIVES BABIES CRAZY. Have you ever!!

Then I am making both flannel and cotton sheet for the mattress. Blankets and one curtain, also. The bumper pad around the mattress will have clear plastic pockets. Every day you put new pictures in it to stimulate the baby's mind. Baby's don't use pillows do they?

By Saturday , I will be working 16 hours per day for Obama. So you might not hear from me.

You know pain shared is half the burden.

I so rely on you all.

Chelle, I will check.

Hugs and a Very Good Tomorrow to You All,
Angel

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Dear Chelle,
No email as of 2 am Friday.
Here is email again:
xxxx@xxxxx {edited for privacy}
Cell phone for texting: xxxxxxxxx {edited for privacy}

Would love to talk! Tomorrow is my only open day. Then Obama campaigning night and day til the end.

Hugs,
Angel

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Hey all, and my Angel, chelle, Shannon, lilred, and everyone. I just wanted to ramble like old ladies do at 3:26am in the morn. I can't sleep and can't get comfortable. I am hurting so bad right now. It feels like I am having a baby. Not cramping but like my hip bones are separating apart and a knife is stuck, twisting, at the beginning of my butt crack. Sorry, did't know how to discribe it but just as it feels. I guess this does not help a man, they don't know the pains of labor. Enough about my pain, how is everyone tonight? Sleeping I guess. Thank God we are not all living together, I would be a very aggravating person that is up all hours of the night. That would suck. Has anyone gone through not being able to sleep because of the fear of dying in there sleep? This is part of what I am going through now. Where does this come from? I have never had this fear before. I don't know if it started when I started reading the side effects of my different kinds of medicine and all of them saying "may slow heart and breathing down" and me thinking I have took too much medicine together and the combo will make me stop breathing in my sleep. I think I need to go talk to someone about this fear. I will be nearly out of it and make my eyes open and take deep breaths. I just got out of the hospital where they checked out my heart and told me that I was good to go for another five years at least. I get so mad at myself for doing this. It has made my life a living terror. I will do this for days and then be so tired that I will sleep six to seven hours, but then the next night it will start all over again. Maybe it's time to make some changes in my life and with all the medicine I take. It is wearing thin. And I have always been a firm believer that you will go when it is your time and not before. But I guess there is such a thing as pushing it along....lol....Well, I am going to watch a movie and leave ya'll alone for the rest of the night. Hugs and kisses to all.....

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Hey all,
Just ck'd in. How did Lil weather the storm? Angle I waited almost 2 months to be quickly dismissed by a pain doc in the same office as the surgen that messed me up. I guess it might be blood in my spine and brain. She swore it wasn't csf. Said I need a neuro surgen made me feel stupid. She's just covering for the doc. And no atty will take the case. I can't find one. Probably cuz I collected from every corrupt one in Los Angeles when I represented a major medical foundation. 100's kept the settlement money and never paid the medical bills. It was an easy job because none if them wanted dislipanary actions with the bar or loose their licence. I don't know what to do. I wasn't referred to a brain surgen so I guess I will have to wait till I am forced to go to the emergency room. I had One day that I wasn't all dizzy and blurry. Oh well. I pray Gid will be kind and take me in my sleep, but it appears with the way everything has been going I will probably end up paralyzed and in a coma but still screaming on the inside and not look like I'm awake.
LIl, let me know how you weathered the storm. Nanny I hope you feel better :( Call me angle. Weeler!!!! Nice to see you stopped in. Your missed.

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Shannon and Nanna,
Shannon why would you think a doc in the same practice would help? Have you thought of going to either one of these: an ENT (ear,nose and throat) doctor for your dizziness OR a opthamologist for your blurred vision?
Nanna, listen. Do you have problems breathing on the Fentanyl patch when you are not asleep? Have you passed over when you finally slept?

I too worried. But BY NOW OUR BODIES ARE USED TO THIS DRUG. This is normal and what would kill A NEW PERSON ON DAY ONE is who the warning is for.

Now, I am not saying if you drink, do illegal drugs or other very NEW heavy narcotics, all warning bells will not go off. You are smart enough to not do that.

I have even had the doctors put 2 75s on me for 3 weeks after my hip replacement AND I was taking strong pills too. It helped the pain but

I AM STILL HERE, NANNA.

CHELLE , look behind. Try small i.

