Epclusa Side Effects (Page 2)
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Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

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Re: Friendz4 (# 8)

Hi Friendz, I enjoyed reading your post. I'm in Australia, doing Epclusa treatment. The virus seems to be gone; I did have a VL in the millions, now it's okay. I've had nothing but problems since the treatment: infections, edema in feet, stomach, legs. I'm trying to find out if there is a list of how many people have passed away post-treatment. I've looked everywhere, but it seems to be very secretive. I think it should be made public so people can discuss what may happen. I have called Gilead, talked to doctors, liver clinics, but it all seems to be hushed up! I know that just about everyone I know who has done the treatment - the virus may be gone, but a high percentage are no longer alive. Maybe if there is any info on this, I could be contacted. I think we all have a right to know these details, even if we are a minority group. I am now in my 70s and would really appreciate any info asap. Thank you.

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Re: Kathleen (# 135)

Hey Kathleen ,hope you are OK, bit worried that I have not heard from you ,maybe you are not getting my messages ,can you let me know if you are receiving them been hearing on news that it looks like Trump is getting back into power ,how can that be?? I don't understand.

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Re: Lou (# 144)

Hi,

I am health care worker and finished up Epclusa in 3/2023. I have had better days. I have mega inflammation in my body, bouts of nausea, sleeping problems, brain fog, memory issues, and but I do not have Hep C any longer. I never did anything to cause this. My genotype was 1b and have fibrosis. I believe it was F3. The infectious disease specialists said that I cannot ever drink alcohol again. Borderline Cirrhosis. I'm just trying to find me a remote job to make ends meet. Anyone want to chat? It is difficult talking about it and especially to people who have never had this.

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Re: Kathleen (# 135)

Hi Kathleen ,hope you get this ,how as Xmas for you ,it was a non.event for me ,I hate seeing those poor people getting bombed no food or electricity then I heard on tv news that Trump.will probably get back in omg ,can people be that stupid to vote for him ? Am I missing something ,hope you are enjoying cooler weather it's so hot here it's getting harder for me every day lack of sleep coughing. I wonder how much can you take of this life ,what happened to good news?? Please let me know how you are if you get this ,your ol mate.

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Re: Kathleen (# 137)

Hey Kathleen, how are you? I've been trying to reach you. I hope you are okay. Could you let me know if you are getting my messages? Thanks. It's getting hot over here. I can't handle it.

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Re: Kathleen (# 137)

Hi Kathleen, I vaguely remember having Prednisone 25mg when I was in the hospital last year for asthma. My doctor is on holiday again. I think it was good for breathing and nausea. Does that sound right to you? Happy Christmas, okay?

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Re: Kathleen (# 137)

Hi Kathleen I have a feeling your not getting all my messages anyway once again I kicked my r foot on cupboard trying to move it ,they had me on antibiotics which made me feel terrible so Dr said it doesn't look infected don't take any more antibiotics ,that was a week ago but dropped cup coffee on my foot last night OUCH so now it's no looking so good bit swollen but that could be from hot coffee my Dr on holiday ,I have another script so I might have to start them maybe they make me cough more plus nausea,anyway more important is bow are you ? Do you have any plans for Christmas? I don't, I hate what's going on in the world it's terrible ,all the best to you Kathleen be thinking of you and hope you are not feeling too bad ,best wishes from Australia.

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Re: Kathleen (# 137)

Hi Kathleen hope you are OK.iv finally been allowed to move back into house after damage from floods 2 yrs ago,the stairs seem steeper after 2 yrs ,don't know how long will be able to manage stairs.sleep is very rare these days my breathing isn't improving hard to lay down at night usually get maybe 2 or 3 hrs if lucky hope you are OK mate starting to get hot over here. ??

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Re: Friendz4 (# 9)

Great read ,I can relate totally I'm in Australia where are you ,take care

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Re: Friendz4 (# 99)

How r you going now days?I am still getting problems yrs after treatment also copd asthma nerve problems and body jerks .can't get any help here in Australia hope you are OK.

