Epclusa Ruined My Life (Page 9) (Top voted first)

Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

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Re: Lou (# 151)

Hello Lou. Great to hear from you.
Yes covid19 trying to end the world.
Ive been out of house 3 times in 69 plus days.
I don't need I don't need anything. I have all the food and supplies I need. I just am just tired of not being able to see pretty things like trees and flowers and the likes. Are being able to go for a ride and get a root beer or an ice cream cone or something. My epclusa effects are still the same my elbows now hurt all of the time and so does my right wrist. I had my knees I replace six and seven years ago so I really don't have any problems with my knees. I'm sorry that you know we're going through this but it's nice to go through this with somebody that understands what I'm feeling and knowing. I hope things are good with you I hope that the winter is not going to be totally harsh on you. We've had rain the last couple of days you know California it always changes is usually hot or we get a little bit of rain but not much in between. Take care of you and I hope to hear from you soon

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Re: Kathleen (# 153)

Hi Kathleen. This dam phone, ive been trying to make contact with you! Been worried especially with this bloody virus, on top of everything else that's going down. Ive been watching the news, certainly strange days we are living in. Just hope your safe. My elbows hurt as well. Sometimes I use a mirror to see if I can see anything wrong but think they look ok, just ache. My feet are hurting lately. I read somewhere that a lot of people who get side effects from epclusa may be getting troubles because the hep c does damage that we don't notice until years later, ends up our immune system suffers and makes it easier for us to get infections. It's just what I read. I don't know if true or not. Coronavirus is still affecting people here, not as bad as u.S., just coming into winter now so it could get worse I guess. I worry about grandkids. They're young, yet hasn't worried me not going out. I don't miss seeing people that much. Shopping isn't much fun. Anyway, so glad to hear you are ok! Stay safe.

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Re: Lou (# 154)

Hello lou.
Great to hear from you too.
Things I have noticed are my wrists and certain fingers hurt.
Very srtange.
The unrest over George Floyds death have reached afar.
We live about 8 miles from the state capital and all of capital and downtown sacramento are being looted by mobs every nught.
They dint care of his passing. Just an excuse to loot and be violent. There are people marchung for right reason but the bad ines ruining every march.
We are on a curfew.it almost takes away frim covid19 because of constant news coverage.
I just had lots of lab work done wednesday. Waiting for resulst.
I agree about hepc side effects. We will probably never know how much damage Epclusa and hep c have done to us. Shopping a nightmare. Only about a quarter of people wear masks. Feel it is their right to not wear them. I only shop when necessary.
Be safe. Stay warm and know my thoughts and well wishes are with you.

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Re: Kathleen (# 155)

Hi great to hear you are going ok ,it's just coming onto winter now over here ,so tends to make aches worse as I'm sure you know about ,I find putting a hot water bottle on aches helps a bit ,the house where I live gets so dusty all year round the humidity is usually above 85% at night tends to make me cough, my step sister thinks I should get a small air con system,but IV been told they can be good by some people others say opposite ,IV gotta look into it,even know winter can be very harsh summer if like last couple of years is a nightmare very exhausting I won't ever get used to it.anyway take care ok,I was just watching news your president seemed to think George Floyed would be smiling becourse your economy going good,,,,mmm bit strange I thought ,I think we get politics on tv not only from here but everywhere gets bit tiring sometimes,we've got compulsory voting here so have to vote or we cop a fine,I think it's all corrupt ,don't think ever tried root beer ,IV heard it mentioned on tv might try it.anyway take it easy try an stay well ok ,do you have air con/maybe it won't get so dusty here if I was to get air con,I don't know always something to worry about lol.

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Re: Lou (# 156)

Omg. Root beer is wonderful. The president us not my president.
Very corrupt government here too.
Out president is truly insane.
I doubt if George Floyd is looking down and smiling.
Who says things like that?
He hates women and any people of color.
He is a short terrified man.
Anyway i have noticed that since having Epclusa that there were others that I knew through bingo that also had similar side effects.
I think you should get an air conditioner.
If its a money thing I would like to help you.
In California everyone has a/c.
Mine is central air and heat meaning
a large unit outside and vents in every room.
Would absolutely perish without a/c.
How cold is winter there. ? Lots of rain?
Im going to the state capital to march with thousands of others to speak up for racial equality.
Dont know how long I will last as at 72 my mind is more willing than my body. Take care. Enjoy our communications.