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Chelle,
Just call me. Or text your info

Sorry that took so long to hit my working brain!
Hugs
Angel

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Angel, I only went to the doctor he referred me to, to give him the benefit of the doubt, plus I didn't want my primary to think that I wasn't following through. He still doesn't know. I got the notes sent to him and it doesn't say squat! I'm going to go in and show him what I forwarded to you. Any luck finding me an atty? That can refer me out to a neuro? Oh and btw, I was at the post office the other day and saw a man and his dog needing $$ and in soooo much pain. I could see it not only in his posture or lack of but in his eyes. It took everything in my power to not give him something for his pain. I felt horrible for him. I do not take what I am givin for pain for granted. i know how lucky i am to gave a dr with empathy. Also i know how difficult life is with the pain we all have in here. I feel like im in a jar on display and everyone just keeps poking me with a stick to see what i will do. i would not wish this life on anyone. Well, ok there one that is the cruelest person I know and yes, I really am ashamed to say but she needs to spend at least a year in my shoes. She wouldn't make it a week! That bullet would be in the chamber so fast as her pride and vanity is everything. If ppl treated her the way 90% of the population treats me she would not be so happy. I am such a more sincere and kinder person. If you all only knew. It's not about not having money, its what you do to others when in dire need. When she was younger and homeless i was told she killed ppl for the pretty shirt off another's back and for drugs. Everyone thinks she is just soooo cool now, because she's pretty, rich and has WAY to much respect from ppl because all they know is what they see. Money talks and bs walks. No one knows all she cares about is herself, her impure thoughts and selfishness is unknown. But we must keep her happy because when that finger of hers when not poking me it is also ready to push that nuke button if she doesn't get her way. Her favorite quote was your either the food or the hunter. Sad but very true! When I saw that movie Monster, I couldn't believe how much that portrayal WAS exactly how she USED to be. What an amazing actress. I think she is gorgeous. Expecially in the devil advocate. Oh and on a lighter note, if you want a great scary movie, I watched Orphan on lifetime the other night. Normally i don't like scary movies but this one was so good that as much as I wanted to find out the ending I didn't want it to be over. It was like the omen? That one from the 80's? with the 2 little boys that one killed the other. Ok, wow, did I ramble. I hope you all don't get mad at me. Take care and enjoy your Sunday. I feel kinda ok today, I should go to church, its been so long.
Shannon

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Angel, No I have no breathing problems, just the fear. I take a nerve pill, a muscle relaxer and an Ambien when I go to bed and they all have in the package "may cause shallow breathing" or something like that. I guess that I have never took all that before and at the same time that I just have that fear of my breathing being shallow enough to go to sleep and not wake up. My daughter, that works at the hospital said I was being silly and that they give the combo to nearly all the pain patients on the floor and it did not hurt to take it like that, if it is perscribed to take together. I just use to wait an hour between taking each of them. I guess I just have the fear of getting old....lol....which I am....hugs and kisses to all. Sorry Shannon that you are having so many problems. We need to all move in together to take care of each other...wouldn't that be a hoot....love to all of ya'll. Been out paying bills and going to lay down for a few.

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Oh Nanny, Hunny if you saw the combo of drugs that I was taking while I was on the patches you would be laughing right now. I know those all say may cause shallow breathing but I can just about guarantee that your tolerance is higher is than the average persons. I take 3 Bi-polar meds, a high dose of Topamax, a sleeping pill, and was on 75mcg....all of which can lower respirations. I never had any problems. I am a nurse, have been since '94. I worked Oncology/med/surg for 3yrs, Labor/del for 9yrs, and Home health pediatric for the last almost 7 yrs. I have given loads of pain meds, etc in my lifetime. If people are truely in pain their body can use higher doses of pain meds. I remember when my best friend was in Labor. She couldn't get an epidual for pain because she had a blood clotting problem. We were actually afraid she might bleed heavily even after delivery...had blood and platelets on hold for her. Anyway she was in labor for almost 24 hrs....i gave her so much Morphine during my shift (i swear it would have put down a horse), and she was still wide awake and in pain. She walked to her post-partem room after delivery, not drowsy at all. It's amazing what our bodies will do. Had pretty much the same thing happen with my very first Cancer patient, she had a tumor on her spine. She was in horrible pain. I was a new nurse, fresh out of school had never seen anyone in that kind of pain. I was so afraid I was gonna overdose her. My Fam Doc was one of her docs...they just kept upping the dose on her pain meds and sleeping pills....nothing seemed to help. I sat and talked with her and her daughters trying to distract her. Still have the prayer hand pin and Angel book her daughters gave me after her passing.

On happier terms I just don't want you to worry. I want you to be able to rest in peace without bad dreams.

Hugs,
'chelle

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