Epclusa Side Effects (Page 9)
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Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

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Re: VerFree (# 2)

It's more than a coincidence ,that so many people have gotten sick, shortly after starting Epclusa DAAs don't you think, IV heard too many times from ignorant people that they have never heard of that symptom before ,and try to blame it on something else ,when is somebody going to aim up ,and admit that very little was known about the wonder med ,let's find a minority group of guinea pigs and make some $$$

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Re: Lou (# 3)

I am a 54 yr old female. This is my second round of treatment for Hep C. The first involved shots in the stomach once a week and two pills daily. That was a nightmare hair loss, restless leg syndrome, vomiting, weakness, similar to chemo. But I understood sometimes it takes a poison to kill one. Now my Hep C has returned. Just started Epclusa and I have to take it when I come home from work. It puts me in a deep sleep. So deep that if the house was on fire I wouldn't wake up. Also I get strange heartburn even without eating. I feel bloated but my scale says different. I have someone at home when I take it so nothing happens while I'm sleeping. But that is it. These issues are nothing compared to the last time. And 12 weeks is nothing compared to a year. I am sorry to hear that you are having a these issues.

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Hi Kathleen, hope you are doing ok. We've still got fires and smokey air, not much fun with breathing problems. My breathing problems don't seem to be responding to the cortasteroids; just bloated and exhausted as usual. Now I've got a letter telling me I have an appointment for a stress test on Monday on a treadmill. Not looking forward to it much, as I seem to have a lot of symptoms that go with heart problems. If that's what it is there's not much I can do about it. I still feel Epclusa has caused my problems. They will never admit it. The thought of going on treadmill scares me, as I haven't had much energy as of late with the bad air I've been breathing. It's been near 3 months now. Sick of it now. I feel I've just about had enough of doing tests, paying out money and getting nowhere. Hope you're ok. Sorry for the whining, bad day today.

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Re: VerFree (# 2)

I think it's not a coincidence that a lot of people have lived near normal lives untill post treatment ,my virus has gone thankfully but so has my pain free days ,ears constantly ringing nausea total exhaustion numbness severe joint pain Edema infections ect .but oh I forgot very few side effects, sure thing mmm.

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Re: VerFree (# 2)

I'd like to see the percentage of people over 40yrs old who have done treatment who now have major health problems some fatal instead of being fed rubbish about very few sideeffect s ,I think that there would be a lot of people who would have not done treatment ,and took there chance with hcv instead of living in severe pain every day ,knowing that there's no body out there with a clue with what is going on with our bodies or any idea what damage the DAAs have done or what they will do , Also no support from the people who convinced us to do treatment ,I think it's about time some people looked up Epclusa post treatment side effects .

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I am very sorry that you've both been miserable, I know it is very frustrating. The issue, however, is that the virus can be fatal, so the issues caused by the treatments have to be carefully weight against potential death.

Epclusa has been known to cause side effects, such as anemia, weakness, unusual tiredness, trouble sleeping, cough, and depression.

Issues similar to what you've both described have been reported, but it is hard to say if they are from the virus, the treatment, a combination of both, and/or how long they last after treatment.

Is there anything I can help with?

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Hi Kathleen, I really feel for you, I finished Epclusa a year ago and like you I've had so many side effects l can hardly walk most afternoons due to leg joint pain. I get exhausted so easily, nausea, numb toes/fingers; probably a circulation problem. I did not have any of these problems pre-treatment. I've also got Edema on my legs and my stomach is really swollen. I feel so uncomfortable and unbalanced. If I mention this to the hep C liver people they just say, "oh it wouldn't be the treatment". So far the virus isn't showing, but I think I'd rather have the virus then feel like this. All I hear from the liver people are lies, plus no support when I ring them. I'm in Australia. I feel like a guinea pig and my life is wrecked. I think there is going to be a lot of very sick people in the near future. They know nothing about what DAAs do in a couple years time. Really hope you are ok. Take care.

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