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Re: Skpp930 (# 8)

I agree I'm 2yr Poste treatment ,IV never felt as bad Edema numb feet aching legs knees swollen nausea , definitely felt better pre treatment ,when I try to get help from the liver people who signed me up for treatment no help at all.i feel ripped off big time ,

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Re: Kathleen (# 157)

Hi Kathleen, wow I am so glad he is not your favourite president, I didn't want to say anything about him just in case you supported him!! oh what a relief then again I'm pretty sure I would have able to notice by now, and you seem far too intelligent and worldly, Sounds like racial conference be great for you to go to,I m sure you will enjoy,IV got a new rule I'm trying to do that's take my time when I'm trying to do anything try an relax otherwise I end up stressed with anxiety ( sounds like me ) I'm going to try anyway,I was at supermarket the other day accidentally dropped my wallet all my change fell on ground,that very nearly gave me anxiety attack ,I was happy to get out of there lol,yes I'm sure there must be a lot of people with similar med experience like at your bingo!, Really kind of you to offer me help with air con ,but the last few yrs managed to save a bit in case of car break downs ,air con maybe ,not going out has helped a bit ,but thank you , appreciated ,yes it does get wet here in fact floods use to happen every few yrs apparently ,these last few yrs seem a lot hotter drier,or maybe that's just me I don't know, IV been reading about humidity if high isn't real good for lung problems ,almost every night it's high about 80 or 90%then goes down in day ,my dr has made appointment for me to have stress test done ,(I'm stressed about doing it )lol apparently go on treadmill to see how effects my heart, anyway take care ok really enjoy our correspondence .

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Re: Kathleen (# 157)

Hi Kathleen, hope I'm not being a nuisance. Pouring rain here today really nice for a change, except gets bit muddy if rain lasts to long. Anyway I've been looking at a map of Sacramento, looks like a nice place. Did you say Carmichael is where you're from? I could see names of places I've heard in movies and songs ect. Folsam I've heard of, plus a few old cowboy movies lol. This rain tends to make my feet ache a bit. How are your elbows? Not too bad I hope. Anyway take care. Sounds like coronavirus seems to be slowing a bit I hope.

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Re: Lou (# 160)

Hello. Carmichael is really just a suburb of Sacramento.
Population about 50,000.Way off the beaten path.
I live about a quarter mile from The American River.
Its very hot here and sometimes the river breeze helps.
My elbows are fine. Its my wrists and a few fingers that ache.
I really believe I would have been better off without Epclusa. It has ruined my life.
I still remember how I started feeling a few hours after taking it.
I felt like I was poisoned. Truly.
I had much lab work done last week.
My viral load is still zero. So in a way it did its job. But destroyed me too.
Please tell me the name of your town so I may look it up.
I think of you and share our conversations with my friends.
I hope weather clears up for you.
In California we always welcome the rain.
I am watching a tv series called Dowton Abbey. Ever hear of it?
Look forward to hearing fron yoy.
Keep your spirits up.

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Does anyone have neuropathy after doing hcv Epclusa or Harvoni treatment? Thanks. I have extreme pain in my feet and legs.

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Re: Susie (# 3)

Hi Susie I finished treatment about 2 yrs ago,my legs still aching most days feet numb but feel like burning plus nausea ECT don't think will ever get better now ,hard to find any help here in Australia ,wish I never started treatment would have rather lived out my life as it was.hope your problems improved please let me know.

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Re: Kathleen (# 161)

Downtown Abbey yep saw it was great series ,I didn't think I would like it at first but then really enjoyed it!! I live in small town on North coast of New South Wales (that's a state )called Coraki, it's on the net plenty flood pictures ,the town is on a river which makes it nice sometimes breeze off water ,it's about 8 miles to the coast ( Pacific Ocean ) and about 25 miles from Nimbin that's a kind of little hippy town painted bright colours I think similar but smaller then your Haight Ashbury, Coraki is only small town ( try not to laugh ok ) I'm sitting back in front of little electric heater it's 5. 30 am and I'm trying to stop my feet from aching, my dr has no idea, the more I read about neuropathy the more it sounds like my symptoms everybody says I'm getting all these symptoms from having virus for so long ,seems strange to me that everything started getting worse after Epclusa,my VL has also gone it was very high pre treatment so I guess that's good , but I think being high may have done damage ,as for the DAAs I just don't know, I think I'm lucky to have lived this long ,a lot of friends didn't ,sounds like a great place where you live IV lived in Coraki for about 10 years, I m from Sydney that's a capital city grew up and went to school there ,can't say know anybody much in Coraki ,I think would have to live here 50 years before accepted as a local ,that's ok ,anyway hellow to your friends ,great to get reply ,hope your aches sent to bad,lucky it's warming up for you!! getting cold here ,but nice break from the summer heat ,I just hope we don't get any floods this year we are due to have one ,take care .