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Re: Lou (# 136)

Hi got your next text. I take prednisone which is a steroid and another medication called hydroxychloroquine. It is the one that are horrible president Trump was telling the country to take to cure covid. It's not it helps with arthritis and you might talk to your doctors about those cuz neither one of those medications keep me awake at night it's the occlusa since I have clue so that I can't sleep at night. Anyway I think you need to take something and ask him if these are good for you. Because they're good for me the only thing with prednisone is it is a steroid and it does give you belly fat so that's something you have to think about too anyway let me know if you talk to your doctor and talk to about these new medications it's almost 2:00 in the morning here Thursday morning so I'm going to bed I pray and I worry about you and I have since I've known you and when you disappear I get worried that you're really sick again so don't be a stranger talk soon bye

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Re: Kathleen (# 135)

Great to hear from ,I think eucalyptus tree is our national tree !! I can't stand the smell either ,since epclusa I seem to be allergic to everything, they did bone density test on me that's how found out about osteo ,that med Dr wants me to take I looked it up on line said it caused nausea sleepless nights ackes pain ect sure don't need anymore of there crap meds ,I will get some calcium tablets and vit d I think ,why would I want something that causes nausea ect stupid Dr I'd rather suffer the option.cheers buddy try an stay cool your not alone..

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Re: Lou (# 134)

I take same medication. It's perfectly safe. Been on it for 4 years,since epclusa.
Bummer about pine trees bothering you.
I hate the eucalyptus tree. Do you know of it? Smells terrible and my so jeremie has one right outside his window.
Oh I've been in California for 75 years and only felt one earthquake.
News makes it seem worse than it is.
Still better than hurricanes and tornadoes.
Still 100 degrees here. I run central air about 16 hours a day. Can't take the heat.
Glad to hear from you my epclusa bud...

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Re: Kathleen (# 133)

Glad the hot weather is nearly over for ,I don't know how long it's been since a good night sleep ,it's really hard where the place I'm staying at are a few pine trees I think I may be allergic to them as my breathing seems bit worse ,just got results from drs after ex rays osteoperosis suppose to take tablet called fosamax check it out if you can so many side effects,I'm not going to take it I do t want more side effects.take care stay cool!!

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Re: Lou (# 132)

Carmichael is in the valley,a suburb of sacramento. It's hotter than can be in summer but winters are not so bad.
No snow. It has been 5 years since epclusa. I wish I could say it was a good 5 years.
Since epclusa my body has fallen apart. My eye sight rehumatoid arthritis, sleeplessness and much more
You are going in to spring and you in to winter. Love winter.
Hope you are finding news about housing.
Thinking of you Lou

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Re: Kathleen (# 130)

Wow saw results of earthquake
and floods in California the weather is terrible at the moment ,it's suppose to be early spring here all ready it's so hot and summer hasn't started just hope there's no floods for a while .Hope the weather isn't too bad and you are safe !!

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Anyone having post-Epclusa nerve problems?

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Re: Lou (# 129)

Hello my epclusa buddy. Sorry to hear you are still displaced. Here in California I have recently talked with two others who took epclusa and have bad side effects. Like blurry vision, aches in joints, sleeplessness. It it still going on. Don't get me wrong, epclusa cured my help c but has played havoc with my body. We are having a really hot summer. I know you are having a rough time. I wish I could help. Stay strong Lou.
Thinking of you.

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Re: Kathleen (# 122)

Still waiting in temp housing. Weather reports look really hard for you with the heatwave. I think the world is really changing (climate, ect.). Hope you are ok.

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Re: Kathleen (# 122)

Hi. I think a lot of my messages are not getting through to you. I often think of you and hope the heat isn't too hot for you. It's just starting to warm up here. I'm really not looking forward to it, between my breathing issues and trying to avoid covid, it's not easy. Take care ok.

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