Epclusa Ruined My Life (Page 7)

Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

REPLY

REPORT

Re: Kathleen (# 119)

Thanks Kathleen, means a lot to know you're there!!

REPLY

Was this helpful? 0

Re: KB (# 120)

So sorry you're in the hospital. Are you going to finish your Epclusa? Oh God what have they done?
I have a doctors appointment in two days because of tbe 24/7 ringing in my ears since Epclusa.
There are so many things they have ruined.
Please fight hard to get well.
Thinking of you.

REPLY

Was this helpful? 0

Re: KB (# 120)

Good luck kB from Australia. I'm also on antibiotics for a lung infection, waiting for them to hopefully clear my chest, having late onset asthma plus smoke from fires, also a heatwave here doesn't help much. Take it easy. My thoughts are with you.

REPLY

Was this helpful? 0

Re: Katherine (# 4)

Hair loss happened post treatment or at least that is when I noticed it. Too many other things were happening while on Harvoni.....irregular heartbeat, high PB, neuropathy, lung issues......

REPLY

Was this helpful? 0

Epclusa and Harvoni both have sofosbuvir. Many have reported neuropathy and nerve issues although that is not one of the MOST common side effects. That has been a side effect reported to the FDA from day 1 for those taking these anti-virals.

REPLY

Was this helpful? 0

Re: CathyD (# 124)

Hello. Yes the negative side effects are still occuring and in june it will be two years since Epclusa. My hair fell out a lot. Came in thin and dead feeling. Ringing in my ears are so bad I Finally Friday went in and got hearing aids to see if we can block out that the horrible ringing I have in my ears. But it doesn't. I have joint pain I can't sleep my teeth have gotten dad and I had beautiful teeth at 72 and it's just a never-ending. The bad thing is that I contacted you lead they refused to acknowledge I exist and I've talked with my nurse practitioner and the doctor and they all say that the side effects could have anything to do with it and I've told them both and put on their big person pants and come to this webpage this forum and check it out and they won't. So it's obvious that quite a few people are getting paid off at the expense of our health and wellness. I'm dying anyway my hep C then the cirrhosis had a blood transfusion and 78 which started hep C which I didn't know about that turned into cirrhosis and now I'm dying from stage 4 cirrhosis. I never drank and I never did any drugs. And still they refuse to respond or to be responsible in any way for how I feel. I don't know what we can do I contacted attorneys and none of them are willing to take on big Pharma because it would be costly and take many many years and they said probably I'd be dead before it even went to court. So I don't know what we all can do except for to voice ourselves loudly on this site and I hope that people that are on it or getting ready to use it ask a lot more questions than we did and get a lot of lot more information than we were given I wish you the best of luck Cathy D and if you want to talk or ask any sessions I'm always here. Take care, sleep well and drink plenty of water and make sure to take up close at the same time everyday.

REPLY

Was this helpful? 0

Re: Lou (# 123)

Lou. Hi. I'm writing you to let you know I am feeling do down. Like life is nothing. Epclusa has ruined what little life left in me. Its difficult to want to go anywhere. Everything is a chore. Can you identify? I just need someone to understand how my thought process is going. You and I have been there for each other and you have been a Godsend to me. I think of you evety day and hope your struggles lighten. I know we are stuck in this place and no one understands. I wish pharma would get what we ate saying. What would you think about me contacting one of those big television conglomerates and asking them to do a story on all of us that are being tortured after treatment and nobody cares. I wonder if that's something that big farmer would finally wake up and acknowledge us for? I'm not suicidal I don't mean that I just mean that I feel like life holds nothing joyous for me in the future. I take a every day as it comes and I push myself to cook and clean and do my makeup and my hair and put a smile on for everybody but that's not what I feel inside I hurt and anguished and I just feel like the company's don't care they just don't care. I hope this finds you well and I hope your lungs are getting a little better. I've seen on the news that the fibers are dying down and what a phenomenally hellish charred Earth has left you there. All the babies all the animals everything gone for what? I think of you and I pray for you and I wish you well and hope to hear from you Lou

REPLY

Was this helpful? 0

Re: Kathleen (# 127)

There are many of us who are suffering horribly from these anti-virals. They may be a miracle cure for some but for many of this has been life altering in a very bad way. I now have a 24/7 headache for 5 years now, neuropathy, decreased lung function, joint pain, chronic fatigue, tinnitus, none of which I had before taking the drug and all appeared in the 12 weeks I took the drug.