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Re: Lou (# 164)

Lol. Haight Ashbury is all commercial now. Used to go there in 60s. Smoked lots of cannabis, listened to music and danced in the streets. Now yuppies own stores. High end restaurants and apple stores. I only live 90 miles from San Francisco so have visited many times over the years. Now homeless crap everywhere and sleep on the streets. Things changed. Sorry you are sitting in front of heater for your feet. Thing is, I didn't even know I had hep c for fourty years until tested. So taking Epclusa made me worse. Crazy.. How many people in your town? Sorry they are snobby to you. Their loss. It's hotter than hell here. 7:30 at night and a/c wont give enough coolness. Made tacos and rice for dinner. Ever eat tacos? Most people in California eat mexican food as the Mexican border is so close. Take care. Hope your feet get warm.

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Re: Kathleen (# 165)

Sounds like you had fun in Haight Ashbury !!yep tacos are good I like Mexican food ,food use to be boring in Australia when I was young,then we started getting migrants in and everything improved food included, sounds hot where you are ,I sure know how that feels ,I was told last summer if feeling real hot try putting feet in cold water ,or maybe even a wet towel or cloth around neck ,can't say I'm looking forward to summer ,I think this is a bit of a redneck town so don't mind not mixing much,I think the hotel is the main place people go,as I don't drink I don't go there ,lol ,Carmichael sounds like good place ,it must be interesting being near Mexico border ,Lismore is nearest bigger town takes me about half hour to drive ,seems to be more an more people sleeping in parks and on the streets it must be real cold atm it's terrible to see some are real young,use to see the odd homeless old guy, but now it's young people it seems ,this was suppose to be a short hello ,so hope your wrists arnt too bad and you can get some cooler weather ok .take it easy.

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Re: Kathleen (# 165)

Sounds like you had fun in Haight Ashbury !!yep tacos are good I like Mexican food ,food use to be boring in Australia when I was young,then we started getting migrants in and everything improved food included, sounds hot where you are ,I sure know how that feels ,I was told last summer if feeling real hot try putting feet in cold water ,or maybe even a wet towel or cloth around neck ,can't say I'm looking forward to summer ,I think this is a bit of a redneck town so don't mind not mixing much,I think the hotel is the main place people go,as I don't drink I don't go there ,lol ,Carmichael sounds like good place ,it must be interesting being near Mexico border ,Lismore is nearest bigger town takes me about half hour to drive ,seems to be more an more people sleeping in parks and on the streets it must be real cold atm it's terrible to see some are real young,use to see the odd homeless old guy, but now it's young people it seems ,this was suppose to be a short hello ,so hope your wrists arnt too bad and you can get some cooler weathger ok .take it easy.

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Re: CathyD (# 128)

Hi. How are you doing post Epclusa? I've also been having neuropathy problems, shortness of breath, numb feet, nausea. That's about half I think. It's getting late but I'm too tired to think. I bought creme yesterday. It has capsicum or chilli in it. Now my feet feel worse on fire. Middle of winter here now, so not much fun with side effects. Anyway, hope you are ok. Take care. You're not alone.

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Re: Kathleen (# 165)


Hi, just a short message. My feet ached so much last night I had to buy some ointment put it on my feet, then read where it's made from chillies! Really feels like my feet are on fire now. I've tried standing in water and putting other cream on it but nothing works. On the label it said it may take 3 or 4 weeks to stop pain in my feet. I'm suppose to put it on my feet 3 times a day. No way am I going to use it. Good night.

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Re: Lou (# 169)

Think I've worked it out?

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Re: Lou (# 169)

Oh so sorry about your feet. Epclusa strikes again.
Seems like you and I would have done well without Epclusa.
I am exhausted all day everyday.
It just took all joy out of my life.
I have always been upbeat.
Friendly, open and community minded.
I now want to stay home away from most people because it seems easier.
I never felt this way until about a few weeks in to taking Epclusa.
Its sad you and I areva world away. You are my fruend and I would very much like to talk with you in person.
Im not hitting on you so dont be scared off.
Im way to old for romance but feel like we could be buddies.
Take care. Thinking of you.

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Re: Kathleen (# 170)

I'm same,I think as we get older it's harder to find people I can be bothered trying to get to know sometimes that is just easier being bit anti social sometimes lol ,I really enjoy our little raves ,really interesting ,your not that old I think Rolling stones are in 80s lol ,it's good comparing what we've been thru ,awful as it was ,sometimes I wonder if maybe could have been worse if we didn't do treatment so hard to say ,anyway Kathleen at least we have survived this far ,a lot of people didn't ,stay safe, ok might try get some sleep feet have finally near stopped burning from silly chilli ointment I bought .now I can't Evan use it.oh well!!

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