REPLY

Was this helpful? 0

Re: Kathleen (# 127)

Hi Kathleen, I can totally relate to what you are saying feeling ,it is really hard to get motivated ,plus I get exhausted so easy,what really annoys me is if I complain to the liver people over here they always have same answer,"oh I never heard of that happening before" so frustrating ,I really think we are not alone in all of this ,I'm nearly 70 and thru the years I have had to deal with all kinds of people ,some good some not so good ,but with this last lot of so called professionals I feel like I have been used as a guinea pig a bit ,I am very thankful to be rid of virus ,but I feel we could have been told about side effects we might get being older then a lot of people doing tx,IV always been worried about the high viral load I carried around for yrs usually over 9 million ,I had teeth work done and my VL went into 20mills my dr said the anti biotics and flu vaccines may elevate my numbers ,my GP said maybe I shud start thinking about doing tx but she wasn't real keen for me to do it as I was feeling ok considering age ect,anyway imentioned my VL to liver dr,he said don't worry bout VL ,just do the tx think how great you will feel ,kinda makes me think maybe a bit more investigating should be done on some people especially like us who have other complications ,hope I'm making sense it's early morning over here ,this hot weather seems to make my feet swell a bit more then usual plus some days can hardly keep eyes open ,that new virus sweeping the world doesn't sound very good does it ,I really feel sorry for the young kids who have not experienced much of life ,must be a worry ! I don't like the idea of some of these so called world leaders making decisions for us,if anything bad was to happen they probably have there own underground bunkers with all the mod cons ,I don't know how they sleep sometimes ,they can be very selfish mean ,any way my friend Kathleen try not to feel bad ,I know it's hard not too,I'm just glad I watch tv listen to radio ,world's strange place ,I might go make a coffee..peace take care.

REPLY

Was this helpful? 0

Re: Kathleen (# 126)

{edited for privacy}. I have been trying to fight Gilead since Harvoni came out. Then they added two other anti-virals but they all have sofosbuvir which we think is the culprit. Those on Epclusa have the identical horrible health issues from taking that drug as those who took Harvoni.

REPLY

Was this helpful? 0

Re: CathyD (# 128)

Hi ,hope you are feeling not too bad ,I finished tx about 14mths ago ,tx got rid of virus ,but I think it has caused many more problems ,I had overlap asthma diagnosed pre treatment but was never as bad as it is Poste treatment ,we've had fires heatwaves here so my breathing hasn't been good,since tx IV had bloating numb puffy feet hands sometimes ,somedays so exhausted can't keep eyes open,Evan having a shower is hard work,this is a really good site ,I get a lot more info ,then from drs or liver people ,who I feel are guessing a lot of the time ,,I don't think anyone knows enough about DAAs yet and what harm they can do ,take care good luck.

REPLY

Was this helpful? 0

Re: CathyD (# 130)

Surely Gilliard can't get away with this,when I spoke to the liver people where I live who are responsible for putting people on treatment ,they were so nice helpful ,once on treatment no support at all ,they had the same rehearsed answer to everyone who had complications "oh really well IV never heard of that before " they just don't care only interested in$$$ since when has drug companies been concerned with anything to do with people who may have been infected by a medication or lifestyle ??,too many lies are being told to people ,

REPLY

Was this helpful? 0

Re: CathyD (# 130)

Good luck with everything ,I'm 14mths Poste tx,IV just about given up trying to get answers and not lies , I'm at stage now where I keep thinking what's the next medical problem I'm going to get ,I really feel so much worse after doing there treatment , I keep flashing back to the day I signed up for treatment ,must have spoke to liver dr for 5 minutes ,he had his little speech worked out "don't worry this treatment is so easy,worse thing may be slight headache don't worry we are always here for support for you"total lies I had no support at all, if I had my time over I wouldn't touch Epclusa
Feel IV aged 20 yrs hope you are ok.

REPLY

Was this helpful? 0

Re: Lou (# 131)

So spent week end in hospital. My liver was so hurting. I was nauseous and all they could do was put an iv and give me anti nausea med and morphine. No kind of helpful meds to help me at home.

Says if they start me on pain medication now did I return into an addict before I die. That's almost laughable. I'm terminally ill and they're worried about me being addicted to drugs. Oh well it just another slap in the face from Jolene. They obviously don't read this forum and they should. Kathy D I hope that you're feeling better and Lou I wish the best to you I wish we could get together and find something out how to how to get to these people I thought I had an attorney online but they don't even want to fight big Pharma so it's a battle between tour sick people against Pharma. Guess who's going to lose anyway I just wanted to say hello and give hope to all those out there that are just starting their hep C medication that it is held to get through but at the end if there's no cirrhosis then you started a new life so please take your medication on time everyday don't skip it try to take it early in the morning because it takes 10 to 12 hours to wear off so that you can try to get some kind of sleep at night. I learned through 12 weeks of epclusa that that was the best bet for me. Godspeed

REPLY

Was this helpful? 0

Re: Kathleen (# 127)

Hi Kathleen, hope you are not feeling to bad,where I live has been very hot humid,near impossible to sleep at night, humidity above 85 most nights ,it must have been so bad when one of your cyclone hit America ,the grass is growing so fast as it was so dry for long time,the ground here is so muddy waterlogged starting to smell ,I live in a town that floods if get too much rain,I think this heat is making my symptoms worse Edema numb feet insomnia ect, how have you been?must be nice having cool weather ,do you get snow where you live? I have never seen snow ! Take it easy Kathleen,it's 4 am might try get one hour sleep before starts warming up.

REPLY

Was this helpful? 0

Re: Lou (# 134)

Kathleen, sorry I meant to say hurricane,,we get cyclones here,but luckily no Hurricanes ,IV seen on tv the damage they can do so hot here today ,hope you are having ok day and enjoying nice cool weather ,

REPLY

Was this helpful? 0

Re: Kathleen (# 134)

Hi Kathleen, so sorry to you have been in hospital, really hope you are feeling a bit better. I'm sure some of these drs don't understand what it's like to be in pain nor do they care. My dr is the same - I really needed something for anxiety when I had my loss of hearing, his words were "I could give you something for anxiety but it's very addictive you don't want a drug problem." I give up with some of these young no feelings dr they are so young uncaring ,not all I suppose but the liver dr I saw before I started Epclusa was so arrogant I must have spoke to him for 5mins at the most and reminded me of a snake oil salesmen from the ol west ,best dr I had was few years ago now he was an older gentleman been a medic in 2nd ww.,he was very caring did house calls if needed and was very caring,pity not more are like that,instead of being arrogant uncaring superior attitude ,anyone would think the meds you need are coming out of there pay,very hot humid here ATM muddy ,I realise now that it's not only hot weather that triggers my asthma but damp cooler weather also seems to effect me,since doing treatment my feet legs are giving me problems the dr I see has no answers ,all he does is ring the liver clinic and they assure him that Epclusa would not have cause my problems problem I feel as if ,no one really understands ,I am so sick of coughing and waking up all night ,my best thoughts and prayers are with you,please take care keep in touch ,

REPLY

Was this helpful? 0

Re: Kathleen (# 127)

Hi,hope your liver pain has eases a bit for you , been thinking about how bad it must of been for you ,not being able to get relief from drs, Do you have any family or friend who you can talk to-your lucky if you do ,I used to have friends but as you get older they seem to thin out IV found ,as for family I won't go there today ,,i don't want to bore you ,lol I had a abdominal xray yesterday to see if anything they can see is causing bloating,the liver people say I have cleared the virus so far ,I'm confused as I seem to have symptoms of liver problems ,I will be interested to see what xray finds ,I'm really tired of trying to talk to drs ,all these aches pain really exhausting for me, I feel useless ever since this Gilliard crap started ,IV been getting these body jerks where I almost fall off chairevery day ,I told my dr ,he didn't suggest anything,I read on line where bloating and body jerks can be sign of liver problems , probley DAAs, take care,this stupid phone can't spell keeps putting wrong letter in, lol

REPLY

Was this helpful? 0

Re: Skpp930 (# 7)

So true ,I feel exactly the same ,on top of every other thing I'm so bloated on abdomen feel so exhausted unbalanced sick ,and your right no way is my dr gonna say anything against Epclusa,they talked me into doing the crap med ,I could feel it doing damage ,I should have stopped ,never in my whole life have I felt like this no support at all,felt so much better before tx.now new virus to put up with ,I'd say anyone who has done Epclusa could be victims due to damage done to our immune system s.take care ,I'm in Australia lot of people same .

REPLY

Was this helpful? 0

Re: Kathleen (# 17)

So true ,I feel exactly the same ,on to,p of every other thing I'm so bloated on abdomen feel so exhausted unbalanced sick ,and your right no way is my dr gonna say anything against Epclusa,they talked me into doing the crap med ,I could feel it doing damage ,I should have stopped ,never in my whole life have I felt like this no support at all,felt so much better before tx.now new virus to put up with ,I'd say anyone who has done Epclusa could be victims due to damage done to our immune system s.take care ,I'm in Australia lot of people same .,, Kathleen ,how are you? I'm really worried about this new virus ,feel like we are sitting ducks thanks to Epclusa I really don't feel I can take another problem,my breathing is so bad now ,after the fires now we have mud dampness mold everywhere ,stupid cortasteroid don't help much I think maybe they do I don't know ,I know dr getting sick of my problems ,he can't fix anything nor does he understand,hope your doing better then me ,it's starting to really get me down ,take care please .

REPLY

Was this helpful? 0

I was on Prozac (fluoxetine) for about 8-9 years starting when I was about 14 years old. I'm 23 now and for about th...

25 REPLIES

I had mild psoriasis on my scalp, elbows, and a few on my legs. Within three days of being given an intramuscular inject...

3 REPLIES

Told to take Apixaban after "supposed" pulmonary embolism...but NO proof! They then discovered I had a lung infe...

I have been on prozac for the last two and a half years and it has ruined my life. Since taking prozac I have lost my jo...

4 REPLIES

I am 19 years old and I have been on Vyvanse for 3 years now. I started out with 50mg and it was amazing. I could stay f...

3 REPLIES

Hello, I am 7 years out from Epclusa. When I first started taking Epclusa, it was very frightening. Every time I took th...

I took Topiramate for seven days. On the eighth day I had pressure that went up to 60 and 70 in my eyes and ended up in ...

6 REPLIES

Hi there, I have a strange question that i cant find the answer for. I took Tramadol/Zydol for around 7 months for back ...

2 REPLIES

Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy....

167 REPLIES

Has anyone taken Epclusa and experienced back and leg pain? I already have 2 herniated discs but it seems that since I s...

33 REPLIES